Health Information–seeking Behaviors and Preferences of a Diverse, Multilingual Urban Cohort
Open accessAbstract
Introduction: In order to address health disparities, it is important to understand how vulnerable individuals seek information. This study used an adapted version of the Health Information National Trends Survey (HINTS) administered in English, Spanish, and Chinese to describe the behaviors and preferences of a diverse group of vulnerable urban residents. Methods: We administered a modified HINTS survey in English, Spanish, and Chinese and used purposive sampling to ensure 50% were non-English speakers evenly divided between Spanish and Chinese speakers, and 50% of English-speakers identified as Black. We used multivariable logistic regression to determine characteristics associated with sources used for health information and preferences for delivery of health information. Results: Among 1027survey respondents (514 English, 256 Spanish, 260 Chinese), 55% had adequate health literacy, and 50% reported household income <$20,000, but 77% reported owning a smartphone. A plurality sought health information on the Internet (39%) or from a health care provider (36%). In multivariable analyses, smartphone ownership predicted higher odds of seeking health information on the Internet [odds ratio, (OR) 2.98; 95% confidence interval (CI), 1.81–4.91]. Participants most preferred email (41%) and brochures (40%) for delivery of health information, but non-English survey respondents were less likely to prefer email: Spanish (OR, 0.30; 95% CI, 0.11–0.83) and Chinese (OR, 0.25; 95% CI, 0.09–0.71). Smartphone ownership predicted an email preference (OR, 2.19; 95% CI, 1.43–3.36). Conclusions: Among vulnerable populations, smartphone ownership and language preferences impact preferences for seeking and receiving health information. These preferences need to be considered in designing health messages.
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In the included studies, digital health interventions improved timeliness of and accessibility to health care and information.
“This included improved user experience, timeliness of and accessibility to health care and information, consistent with studies in other settings20,85,86.”
From Digital health interventions for non-communicable disease management in primary health care in low-and middle-income countries (2023) · cites this paper as [86]
In the included studies, digital health interventions improved user experience.
“This included improved user experience, timeliness of and accessibility to health care and information, consistent with studies in other settings20,85,86.”
From Digital health interventions for non-communicable disease management in primary health care in low-and middle-income countries (2023) · cites this paper as [86]
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Eysenbach, G., Powell, J., Kuss, O., & Sa, E.-R. (2002) · JAMA · doi:10.1001/jama.287.20.2691 · Cited by 1,871 · see citing works
Validation of Screening Questions for Limited Health Literacy in a Large VA Outpatient Population
Chew, L. D., Griffin, J. M., Partin, M. R., Noorbaloochi, S., Grill, J. P., Snyder, A., Bradley, K. A., Nugent, S. M., Simon, A. B., & van Ryn, M. (2008) · Journal of General Internal Medicine · doi:10.1007/s11606-008-0520-5 · Cited by 1,432 · see citing works
Instrument translation process: a methods review
Maneesriwongul, W., & Dixon, J. K. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03185.x · Cited by 1,322 · see citing works
Kontos, E., Blake, K. D., Chou, W.-Y. S., & Prestin, A. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3117 · Cited by 917 · see citing works
Patient Portals and Patient Engagement: A State of the Science Review
Irizarry, T., DeVito Dabbs, A., & Curran, C. R. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4255 · Cited by 732 · see citing works
Jacobs, W., Amuta, A. O., & Jeon, K. C. (2017) · Cogent Social Sciences · doi:10.1080/23311886.2017.1302785 · Cited by 639 · see citing works
Response rate in patient satisfaction research: an analysis of 210 published studies.
