Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography
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truesdale‐kennedy m., taggart l. & mcilfatrick s. (2011) Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography. Journal of Advanced Nursing67(6), 1294–1304. Aim. This paper is a report of a descriptive study of understanding of breast cancer and experiences of breast mammography among women with an intellectual disability. Background. Despite the efforts of government policies and documents to ensure equal access to improve health screening for people with intellectual disability, the uptake for breast mammography in this population still remains lower than that of the general population. Method. A qualitative approach using four focus groups was undertaken with 19 women identified as having a borderline to moderate intellectual disability all of whom had received a breast mammography. Data collection took place in 2009. Analysis of the data was undertaken using thematic content analysis. Results. The women’s knowledge of breast cancer including associated risks, preventative factors and signs and symptoms were extremely limited with their sources of knowledge primarily coming from carers or nursing staff on receipt of an invitation for mammography. Although these women expressed a positive attitude towards their experiences of breast mammography, they also described negative feelings of fear and anxiety, attributed to a lack of understanding about the screening process. A lack of information and embarrassment were identified as the main barriers to screening for this group. Conclusion. This study highlights the need for accessible multi‐format information in order to facilitate health promotion and education in women with intellectual disability, their family carers and healthcare staff working with this target group in order to enhance the knowledge and awareness of breast cancer and screening.
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Physical examinations can also be a source of embarrassment and/or discomfort for individuals with intellectual disabilities.
“Physical examinations can also be a source of embarrassment and/or discomfort for individuals with intellectual disabilities.38,60–63”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [62]
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Self-citation
- Authors
- Truesdale‐Kennedy, M., Taggart, L., & McIlfatrick, S.
- Affiliations
- University of Ulster (GB)
- Venue
- Journal of Advanced Nursing
- Publisher
- Wiley
- Published
- 2011-03
- Volume
- 67
- Issue
- 6
- Pages
- 1294-1304
- ISSN
- 0309-2402 (ISSN-L)
- 1365-2648
- OpenAlex
- W2134967564
- Cited by
- 69
- References
- 46
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 4 · 2023: 3 · 2022: 7 · 2021: 8 · 2020: 2 · 2019: 7 · 2018: 3 · 2017: 2 · 2016: 6 · 2015: 1 · 2014: 9 · 2013: 5 · 2012: 2
- FWCI
- 5.34
- Type
- journal article
- Language
- en
- Open access
- Locations
- Journal of Advanced Nursing (publishedVersion)
- PubMed (publishedVersion)
- ENLIGHTEN (Jurnal Bimbingan dan Konseling Islam) (submittedVersion)
- Edinburgh Napier Research Repository (Edinburgh Napier University) (submittedVersion)
- Edinburgh Napier Research Repository (Edinburgh Napier University) (submittedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Women's cancer prevention and management
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Medicine › Oncology › Global Cancer Incidence and Screening
- Keywords
- breast cancer knowledge, intellectual disability, breast cancer screening, women with intellectual disabilities, screening uptake barriers, fear and anxiety, health information needs, health promotion
- MeSH terms
- Adult, Aged, Breast Neoplasms, Female, United Kingdom, Health Services Accessibility, Humans, Health Knowledge, Attitudes, Practice, Longevity, Mammography, Mass Screening, Intellectual Disability, Middle Aged, Patient Acceptance of Health Care, Risk Factors, Focus Groups, Persons with Intellectual Disabilities
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