Parents of children with cerebral palsy: a review of factors related to the process of adaptation
Abstract
Background Little is known about the way parents adapt to the situation when their child is diagnosed with cerebral palsy. Methods A literature search was performed to gain a deeper insight in the process of adaptation of parents with a child with cerebral palsy and on factors related to this process. The selected articles were examined with respect to (i) the type and purpose of the study, (ii) study sample, (iii) variables and instruments and (iv) results on adaptation and stress of the parents. Results Twenty‐two studies were found, which showed a large variety in research designs, instruments and populations. Despite methodological differences, it was possible to extract a number of factors related to resources of individual family members, the family unit as a whole and in the community, family appraisal and adaptive coping. Conclusion It is important to realize that parents’ adaptation may change as a function of their child’s development and changing stages of family life over time. Until now cross‐sectional studies have dominated this area of research, but in order to understand the process of adaptation over time, longitudinal studies are needed.
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Parents of children with CP are at risk for poorer psychological adjustment compared with mothers of typically developing children, including depressive and anxious symptoms, parental stress and reduced quality of life.
“Parents of children with CP are at risk for poorer psychological adjustment compared with mothers of typically developing children10–12 including depressive and anxious symptoms,13 14 parental stress15 and reduced quality of life.11”
From Early Parenting Acceptance and Commitment Therapy ‘Early PACT’ for parents of infants with cerebral palsy: a study protocol of a randomised controlled trial (2020) · cites this paper as [15]
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Cerebral Palsy: Effects of Early Brain Injury on Development
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Estresse e apoio social em cuidadores de crianças com paralisia cerebral
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- Authors
- Rentinck, I. C. M., Ketelaar, M., Jongmans, M. J., & Gorter, J. W.
- Affiliations
- De Hoogstraat Revalidatie (NL)
- Utrecht University (NL)
- Corresponding author
- Rentinck, I. C. M.
- Venue
- Child: Care, Health and Development
- Publisher
- Wiley
- Published
- 2006-06-23
- Volume
- 33
- Issue
- 2
- Pages
- 161-169
- ISSN
- 0305-1862 (ISSN-L)
- 1365-2214
- OpenAlex
- W2060222522
- Cited by
- 155
- References
- 33
- Citations by year
- 2026: 8 · 2025: 5 · 2024: 9 · 2023: 8 · 2022: 10 · 2021: 6 · 2020: 14 · 2019: 8 · 2018: 7 · 2017: 5 · 2016: 9 · 2015: 6 · 2014: 6 · 2013: 15 · 2012: 9
- FWCI
- 0.51
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Child Care Health and Development (publishedVersion)
- PubMed (publishedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion)
- Funders
- ZonMw
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Cerebral Palsy and Movement Disorders
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Keywords
- cerebral palsy, parents of children with disabilities, parental adjustment, parental stress, coping, family resources, family life stages, child development
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Cerebral Palsy, Child, Child, Preschool, Family, Female, Humans, Infant, Male, Parents, Social Support, Stress, Psychological
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
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