Sitzia, J., & Wood, N. (1998) · International Journal for Quality in Health Care · doi:10.1093/intqhc/10.4.311 · Cited by 430 · see citing works
Gordon, N. P., & Hornbrook, M. C. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.5105 · Cited by 369 · see citing works
Silver, M. P. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.3588 · Cited by 224 · see citing works
E-mail in patient–provider communication: A systematic review
Ye, J., Rust, G. S., Fry-Johnson, Y. W., & Strothers, H. (2009) · Patient Education and Counseling · doi:10.1016/j.pec.2009.09.038 · Cited by 198 · see citing works
Tieu, L., Schillinger, D., Sarkar, U., Hoskote, M., Hahn, K. J., Ratanawongsa, N., Ralston, J. D., & Lyles, C. R. (2016) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocw098 · Cited by 192 · see citing works
Self-citationNguyen, A., Mosadeghi, S., & Almario, C. V. (2017) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2017.04.008 · Cited by 180 · see citing works
Patient portals and health apps: Pitfalls, promises, and what one might learn from the other
Baldwin, J. L., Singh, H., Sittig, D. F., & Giardina, T. D. (2016) · Healthcare · doi:10.1016/j.hjdsi.2016.08.004 · Cited by 179 · see citing works
Identification of Limited English Proficient Patients in Clinical Care
Karliner, L., Nápoles‐Springer, A. M., Schillinger, D., Bibbins-Domingo, K. B., & Pérez‐Stable, E. J. (2008) · Journal of General Internal Medicine · doi:10.1007/s11606-008-0693-y · Cited by 125 · see citing works
Schickedanz, A. B., Huang, D., Lopez, A., Cheung, E., Lyles, C. R., Bodenheimer, T., & Sarkar, U. (2013) · Journal of General Internal Medicine · doi:10.1007/s11606-012-2329-5 · Cited by 115 · see citing works
Self-citationVangeepuram, N., Mayer, V., Fei, K., Hanlen‐Rosado, E., Andrade, C., Wright, S., & Horowitz, C. R. (2018) · mHealth · doi:10.21037/mhealth.2018.07.02 · Cited by 85 · see citing works
Connecting the Dots: Health Information Technology Expansion and Health Disparities
Lyles, C. R., Schillinger, D., & Sarkar, U. (2015) · PLoS Medicine · doi:10.1371/journal.pmed.1001852 · Cited by 80 · see citing works
Self-citationHaun, J. N., Patel, N. R., Lind, J. D., & Antinori, N. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.5152 · Cited by 69 · see citing works
Crotty, B. H., Tamrat, Y., Mostaghimi, A., Safran, C., & Landon, B. E. (2014) · Health Affairs · doi:10.1377/hlthaff.2013.1145 · Cited by 49 · see citing works
The San Francisco Cancer Initiative: A Community Effort To Reduce The Population Burden Of Cancer
Hiatt, R. A., Sibley, A., Fejerman, L., Glantz, S. A., Nguyen, T. T., Pasick, R. J., Palmer, N. R., Perkins, A., Potter, M. B., Somsouk, M., et al. (2018) · Health Affairs · doi:10.1377/hlthaff.2017.1260 · Cited by 40 · see citing works
Self-citationA Mixed-Methods Study of Patient–Provider E-Mail Content in a Safety-Net Setting
Mirsky, J. B., Tieu, L., Lyles, C. R., & Sarkar, U. (2015) · Journal of Health Communication · doi:10.1080/10810730.2015.1033118 · Cited by 31 · see citing works
Self-citationMassey, P. M., Langellier, B. A., Sentell, T. L., & Manganello, J. A. (2016) · Ethnicity and Health · doi:10.1080/13557858.2016.1244745 · Cited by 30 · see citing works
Cheng, C. C., & Dunn, M. (2016) · Health Promotion Journal of Australia · doi:10.1071/he15127 · Cited by 14 · see citing works
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Forgie, E. M. E., Lai, H., Cao, B., Stroulia, E., Greenshaw, A. J., & Goez, H. (2021) · Journal of Medical Internet Research · doi:10.2196/25230 · Cited by 101 · see citing works
Khoong, E. C., Butler, B. A., Mesina, O., Su, G., DeFries, T. B., Nijagal, M., & Lyles, C. R. (2021) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocaa234 · Cited by 94 · see citing works
Self-citationKhoong, E. C., Olazo, K., Rivadeneira, N. A., Thatipelli, S., Barr-Walker, J., Fontil, V., Lyles, C. R., & Sarkar, U. (2021) · npj Digital Medicine · doi:10.1038/s41746-021-00486-5 · Cited by 73 · see citing works
