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Development of the Quality of Life in Epilepsy Inventory
Abstract
Summary: We developed an instrument to measure health‐related quality of life (HRQOL) in epilepsy. A 99‐item inventory was constructed from the RAND 36‐Item Health Survey (generic core), with 9 additional generic items, 48 epilepsy‐targeted items, and 6 other items concerning attitudes toward epilepsy and self‐esteem. We administered the 99‐item inventory to 304 adults with epilepsy at 25 epilepsy centers. Patients and patient‐designated proxies completed the inventory and were retested 1–91 days later. A multitrait scaling analysis of these data led to retention of 86 items distributed in 17 multiitem scales (Cronbach's alpha ranged from 0.78 to 0.92). Factor analysis of the 17 multiitem scales yielded four underlying dimensions of health: an epilepsy‐targeted dimension, a cognitive factor, mental health, and physical health. Construct validity was supported by significant patient‐proxy correlations for all scales and correlations between neuropsychologic tests and self‐reported emotional and cognitive function (all p values < 0.05). There were significant negative correlations between the four factor scores derived from the HRQOL scales and neurotoxicity, systemic toxicity, and health care utilization (except for the correlation between mental health factor and health care utilization; all p values < 0.05). Patients who were seizure‐free in the preceding year reported better HRQOL for the overall score, three of the four factor scores, and 8 of the 17 scale scores than did patients with a high frequency of seizures. Relative validity analysis showed that the epilepsy‐targeted factor and three of its four component scales were more sensitive to categorization of patients by severity of seizure frequency and type than scales tapping physical health, mental health, or cognitive function. These cross‐sectional data support the reliability and validity of this measure of HRQOL in epilepsy. The addition of an epilepsy‐targeted supplement to the generic core improved the sensitivity to severity of epilepsy. The 86 items included in the field testing were supplemented by three additional items to form the Quality of Life in Epilepsy (QOLIE‐89) inventory.
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“The most commonly used scale for assessing HRQoL was the Quality of Life in Epilepsy-31/-31-P/-89 (QOLIE-31/31-P/-89). 51,52”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [52]
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Items 201–300 of 633
Epilepsy stigma perception in an urban area of a limited-resource country
Fernandes, P. T., Salgado, P. C. B., Noronha, A. L. A., de Boer, H. M., Prilipko, L. L., Sander, J. W. A. S., & Li, L. M. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.02.020 · Cited by 53
“Studies in Europe [3,5–7] and North America [8] [9] [10] [11] suggest that the stigma of epilepsy is one of the most important negative influences on the quality of life of people with epilepsy.”
NEUROMODULATION OF EPILEPTIC FOCI IN PATIENTS WITH NON-LESIONAL REFRACTORY MOTOR EPILEPSY
Velasco, A. L., Velasco, F., Velasco, M., NÚÑEZ, J. M., TREJO, D., & GARCÍA, I. (2009) · International Journal of Neural Systems · doi:10.1142/s0129065709001914 · Cited by 53
Pauli, C., Schwarzbold, M. L., Díaz, A. P., Thais, M. E. R. D. O., Kondageski, C., Linhares, M. N., Guarnieri, R., Zingano, B. D. L., Ben, J., Nunes, J. C., et al. (2017) · Epilepsia · doi:10.1111/epi.13721 · Cited by 53
“However, in adults with drug-resistant epilepsies the adverse effects of antiepileptic drugs (AEDs) and depressive symptoms were better predictors of QOL than seizure frequency itself.3,5 Few studies have investigated factors that predict QOL after surgery using multivariate analyses, which are useful to identify vari…”
InfluentialPsychosocial intervention in pediatric epilepsy: A critique of the literature
Wagner, J. L., & Smith, G. M. (2005) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2005.08.011 · Cited by 53
The SF-36 as a health status measure for epilepsy: A psychometric assessment
Jacoby, A., Baker, G. A., Steen, N., & Buck, D. (1999) · Quality of Life Research · doi:10.1023/a:1008902728574 · Cited by 53
“In epilepsy, the SF-36 has been used both as a health status measure in its own right [2, 3] and as the generic core for two recently developed epilepsy-speci®c outcome measures, the Epilepsy Surgery Inventory (ESI-55; [4]) and the Quality of Life in Epilepsy Inventory (QOLIE-89; [5]).”
