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Issues in Dementia Caregiving: Effects on Mental and Physical Health, Intervention Strategies, and Research Needs
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“Caregivers of dementia patients in particular suffer more than other CGs–they tend to have worse mental and physical health, less leisure time, more employment complications and more family conflict [2, 3].”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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“and can lead to deterioration in CGs' physical health, psychological well-being and social relations [2].”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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“Caring for relatives with dementia creates various stressors for CGs—including care recipients’ (CRs) memory and behaviour problems, communication problems, conflict and role strain”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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Citations
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Self-citationIs caregiving hazardous to one’s physical health? A meta-analysis
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Meta‐Analysis of Psychosocial Interventions for Caregivers of People with Dementia
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Items 201–243 of 243
Caring for the Carers of People Living with Dementia – Looking after Yourself as a Carer
Srikanth, P., & Reddy, G. (2022) · Journal of The Indian Academy of Geriatrics · doi:10.4103/jiag.jiag_64_22
HIGGS, P. F. D., & Gilleard, C. J. (2016) · Policy Press eBooks · doi:10.51952/9781447319078.bm001
Malinin, L. H., Faw, M. H., & Davalos, D. B. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1149711
“Caring for a person with ADRD (PWD) is associated with significant stressors, and growing evidence demonstrates that informal care-partners’ (CPs) needs are often unaddressed by healthcare professionals or PWD interventions (Sörensen and Conwell, 2011; Association, 2019; Lindeza et al., 2020).”
BackgroundRahmi, U., Amalia, K., Andriyani, S., Fitriana, L. A., Putri, S. T., Murtiani, F., & Widiantari, A. D. (2023) · Jurnal Keperawatan Komprehensif · doi:10.33755/jkk.v9i3.490
Adibi, A., & Jamshidbeigi, T. (2023) · Mental Wellness · doi:10.4081/mw.2023.7
Sayadnasiri, M., Darvishskandari, S., Latifian, M., & Islam, S. M. S. (2024) · Journal of Alzheimer s Disease Reports · doi:10.3233/adr-230123
Mroz, E. L., Schwartz, A. E., Valeika, S., Oettingen, G., Marottoli, R. A., David, D., Hagaman, A. K., Fedus, D., & Monin, J. K. (2024) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.6092
“39 42 While WOOP already appears to be a platform for developing this understanding, we assert that facilitators can play a vital role in guiding care partners to respond well to their spouses' emerging symptoms of dementia by emphasizing the utility of the intervention's four steps as symptoms…”
BackgroundTake-Home Messages and Further Readings
Wong, G. H. Y., Ma, B. H., Lee, M. N. Y., & Dai, D. (2024) · Cambridge University Press eBooks · doi:10.1017/9781108989336.007
Canell, A. (2024) · Psychology of Women Quarterly · doi:10.1177/03616843241269978
Scott, J. A., Cepukenas, E., Himes, M., Anderson, K., Grewal, K., Mai, A., Yuter, S., & Simone, P. M. (2024) · doi:10.2196/preprints.69596
Acceptability, Appropriateness and Feasibility of a Psychoeducation Tool About Dementia Grief
Rupp, L., Abele, C., & Haberstroh, J. (2025) · European Journal of Health Psychology · doi:10.1027/2512-8442/a000173
Sattari, Z., Deeg, D. J. H., Meijering, L., & Weitkamp, G. (2025) · The Gerontologist · doi:10.1093/geront/gnaf108
“More education and resources help caregivers maintain a healthier lifestyle and better physical functioning in order to weaken the negative health consequences associated with both caregiving and aging, as suggested by Smith et al. (2015) and Sörensen and Conwell (2011).”
