Quality home care for persons living with dementia: Personal support workers' perspectives in Ontario, Canada
Open accessAbstract
There is a global need to understand how the quality of home care for persons living with dementia is perceived by their most frequent formal caregivers, personal support workers (PSW), especially given the expected rise in the prevalence of dementia. The aim of this study was to explore the perceptions of PSW regarding what constitutes quality home care for persons with dementia. Qualitative content analysis was undertaken to interpret semi-structured interviews with PSW (N = 15). Study findings indicate that quality home care is perceived to be (1) person-centered; (2) provided by PSW with dementia-specific education and training; (3) facilitated by specific PSW experiences, abilities and characteristics; (4) enhanced by accessible information, services and education for persons with dementia and their caregivers; (5) provided by an inclusive dementia care team; and (6) facilitated by organisational supports and respect. However, findings also indicated differences in what PSW perceive as quality home care versus what they are experiencing when providing care for persons with dementia. Participants advocated for increased supports to them through ongoing dementia-specific education and training, increased teamwork among care providers, increased wages, sufficient and qualified staffing, and increased exchange of client information. The findings highlight the importance of exploring front-line workers' perspectives and how they can help revise current healthcare policies and inform future policy development.
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There is limited literature exploring challenges of scheduling consistency for PSWs in home care delivery and pressures this causes for delivering high-quality care.
“Despite critical issues of delivering continuity of care, there is limited literature exploring challenges of scheduling consistency for PSWs in home care delivery and pressures this causes for delivering high-quality care [10, 42].”
From The hospital-to-home care transition experience of home care clients: an exploratory study using patient journey mapping (2023) · cites this paper as [42]
The Introduction (page unavailable) says inadequate resources have caused timing, scheduling and continuity-of-care challenges, and the Findings (page unavailable) link consistent PSW assignments to quality care. But the paper identifies a literature gap concerning PSWs’ perspectives on quality dementia home care, not a shortage of literature on scheduling consistency specifically; it cites previous work on scheduling challenges. (LLM, conf=0.83)
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Saragosa, M., Nizzer, S., McKay, S., & Kuluski, K. (2023) · BMC Health Services Research · doi:10.1186/s12913-023-09899-2 · Cited by 31 · see citing works
“Despite critical issues of delivering continuity of care, there is limited literature exploring challenges of scheduling consistency for PSWs in home care delivery and pressures this causes for delivering high-quality care [10, 42].”
BackgroundTowards defining quality in home care for persons living with dementia
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- Authors
- Breen, R., Savundranayagam, M. Y., Orange, J. B., & Kothari, A.
- Affiliations
- Western University (CA)
- Corresponding author
- Savundranayagam, Marie Y.
- Venue
- Health & Social Care in the Community
- Publisher
- Wiley
- Published
- 2021-12-23
- Volume
- 30
- Issue
- 5
- Pages
- e2497-e2506
- ISSN
- 0966-0410 (ISSN-L)
- 1365-2524
- OpenAlex
- W4200534922
- Cited by
- 21
- References
- 52
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 5 · 2023: 6 · 2022: 2
- FWCI
- 3.65
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Health & Social Care in the Community (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia care, home care, personal support workers, quality of care, person-centred care, caregiver education, dementia care team, organizational support, staffing, worker wages, Ontario
- MeSH terms
- Dementia, Home Care Services, Humans, Ontario, Quality of Health Care, Caregivers, Qualitative Research
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