MethodHaneef, Z., Grant, M., Valencia, I., Hobdell, E. F., Kothare, S. V., Legido, A., & Khurana, D. S. (2010) · Epileptic Disorders · doi:10.1684/epd.2010.0344 · Cited by 52
“However, contrary to our findings, Devinsky et al. (1995) have shown positive HRQOL correlations with the educational and employment status of the parents, and Sabaz et al. (2003) have shown correlation with the estimated family income but not the educational status of the parents.”
BackgroundResultEpilepsy-associated stigma from the perspective of people with epilepsy and the community in Italy
Tombini, M., Assenza, G., Quintiliani, L., Ricci, L., Lanzone, J., Mojà, R. D., Ulivi, M., & Lazzaro, V. D. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.06.026 · Cited by 52
Quality of life in epilepsy: comparison of four preference measures
Stavem, K. (1998) · Epilepsy Research · doi:10.1016/s0920-1211(97)00075-2 · Cited by 51
Validity and Responsiveness of Generic Preference-based HRQOL Instruments in Chronic Epilepsy
Langfitt, J. T., Vickrey, B. G., McDermott, M., Messing, S. P., Berg, A. T., Spencer, S. S., Sperling, M. R., Bazil, C. W., & Shinnar, S. (2006) · Quality of Life Research · doi:10.1007/s11136-005-5231-3 · Cited by 51
“QOLIE-89 includes the SF-36 as a generic core and a 53-item epilepsy-targeted supplement [32].”
Self-citationPiperidou, C., Karlovasitou, A., Triantafyllou, N. I., Dimitrakoudi, E., Terzoudi, A., Mavraki, E., Trypsianis, G. A., Vadikolias, Κ., Heliopoulos, I., Vassilopoulos, D., et al. (2008) · Quality of Life Research · doi:10.1007/s11136-008-9375-9 · Cited by 52
“Previous studies highlighted that the severity of seizures can be as important as the frequency in determining patients’ perception of their quality of life [ 1 , 6]. In this study we did not investigate the severity of seizures, but only the type of seizures, because we do not have a validated specific questionnaire…”
BackgroundZhao, Y., Zhang, Q., Tsering, T., Sangwan, Hu, X., Liu, L., Shang, H., Chen, Q., Liu, Y., Yang, X., et al. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.10.012 · Cited by 51
“Exclusion criteria were similar to those of a previous study [3].”
BackgroundResultde Castro, O. W., Upadhya, D., Kodali, M., & Shetty, A. K. (2017) · Frontiers in Neurology · doi:10.3389/fneur.2017.00603 · Cited by 51
Quigg, M., Armstrong, R. F., Farace, E., & Fountain, N. B. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5050(02)00524-3 · Cited by 51
“Quality of life (QOL) measurements, such as the Quality of Life in Epilepsy-89 [4] were developed to help measure functional outcome in epilepsy.”
MethodEvidence-based models of care for people with epilepsy
Fitzsimons, M. B., Normand, C. E. M., Varley, J., & Delanty, N. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.10.019 · Cited by 50
“The results were assessed after 2 years, with QOLIE-89 [37], and the main improvements were found in physical role limitations (P=0.”
MethodGaston, T. E., Szaflarski, M., Hansen, B., Bebin, E. M., & Szaflarski, J. P. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.03.035 · Cited by 53
The Cannabidiol Use in the Treatment of Epilepsy
Matos, R. L. A., Spinola, L. A., Barboza, L. L., Garcia, D. R., França, T. C. C., & Affonso, R. S. (2017) · Revista Virtual de Química · doi:10.21577/1984-6835.20170049 · Cited by 62
The impact of epilepsy on subjective health status
Gilliam, F. G. (2003) · Current Neurology and Neuroscience Reports · doi:10.1007/s11910-003-0014-0 · Cited by 49
“After signing an informed consent document approved by the Institutional Review Board, each patient scored the AEP, QOLIE-89 [ 15 ], and the Beck Depression Inventory [43].”
