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Development of the Patient Activation Measure (PAM): Conceptualizing and Measuring Activation in Patients and Consumers
Open accessAbstract
Background. Controlling costs and achieving health care quality improvements require the participation of activated and informed consumers and patients. Objectives. We describe a process for conceptualizing and operationalizing what it means to be “activated” and delineate the process we used to develop a measure for assessing “activation,” and the psychometric properties of that measure. Methods. We used the convergence of the findings from a national expert consensus panel and patient focus groups to define the concept and identify the domains of activation. These domains were operationalized by constructing a large item pool. Items were pilot‐tested and initial psychometric analysis performed using Rasch methodology. The third stage refined and extended the measure. The fourth stage used a national probability sample to assess the measure's psychometric performance overall and within different subpopulations. Study Sample. Convenience samples of patients with and without chronic illness, and a national probability sample ( N =1,515) are included at different stages in the research. Conclusions. The Patient Activation Measure is a valid, highly reliable, unidimensional, probabilistic Guttman‐like scale that reflects a developmental model of activation. Activation appears to involve four stages: (1) believing the patient role is important, (2) having the confidence and knowledge necessary to take action, (3) actually taking action to maintain and improve one's health, and (4) staying the course even under stress. The measure has good psychometric properties indicating that it can be used at the individual patient level to tailor intervention and assess changes.
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“Participants also completed the 10-question Patient Activation Measure (PAM), a validated measure of patient activation that includes person’s beliefs, motivation, and actions for self-care at these visits [9,23,24].”
From Effectiveness of Digital Medicines to Improve Clinical Outcomes in Patients with Uncontrolled Hypertension and Type 2 Diabetes: Prospective, Open-Label, Cluster-Randomized Pilot Clinical Trial (2017) · cites this paper as [23]
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“Patients and carers with increased activation in their care develop the knowledge, skills, and confidence [4] to manage their illness effectively, which may lead to the engagement in self-management behaviors [5].”
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“…scales, including those related to parenting a child with medical needs (e.g. the Parent Activation Measure for Developmental Disabilities (PAM-DD); Hibbard et al., 2004), and in consultation with experienced speech-language pathologists, clinical instructors in a graduate speech and language…”
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“[30] consisted of (1) believes taking an active role is important; (2) has confidence and knowledge to take action; (3) takes action; and (4) stays the course under pressure.”
BackgroundMethodResultInfluentialDigital health intervention in acute myocardial infarction
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Understanding and Execution of Discharge Instructions
Coleman, E. A., Chugh, A., Williams, M. V., Grigsby, J., Glasheen, J. J., McKenzie, M., & Min, S. (2013) · American Journal of Medical Quality · doi:10.1177/1062860612472931 · Cited by 92
“This research team has provided further evidence that health literacy and activation are discrete constructs.(33) Physicians and nurses will not have identified a significant percentage of cognitively impaired patients as having cognitive deficits, given that routine cognitive screening is uncommon.”
BackgroundActivation, Self-management, Engagement, and Retention in Behavioral Health Care
Alegria, M. M., Carson, N. J., Flores, M. W., Li, X., Shi, P., Lessios, A. S., Polo, A. J., Allen, M., Fierro, M., Interian, A., et al. (2014) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2013.4519 · Cited by 83
Entwistle, V. A., Cribb, A., & Owens, J. (2016) · Health Care Analysis · doi:10.1007/s10728-016-0335-1 · Cited by 82
“Most notably, insights from theories of learning and behaviour change have fostered interest in: looking beyond people’s healthrelated knowledge to their skills and self-efficacy for recommended health-related behaviours; assessing and responding to people’s motivation or state of ‘activation’ for condition-management…”
Moving Toward A More Patient-Centered Health Care Delivery System
Hibbard, J. H. (2004) · Health Affairs · doi:10.1377/hlthaff.var.133 · Cited by 82
Self-citationNurse Practitioners and Men’s Primary Health Care
Rosu, M. B., Oliffe, J. L., & Kelly, M. T. (2015) · American Journal of Men s Health · doi:10.1177/1557988315617721 · Cited by 85
Wakefield, D., Bayly, J., Selman, L. E., Firth, A. M., Higginson, I. J., & Murtagh, F. E. (2018) · Palliative Medicine · doi:10.1177/0269216318783919 · Cited by 80
Effects of Patient Activation Intervention on Chronic Diseases: A Meta-Analysis
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“Patient activation interventions have focused specifically on a tailored approach to improve patients' motivation, knowledge, skills, and confidence to manage their health (Hibbard et al., 2004; Young et al., 2016).”