Family Caregiving for Older Persons With Dementia at End-of-Life: A Comprehensive Overview
Hovland, C. A. (2025) · Emerald Group Publishing Limited eBooks · doi:10.1108/978-1-83549-612-120251003
Overview of Nootropic Agents in South Korea and the Impact of Nutrition on Cognitive Function
Park, H. J. (2025) · Korean Journal of Geriatrics & Gerontology · doi:10.15656/kjgg.2025.26.2.51
Activities of Daily Living in Dementia Differentially Contribute to Factors of Caregiver Burden
Cousins, E., Patrick, K. S., Martin, J. T., Was, C. A., Drost, J. C., & Spitznagel, M. B. (2025) · Journal of dementia and Alzheimer's disease · doi:10.3390/jdad2040040
“You Don’t Feel Alone”: Perceptions of the My Tools 4 Care-In Care Web-Based Interactive Toolkit
Thompson, G. N., Peacock, S., Kraut, J., Harrison, T., O’Rourke, H. M., Baxter, P. E., Dubé, V., Swindle, J., & Duggleby, W. (2025) · Global Qualitative Nursing Research · doi:10.1177/23333936251390491
Seetharaman, K., Kervin, L. M., Khan, K. B., Cooke, H. A., & Baumbusch, J. (2025) · SSM - Qualitative Research in Health · doi:10.1016/j.ssmqr.2025.100677
Phuenpathom, W., Sringean, J., Phumphid, S., Rattanapitak, N., Laithaisong, A., Srisang, T., Sanyawut, K., Anan, C., & Bhidayasiri, R. (2025) · Journal of Neural Transmission · doi:10.1007/s00702-025-03077-w
Yuan, Q., Zhang, Y., Samari, E., Jeyagurunathan, A., Goveas, R. R., Ng, L. L., & Subramaniam, M. (2023) · Figshare · doi:10.6084/m9.figshare.22605493
Chan, C. Y., Cheung, G., Martínez-Ruiz, A., Chau, P. Y. K., Wang, K., Yeoh, E. K., & Wong, E. L. Y. (2021) · Figshare · doi:10.6084/m9.figshare.14457107
Lane, N. E., Hoben, M., Amuah, J. E., Hogan, D. B., Baumbusch, J., Gruneir, A., Chamberlain, S. A., Griffith, L. E., McGrail, K. M., Corbett, K., et al. (2022) · Figshare · doi:10.6084/m9.figshare.20484931
Ito, Y., Tsubaki, M., Kajiwara, K., Kobayashi, M., Sakuramoto, H., Yamanaka, M., Kako, J., & Kakeda, T. (2026) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70260
Wiegelmann, H., Speller, S., Verhaert, L.-M., Schirra-Weirich, L., & Wolf‐Ostermann, K. (2021) · Figshare · doi:10.6084/m9.figshare.13684771
Wiegelmann, H., Speller, S., Verhaert, L.-M., Schirra-Weirich, L., & Wolf‐Ostermann, K. (2021) · Figshare · doi:10.6084/m9.figshare.13684774
Wiegelmann, H., Speller, S., Verhaert, L.-M., Schirra-Weirich, L., & Wolf‐Ostermann, K. (2021) · Figshare · doi:10.6084/m9.figshare.13684777
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“Psychological and emotional needs also emerged as a significant concern (66.5% relative importance), consistent with global evidence linking caregiving to heightened, depression, and social isolation [16, 19–21, 28, 37].”
InfluentialPerepezko, K. M., Gallagher, V. T., Glazer, J. V., Donovan, H. S., Mattos, M. K., Klinger, J., Buysse, D., Ritterband, L. M., & Shaffer, K. M. (2026) · International Journal of Behavioral Medicine · doi:10.1007/s12529-025-10425-3
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Exploring relative health spillover effects within the context of dementia using the EQ-HWB-9
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“Informal care-givers or people who provide unpaid care, such as helping with daily activities, managing medications, or attending appointments (e.g., a spouse, parent, or adult child) often face social isolation, experience feelings of anxiety and loneliness, and bear high financial burden [3–6].”
Unbehaun, D., Taugerbeck, S., Ahmadi, M., Aal, K., Thiel, K., Tolmie, P., & Wulf, V. (2026) · Computer Supported Cooperative Work (CSCW) · doi:10.1007/s10606-026-09538-4
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“Research also highlights signs of post-traumatic stress disorder (PTSD) among the informal caregivers of dementia patients [45].”
A Toolkit Intervention for Alzheimer’s Caregivers: Effects on Preparedness, Burden, and Growth
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“Numerous investigations have found that dementia caregivers report higher levels of stress, anxiety, and depressive symptoms than non-caregivers of individuals with other chronic diseases [48–50].”
Financial toxicity and multidimensional economic strain among dementia caregivers
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Sarcopenia in Informal Caregivers of Persons Living with Dementia: A Scoping Review
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Metadata
- Authors
- Sörensen, S., & Conwell, Y.
- Affiliations
- University of Rochester Medicine (US)
- Corresponding author
- Sörensen, Silvia
- Venue
- The American Journal of Geriatric Psychiatry
- Publisher
- Elsevier BV
- Published
- 2011-06
- Volume
- 19
- Issue
- 6
- Pages
- 491-496
- ISSN
- 1064-7481 (ISSN-L)
- PMC
- PMC3774150
- OpenAlex
- W2110724390
- Cited by
- 242
- References
- 51
- Citations by year
- 2026: 23 · 2025: 37 · 2024: 21 · 2023: 22 · 2022: 24 · 2021: 17 · 2020: 15 · 2019: 17 · 2018: 17 · 2017: 6 · 2016: 9 · 2015: 8 · 2014: 10 · 2013: 10 · 2012: 4
- FWCI
- 5.72
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- American Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (R24MH071604)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia caregiving, caregiver burden, caregiver health outcomes, caregiver mental health, caregiver physical health, caregiver interventions, caregiver support, older adults, research needs
- MeSH terms
- Dementia, Health Status, Humans, Mental Health, Research, Caregivers, Cost of Illness
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