Self-citationChu, J. N., Sarkar, U., Rivadeneira, N. A., Hiatt, R. A., & Khoong, E. C. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.08.028 · Cited by 64 · see citing works
Self-citationXiong, Z., Zhang, L., Li, Z., Xu, W., Zhang, Y., & Ye, T. (2021) · Journal of Medical Internet Research · doi:10.2196/30855 · Cited by 51 · see citing works
Khoong, E. C., Rivadeneira, N. A., Hiatt, R. A., & Sarkar, U. (2020) · Journal of Medical Internet Research · doi:10.2196/16951 · Cited by 44 · see citing works
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Carpenter, C. A., Ugwoaba, U. A., Cardel, M. I., & Ross, K. M. (2022) · Digital Health · doi:10.1177/20552076221102774 · Cited by 29 · see citing works
Santiago-Rodríguez, E. J., Rivadeneira, N. A., Torres, J. M., Sarkar, U., & Hiatt, R. A. (2020) · Ethnicity and Health · doi:10.1080/13557858.2020.1838454 · Cited by 26 · see citing works
Self-citationSoleymani, M. R., Esmailzadeh, M., Taghipour, F., & Ashrafi‐rizi, H. (2021) · Health Information & Libraries Journal · doi:10.1111/hir.12396 · Cited by 24 · see citing works
Ausserhofer, D., Wiedermann, W., Becker, U., Vögele, A., Piccoliori, G., Wiedermann, C. J., & Engl, A. (2022) · Archives of Public Health · doi:10.1186/s13690-022-00847-w · Cited by 20 · see citing works
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Self-citationOh, K. M., An, K., Lee, M., Shin, C., & Steves, S. L. (2023) · Cancer Causes & Control · doi:10.1007/s10552-023-01720-z · Cited by 18 · see citing works
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Lee, J. L.-Y., Rawl, S. M., Dickinson, S., Teal, E., Baker, L. B., Lyu, C., Tarver, W. L., & Haggstrom, D. A. (2020) · Journal of General Internal Medicine · doi:10.1007/s11606-020-05903-1 · Cited by 16 · see citing works
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Reno, J. E., & Dempsey, A. F. (2022) · Journal of Behavioral Medicine · doi:10.1007/s10865-022-00293-7 · Cited by 15 · see citing works
Shucard, H. L., Muller, E., Johnson, J., Walker, J., Elmore, J. G., Payne, T. H., Berman, J. E., & Jackson, S. L. (2022) · Health Services Research and Managerial Epidemiology · doi:10.1177/23333928221080336 · Cited by 14 · see citing works
Zhuang, Y., Yang, D., & Han, Q. (2025) · Sustainable Cities and Society · doi:10.1016/j.scs.2025.106899 · Cited by 9 · see citing works
Rong, H., Lu, L., He, M., Guo, T., Li, X., Tao, Q., Li, Y., Zheng, C., Zhang, L., Li, F., et al. (2025) · JMIR Formative Research · doi:10.2196/56028 · Cited by 7 · see citing works
Health and information disparities among non-adopters of smartphones
Na, L., & Sheu, J. (2022) · Health Policy and Technology · doi:10.1016/j.hlpt.2022.100600 · Cited by 7 · see citing works
Karimian, Z., Moradi, M., Zarifsanaiey, N., & Kashefian‐Naeeini, S. (2024) · BMC Public Health · doi:10.1186/s12889-023-17400-1 · Cited by 6 · see citing works
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Hiatt, R. A., Sibley, A., Venkatesh, B., Cheng, J. W., Dixit, N., Fox, R. K., Ling, P. M., Nguyen, T. T., Oh, D. L., Palmer, N. R., et al. (2022) · Current Epidemiology Reports · doi:10.1007/s40471-021-00280-7 · Cited by 5 · see citing works
Self-citationBautista, J. R., Usman, M., Harrell, D. T., Desai, I., Holan, C. A., Cowley, C., Alexander, J., Hanson, L., Meyer, E. T., & Khurshid, A. (2022) · ACI Open · doi:10.1055/s-0042-1749192 · Cited by 4 · see citing works
Battling the feed: How social media has overtaken professional medical advice
Ayyad, M., & Walsh, J. (2026) · Patient Education and Counseling · doi:10.1016/j.pec.2026.109701 · Cited by 2 · see citing works
Majumdar, D., Webb, D., Parsons, S., Selwan-Lewis, E. M., Rettig, T. A., Chastain, E., Obanor, W., Birnberg, R., & Kuang, A. W. (2024) · Current Medical Research and Opinion · doi:10.1080/03007995.2024.2340720 · Cited by 2 · see citing works
