Development of a Caregiver-Reported experience measure for pediatric Hospital-to-Home transitions
Open accessAbstract
Objective: To develop and test a caregiver‐reported experience measure for pediatric hospital‐to‐home transitions. Data Sources/Study Setting: Primary data were collected between 07/2014 and 05/2015 from caregivers within 2–8 weeks of their child's discharge from a tertiary care children's hospital. Study Design/Data Collection: We used a step‐wise approach to developing the measure that included drafting de novo survey items based on caregiver interviews (n = 18), pretesting items using cognitive interviews (n = 18), and pilot testing revised items among an independent sample of caregivers (n = 500). Item reduction statistics and confirmatory factor analysis (CFA) were performed on a test sample of the pilot data to refine the measure, followed by CFA on the validation sample to test the final measure model fit. Principal Findings: Of 46 initial survey items, 19 were removed after pretesting and 19 were removed after conducting item statistics and CFA. This resulted in an eight‐item measure with two domains: transition preparation (four items) and transition support (four items). Survey items assess the quality of discharge instructions, access to needed support and resources, care coordination, and follow‐up care. Practical fit indices demonstrated an acceptable model fit: χ2 = 28.3 (df = 19); root‐mean‐square error of approximation = 0.04; comparative fit index = 0.99; and Tucker–Lewis index = 0.98. Conclusions: An eight‐item caregiver‐reported experience measure to evaluate hospital‐to‐home transition outcomes in pediatric populations demonstrated acceptable content validity and psychometric properties.
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The Pediatric Transition Experience Measure is a self-report measure of a parent's perception of transition preparation and support from the hospital (11 items; McDonald's coefficient omega for internal consistency reliability was 0.84).
“The Pediatric Transition Experience Measure is a self-report measure of a parent’s perception of transition preparation and support from the hospital (11 items).87 McDonald’s coefficient omega to examine internal consistency reliability was 0.84.88”
From Coached, Coordinated, Enhanced Neonatal Transition (CCENT): Protocol for a multicentre pragmatic randomised controlled trial of transition-to-home support for parents of high-risk infants (2021) · cites this paper as [88]
The Abstract describes a caregiver-reported measure with transition preparation and transition support domains, but says the final measure has eight items, not 11. The Internal Consistency Reliability section reports McDonald’s omega of 0.84 for the overall measure, although the citing sentence attaches a different citation to that figure. (LLM, conf=0.92)
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Cites
Principles and Practice of Structural Equation Modeling
Tabri, N., & Elliott, C. M. (2012) · Canadian Graduate Journal of Sociology and Criminology · doi:10.15353/cgjsc.v1i1.3787 · Cited by 39,065 · see citing works
Confirmatory factor analysis for applied research
Brown, T. A. (2007) · Choice Reviews Online · doi:10.5860/choice.44-2769 · Cited by 15,613 · see citing works
