Frequency and Predictors of Successful Transition of Care for Young Adults With Childhood Celiac Disease
Abstract
Objectives Transition from pediatric to adult care for individuals with chronic conditions is important to prevent gaps in care, though this has not been well-studied in celiac disease (CD). The aim of this study was to discern rates and predictors of successful transition of care for young adults with childhood-diagnosed CD. Methods An anonymous 21-question online survey was sent to individuals on our center's email contact list seeking responses from those ages 18 to 25 years diagnosed with CD before age 18 years. Information collected included method of diagnosis, demographics, CD-related care, reasons for not seeking care, and symptoms. Results Respondents (n = 98), 70% women, had a median age of 21 years (IQR 19--23 years). The majority were full or part-time students (67%; 95% CI 59%-77%). Only 31% of respondents had successfully transitioned to an adult CD provider. Some 37% (95% CI 29%-48%) were not receiving any CD medical care. An older age at diagnosis was associated with successful transition to adult gastroenterology (P = 0.002) as well as with greater symptom scores (P = 0.002). Receiving a referral for ongoing adult CD care predicted successful transition to an adult provider (odds ratio [OR] 3.92, 95% CI 1.58-9.72). Conclusions Transition of care for young adults with CD is inconsistent, particularly among asymptomatic patients. Receipt of a referral for an adult provider significantly improves follow-up rates.
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The transition of care in CD appears often to be inconsistent, particularly among asymptomatic patients.
“Moreover, the transition of care in CD appears often to be inconsistent, particularly among asymptomatic patients (155).”
From ESPGHAN Position Paper on Management and Follow-up of Children and Adolescents With Celiac Disease. (2022) · cites this paper as [155]
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- Authors
- Reilly, N. R., Hammer, M. L., Ludvigsson, J. F., & Green, P. H.
- Affiliations
- Columbia University Irving Medical Center (US)
- Department of Pediatrics New York NY
- Karolinska Institutet (SE)
- Corresponding author
- Reilly, Norelle R.
- Hammer, Marissa L.
- ORCID
- Ludvigsson, Jonas F.
- Venue
- Journal of Pediatric Gastroenterology and Nutrition
- Publisher
- Wiley
- Published
- 2020-02
- Volume
- 70
- Issue
- 2
- Pages
- 190-194
- ISSN
- 0277-2116 (ISSN-L)
- 1536-4801
- OpenAlex
- W2995235520
- Cited by
- 22
- References
- 35
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 1 · 2023: 3 · 2022: 2 · 2021: 6 · 2020: 2 · 2019: 1
- FWCI
- 4.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Gastroenterology and Nutrition (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Center for Complementary and Alternative Medicine
- Social Science Research Council
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Gastroenterology › Celiac Disease Research and Management
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Keywords
- celiac disease, care transitions, transition to adult care, young adults, age at diagnosis, asymptomatic patients, care gaps
- MeSH terms
- Adolescent, Adult, Aged, Celiac Disease, Child, Female, Gastroenterology, Humans, Male, Patient Transfer, Surveys and Questionnaires, Young Adult, Transition to Adult Care
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