The DOI matches its Crossref record; 46 of the 46 references it cites were found in a registry or an index.
Health researchers’ attitudes towards public involvement in health research
Open accessAbstract
OBJECTIVE: To investigate health researchers' attitudes to involving the public in research. BACKGROUND: Public involvement in research is encouraged by the Department of Health in the UK. Despite this, the number of health researchers actively involving the public in research appears to be limited. There is little research specifically addressing the attitudes of health researchers towards involving the public: how they interpret the policy, what motivates and de-motivates them and what their experiences have been to date. DESIGN: A qualitative research design, using semi-structured telephone interviews. SETTING AND PARTICIPANTS: Fifteen purposively sampled UK-based University health researchers were the participants. Interviews were conducted over the telephone. FINDINGS: The participants suggested varying constructions of public involvement in research. Arguments based on moral and political principles and consequentialist arguments for involving the public in research were offered and most participants highlighted the potential benefits of involving the public. However, feelings of apprehension expressed by some participants imply that a number of researchers may still be uncomfortable with involving the public, as it presents a different way of working.
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“However, whichever labels are used to define value sets, it is clear that different value sets are seen to lead to diverse constructions of PPI, 28,174 and can affect whether or not and how PPI is evaluated.52”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [28]
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Patient engagement in research: a systematic review
Domecq, J. P., Prutsky, G., Elraiyah, T., Wang, Z., Nabhan, M., Shippee, N., Brito, J. P., Boehmer, K., Hasan, R., Firwana, B., et al. (2014) · BMC Health Services Research · doi:10.1186/1472-6963-14-89 · Cited by 1,773
Patient and service user engagement in research: a systematic review and synthesized framework
Shippee, N. D., Garces, J. P. D., López, G., Wang, Z., Elraiyah, T. A., Nabhan, M., Brito, J. P., Boehmer, K. B., Hasan, R., Firwana, B., et al. (2013) · Health Expectations · doi:10.1111/hex.12090 · Cited by 630
ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study
Wilson, P., Mathie, E., Keenan, J., McNeilly, E., Goodman, C., Howe, A., Poland, F., Staniszewska, S., Kendall, S., Munday, D., et al. (2015) · Health Services and Delivery Research · doi:10.3310/hsdr03380 · Cited by 297
“A few researchers perceived a threat of the lay person taking over, an anxiety reported in other studies.(28) The supposed menace of experiential, subjective knowledge overturning scientific notions of neutrality, objectivity and distance(173) has been described in terms of a clash of two worlds.”
Boote, J., Baird, W., & Beecroft, C. (2010) · Health Policy · doi:10.1016/j.healthpol.2009.11.007 · Cited by 234
Boote, J. D., Wong, R., & Booth, A. (2012) · Health Expectations · doi:10.1111/hex.12007 · Cited by 216
Metadata
- Authors
- Thompson, J., Barber, R., Ward, P. R., Boote, J. D., Cooper, C. L., Armitage, C. J., & Jones, G.
- Affiliations
- University of Sheffield (GB)
- Flinders University (AU)
- Corresponding author
- Thompson, Jill
- ORCID
- Venue
- Health Expectations
- Publisher
- Wiley
- Published
- 2009-05-18
- Volume
- 12
- Issue
- 2
- Pages
- 209-220
- ISSN
- 1369-6513 (ISSN-L)
- 1369-7625
- PMC
- PMC5060486
- OpenAlex
- W2161157810
- Cited by
- 208
- References
- 46
- Citations by year
- 2026: 7 · 2025: 11 · 2024: 9 · 2023: 15 · 2022: 15 · 2021: 25 · 2020: 16 · 2019: 20 · 2018: 13 · 2017: 8 · 2016: 9 · 2015: 9 · 2014: 14 · 2013: 13 · 2012: 7
- FWCI
- 14.52
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Health Expectations (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Research Explorer (The University of Manchester) (publishedVersion)
- Flinders Academic Commons (Flinders University) (submittedVersion)
- University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Keywords
- public involvement in research, citizen participation, research ethics, health research policy
- MeSH terms
- Attitude, Community Participation, Female, United Kingdom, Health Services Research, Humans, Interviews as Topic, Male, Research Personnel
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