Reporting Structural Equation Modeling and Confirmatory Factor Analysis Results: A Review
Schreiber, J. B., Nora, A., Stage, F. K., Barlow, E. A., & King, J. (2006) · The Journal of Educational Research · doi:10.3200/joer.99.6.323-338 · Cited by 6,937 · see citing works
Dunn, T. J., Baguley, T. S., & Brunsden, V. (2013) · British Journal of Psychology · doi:10.1111/bjop.12046 · Cited by 3,766 · see citing works
Test Theory: A Unified Treatment
Zwick, R., & McDonald, R. P. (2000) · Journal of the American Statistical Association · doi:10.2307/2669496 · Cited by 3,637 · see citing works
Henson, R. K., & Roberts, J. K. (2006) · Educational and Psychological Measurement · doi:10.1177/0013164405282485 · Cited by 2,454 · see citing works
Cognitive Interviewing: A Tool for Improving Questionnaire Design
Willis, G. (2004) · Cited by 1,934 · see citing works
The Incidence and Severity of Adverse Events Affecting Patients after Discharge from the Hospital
Forster, A. J., Murff, H. J., Peterson, J. F., Gandhi, T. K., & Bates, D. W. (2003) · Annals of Internal Medicine · doi:10.7326/0003-4819-138-3-200302040-00007 · Cited by 1,888 · see citing works
Pretesting survey instruments: An overview of cognitive methods
Collins, D. (2003) · Quality of Life Research · doi:10.1023/a:1023254226592 · Cited by 1,520 · see citing works
Little, T. D. (1997) · Multivariate Behavioral Research · doi:10.1207/s15327906mbr3201_3 · Cited by 1,397 · see citing works
Interventions to Reduce 30-Day Rehospitalization: A Systematic Review
Hansen, L. O., Young, R. S., Hinami, K., Leung, A., & Williams, M. V. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-155-8-201110180-00008 · Cited by 1,182 · see citing works
Patrick, D. L., Burke, L. B., Gwaltney, C. J., Leidy, N. K., Martin, M. L., Molsen, E., & Ring, L. (2011) · Value in Health · doi:10.1016/j.jval.2011.06.013 · Cited by 1,135 · see citing works
Welfare Evaluations in Contingent Valuation Experiments with Discrete Response Data: Reply
Hanemann, W. M. (1989) · American Journal of Agricultural Economics · doi:10.2307/1242685 · Cited by 953 · see citing works
Asking questions: A practical guide to questionnaire design
Conley, J. J. (1983) · Personality and Individual Differences · doi:10.1016/0191-8869(83)90107-1 · Cited by 733 · see citing works
Hospital Readmissions as a Measure of Quality of Health Care
Benbassat, J., & Taragin, M. I. (2000) · Archives of Internal Medicine · doi:10.1001/archinte.160.8.1074 · Cited by 610 · see citing works
Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care
Lavallee, D. C., Chenok, K. E., Love, R. M., Petersen, C. C., Holve, E., Segal, C. D., & Franklin, P. D. (2016) · Health Affairs · doi:10.1377/hlthaff.2015.1362 · Cited by 549 · see citing works
Pediatric Medical Complexity Algorithm: A New Method to Stratify Children by Medical Complexity
Simon, T. D., Cawthon, M. L., Stanford, S., Popalisky, J., Lyons, D., Woodcox, P., Hood, M., Chen, A. Y., & Mangione-Smith, R. M. (2014) · PEDIATRICS · doi:10.1542/peds.2013-3875 · Cited by 462 · see citing works
Self-citationAssessing the Quality of Preparation for Posthospital Care from the Patient??s Perspective
Coleman, E. A., Mahoney, E. R., & Parry, C. (2005) · Medical Care · doi:10.1097/00005650-200503000-00007 · Cited by 409 · see citing works