MethodTownshend, K. H., Dorris, L., McEwan, M. J., Aylett, S., Brodie, M. J., O’Regan, M., & Espie, C. A. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.09.008 · Cited by 49
“[36] and Cramer et al.”
Liu, Z., Yin, R. L., Fan, Z., Fan, H., Wu, H., Shen, B., Wu, S., & Kuang, F. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00670 · Cited by 48
“The QOLIE-31 overall score is the sum of the weighted average of each subscale score, ranging from 1 to 100, with higher scores meaning a more favorable QOL (17, 18).”
BackgroundThe Health Status of Adults With Epilepsy Compared With That of People Without Chronic Conditions
Wagner, A. K., Bungay, K. M., Kosinski, M. R., Bromfield, E. B., & Ehrenberg, B. L. (1996) · Pharmacotherapy The Journal of Human Pharmacology and Drug Therapy · doi:10.1002/j.1875-9114.1996.tb02911.x · Cited by 48
Multidimensional Quality of Life: A New Measure of Quality of Life in Adults
Kreitler, S., & Kreitler, M. M. (2006) · Social Indicators Research · doi:10.1007/s11205-005-4854-7 · Cited by 47
von Lehe, M., Lutz, M., Kral, T., Schramm, J., Elger, C. E., & Clusmann, H. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.03.014 · Cited by 47
“It is widely accepted that physical abilities, cognitive functioning, social competence, and emotional stability are essential in the evaluation of HRQOL [17,24].”
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“Various studies support the role of certain epilepsy-related features in QOL that were significantly associated with some HRQOL domains in this study: frequency of seizures [5,10,43,64,65], as well as seizure control [11,12,14,15], PNES [66], and number of seizure types [11].”
Improved mood states with lamotrigine in patients with epilepsy
Cramer, J. A., Hammer, A. E., & Kustra, R. P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.07.005 · Cited by 47
“This report describes the effect of LTG on aspects of mood using the Profile of Mood States (POMS) [4], an instrument often used in epilepsy studies [5–11].”
MethodSelf-citationBeghi, E., Niero, M., & Roncolato, M. (2005) · Seizure · doi:10.1016/j.seizure.2005.07.008 · Cited by 46
Picot, M., Crespel, A., Daurès, J., Baldy-Moulinier, M., & Hasnaoui, A. E. (2004) · Epileptic Disorders · doi:10.1684/j.1950-6945.2004.tb00077.x · Cited by 46
Delev, D., Send, K., Wagner, J., von Lehe, M., Ormond, D. R., Schramm, J., & Grote, A. (2014) · Epilepsia · doi:10.1111/epi.12747 · Cited by 45
“All 20 (100) 9 (45) 0 (0) 0 (0) 6 (30) 5 (25) 0 (0)”
Quality of life among people with epilepsy: a cross-sectional study from rural southern India.
