The DOI matches its Crossref record; 28 of the 28 references it cites were found in a registry or an index.
Quality of life in young people with cystic fibrosis: effects of hospitalization, age and gender, and differences in parent/child perceptions
Abstract
Background The Cystic Fibrosis Questionnaire‐Revised version (CFQ‐R) was used to evaluate age/gender effects on quality of life (QOL) in Australian young people with cystic fibrosis (CF) who were inpatients/outpatients aged 6–18 years. Parent/child agreement was also examined. Method The CFQ‐R was completed by 18 outpatients, and 15 inpatients at admission for an acute pulmonary exacerbation to a tertiary hospital, Brisbane, Australia, as well as by parents of those aged 6–13 years. Results Inpatients scored significantly lower than outpatients for the CFQ‐R domains ‘emotional state’, ‘social’, ‘body image’ and ‘respiratory symptoms’. Young people aged 6–13 years scored significantly better than those aged 14–18 years for ‘emotional state’, ‘body image’ and ‘treatment burden’. Women perceived less ‘treatment burden’ than did men. Young people aged 6–13 years perceived less ‘treatment burden’ than did their parents. A significant interaction occurred between child/parent report and gender for ‘emotional state’ and ‘eating disturbances’. Conclusion The CFQ‐R found differences between inpatients and outpatients and between younger and older paediatric patients with CF, and between parent and child perceptions of QOL.
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“In turn, Hegarty et al. showed differences between the perception of the quality of life by the child and the parent, which may suggest a different perception of his/her health by the child, and by the parent/guardian [19].”
Citations
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Cited by
Pulmonary exacerbations in cystic fibrosis
Rabin, H. R., Butler, S. M., Wohl, M. E. B., Geller, D. E., Colin, A. A., Schidlow, D. V., Johnson, C. A., Konstan, M. W., & Regelmann, W. E. (2004) · Pediatric Pulmonology · doi:10.1002/ppul.20023 · Cited by 245
Children's Experiences of Cystic Fibrosis: A Systematic Review of Qualitative Studies
Jamieson, N., Fitzgerald, D. A., Singh‐Grewal, D., Hanson, C. S., Craig, J. C., & Tong, A. (2014) · PEDIATRICS · doi:10.1542/peds.2014-0009 · Cited by 131
Pulmonary exacerbations in cystic fibrosis
Stenbit, A. E., & Flume, P. A. (2011) · Current Opinion in Pulmonary Medicine · doi:10.1097/mcp.0b013e32834b8c04 · Cited by 105
Jardine, J., Glinianaia, S. V., McConachie, H., Embleton, N. D., & Rankin, J. M. (2014) · PEDIATRICS · doi:10.1542/peds.2014-0352 · Cited by 112
Lung clearance index predicts pulmonary exacerbations in young patients with cystic fibrosis
Vermeulen, F. L., Proesmans, M., Boon, M., Havermans, T., & Boeck, K. D. (2013) · Thorax · doi:10.1136/thoraxjnl-2013-203807 · Cited by 88
Metadata
- Authors
- Hegarty, M., MacDonald, J., Watter, P., & Wilson, C.
- Affiliations
- The University of Queensland (AU)
- Corresponding author
- Watter, P.
- ORCID
- MacDonald, J.
- Venue
- Child: Care, Health and Development
- Publisher
- Wiley
- Published
- 2009-06-05
- Volume
- 35
- Issue
- 4
- Pages
- 462-468
- ISSN
- 0305-1862 (ISSN-L)
- 1365-2214
- OpenAlex
- W2114938359
- Cited by
- 71
- References
- 26
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 1 · 2023: 2 · 2022: 4 · 2021: 4 · 2020: 5 · 2019: 4 · 2018: 6 · 2017: 4 · 2016: 2 · 2015: 4 · 2014: 9 · 2013: 12 · 2012: 5
- FWCI
- 3.07
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Child Care Health and Development (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Keywords
- cystic fibrosis, quality of life, youth, Cystic Fibrosis Questionnaire-Revised, hospitalization, inpatients versus outpatients, age differences, gender differences, parent-child agreement, treatment burden, emotional state, body image, disordered eating, pulmonary exacerbations
- MeSH terms
- Adolescent, Age Factors, Attitude to Health, Body Image, Child, Child, Hospitalized, Cystic Fibrosis, Female, Humans, Male, Nutritional Status, Parents, Quality of Life, Queensland, Surveys and Questionnaires, Sex Factors, Cost of Illness
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- CoChat. (2026). Citation check: Quality of life in young people with cystic fibrosis: effects of hospitalization, age and gender, and differences in parent/child perceptions. https://app.cochat.ai/papers/10.1111/j.1365-2214.2008.00900.x
- The paper
- Hegarty, M., MacDonald, J., Watter, P., & Wilson, C. (2009). Quality of life in young people with cystic fibrosis: effects of hospitalization, age and gender, and differences in parent/child perceptions. Child: Care, Health and Development. https://doi.org/10.1111/j.1365-2214.2008.00900.x
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
