Transitioning Into the Role of Mother Following the Birth of a Very Low-Birth-Weight Infant: A Grounded Theory Pilot Study
Abstract
This qualitative grounded theory pilot study investigated the concerns and coping mechanisms of mothers of very low-birth-weight (VLBW; <1500 g) infants following discharge from the neonatal intensive care unit in Alberta, Canada. In-depth, semistructured, face-to-face, audio-recorded interviews were conducted with women of VLBW infants. Interviews lasting 75 to 90 minutes were transcribed verbatim and coded using grounded theory methodology. Data saturation and theoretical redundancy were achieved in interviews with 6 mothers of VLBW infants. The core variable of "reconstructing normal" emerged from the interview data. Women indicated that mothering a VLBW infant is an unfolding experience that is continuously being revised, creating a new sense of normal. The construct consists of 4 categories; mother-infant relationship, maternal development, maternal caregiving and role-reclaiming strategies, and infant developmental milestones. Findings from this study suggest that women found the transition into motherhood following the birth of a VLBW infant as a multidimensional and dynamic process. Further research is warranted to confirm these results and to further explore mothering issues with VLBW infants.
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Preterm infants have underdeveloped organs.
“Despite meeting discharge criteria, preterm infants are often smaller than full‐term infants, with underdeveloped organs, and may experience challenges with feeding and basic care (Aydon et al. 2018; Bright et al. 2020; Larsson et al. 2017; Spence et al. 2023; Waldron 2022).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Fathers' role is relegated to that of financial provider while their emotional needs are neglected.
“For fathers, resources and social support often center on the baby's mother, relegating their role to that of the financial provider while neglecting their emotional needs (Aydon et al. 2018; Bright et al. 2020; Griffin and Pickler 2011; Lundqvist et al. 2019; Veronez et al. 2017; Sun et al. 2023).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Preterm infants may experience challenges with feeding and basic care.
“Despite meeting discharge criteria, preterm infants are often smaller than full‐term infants, with underdeveloped organs, and may experience challenges with feeding and basic care (Aydon et al. 2018; Bright et al. 2020; Larsson et al. 2017; Spence et al. 2023; Waldron 2022).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Disconnection from social life underscores the importance of partner support during the transition.
“This disconnection from social life underscores the importance of partner support during the transition (Aydon et al. 2018; Bright et al. 2020; Griffin and Pickler 2011; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
For fathers, resources and social support often center on the baby's mother.
“For fathers, resources and social support often center on the baby's mother, relegating their role to that of the financial provider while neglecting their emotional needs (Aydon et al. 2018; Bright et al. 2020; Griffin and Pickler 2011; Lundqvist et al. 2019; Veronez et al. 2017; Sun et al. 2023).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Many parents reported a lack of confidence due to insufficient knowledge and skills in caring for their preterm infants at home.
“Many parents reported a lack of confidence due to insufficient knowledge and skills in caring for their preterm infants at home (Aydon et al. 2018; Breivold et al. 2019; Bright et al. 2020; Fairless et al. 2021; Griffin and Pickler 2011; Hua et al. 2021; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Social media serves as an important source of information for preterm care.
“Social media also serves as an important source of information for preterm care; however, the variability in content makes it challenging for parents to discern reliable information (Aydon et al. 2018; Bright et al. 2020; Fairless et al. 2021; Griffin and Pickler 2011; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Preterm infants are often smaller than full-term infants despite meeting discharge criteria.
“Despite meeting discharge criteria, preterm infants are often smaller than full‐term infants, with underdeveloped organs, and may experience challenges with feeding and basic care (Aydon et al. 2018; Bright et al. 2020; Larsson et al. 2017; Spence et al. 2023; Waldron 2022).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Variability in social media content makes it challenging for parents to discern reliable information.
“Social media also serves as an important source of information for preterm care; however, the variability in content makes it challenging for parents to discern reliable information (Aydon et al. 2018; Bright et al. 2020; Fairless et al. 2021; Griffin and Pickler 2011; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Ongoing support from community general practitioners, nurses, and online resources was identified as valuable assets.
“Ongoing support from community general practitioners, nurses, and online resources was identified as valuable assets (Aydon et al. 2018; Bright et al. 2020; Hua et al. 2021; Larsson et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Some parents noted issues related to communication with healthcare professionals, including inaccurate information transfer and information overload, which contributed to feelings of insecurity.
“However, some parents noted issues related to communication with healthcare professionals, including instances of inaccurate information transfer and information overload, which contributed to feelings of insecurity (Aydon et al. 2018; Bright et al. 2020; Spence et al. 2023; Toral‐López et al. 2016; Sun et al. 2023).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Parents highlighted the potential for nurses to provide home care services, which would enhance their confidence in managing care of their preterm infants at home.
“Furthermore, parents highlighted the potential for nurses to provide home care services, which would enhance their confidence in managing the care of their preterm infants at home (Aydon et al. 2018; Bright et al. 2020; Griffin and Pickler 2011; Hua et al. 2021; Spence et al. 2023; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
Growing competence enabled parents to regain control and take initiative in providing care, focusing on hygiene, daycare, and preventing cross-contamination.
“This growing competence enabled parents to regain control and take the initiative in providing care for their babies, focusing on hygiene, daycare, and preventing cross‐contamination (Aydon et al. 2018; Bright et al. 2020; Fairless et al. 2021; Griffin and Pickler 2011; Veronez et al. 2017).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Bright et al. 2020
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“Interventions and efforts by healthcare providers (HCPs) in the NICU have attempted to increase maternal sensitivity and self-efficacy in VLBW mothers; yet, these mothers are frequently ill-prepared for discharge and are left wanting more information about how to navigate the transition home.(24) Currently, the litera…”
BackgroundTransition From Hospital to Home in Parents of Preterm Infants: A Literature Review
Boykova, M. (2016) · Journal of Perinatal & Neonatal Nursing · doi:10.1097/jpn.0000000000000211 · Cited by 65 · see citing works
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Lu, Q., Liu, X., Shen, Q., Wang, S., & Liu, Z. (2025) · Nursing Open · doi:10.1002/nop2.70387 · Cited by 3 · see citing works
“Despite meeting discharge criteria, preterm infants are often smaller than full-term infants, with underde-veloped organs, and may experience challenges with feeding and basic care (Aydon et al. 2018; Bright et al. 2020; Larsson et al. 2017; Spence et al. 2023; Waldron 2022).”
Influential
- Authors
- Bright, K. S., Mannion, C., White, D., & Raffin Bouchal, S.
- Affiliations
- University of Calgary (CA)
- Venue
- Journal of Perinatal & Neonatal Nursing
- Published
- 2020-04
- Volume
- 34
- Issue
- 2
- Pages
- 125-133
- ISSN
- 0893-2190 (ISSN-L)
- OpenAlex
- W3017618610
- Cited by
- 7
- References
- 10
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 1 · 2021: 2
- FWCI
- 0.72
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Journal of Perinatal & Neonatal Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › General Health Professions › Maternal and Neonatal Healthcare
- Keywords
- very low birth weight infants, transition to motherhood, maternal coping, mother-infant relationship, maternal care, neonatal intensive care unit discharge, maternal development
- MeSH terms
- Adaptation, Psychological, Adult, Canada, Female, Humans, Infant, Newborn, Intensive Care Units, Neonatal, Maternal Behavior, Mother-Child Relations, Mothers, Pilot Projects, Pregnancy, Parenting, Infant, Very Low Birth Weight, Qualitative Research, Premature Birth, Grounded Theory
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