BackgroundValue for Money in Health Spending
OECD (2010) · OECD health policy studies · doi:10.1787/9789264088818-en · Cited by 79
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“First, we investigated Hibbard’s patient activation concept more closely, reviewing the six articles generated from a new PubMed search of “patient activation” and “Hibbard” (Hibbard and Cunningham 2008; Hibbard et al. 2004, 2005, 2007a, 2007b; Mosen et al. 2007).”
MethodSmith, M. Y., Winkel, G. H., Egert, J. R., Diaz-Wionczek, M., & DuHamel, K. N. (2006) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2006.01.007 · Cited by 81
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“First was the patient activation measure (PAM), which is a scale with strong psychometric properties that assesses the degree of knowledge, skill, and confidence respondents have in managing their health (Hibbard et al. 2004, 2005).”
BackgroundCo-Production of Prolonged, Complex, and Negative Services
Spanjol, J., Cui, A. S., Nakata, C. C., Sharp, L. K., Crawford, S. Y., Xiao, Y., & Watson‐Manheim, M. B. (2015) · Journal of Service Research · doi:10.1177/1094670515583824 · Cited by 85
“In the medical literature, concepts such as patient engagement (e.g., Gruman et al. 2010) and patient activation (Hibbard et al. 2004) are increasingly evoked with the aim to move away from a paternalistic health care system.”
Kato, A., Fujimaki, Y., Fujimori, S., Isogawa, A., Onishi, Y., Suzuki, R., Yamauchi, T., Ueki, K., Kadowaki, T., & Hashimoto, H. (2016) · BMJ Open Diabetes Research & Care · doi:10.1136/bmjdrc-2015-000156 · Cited by 81
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Lv, N., Xiao, L., Simmons, M. L., Rosas, L. G., Chan, A. S., & Entwistle, M. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7831 · Cited by 84
“Participant activation was measured by the 13-item Patient Activation Measure (PAM) assessing patient’s knowledge, skill, and confidence for self-management [32,33].”
MethodDefinitions, instruments and correlates of patient empowerment: A descriptive review
Mora, M. A., Sparud‐Lundin, C., Moons, P., & Bratt, E. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.06.014 · Cited by 85
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An evaluation of a self-management program for patients with long-term conditions
Turner, A., Anderson, J., WALLACE, L. M., & Bourne, C. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.08.022 · Cited by 85
“The primary aim of this evaluation was to see whether the SMP improved patient activation, which refers to the extent that patients have the knowledge, skills, and confidence, to use self-management support skills in their lives [16].”
BackgroundPsychometric evaluation of the German version of the patient activation measure (PAM13)
Zill, J. M., Dwinger, S., Kriston, L., Rohenkohl, A. C., Härter, M. C., & Dirmaier, J. (2013) · BMC Public Health · doi:10.1186/1471-2458-13-1027 · Cited by 78
“Hibbard and colleagues [9] conceptualized patient activation as a hierarchically structured developmental process with four stages of activation, where individuals can progress through to become fully activated in their health management.”
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“In addition, patients in the RMS group who were able to self-monitor and transmit data using the RMS over 3 months reported higher levels of self-care knowledge, skills, and self-efficacy and greater improvements in activation levels over time compared with the comparison group.(15) Participants in the RMS group also…”
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“We suggest that future research should focus on validating the HLQ TM using existing measures of health literacy [45–47] and patient activation [48,49] to further establish the reliability and validity of this instrument.”
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“Patient activation refers to having the knowledge, skill, and confidence to manage one’s own health and health care and is assessed using the 13-item Patient Activation Measure (PAM) [12].”