Garcia, S. F., Cella, D., Clauser, S. B., Flynn, K. E., Lad, T., Lai, J.-S., Reeve, B. B., Wilder Smith, A., Stone, A. A., & Weinfurt, K. (2007) · Journal of Clinical Oncology · doi:10.1200/jco.2007.12.2341 · Cited by 407 · see citing works
analysis & commentary Measuring Patient Experience As A Strategy For Improving Primary Care
Browne, K., Roseman, D., Shaller, D., & Edgman‐Levitan, S. (2010) · Health Affairs · doi:10.1377/hlthaff.2010.0238 · Cited by 306 · see citing works
Psychometric Properties of the Readiness for Hospital Discharge Scale
Weiss, M., & Piacentine, L. B. (2006) · Journal of Nursing Measurement · doi:10.1891/jnm-v14i3a002 · Cited by 286 · see citing works
Raykov, T., & Shrout, P. E. (2002) · Structural Equation Modeling A Multidisciplinary Journal · doi:10.1207/s15328007sem0902_3 · Cited by 283 · see citing works
Ahmed, S., Berzon, R. A., Revicki, D. A., Lenderking, W. R., Moinpour, C. M., Basch, E., Reeve, B. B., & Wu, A. W. (2012) · Medical Care · doi:10.1097/mlr.0b013e318268aaff · Cited by 272 · see citing works
Development and testing of a measure designed to assess the quality of care transitions
Coleman, E. A., Smith, J. D., Frank, J. C., Eilertsen, T. B., Thiare, J. N., & Kramer, A. M. (2002) · International Journal of Integrated Care · doi:10.5334/ijic.60 · Cited by 257 · see citing works
Snow, V. T., Beck, D. M., Budnitz, T. L., Miller, D. C., POTTER, J. F., Wears, R. L., Weiss, K. B., & Williams, M. V. (2009) · Journal of General Internal Medicine · doi:10.1007/s11606-009-0969-x · Cited by 242 · see citing works
Desai, A. D., Zhou, C., Stanford, S., Haaland, W. L., Varni, J. W., & Mangione-Smith, R. M. (2014) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/jamapediatrics.2014.1600 · Cited by 185 · see citing works
Self-citationWeiss, M., Sawin, K. J., Gralton, K. S., Johnson, N. L., Klingbeil, C. G., Lerret, S. M., Malin, S., Yakusheva, O., & Schiffman, R. F. (2017) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2016.12.021 · Cited by 159 · see citing works
Readiness for Discharge in Parents of Hospitalized Children
Weiss, M., Johnson, N. L., Malin, S., Jerofke‐Owen, T. A., Lang, C., & Sherburne, E. C. (2008) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2007.10.005 · Cited by 153 · see citing works
The Development of a Pediatric Inpatient Experience of Care Measure: Child HCAHPS®
Toomey, S. L., Zaslavsky, A. M., Elliott, M. N., Gallagher, P. M., Fowler, F. J., Klein, D. J., Shulman, S., Ratner, J., McGovern, C., LeBlanc, J. L., et al. (2015) · PEDIATRICS · doi:10.1542/peds.2015-0966 · Cited by 143 · see citing works
Measuring Hospital Quality Using Pediatric Readmission and Revisit Rates
Bardach, N. S., Vittinghoff, E., Asteria-Peñaloza, R., Edwards, J. D., Yazdany, J., Lee, H. C., Boscardin, W. J., Cabana, M. D., & Dudley, R. A. (2013) · PEDIATRICS · doi:10.1542/peds.2012-3527 · Cited by 136 · see citing works
A Framework of Pediatric Hospital Discharge Care Informed by Legislation, Research, and Practice
Berry, J. G., Blaine, K., Rogers, J., McBride, S. C., Schor, E. L., Birmingham, J., Schuster, M. A., & Feudtner, C. (2014) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/jamapediatrics.2014.891 · Cited by 121 · see citing works
Hospital readmission and parent perceptions of their child's hospital discharge