S, R. P., Ramesh, R., Rachel, P., Chanda, R., Satish, N., & Mohan, V. R. (2012) · PubMed · Cited by 45
An Evaluation of the Effects of Methylphenidate on Outcomes in Adult Epilepsy Patients
Moore, J. L., McAuley, J. W., Long, L., & Bornstein, R. A. (2002) · Epilepsy & Behavior · doi:10.1006/ebeh.2001.0313 · Cited by 45
Surgical treatment of independent bitemporal lobe epilepsy defined by invasive recordings
Boling, W., Aghakhani, Y., Andermann, F., Sziklas, V., & Olivier, A. (2008) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.2008.155291 · Cited by 45
A Review of Subjective Impact Measures for Use with Children and Adolescents with Epilepsy
Cowan, J., & Baker, G. A. (2004) · Quality of Life Research · doi:10.1023/b:qure.0000040796.54498.69 · Cited by 45
Impact of Parkinson's disease on patients' adolescent and adult children
Schrag, A. E., Morley, D., Quinn, N. P., & Jahanshahi, M. (2004) · Parkinsonism & Related Disorders · doi:10.1016/j.parkreldis.2004.03.011 · Cited by 44
Coker, M. F., Bhargava, S., Fitzgerald, M. G., & Doherty, C. P. (2010) · Seizure · doi:10.1016/j.seizure.2010.10.007 · Cited by 43
Seizure Freedom Reduces Illness Intrusiveness and Improves Quality of Life in Epilepsy
Poochikian-Sarkissian, S., Sidani, S., Wennberg, R. A., & Devins, G. M. (2008) · Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques · doi:10.1017/s0317167100008842 · Cited by 43
The association between health literacy and outcomes of care among epilepsy patients
Bautista, R. E. D., Glen, E. T., Shetty, N. K., & Wludyka, P. S. (2009) · Seizure · doi:10.1016/j.seizure.2009.02.004 · Cited by 43
“The QOLIE-10 is a widely used measure derived from the longer QOLIE-89 [19] and covers general and epilepsy-targeted aspects of physical and mental health as well as social and role functioning.”
MethodValidation of the side effect and life satisfaction (SEALS) inventory
Gillham, R. A., Bryant‐Comstock, L., & Kane, K. (2000) · Seizure · doi:10.1053/seiz.2000.0446 · Cited by 43
Wagner, A. K., & Vickrey, B. G. (1995) · Quality of Life Research · doi:10.1007/bf01833610 · Cited by 43
Self-citationStigma and quality of life in individuals with epilepsy: A preliminary report
Kumari, P., Ram, D., Nizamie, S. H., & Goyal, N. (2009) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.05.003 · Cited by 42
“The questionnaire also provides an overall score [13].”
BackgroundTerzic, B., Cui, Y., Edmondson, A. C., Tang, S., Sarmiento, N., Zaitseva, D., Marsh, E. D., Coulter, D. A., & Zhou, Z. (2020) · Neurobiology of Disease · doi:10.1016/j.nbd.2020.105176 · Cited by 42
Stavem, K., Bjørnes, H., & Lossius, M. I. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb01511.x · Cited by 42
The evolution of health-related quality of life assessment in epilepsy
Hermann, B. P. (1995) · Quality of Life Research · doi:10.1007/bf01833604 · Cited by 42
Self-citationPredictors of quality of life in patients with refractory mesial temporal lobe epilepsy
Pauli, C., Thais, M. E. R. D. O., Sukys-Claudino, L., Bicalho, M. A. H., Bastos, A. C., Guarnieri, R., Nunes, J. C., Lin, K., Linhares, M. N., & Walz, R. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.06.037 · Cited by 41
“The QOLIE-31 is a widely adopted epilepsyspecific QOL instrument [25].”