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A Pilot Study of CPAP Adherence Promotion by Peer Buddies with Sleep Apnea
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“(d) Patient Activation Measure (PAM): a 22-item measure that assesses patient knowledge, skill, and confidence for self-management 17 ; and Self-Efficacy Measure for Sleep Apnea (SEMSA), a tool with strong psychometric properties and with the potential for identifying patient perceptions that may…”
Bravo, L., Killela, M. K., Reyes, B. L., Santos, K. M. B., Torres, V., Huang, C.-C., & Jacob, E. (2020) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2019.11.009 · Cited by 77
“…self-care and preventive behaviors, better health outcomes, and significantly lower rates of doctor office visits, emergency room visits, and hospital lengths of stay – all associated with self-management (Hibbard et al, 2004; Hibbard & Greene 2013; Mitchell et al., 2014; Stepleman et al., 2010).”
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Walker, A. F., Graham, S., Maple-Brown, L. J., Egede, L. E., Campbell, J. A., Walker, R. J., Wade, A. N., Mbanya, J. C., Long, J. A., Yajnik, C. S., et al. (2023) · The Lancet · doi:10.1016/s0140-6736(23)00914-5 · Cited by 82
Health Literacy: An Educationally Sensitive Patient Outcome
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Kinner, S., Lennox, N., Williams, G., Carroll, M., Quinn, B., Boyle, F., & Alati, R. (2013) · Contemporary Clinical Trials · doi:10.1016/j.cct.2013.07.001 · Cited by 70
“Distress Scale (K10) [40]; Short-Form 36 Health Survey version 2 (SF-36v2) [41]; Patient Activation Measure (PAM) [42]; Hayes Ability Screening Index (HASI) [43]; and Enriched Social Support Inventory (ESSI) [44].”
BackgroundPatient‐reported outcome measures suitable to assessment of patient navigation
Fiscella, K. A., RANSOM, S. D., Jean‐Pierre, P., Cella, D. F., Stein, K., Bauer, J. E., Crane‐Okada, R., Gentry, S. S., Canosa, R., Smith, T. G., et al. (2011) · Cancer · doi:10.1002/cncr.26260 · Cited by 83
“Common examples of PROs include quality-of-life and health status measures,(15) patient satisfaction and experience,(16) psychological distress, pain,(17) and self-efficacy.(18) The common feature of PRO measures is their grounding in the patient’s perspective.”
BackgroundMobile application as a prenatal education and engagement tool: A randomized controlled pilot
Ledford, C. J. W., Canzona, M. R., Cafferty, L. A., & Hodge, J. A. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.11.006 · Cited by 80
Development of a Chronic Care Ostomy Self-Management Program
GRANT, M. M., McCorkle, R. C., Hornbrook, M. C., Wendel, C. S., & Krouse, R. S. (2012) · Journal of Cancer Education · doi:10.1007/s13187-012-0433-1 · Cited by 79
“In addition, we have incorporated Patient Activation [15, 16] which is actually taking action to maintain and improve one's health and staying the course even when under stress.”
Determinants of activation for self-management in patients with COPD
Korpershoek, Y., Bos-Touwen, I. D., Ginkel, J. M. D. M., Lammers, J. J., Schuurmans, M. J., & Trappenburg, J. C. A. (2016) · International Journal of COPD · doi:10.2147/copd.s109016 · Cited by 85
“The primary outcome activation for self-management was measured by the Patient Activation Measure (PAM-13), a 13-item instrument that assesses self-reported knowledge, skills, and confidence for self-management.(14,20,21) A positive change in activation has shown to be associated with positive changes in various self-…”
Drum, C. E., Peterson, J. J., Culley, C., Krahn, G. L., Heller, T., Kimpton, T. A., McCubbin, J., Rimmer, J. H., Seekins, T. W., Suzuki, R., et al. (2009) · American Journal of Health Promotion · doi:10.4278/ajhp.090303-cit-94 · Cited by 77
“of providing the skills, knowledge, and motivation to patients to be part of the care team).(55) The Surgeon General’s Call to”
BackgroundMoore, J. E., Low, L. K., Titler, M. G., Dalton, V. K., & Sampselle, C. M. (2014) · Birth · doi:10.1111/birt.12080 · Cited by 85
“Patient Activation Patient activation is defined as the ability or readiness of a person to engage in health behaviors that will maintain or improve their health status (Hibbard et al., 2004).”
