Variable access to quality nutrition information regarding inflammatory bowel disease: A survey of patients and health professionals and objective examination of written information
Open accessAbstract
BACKGROUND: Patients with inflammatory bowel disease (IBD) report a range of nutritional and dietary problems and high-quality written information should be available on these. There is little research investigating the availability and quality of such information for patients with IBD. OBJECTIVE: This study assessed the type and quality of written information on nutrition and diet available to patients with IBD and the opinions of patients and health professionals. SETTING AND PARTICIPANTS: Seventy-two patients with IBD were recruited from a large gastroenterology outpatient centre in England. One hundred dietitians from across the United Kingdom were also recruited. METHODS: Face-to-face surveys were conducted with patients with IBD. Questions regarding the use, format and usefulness of dietary information received were probed. Dietitians were surveyed regarding written dietary information used in clinical practice. Samples of IBD-specific dietary information used across the UK were objectively assessed using two validated tools. MAIN RESULTS: The majority of patients rated written information as 'good' or 'very good', with the most useful information relating to 'general diet and IBD'. Forty-nine (49%) dietitians reported gaps in written information available for patients with IBD. Fifty-three different samples of IBD-specific information sheets were returned, with widely variable objective quality ratings. Commercially produced written information scored greater than locally produced information (BMA tool, P < 0.05). CONCLUSIONS: Patient access to high-quality, written, IBD-specific dietary information is variable. IBD-specific written nutrition information needs to be developed in accordance with validated tools to empower patients, encourage self-management and overcome nutritional implications of IBD.
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Internationally, access to 'high quality written' IBD-specific nutrition information has also been found to be variable.
“Internationally, access to ‘high quality written’ IBD-specific nutrition information has also been found to be variable [66].”
From Online Acceptance and Commitment Therapy and Nutrition Workshop for Parents of Children with Inflammatory Bowel Disease: Feasibility, Acceptability, and Initial Effectiveness. (2021) · cites this paper as [66]
The Abstract reports gaps in access to IBD-specific written information and widely variable quality ratings; the survey of dietitians likewise reports gaps in access. However, the study examined patients in England and information used across the UK, so it does not establish that access is variable internationally more broadly. (LLM, conf=0.83)
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- Authors
- Prince, A. C., Moosa, A., Lomer, M. C. E., Reidlinger, D. P., & Whelan, K.
- Affiliations
- King's College London (GB)
- Corresponding author
- Prince, Alexis C.
- Venue
- Health Expectations
- Publisher
- Wiley
- Published
- 2014-06-17
- Volume
- 18
- Issue
- 6
- Pages
- 2501-2512
- ISSN
- 1369-6513 (ISSN-L)
- 1369-7625
- PMC
- PMC5810632
- OpenAlex
- W1970077211
- Cited by
- 29
- References
- 41
- Citations by year
- 2026: 3 · 2025: 1 · 2024: 1 · 2023: 4 · 2022: 2 · 2021: 3 · 2019: 5 · 2018: 1 · 2017: 5 · 2016: 2 · 2015: 2
- FWCI
- 5.43
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Health Expectations (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- King's College London
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Keywords
- inflammatory bowel disease, nutrition information, dietary information, written patient information, information quality, dietitians, patient self-management
- MeSH terms
- Adult, Female, United Kingdom, Health Personnel, Humans, Male, Middle Aged, Surveys and Questionnaires, Inflammatory Bowel Diseases, Nutrition Policy, Access to Information, Nutritionists
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