TREATMENT OF TEMPORAL LOBE EPILEPSY
Ojemann, G. A. (1997) · Annual Review of Medicine · doi:10.1146/annurev.med.48.1.317 · Cited by 41
The Emergence of Neurosurgical Approaches to the Treatment of Epilepsy
Engel, J. (2005) · Elsevier eBooks · doi:10.1016/b978-012738903-5/50006-0 · Cited by 40
Responsive Neurostimulation for the Treatment of Epilepsy
Matias, C. M., Sharan, A. D., & Wu, C. (2019) · Neurosurgery Clinics of North America · doi:10.1016/j.nec.2018.12.006 · Cited by 40
Quality of life and related factors in adult patients with epilepsy in China
Zhao, Y., Wu, H., Li, J., Dong, Y., Liang, J., Zhu, J., Chen, B.-Y., & Li, J. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.07.025 · Cited by 39
Improving quality of life beyond seizure control
Schachter, S. C. (2005) · Epileptic Disorders · doi:10.1684/j.1950-6945.2005.tb00150.x · Cited by 39
Anticonvulsant Activities of the FS‐1 Subfraction Isolated from Roots of Delphinium denudatum
Raza, M., Shaheen, F., Choudhary, M. I., Suria, A., Rahman, A., Sombati, S., & DeLorenzo, R. J. (2001) · Phytotherapy Research · doi:10.1002/ptr.792 · Cited by 39
Zou, X., Hong, Z., Chen, J., & Zhou, D. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.11.028 · Cited by 39
Influence of Marital Status on the Quality of Life of Chinese Adult Patients with Epilepsy
Wang, F., Gu, X.-M., Hao, B.-Y., Wang, S., Chen, Z.-J., & Ding, C.-Y. (2017) · Chinese Medical Journal · doi:10.4103/0366-6999.196572 · Cited by 39
“QOLIE–31: Quality of Life in Epilepsy–31; SD: Standard deviation.”
BackgroundInfluentialAnxiety is common and independently associated with clinical features of epilepsy
Clary, H. M. M., Snively, B. M., & Hamberger, M. J. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.05.024 · Cited by 38
Seizure control in patients with epilepsy: the physician vs. medication factors
Szaflarski, J. P., Rackley, A. Y., Lindsell, C. J., Szaflarski, M., & Yates, S. L. (2008) · BMC Health Services Research · doi:10.1186/1472-6963-8-264 · Cited by 38
“[21-24]”
Psychosocial long‐term outcome in juvenile myoclonic epilepsy
Holtkamp, M., Senf, P., Kirschbaum, A., & Janz, D. (2014) · Epilepsia · doi:10.1111/epi.12751 · Cited by 38
“The QOLIE-31 is a widely adopted epilepsy-specific instrument for assessment of quality of life (QoL).(16) It comprises 30 items divided into seven subscale domains: seizure worry (five items), emotional well-being (five items), energy/ fatigue (four items), cognitive functioning (six items), medication effects (three…”
MethodMikati, M. A., Rahi, A. C., Shamseddine, A. A., Mroueh, S. M., Shoeib, H., & Comair, Y. G. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.08.010 · Cited by 38
“[8] and consists of a combination of items from the Quality of Life in Epilepsy inventory (QOLIE) and the Hague Restrictions in Childhood Epilepsy Scale (HARCES) [18,19].”
MethodAssessment of Treatment Side Effects and Quality of Life in People with Epilepsy
Blond, B. N., Detyniecki, K., & Hirsch, L. J. (2016) · Neurologic Clinics · doi:10.1016/j.ncl.2015.11.002 · Cited by 37
Subjective memory and mood of Hong Kong Chinese adults with epilepsy
Au, A. M. L., Leung, P., Kwok, A. P., Li, P., Lui, C. H. T., & Chan, J. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.04.004 · Cited by 37
Predicting the quality of life in Hong Kong Chinese adults with epilepsy
Au, A. M. L., Li, P., Chan, J., Lui, C. H. T., Ng, P. K. K., Kwok, A. P., & Leung, P. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5050(02)00034-3 · Cited by 37