BackgroundInfluentialPatient activation with knowledge, self‐management and confidence in chronic kidney disease
Johnson, M. L., Zimmerman, L. M., Welch, J. L., Hertzog, M. A., Pozehl, B., & Plumb, T. J. (2015) · Journal of Renal Care · doi:10.1111/jorc.12142 · Cited by 75
Implementation science in maternity care: a scoping review
Dadich, A., Piper, A., & Coates, D. (2021) · Implementation Science · doi:10.1186/s13012-021-01083-6 · Cited by 72
“Given the study focus, they modified the OMRU by incorporating the concepts of decision-making and patient activation [205]—that is, ‘[an] ability or [a] readiness.”
MethodIrfan, B., Kuoppamäki, S., Hosseini, A., & Skantze, G. (2025) · Autonomous Robots · doi:10.1007/s10514-025-10190-y · Cited by 92
Advance Care Planning in Frail Older Adults: A Cluster Randomized Controlled Trial
Overbeek, A., Korfage, I. J., Jabbarian, L. J., Billekens, P., Hammes, B. J., Polinder, S., Severijnen, J., Swart, S. J., Witkamp, F. E., van der Heide, A., et al. (2018) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15333 · Cited by 74
“Patient activation refers to the knowledge, skills, and confidence that equip individuals to be actively engaged in their healthcare.(6) Hibbard’s conceptual model of patient activation From the *Department of Public Health, Erasmus MC; Laurens, Rotterdam, the Netherlands; Respecting Choices, C-TAC Innovations, La Cro…”
BackgroundFrankland, J., Brodie, H., Cooke, D., Foster, C. L., Foster, R., Gage, H., Jordan, J., Mesa‐Eguiagaray, I., Pickering, R. M., & Richardson, A. M. (2019) · BMC Cancer · doi:10.1186/s12885-019-5561-0 · Cited by 74
Schapira, M. M., Fletcher, K. E., Hayes, A., Eastwood, D. C., Patterson, L., Ertl, K., & Whittle, J. (2012) · Journal of Clinical Hypertension · doi:10.1111/j.1751-7176.2012.00619.x · Cited by 82
“Patient activation was assessed using the Patient Activation Measure, a 13-item scale with 4-point Likert scale response options.(25) Self-efficacy was assessed with the self-efficacy scale, a 10-item measure with 4-point Likert scale response options.”
MethodPatient activation and use of an electronic patient portal
Ancker, J. S., Osorio, S. N., Cheriff, A. D., Cole, C. L., Silver, M. D., & Kaushal, R. (2014) · Informatics for Health and Social Care · doi:10.3109/17538157.2014.908200 · Cited by 75
“This combination of knowledge, skills, and self-efficacy, labeled ‘‘patient activation,’’ has been studied with the patient activation measure (PAM) (4).”
BackgroundMethodNijman, J., Hendriks, M. C. P., Brabers, A. E. M., de Jong, J. D., & Rademakers, J. J. D. J. M. (2014) · Journal of Health Communication · doi:10.1080/10810730.2013.837561 · Cited by 78
“As a result, a higher activated person will have a higher probability of better health outcomes (Hibbard, 2003; Hibbard et al., 2004).”
BackgroundMethodCoomes, C. M., Lewis, M. A., Uhrig, J. D., Furberg, R., Harris, J. L., & Bann, C. (2011) · AIDS Care · doi:10.1080/09540121.2011.608421 · Cited by 71
“Playing an active role in one's health and medical care leads to better healthcare quality, better clinical health outcomes, and likely lower healthcare costs (Hibbard, Stockard, Mahoney, & Tusler, 2004 ).”
