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Cited by 38Assistive Technology in Communication and MobilityVoice and Speech DisordersRespiratory Support and Mechanisms

The DOI matches its Crossref record; 27 of the 27 references it cites were found in a registry or an index.

Communication experience of individuals treated with home mechanical ventilation

Laakso, Katja, Markström, Agneta, Idvall, Markus, Havstam, Christina, Hartelius, Lena·2011·International Journal of Language & Communication Disorders
DOI 10.1111/j.1460-6984.2011.00040.x
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Abstract

Background: Mechanical ventilatory support seriously affects speaking and communication, and earlier studies show that many ventilator‐supported patients experience difficulties and frustration with their speech and voice production. Since there is a growing number of individuals who require mechanical ventilatory support and there is a paucity of studies that examine ventilator‐supported communication, this research area needs to be developed to ensure adequate health services for this population. The present study focused on ventilator‐supported communication from the point of view of individuals receiving home mechanical ventilation (HMV). Aims: The specific aim was to examine the communication experience of individuals receiving HMV. Methods & Procedures: A qualitative approach was adopted for this study, and data were collected by means of semi‐structured interviews. Qualitative content analysis was used to structure, condense and interpret the data. The participants were recruited from the National Respiratory Centre (NRC) in Sweden, and included 19 individuals receiving HMV. Outcomes & Results: The main theme A long and lonely struggle to find a voice and six subthemes detailing different facets of it emerged from data analysis: Managing changed speech conditions, Prioritising voice, A third party supporting communication, Using communication to get things done, Depending on technology, and Facing ignorance. Important aspects influencing the ventilator‐supported individuals’ communicative performance (speech, support from others and technological solutions) are discussed. Conclusions & Implications: The study revealed that healthcare practitioners involved in the care of individuals receiving HMV need to improve their understanding and knowledge of issues related to ventilator‐supported communication. Individuals receiving HMV encounter a needlessly long and lonely struggle to achieve effective communication. They face numerous challenges regarding their communication, and they need to be heard in both literal and figurative senses. To overcome these challenges they need support from competent healthcare practitioners and personal assistants, and continuous follow‐up by speech and language therapists tailoring communicative solutions to fit individual needs.

Overview

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Registry

Crossref · 10.1111/j.1460-6984.2011.00040.x

Cites

27 of 27 references verified0 citation errors · 0 not checkable

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  • Initial lack of communication has been described as traumatic, often when there was a lack of support from qualified medical personnel approaching this delicate period.

    “The initial lack of communication has been described as traumatic [18] often when there was a lack of support from qualified medical personnel approaching this delicate period [19].”

    From Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19 (2023) · cites this paper as [18]

Citations

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Research works printed but not linked: 4

  1. Gibbons M., 1996, Communication strategies help alleviate isolation of vent patients, Advance, 6
  2. Goffman E., 1981, Forms of Talk
  3. Lincoln Y. S., 1985, Naturalistic Inquiry
  4. Simonds A. K., 2003, Home ventilation, European Respiratory Journal, 47, 38s–46s

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Metadata

Authors
Laakso, K., Markström, A., Idvall, M., Havstam, C., & Hartelius, L.
Affiliations
Lund University (SE)
Corresponding author
Laakso, Katja
ORCID
Venue
International Journal of Language & Communication Disorders
Publisher
Wiley
Published
2011-10-25
Volume
46
Issue
6
Pages
686-699
ISSN
  • 1368-2822 (ISSN-L)
  • 1460-6984
DOI
10.1111/j.1460-6984.2011.00040.x
OpenAlex
W1898634392
Cited by
38
References
27
Citations by year
2026: 1 · 2025: 1 · 2024: 1 · 2023: 3 · 2022: 7 · 2021: 3 · 2020: 2 · 2019: 4 · 2018: 2 · 2017: 6 · 2016: 1 · 2015: 2 · 2014: 1 · 2013: 3
FWCI
4.68
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • International Journal of Language & Communication Disorders (publishedVersion)
  • PubMed (publishedVersion)
  • Lund University Publications (Lund University) (submittedVersion)
Funders
Vardalinstitutet
Topics
  • Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
  • Health Sciences › Health Professions › Speech and Hearing › Voice and Speech Disorders
  • Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Respiratory Support and Mechanisms
Keywords
home mechanical ventilation, communication difficulties, patient experience, speech therapy, personal assistants, technology dependence
MeSH terms
Adult, Aged, Communication, Communication Barriers, Female, Home Care Services, Humans, Interviews as Topic, Male, Middle Aged, Nervous System Diseases, Nonverbal Communication, Respiration, Artificial, Self Concept, Speech, Voice, Privacy, Personal Autonomy, Qualitative Research

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