Fatigue and Depression in Epilepsy
Ettinger, A. B., Weisbrot, D. M., Krupp, L., Coyle, P. K., Jandorf, L. H., & Devinsky, O. (1998) · Journal of Epilepsy · doi:10.1016/s0896-6974(97)00139-4 · Cited by 37
Self-citationQuality of life and related factors in Chinese adolescents with active epilepsy
Wu, D., Ding, D., Wang, Y., & Hong, Z. (2010) · Epilepsy Research · doi:10.1016/j.eplepsyres.2010.03.001 · Cited by 36
Quality of life in young adults with uncomplicated epilepsy
Räty, L., & Wilde‐Larsson, B. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.09.010 · Cited by 36
Elliott, I., Lach, L., & Smith, M. L. (2000) · Epilepsy & Behavior · doi:10.1006/ebeh.2000.0129 · Cited by 36
McLaughlin, D., Pachana, N. A., & McFarland, K. A. (2010) · Seizure · doi:10.1016/j.seizure.2010.02.008 · Cited by 35
Margolis, S. A., Nakhutina, L., Schaffer, S. G., Grant, A. C., & Gonzalez, J. S. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.10.023 · Cited by 35
Pinto, J. V., Saraf, G., Frysch, C., Vigo, D., Keramatian, K., Chakrabarty, T., Lam, R. W. M., Kauer‐Sant’Anna, M., & Yatham, L. N. (2019) · The Canadian Journal of Psychiatry · doi:10.1177/0706743719895195 · Cited by 38
Transcutaneous vagus nerve stimulation in the treatment of drug-resistant epilepsy
von Wrede, R. D., & Surges, R. (2021) · Autonomic Neuroscience · doi:10.1016/j.autneu.2021.102840 · Cited by 34
PESOS-Fragebogen für Menschen mit Epilepsie—
May, T. W., Pfäfflin, M., Thorbecke, R., Specht, U., van Kampen, N., & Coban, I. (2004) · Clinical Epileptology · doi:10.1007/s10309-004-0087-z · Cited by 35
“Diese Ergebnisse stimmen mit denen anderer Studien (vgl. Berto, 2002; Cramer et al., 1998; Devinsky et al., 1995; Leidy et al., 1999; Djibuti & Shakarishvili, 2003), bei denen andere Lebensqualitäts-Fragebogen (QOLIE-31, QOLIE-89, ESI-55) eingesetzt wurden, überein, die ebenfalls den Einfluss der…”
BackgroundHealth-related quality of life in epilepsy: Findings obtained with a new Italian instrument
Piazzini, A., Beghi, E., Turner, K., & Ferraroni, M. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2008.02.017 · Cited by 35
“The ESI-55 [11], Liverpool Battery [12], QOLIE-89 [13], QOLIE-10 [14], and QOLIE-31 [15] are among the most representative existing epilepsy-specific questionnaires.”
BackgroundMitchell, J., Sossi, F., Miller, I., Jaber, P. B., Das‐Gupta, Z., Fialho, L. S., Amos, A., AUSTIN, J. K., Badzik, S., Baker, G. A., et al. (2024) · Epilepsia · doi:10.1111/epi.17971 · Cited by 34
Factors affecting the quality of life in drug-resistant epilepsy patients
Akdemir, V., Süt, N., & Güldiken, B. (2016) · Acta Neurologica Belgica · doi:10.1007/s13760-016-0622-5 · Cited by 34
Leenen, L. A. M., Wijnen, B. F. M., Kessels, A. G. H., Chan, H., de Kinderen, R. J. A., Evers, S., Heugten, C. M. V., & Majoie, M. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.01.019 · Cited by 34
Andrewes, D. G., Camp, K., Kilpatrick, C. J., & Cook, M. J. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb02037.x · Cited by 34
Elsas, S. M., Gregory, W. L., White, G., Navarro, G., Salinsky, M. C., & Andrews, D. J. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.09.030 · Cited by 33
“Participants’ quality of life was measured using the 89-item Quality of Life in Epilepsy (QOLIE-89) inventory, a sensitive measure for epilepsy-related changes [44].”
MethodCharacterization and prediction of theory of mind disorders in temporal lobe epilepsy.