BackgroundToro, N. (2011) · International Journal of Integrated Care · doi:10.5334/ijic.800 · Cited by 70
Factors Associated With Parental Activation in Pediatric Hematopoietic Stem Cell Transplant
Pennarola, B. W., Rodday, A. M., Mayer, D. K., Ratichek, S. J., Davies, S. M., Syrjala, K. L., Patel, S. K., Bingen, K. M., Kupst, M. J., Schwartz, L. A., et al. (2011) · Medical Care Research and Review · doi:10.1177/1077558711431460 · Cited by 74
“The PAM is validated in chronically-ill populations (Fowles et al., 2009; Hibbard et al., 2004; Hibbard & Cunningham, 2008; Mosen et al., 2007; Rask et al., 2009; Skolasky et al., 2008; Stepleman et al., 2010).”
BackgroundSelf-citationThe Meaning and Significance of Self-Management Among Socioeconomically Vulnerable Older Adults
Clark, D. O., Frankel, R. M., Morgan, D. L., Ricketts, G. D., Bair, M. J., Nyland, K. A., & Callahan, C. M. (2008) · The Journals of Gerontology Series B · doi:10.1093/geronb/63.5.s312 · Cited by 73
Melissant, H. C., Leeuw, I. M. V., Lissenberg-Witte, B. I., Konings, I. R. H. M., Cuijpers, P. J., & van Uden‐Kraan, C. F. (2018) · Acta Oncologica · doi:10.1080/0284186x.2018.1438654 · Cited by 72
Sun, V. C.-Y., Ercolano, E. A., McCorkle, R. C., GRANT, M. M., Wendel, C. S., Tallman, N. J., Passero, F. C., Raza, S., Cidav, Z., Holcomb, M. J., et al. (2017) · Contemporary Clinical Trials · doi:10.1016/j.cct.2017.10.008 · Cited by 72
“It incorporates patient activation, defined as taking action to maintain and improve one’s health, staying the course even when under stress, and not giving up in the face of setbacks or challenges [31, 32].”
BackgroundEmpowering Patients to Co-Create a Sustainable Healthcare Value
Russo, G. M., Tartaglione, A. M., & Cavacece, Y. (2019) · Sustainability · doi:10.3390/su11051315 · Cited by 72
“Patient empowerment Health Literacy (HL) 5 [72] Patient Participation (PP) 3 [26,60] Patient Control (PC) 4 [20,21] Communication with Healthcare Professionals (CHP) 10 [25]”
BackgroundMethodRademakers, J. J. D. J. M., Maindal, H. T., Steinsbekk, A., Gensichen, J. S., Brenk-Franz, K., & Hendriks, M. C. P. (2016) · BMC Health Services Research · doi:10.1186/s12913-016-1828-1 · Cited by 77
“developed and tested the Patient Activation Measure (PAM) in 2004 [9, 10].”
BackgroundMethodJohnson, M. O., Rose, C. D., Dilworth, S. E., & Neilands, T. B. (2012) · PLoS ONE · doi:10.1371/journal.pone.0045692 · Cited by 76
“While there are other constructs and measures in the literature that shed light on factors that may impact engagement in medical care, such as the Patient Activation Measure [5], the newly developed Model of Health Care Empowerment is unique in its focus on multiple, inter-related dimensions of engagement in care that…”
BackgroundMoretta Tartaglione, A., Cavacece, Y., Cassia, F., & Russo, G. (2018) · The TQM Journal · doi:10.1108/tqm-11-2017-0138 · Cited by 68
“In detail, for the operationalization of patient empowerment, a series of models were carefully chosen from the literature (Ishikawa et al., 2008; Hibbard et al., 2004; Small et al., 2013; Faulkner, 2001; Kim et al., 2001) and the items representing the four dimensions of patient empowerment (Ünver and Atzori, 2013) w…”
BackgroundMethodMcCabe, P. J., Stuart-Mullen, L. G., McLeod, C. J., Byrne, T. O., Schmidt, M. M., Branda, M. E., & Griffin, J. M. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s172970 · Cited by 73
“Clinicians can develop a practical and patient-centered plan to move the patient up the activation continuum.(5) The purpose of this retrospective cross-sectional study was to describe patient activation levels in patients with symptomatic AF and determine if patient-reported (AF symptom burden,”