Berry, J. G., Ziniel, S. I., Freeman, L., Kaplan, W., Antonelli, R. C., Gay, J. C., Coleman, E. A., Porter, S. M., & Goldmann, D. A. (2013) · International Journal for Quality in Health Care · doi:10.1093/intqhc/mzt051 · Cited by 119 · see citing works
Pediatric hospital discharge interventions to reduce subsequent utilization: A systematic review
Auger, K. A., Kenyon, C. C., Feudtner, C., & Davis, M. M. (2014) · Journal of Hospital Medicine · doi:10.1002/jhm.2134 · Cited by 119 · see citing works
Desai, A. D., Durkin, L. K., Jacob‐Files, E., & Mangione-Smith, R. M. (2015) · Academic Pediatrics · doi:10.1016/j.acap.2015.08.003 · Cited by 113 · see citing works
Self-citationThe Family Perspective on Hospital to Home Transitions: A Qualitative Study
Solan, L. G., Beck, A. F., Brunswick, S. A., Sauers‐Ford, H. S., Wade‐Murphy, S., Simmons, J. M., Shah, S. S., Sherman, S. N., & on behalf of the H2O Study Group (2015) · PEDIATRICS · doi:10.1542/peds.2015-2098 · Cited by 112 · see citing works
Preventability of Early Readmissions at a Children’s Hospital
Hain, P. D., Gay, J. C., Berutti, T. W., Whitney, G., Wang, W., & Saville, B. R. (2012) · PEDIATRICS · doi:10.1542/peds.2012-0820 · Cited by 106 · see citing works
Pollack, A. H., Backonja, U., Miller, A., Mishra, S. R., Khelifi, M., Kendall, L., & Pratt, W. (2016) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/2858036.2858240 · Cited by 86 · see citing works
Hospital to Home Health Care Transition: Patient, Caregiver, and Clinician Perspectives
Foust, J. B., Vuckovic, N., & Henriquez, E. (2012) · Western Journal of Nursing Research · doi:10.1177/0193945911400448 · Cited by 84 · see citing works
Desai, A. D., Popalisky, J., Simon, T. D., & Mangione-Smith, R. M. (2015) · Hospital Pediatrics · doi:10.1542/hpeds.2014-0097 · Cited by 71 · see citing works
Self-citationSummary of STARNet: Seamless Transitions and (Re)admissions Network
Auger, K. A., Simon, T. D., Cooperberg, D., Gay, J. C., Kuo, D. Z., Saysana, M. S., Stille, C. J., Fisher, E. S., Wallace, S. S., Berry, J. G., et al. (2014) · PEDIATRICS · doi:10.1542/peds.2014-1887 · Cited by 67 · see citing works
Brief scale measuring patient preparedness for hospital discharge to home: Psychometric properties
Graumlich, J. F., Novotny, N. L., & Aldag, J. C. (2008) · Journal of Hospital Medicine · doi:10.1002/jhm.316 · Cited by 54 · see citing works
Postdischarge Phone Calls After Pediatric Hospitalization: An Observational Study
Heath, J., Dancel, R. D., & Stephens, J. R. (2015) · Hospital Pediatrics · doi:10.1542/hpeds.2014-0069 · Cited by 48 · see citing works
Desai, A. D., Burkhart, Q., Parast, L. M., Simon, T. D., Allshouse, C., Britto, M. T., Leyenaar, J. K., Gidengil, C. A., Toomey, S. L., Elliott, M. N., et al. (2016) · Academic Pediatrics · doi:10.1016/j.acap.2016.07.008 · Cited by 16 · see citing works
Self-citationValidation of New Quality Measures for Transitions Between Sites of Care
Parast, L. M., Burkhart, Q., Desai, A. D., Simon, T. D., Allshouse, C., Britto, M. T., Leyenaar, J. K., Gidengil, C. A., Toomey, S. L., Elliott, M. N., et al. (2017) · PEDIATRICS · doi:10.1542/peds.2016-4178 · Cited by 14 · see citing works
Self-citation
Flagged first, then by citations
1 of the 45 references couldn’t be matched to a known paper.
Research works printed but not linked: 1
- Dillman, D. A. 2000. Mail and Internet Surveys: The Tailored Design Method. New York: Wiley.