Hennion, S., Delbeuck, X., Duhamel, A., Lopes, R., Semah, F., Tyvaert, L., Derambure, P., & Szurhaj, W. (2014) · Neuropsychology · doi:10.1037/neu0000126 · Cited by 33
Smith, A., McKinlay, A. R., Wojewodka, G., & Ridsdale, L. (2017) · BMC Neurology · doi:10.1186/s12883-017-0893-3 · Cited by 33
Factors affecting quality of life in epilepsy in a multi-ethnic urban population
Grant, A. C., Prus, N., & Nakhutina, L. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.01.031 · Cited by 33
Psychiatric and Psychosocial Consequences of Pediatric Epilepsy
Salpekar, J. A., & Dunn, D. W. (2007) · Seminars in Pediatric Neurology · doi:10.1016/j.spen.2007.08.004 · Cited by 33
Fawale, B., Owolabi, M. O., & Ogunniyi, A. O. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.12.026 · Cited by 33
Quality of life in newly-debuted epilepsy. An empirical study
Räty, L., Hamrin, E., & Söderfeldt, B. A. (2009) · Acta Neurologica Scandinavica · doi:10.1111/j.1600-0404.1999.tb00384.x · Cited by 33
Engel, J., McDermott, M., Wiebe, S., Langfitt, J. T., Erba, G., Gardiner, I., Stern, J. M., Dewar, S. R., Sperling, M. R., Jacobs, M. P., et al. (2010) · Epilepsia · doi:10.1111/j.1528-1167.2010.02641.x · Cited by 32
Wee, H. L., Chua, H. X., & Li, S. C. (2006) · Quality of Life Research · doi:10.1007/s11136-005-5092-9 · Cited by 33
Psychoeducational Programs for Patients with Epilepsy
May, T. W., & fflin, M. P. (2005) · Disease Management & Health Outcomes · doi:10.2165/00115677-200513030-00004 · Cited by 31
Narrative and procedural discourse in temporal lobe epilepsy
Bell, B. D., Dow, C., WATSON, E. R., Woodard, A. R., Hermann, B. P., & Seidenberg, M. (2003) · Journal of the International Neuropsychological Society · doi:10.1017/s1355617703950065 · Cited by 31
“…of Line Orientation Test (Benton et al., 1994b), dominant hand speed on the Purdue Pegboard Test (Lafayette Instrument Co., undated), the overall score on the Quality of Life in Epilepsy inventory (QOLIE–89; Devinsky et al., 1995), or the Beck Depression Inventory score (Beck & Steer, 1987).”
BackgroundSelf-citationDeshpande, L. S., Nagarkatti, N., Sombati, S., & DeLorenzo, R. J. (2008) · Epilepsy Research · doi:10.1016/j.eplepsyres.2008.01.002 · Cited by 31
Prevalence and clinical characteristics of active epilepsy in southern Han Chinese
Pi, X., Zhou, L., Cui, L., Liu, A., Zhang, J., Ma, Y., Liu, B., Cai, C., Zhu, C., Zhou, T., et al. (2014) · Seizure · doi:10.1016/j.seizure.2014.05.002 · Cited by 29
Zöllner, J. P., Conradi, N., Sauter, M., Knuf, M., Knake, S., Kurlemann, G., Mayer, T., Hertzberg, C., Bertsche, A., Immisch, I., et al. (2021) · Neurological Research and Practice · doi:10.1186/s42466-021-00130-3 · Cited by 30
Adewuya, A. O., & Oseni, S. B. A. (2005) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2005.07.011 · Cited by 30
Life Outcomes of Anterior Temporal Lobectomy
Jones, J. E., Blocher, J. B., & Jackson, D. C. (2013) · Neurosurgery · doi:10.1227/neu.0000000000000145 · Cited by 29
Quality of life in epileptic patients in southern Thailand.
Phabphal, K., Geater, A. F., Limapichart, K., Satirapunya, P., & Setthawatcharawanich, S. (2009) · PubMed · Cited by 29
Anticipating epileptic seizures: from mathematics to clinical applications
Quyen, M. L. V. (2004) · Comptes Rendus Biologies · doi:10.1016/j.crvi.2004.10.014 · Cited by 29
“This un-predictability of seizure is responsible for enhanced risk for morbidity [2] and represents a major factor of worse quality of life [3].”
BackgroundAssessment of adverse events and quality of life in epilepsy: design of a new community-based trial
Privitera, M., & Ficker, D. M. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.08.001 · Cited by 29
“, 1995 [33] QOLIE-31 Cramer et al.”