InfluentialNorth, M., Bourne, S. C., Green, B., Chauhan, A., Brown, T., Winter, J., Jones, T. L., Neville, D., Blythin, A. M., Watson, A., et al. (2020) · npj Digital Medicine · doi:10.1038/s41746-020-00347-7 · Cited by 69
Navigating Poorly Charted Territory
Sofaer, S. (2008) · Medical Care Research and Review · doi:10.1177/1077558708327945 · Cited by 70
Patient participation in inpatient ward rounds on acute inpatient medical wards: a descriptive study
Redley, B., McTier, L., Botti, M. A., Hutchinson, A. M., Newnham, H. H., Campbell, D. A., & Bucknall, T. K. (2018) · BMJ Quality & Safety · doi:10.1136/bmjqs-2017-007292 · Cited by 67
Patient Engagement in Health Care
Clancy, C. M. (2011) · Health Services Research · doi:10.1111/j.1475-6773.2011.01254.x · Cited by 69
Development and initial testing of a Health Confidence Score (HCS)
Benson, T., POTTS, H. W. W., Bark, P., & Bowman, C. (2019) · BMJ Open Quality · doi:10.1136/bmjoq-2018-000411 · Cited by 70
Improving outcomes at Level I trauma centers
Castillo, R. C., Wegener, S. T., Zadnik, M., Carlini, A. R., Bradford, A. N., Heins, S. E., Wysocki, E., Pollak, A. N., Teter, H., & MacKenzie, E. J. (2013) · The Journal of Trauma: Injury, Infection, and Critical Care · doi:10.1097/ta.0b013e3182921606 · Cited by 67
“The two intermediate outcomes measured were self-efficacy and patient activation (an aggregate concept encompassing broad areas of beliefs, motivation, locus of control, and self-efficacy) as measured by the Patient Activation Measure (PAM).(24) Key outcomes included health status as measured by the Physical Component…”
MethodPatient Activation and Functional Recovery in Persons Undergoing Spine Surgery
Skolasky, R. L., MacKenzie, E. J., Wegener, S. T., & Riley, L. H. (2011) · Journal of Bone and Joint Surgery · doi:10.2106/jbjs.j.00855 · Cited by 69
Kalauokalani, D. K., Franks, P. J., Oliver, J. W., Meyers, F. J., & Kravitz, R. L. (2007) · Pain Medicine · doi:10.1111/j.1526-4637.2007.00170.x · Cited by 68
How self-stigma affects patient activation in persons with type 2 diabetes: a cross-sectional study
Kato, A., Fujimaki, Y., Fujimori, S., Isogawa, A., Onishi, Y., Suzuki, R., Ueki, K., Yamauchi, T., Kadowaki, T., & Hashimoto, H. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-034757 · Cited by 68
“In this study, the internal consistency of the PHQ-9 was 0.86.”
InfluentialChegini, Z., Arab‐Zozani, M., Islam, S. M. S., Tobiano, G., & Rahimi, S. A. (2021) · Nursing Forum · doi:10.1111/nuf.12635 · Cited by 67
Magadi, W., Lightfoot, C. J., Memory, K. E., Santhakumaran, S., van der Veer, S. N., Thomas, N., Gair, R., & Smith, A. C. (2022) · BMC Nephrology · doi:10.1186/s12882-022-02679-w · Cited by 67
“The most widely used tool for assessment of activation is the Patient Activation Measure (PAM) [2].”
MethodPatient factors and glycaemic control – associations and explanatory power
Rogvi, S. Á., Tapager, I., Almdal, T., Schiøtz, M. L., & Willaing, I. (2012) · Diabetic Medicine · doi:10.1111/j.1464-5491.2012.03703.x · Cited by 67
Allen, M., Cook, B. L., Carson, N. J., Interian, A., Roche, M. J. L., & Alegria, M. M. (2015) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-015-0655-8 · Cited by 67
“…to take action (‘‘I know what each of my prescribed medications do’’), (3) Taking action (‘‘I have been able to maintain lifestyle changes’’), and (4) Staying the course under stress (‘‘I am confident I can figure out solutions when new problems arise with my health’’) (Hibbard et al. 2005, 2004).”