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Wyles, C. L., Gephart, S. M., & Nunez, F. (2022) · The Journal of Perinatal & Neonatal Nursing · doi:10.1097/jpn.0000000000000644 · Cited by 2 · see citing works
Lopez-Olivo, M. A., Suarez-Almazor, M. E., Duhon, G. F., Cherry, M., Lu, H., Calabrese, C. M., Altan, M., Tawbi, H. A., Meara, A. S., Bingham, C. O., et al. (2024) · JMIR Cancer · doi:10.2196/53443 · Cited by 1 · see citing works
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Quartey, T., Peprah, C., & Morgan, A. K. (2025) · Scientific Reports · doi:10.1038/s41598-025-18110-x · Cited by 1 · see citing works
Kinany, K. E., Abdelhamid, A., Benedict, A., Aly, M., Abdelkarim, O., & Rhazi, K. E. (2026) · Frontiers in Digital Health · doi:10.3389/fdgth.2026.1805124 · Cited by 1 · see citing works
Chinese Americans’ Use of Patient Portal Systems: Scoping Review
Lawrence, K. S., Chong, S. K., Krelle, H., Roberts, T. R., Thorpe, L. E., Trinh‐Shevrin, C., Yi, S. S., & Kwon, S. C. (2021) · JMIR Human Factors · doi:10.2196/27924 · Cited by 1 · see citing works
Timony, P. E., Leone, A., Caron, C., Giguère, P., Thabet, P., Gauthier, A. P., Waite, N. M., & Landry, C. (2025) · Canadian Pharmacists Journal / Revue des Pharmaciens du Canada · doi:10.1177/17151635241308874 · Cited by 1 · see citing works
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Fernandez, L., Shillair, R., & Reisdorf, B. C. (2019) · SSRN Electronic Journal · doi:10.2139/ssrn.3427438 · Cited by 1 · see citing works
Неймарк, А. И., Mel'nik, M. A., & Razdorskaya, M. V. (2011) · PubMed
Ghazavi, R., Zarei, H., Teimouri-Jervekani, Z., & Soleymani, M. R. (2022) · Journal of Consumer Health on the Internet · doi:10.1080/15398285.2022.2056370
Xu, H., Zhang, X., Wang, Y., & Yang, Z. (2024) · Applied Mathematics and Nonlinear Sciences · doi:10.2478/amns-2024-0939
Sun, C., Cheung, W., Corpuz, K., Shang, J., & Stone, P. W. (2024) · Nursing Research and Practice · doi:10.1155/2024/2280296
Putra, W. K. Y., Setiarini, A., Farsia, L., & Achadi, E. L. (2025) · BIO Web of Conferences · doi:10.1051/bioconf/202515302021
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McHolme, L., & Feinberg, I. Z. (2025) · ADULT LITERACY EDUCATION THE INTERNATIONAL JOURNAL OF LITERACY LANGUAGE AND NUMERACY · doi:10.35847/lmcholme.ifeinberg.7.2.18
Hwang, L. J., & McKenzie, R. (2026) · Health Communication · doi:10.1080/10410236.2026.2748945
- Authors
- Khoong, E. C., Le, G. M., Hoskote, M., Rivadeneira, N. A., Hiatt, R. A., & Sarkar, U.
- Affiliations
- University of California, San Francisco (US)
- San Francisco General Hospital (US)
- Corresponding author
- Khoong, Elaine C.
- ORCID
- Venue
- Medical Care
- Published
- 2019-06
- Volume
- 57
- Issue
- Suppl 2
- Pages
- S176-S183
- ISSN
- 0025-7079 (ISSN-L)
- PMC
- PMC6527313
- OpenAlex
- W2946164321
- Cited by
- 39
- References
- 23
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 5 · 2023: 2 · 2022: 9 · 2021: 6 · 2020: 5 · 2019: 2
- FWCI
- 7.50
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Medical Care (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- University of California, San Francisco
- National Cancer Institute (P30CA082103)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
- Physical Sciences › Computer Science › Information Systems › Information Retrieval and Search Behavior
- Keywords
- health information seeking, health information preferences, multilingual populations, Spanish speakers, Chinese speakers, African Americans, smartphone ownership, language preference, health literacy, health disparities, vulnerable populations, email communication, brochures, health communication design, urban residents
- MeSH terms
- Limited English Proficiency, Adult, Age Factors, Ethnicity, Female, Humans, Male, Middle Aged, Surveys and Questionnaires, Translating, Urban Population, Cohort Studies, Multilingualism, Internet, Electronic Mail, Health Literacy, Information Seeking Behavior
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