MethodFactors contributing to concerns of persons living with epilepsy
Choi, E. J., Lee, S., Jo, K.-D., Yim, S.-B., No, Y.-J., Kwon, J., & Lee, E.-M. (2010) · Seizure · doi:10.1016/j.seizure.2010.09.010 · Cited by 29
Outcomes in neuroanesthesia: What matters most?
Flexman, A. M., Meng, L., & Gelb, A. W. (2015) · Canadian Journal of Anesthesia/Journal canadien d anesthésie · doi:10.1007/s12630-015-0522-9 · Cited by 28
Epilepsy: Quality of Life and Cost of Care
Schachter, S. C. (2000) · Epilepsy & Behavior · doi:10.1006/ebeh.2000.0049 · Cited by 28
Parental view of epilepsy in Rett Syndrome
Bahi‐Buisson, N., Guellec, I., Nabbout, R., Guët, A., Gérard, N., Dulac, O., & Chiron, C. (2007) · Brain and Development · doi:10.1016/j.braindev.2007.07.002 · Cited by 28
Lua, P. L., & Selamat, N. W. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0352-6 · Cited by 28
Seizure recency and quality of life in adolescents with childhood-onset epilepsy
Baca, C. B., Vickrey, B. G., Vassar, S. D., & Berg, A. T. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.10.010 · Cited by 27
Self-citationResponsiveness of the smoking cessation quality of life (SCQoL) questionnaire
Shaw, J. W., Coons, S. J., Foster, S. A., Leischow, S. J., & Hays, R. D. (2001) · Clinical Therapeutics · doi:10.1016/s0149-2918(01)80083-7 · Cited by 27
Self-citationQuality of Life and Personality in Adults with Epilepsy
Zhu, D., Jin, L., Xie, G., & Xiao, B. (1998) · Epilepsia · doi:10.1111/j.1528-1157.1998.tb01313.x · Cited by 27
Assessing Quality of Life in Patients with Epilepsy
Jacoby, A. (1996) · PharmacoEconomics · doi:10.2165/00019053-199609050-00004 · Cited by 27
Substitution Monotherapy With Levetiracetam vs Older Antiepileptic Drugs
Hakami, T. M., Todaro, M., Petrovski, S., MacGregor, L., Velakoulis, D., Tan, M., Matkovic, Z., Gorelik, A., Liew, D., Yerra, R., et al. (2012) · Archives of Neurology · doi:10.1001/archneurol.2012.2203 · Cited by 26
Metadata
- Authors
- Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D.
- Affiliations
- New York University Langone Orthopedic Hospital (US)
- RAND Corporation (US)
- Yale University (US)
- University of Tennessee Health Science Center (US)
- Augusta University (US)
- University of California, Los Angeles (US)
- ORCID
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 1995-11
- Volume
- 36
- Issue
- 11
- Pages
- 1089-1104
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2124800861
- Cited by
- 634
- References
- 73
- Citations by year
- 2026: 16 · 2025: 16 · 2024: 14 · 2023: 11 · 2022: 12 · 2021: 17 · 2020: 17 · 2019: 20 · 2018: 14 · 2017: 21 · 2016: 14 · 2015: 23 · 2014: 32 · 2013: 21 · 2012: 15
- FWCI
- 11.64
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- epilepsy, health-related quality of life, QOLIE-89, instrument development, RAND-36, patient-proxy agreement, construct validity, factor analysis, seizure frequency, epilepsy severity, mental health, cognitive function, physical health, health care utilization, neurotoxicity, self-esteem, attitudes toward epilepsy
- MeSH terms
- Adolescent, Adult, Aged, Attitude to Health, Epilepsy, Factor Analysis, Statistical, Female, Health Status, Humans, Male, Middle Aged, Personality Inventory, Psychometrics, Quality of Life, Self Concept, Severity of Illness Index, Reproducibility of Results, Prevalence
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