Recovery From Schizophrenia: The Case of Mexican-Origin Consumers and Family Caregivers
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This study examined the views about the future of persons with schizophrenia and their caregivers to understand what is at stake in engaging in recovery. The views of 60 Mexican-origin consumer-caregiver dyads were coded by three independent raters using a recovery literature-based coding system of recovery components: social relations, caregiving burden relief, independence, self-responsibility, and empowerment. General recovery expectations were also rated. Interrater reliability, component frequency, and congruence between the consumers and caregivers' expectations were statistically examined. Dominant recovery components for consumers and caregivers were independence (72.5%), general expectations for recovery (51%), and social relations (43%). Relatives differed in two important ways. Consumers held significantly greater expectations for independence (p < 0.01), whereas caregivers focused more on general recovery (p < 0.001). What matters for recovery for this sample of Mexican-origin consumers and caregivers differs. Addressing differences in views may facilitate person-centered treatment that considers the views of consumers and caregivers.
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This conceptualization of recovery as an individual responsibility was strongly linked to empowerment, which in turn was linked to having economic means for independence.
“This conceptualization of recovery as an individual responsibility was strongly linked to empowerment, which in turn was linked to having economic means for independence (43, 73, 74).”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [74]
A participant in the study by Santos et al. (74) expressed "[I want to] maintain...good hygiene..., fitness, exercise, nutrition...."
“A participant in the study by Santos et al. (74) expressed “[I want to] maintain…good hygiene…, fitness, exercise, nutrition….””
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [74]
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Cited by
Sorted by citations
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- Authors
- Santos, M. M., Kopelowicz, A., & López, S. R.
- Affiliations
- University of Southern California (US)
- University of California, Los Angeles (US)
- Corresponding author
- Santos, Maria M.
- López, Steven R.
- Venue
- Journal of Nervous & Mental Disease
- Published
- 2018-06
- Volume
- 206
- Issue
- 6
- Pages
- 439-445
- ISSN
- 0022-3018 (ISSN-L)
- 1539-736X
- PMC
- PMC6037175
- OpenAlex
- W2804228595
- Cited by
- 9
- References
- 30
- Citations by year
- 2026: 1 · 2023: 1 · 2021: 4 · 2020: 1
- FWCI
- 1.91
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- The Journal of Nervous and Mental Disease (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (R01MH103830)
- National Institute on Minority Health and Health Disparities (T37MD003405)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Keywords
- schizophrenia, recovery, caregiver expectations, customer expectations, independence, interpersonal relationships, caregiver burden, empowerment, personal responsibility, inter-rater reliability
- MeSH terms
- Adult, Attitude to Health, Female, Humans, Interviews as Topic, Male, Remission Induction, Schizophrenia, Caregivers, Mexican Americans
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