Efficacy of the epilepsy nurse: Results of a randomized controlled study
Abstract
Summary: Objective: We investigated the efficacy of epilepsy nurses on satisfaction with counseling about epilepsy in a randomized, controlled, prospective trial. Methods: Patients with epilepsy treated by neurologists in outpatient clinics were consecutively enrolled and randomly allocated to either the epilepsy nurse (EN) group (n = 92) or the control group (n = 95). Patients in the EN group were advised according to their needs by epilepsy nurses. The control group received routine care without additional counseling. The EN group completed the questionnaires before the first consultation (T1) and 6 months later (T2); the control group completed the questionnaires twice with an interval of 6 months. Primary outcome measure was satisfaction of patients with information and support. Secondary outcome measures were satisfaction with patient–doctor relationship, organization of treatment, epilepsy knowledge, coping, and restrictions in daily life. Anxiety and depression (Hospital Anxiety and Depression Scale) and global Quality of Life (item from QOLIE‐31) were also assessed. Statistical analysis included generalized estimating equation (GEE) and nonparametric tests. Results: Satisfaction with information and support improved significantly in the EN group compared to the control group (GEE, interaction group × time, p = 0.001). In addition, Epilepsy Knowledge (p = 0.014) and Coping (subscale Information Seeking) (p = 0.023) improved. Increase in satisfaction with counseling was dependent on patients' needs for information and on the amount of received information (Jonckheere‐Terpstra test, p < 0.001). No differences between the groups were observed on other epilepsy‐specific scales. Significance: A reliable questionnaire for satisfaction with epilepsy care has been developed. Epilepsy nurses improve the satisfaction of patients with counseling and information about epilepsy and concomitant problems.
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Two studies investigated educational interventions for adolescents and adults.
“and 2 studies investigated educational interventions for adolescents and adults. 40,43”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
Six interventions (25%) were delivered through individual sessions.
“6 interventions (25%) were delivered through individual sessions, 9,15,26,27,43,44,48”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%).
“Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%). 28,31 -33,37,38,40,42,43,45,46”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
Four of the 11 studies (36%) reported nonsignificant results for depressive symptoms.
“Four of the 11 studies (36%) reported nonsignificant results 24,30,43,50 ; Caller et al. 50 and Orjuela-Rojas et al. 30 used > 1 outcome measure (Table 4A).”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
The remaining 4 studies (50%) did not report a significant difference between postintervention total scores when comparing treatment and control groups.
“The remaining 4 studies (50%) did not report a significant difference between postintervention total scores when comparing treatment and control groups (Table 3A). 25,32,43,44”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
A total of 5 studies (21%) included anxiety level as an outcome measure, and all of them reported no significant baseline difference between the treatment and control groups.
“A total of 5 studies (21%) included anxiety level as an outcome measure 28,30,36,43,46 ; all of them reported no significant baseline difference between the treatment and control groups.”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [43]
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- Authors
- Pfäfflin, M., Schmitz, B., & May, T. W.
- Affiliations
- Gesellschaft für Epilepsieforschung e.V. (DE)
- Vivantes Klinikum (DE)
- Corresponding author
- Pfäfflin, Margarete
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 2016-06-06
- Volume
- 57
- Issue
- 7
- Pages
- 1190-1198
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2410723107
- Cited by
- 55
- References
- 34
- Citations by year
- 2026: 5 · 2025: 5 · 2024: 1 · 2023: 6 · 2022: 6 · 2021: 8 · 2020: 7 · 2019: 7 · 2018: 4 · 2017: 5 · 2016: 1
- FWCI
- 10.54
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- Funders
- UCB Pharma
- Desitin
- Topics
- Health Sciences › Health Professions › General Health Professions › Nursing Roles and Practices
- Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- epilepsy, patient satisfaction, patient counseling, patient education, physician-patient relationship, coping, epilepsy knowledge, quality of life, anxiety, depression, outpatient care, information seeking
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Aged, Depression, Epilepsy, Female, Humans, Male, Middle Aged, Nurses, Prospective Studies, Quality of Life, Surveys and Questionnaires, Outcome Assessment, Health Care, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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