InfluentialGreene, J., Hibbard, J. H., & Tusler, M. (2005) · Cited by 68
Self-citationClayman, M. L., Pandit, A. U., Bergeron, A. R., Cameron, K. A., Ross, E., & Wolf, M. S. (2010) · Journal of Health Communication · doi:10.1080/10810730.2010.500349 · Cited by 63
“Our scale may complement tools such as the Patient Activation Measure (Hibbard et al., 2005; Hibbard et al., 2004) which appropriately addresses motivational factors in the context of healthcare, but does not assess the interaction between patients and clinicians.”
MethodBecker, E. R., & Rahimi, A. R. O. (2006) · PubMed · Cited by 66
Improving the quality of care in general practice
Goodwin, N., Dixon, A. L., Poole, T.-L., & Raleigh, V. S. (2011) · Cited by 66
Zimbudzi, E., Lo, C., Ranasinha, S., Kerr, P. G., Polkinghorne, K. R., Teede, H. J., Usherwood, T., Walker, R. G., Johnson, G., Fulcher, G., et al. (2017) · Health Expectations · doi:10.1111/hex.12577 · Cited by 65
Druss, B. G., Singh, M., von Esenwein, S. A., Glick, G. E., Tapscott, S. L., Tucker, S. J., Lally, C. A., & Sterling, E. W. (2018) · Psychiatric Services · doi:10.1176/appi.ps.201700352 · Cited by 66
“The intervention was hypothesized to improve health-related quality of life through improved general medical self-management, which was assessed with the Patient ActivationMeasure (48), a measure of patients’ perceived ability tomanage their illnesses and their health care visits.”
Linden, A., & Adams, J. (2010) · Journal of Evaluation in Clinical Practice · doi:10.1111/j.1365-2753.2009.01219.x · Cited by 65
Patient activation in adults with chronic conditions: A systematic review
Newland, P., Lorenz, R. A., & Oliver, B. J. (2020) · Journal of Health Psychology · doi:10.1177/1359105320947790 · Cited by 65
Lightfoot, C. J., Wilkinson, T. J., Memory, K. E., Palmer, J., & Smith, A. C. (2021) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.19611220 · Cited by 65
“The most frequently used measure of patient activation is the 13-item Patient Activation Measure (PAM13), a self-report tool designed to assess one’s activation in managing one's health (6).”
BackgroundMethodSelf-management in heart failure: where have we been and where should we go?
Gardetto, N. J. (2011) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s8174 · Cited by 65
“Hibbard and her colleagues from the University of Oregon have described the theory and measurement of consumer and patient activation.(45,48,49) The degree to which an individual understands the necessity of taking an active role in managing personal health and health care, and feels capable of self-management is desc…”
BackgroundMethodInfluentialShoemaker, S. J., de Oliveira, D. R., Alves, M. R., & Ekstrand, M. J. (2011) · Patient Education and Counseling · doi:10.1016/j.pec.2011.02.007 · Cited by 65
“approaches to patient education have been evolving to a more participative role in which the decision-making about treatments is shared between the patient and practitioners [57–61].”
BackgroundLewis, G. H. (2010) · Milbank Quarterly · doi:10.1111/j.1468-0009.2010.00597.x · Cited by 65
Graffigna, G., Barello, S., Bonanomi, A. G., & Menichetti, J. (2016) · Journal of Diabetes Research · doi:10.1155/2016/2974521 · Cited by 65
“Patient Activation Measure (PAM) developed by Hibbard and colleagues [40], the 13-item Patient Activation Measure, is an interval-level, unidimensional Guttman-like measure that contains items measuring self-assessed knowledge about chronic conditions, beliefs about illness and medical care, and self-efficacy for self…”
MethodEdbrooke-Childs, J. H., Jacob, J., Argent, R., Patalay, P., Deighton, J., & Wolpert, M. (2015) · Clinical Child Psychology and Psychiatry · doi:10.1177/1359104515591226 · Cited by 65
“One possible explanation for this interaction effect may be self-management and patient activation, in that SDM may support improvements in these areas (Alegría et al., 2008; Hibbard et al., 2004; Storm & Edwards, 2012).”