Cited by
Sorted by citations
Weiss, M., Lerret, S. M., Sawin, K. J., & Schiffman, R. F. (2019) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2019.06.011 · Cited by 37 · see citing works
Khan, A., Wallace, S. S., Sampayo, E. M., & Falco, C. N. (2019) · Hospital Pediatrics · doi:10.1542/hpeds.2018-0220 · Cited by 24 · see citing works
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Coller, R. J., Lerner, C. F., Berry, J. G., Klitzner, T. S., Allshouse, C., Warner, G., Nacht, C. L., Thompson, L. R., Eickhoff, J. C., Ehlenbach, M. L., et al. (2020) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2020.11.049 · Cited by 21 · see citing works
Tougas, A., Houle, A., Leduc, K., Frenette‐Bergeron, É., & Marcil, K. (2022) · Psychology in the Schools · doi:10.1002/pits.22791 · Cited by 18 · see citing works
Salmani, N., Marvast, M. Z., Kahdouei, S., & Weiss, M. (2020) · Journal of Clinical Nursing · doi:10.1111/jocn.15479 · Cited by 12 · see citing works
Orkin, J., Major, N., Esser, K., Parmar, A., Couture, E., Daboval, T., Kieran, E., Ly, L., O"Brien, K., Patel, H., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-046706 · Cited by 11 · see citing works
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Desai, A. D., Zhou, C., Simon, T. D., Mangione-Smith, R., & Britto, M. T. (2020) · Pediatrics · doi:10.1542/peds.2019-2150 · Cited by 10 · see citing works
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Kroshus, E., Lowry, S., Garrett, K., Hays, R., Hunt, T. N., & Chrisman, S. P. D. (2021) · Injury Epidemiology · doi:10.1186/s40621-021-00364-4 · Cited by 9 · see citing works
Self-citationWarniment, A., Sauers‐Ford, H. S., Brady, P. W., Beck, A. F., Callahan, S. R., Giambra, B. K., Herzog, D. E., Huang, B., Loechtenfeldt, A. M., Loechtenfeldt, L., et al. (2023) · Journal of Hospital Medicine · doi:10.1002/jhm.13192 · Cited by 7 · see citing works
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Desai, A. D., Simon, T. D., Leyenaar, J. K., Britto, M. T., & Mangione-Smith, R. M. (2018) · Academic Pediatrics · doi:10.1016/j.acap.2018.07.013 · Cited by 5 · see citing works
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Spanish Translation of a Parent-Reported Hospital-to-Home Transition Experience Measure
Squires, S. S., Lion, K. C., Burgara, J., Garcia, Y., & Desai, A. D. (2023) · Hospital Pediatrics · doi:10.1542/hpeds.2022-007073 · Cited by 4 · see citing works
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Rocha, A. M. D. O., Mendes, P. H. M., Mauricio, L. S., Henrique, E. Â., & Crispim, D. H. (2026) · Journal of Child Health Care · doi:10.1177/13674935261417421 · Cited by 2 · see citing works
Hunter‐Schouela, J., Ure, L., Zuijdwijk, C., Abou-Assaly, E., Ahmet, A. H., Boer, J., Khatchadourian, K., Kutcher, S., Lawrence, S. E., Reddy, D. N., et al. (2026) · JMIR Research Protocols · doi:10.2196/89519
- Authors
- Desai, A. D., Jacob‐Files, E. A., Lowry, S. J., Opel, D. J., Mangione‐Smith, R., Britto, M. T., & Howard, W. J.
- Affiliations
- University of Washington (US)
- Seattle Children's Research Institute (US)
- Department of Pediatrics University of Washington Seattle Children's Research Institute Seattle WA
- Cincinnati Children's Hospital Medical Center (US)
- Corresponding author
- Desai, Arti D.
- Venue
- Health Services Research
- Publisher
- Wiley
- Published
- 2018-05-08
- Volume
- 53
- Issue
- S1
- Pages
- 3084-3106
- ISSN
- 0017-9124 (ISSN-L)
- 1475-6773
- PMC
- PMC6056575
- OpenAlex
- W2800106159
- Cited by
- 19
- References
- 45
- Citations by year
- 2026: 3 · 2025: 3 · 2023: 3 · 2022: 1 · 2021: 3 · 2020: 3 · 2019: 2 · 2018: 1
- FWCI
- 3.95
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Health Services Research (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Seattle Children's Research Institute (Pediatric Early Research Career Award)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Emergency Medicine › Hospital Admissions and Outcomes
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Keywords
- hospital-to-home transition, pediatric hospital discharge, transition preparation, transition support, discharge instructions, care coordination, follow-up care, children's hospitals, psychometric validation, content validity
- MeSH terms
- Adolescent, Adult, Aftercare, Child, Child, Preschool, Continuity of Patient Care, Factor Analysis, Statistical, Female, Health Services Accessibility, Hospitals, Pediatric, Humans, Infant, Infant, Newborn, Interviews as Topic, Male, Middle Aged, Patient Discharge, Socioeconomic Factors, Reproducibility of Results, Caregivers, Young Adult
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