BackgroundClinical Inertia: A Common Barrier to Changing Provider Prescribing Behavior
Roumie, C. L., Elasy, T. A., Wallston, K. A., Pratt, S., Greevy, R. A., Liu, X., Alvarez, V., Dittus, R. S., & Speroff, T. (2007) · The Joint Commission Journal on Quality and Patient Safety · doi:10.1016/s1553-7250(07)33032-8 · Cited by 65
Persell, S. D., Karmali, K. N., Lazar, D., Friesema, E. M., Lee, J. Y., RADEMAKER, A. W., Kaiser, D., Eder, M., French, D. D., Brown, T., et al. (2018) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2018.2372 · Cited by 71
Teitelbaum, I., Glickman, J. D., Neu, A. M., Neumann, J. L., Rivara, M. B., Shen, J. I., Wallace, E. L., Watnick, S. G., & Mehrotra, R. (2020) · American Journal of Kidney Diseases · doi:10.1053/j.ajkd.2020.09.010 · Cited by 64
New perspectives for motivating better decisions in older adults
Strough, J., de Bruin, W. B., & Peters, E. M. (2015) · Frontiers in Psychology · doi:10.3389/fpsyg.2015.00783 · Cited by 73
“…in the process of becoming competent managers of their own health: understanding that they have an important role to play in managing their health; gaining the knowledge and confidence to take action; taking action; and maintaining those behaviors even under stress (Hibbard et al., 2004, 2005).”
BackgroundEffects of a Palliative Care Intervention on Clinical Outcomes in Patients With Advanced Cancer
Lyons, K. D., Hegel, M. T., Balan, S., Brokaw, F. C., Seville, J. L., Hull, J. G., Li, Z., Tosteson, T. D., Byock, I. R., & Ahles, T. A. (2009) · Cited by 64
DeMeester, R. H., López, F. Y., Moore, J. E., Cook, S. C., & Chin, M. H. (2016) · Journal of General Internal Medicine · doi:10.1007/s11606-016-3608-3 · Cited by 66
Primer on adult patient satisfaction in perioperative settings
Trinh, L. N., Fortier, M. A., & Kain, Z. N. (2019) · Perioperative Medicine · doi:10.1186/s13741-019-0122-2 · Cited by 72
“Patients who were less satisfied experienced persistent pain, nausea, vomiting, and other minor adverse outcomes post-operatively (Hickson et al., 2002; Bjertnaes et al., 2012; Bleich et al., 2009; Hibbard et al., 2004).”
Background
Metadata
- Authors
- Hibbard, J. H., Stockard, J., Mahoney, E. R., & Tusler, M.
- Affiliations
- University of Oregon (US)
- Corresponding author
- Hibbard, Judith H.
- Venue
- Health Services Research
- Publisher
- Wiley
- Published
- 2004-06-28
- Volume
- 39
- Issue
- 4p1
- Pages
- 1005-1026
- ISSN
- 0017-9124 (ISSN-L)
- 1475-6773
- PMC
- PMC1361049
- OpenAlex
- W1926404136
- Cited by
- 2,748
- References
- 36
- Citations by year
- 2026: 136 · 2025: 217 · 2024: 227 · 2023: 203 · 2022: 233 · 2021: 235 · 2020: 184 · 2019: 182 · 2018: 186 · 2017: 172 · 2016: 172 · 2015: 147 · 2014: 114 · 2013: 88 · 2012: 65
- FWCI
- 18.98
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Health Services Research (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Scholars' Bank (University of Oregon) (submittedVersion)
- Topics
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- Patient Activation Measure, patient activation, psychometric validation, Rasch analysis, scale development, chronic disease, health behavior change, healthcare quality improvement
- MeSH terms
- Adult, Aged, Aged, 80 and over, Chronic Disease, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Outcome and Process Assessment, Health Care, Patient Education as Topic, Patient Participation, Pilot Projects, Primary Prevention, Psychometrics, Surveys and Questionnaires, Time Factors, United States, Reproducibility of Results
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