Cited by 218Family and Disability Support ResearchHealthcare professionals’ stress and burnoutFamily Support in Illness

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Increased prevalence of burnout symptoms in parents of chronically ill children

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Lindström, C, Åman, J, Norberg, AL·2010·Acta Paediatrica

DOI 10.1111/j.1651-2227.2009.01586.x

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Abstract

Aim: To examine the prevalence of burnout symptoms in the context of parenting a chronically ill child. Methods: A total of 252 parents of children with Type 1 Diabetes Mellitus and 38 parents of children with Inflammatory Bowel Diseases participated in a population‐based study. A control group consisted of 124 randomly selected parents of healthy children. We used self‐report questionnaires to assess symptoms of burnout. Results: The main finding was that significantly more parents of children with chronic diseases (36%) scored for clinical burnout, compared with parents of healthy children (20%). Burnout symptoms were most prominent among mothers of children with diabetes, although fathers of children with diabetes and mothers and fathers of children with inflammatory bowel diseases also reported higher levels of various burnout symptoms. Conclusion: Burnout may be a useful model for understanding long‐term parental responses and should be acknowledged among the different types of psychological consequences of the multi‐faceted experience of parenting a child with chronic illness. Gender seems to influence the risk of burnout symptoms. Continued research about other background factors, and how the parents’ situation changes over time are warranted. In the clinic, we need to draw attention to the group of parents who may suffer from burnout.

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Bal, N. G. (2023) · Düşünen Adam - Psikiyatri ve Nörolojik Bilimler Dergisi · doi:10.14744/dajpns.2023.00212 · Cited by 2
“(2010) (17), who reported that 20% of mothers with healthy children experienced maternal burnout.”
BackgroundResult
Major cardiovascular events and death in parents of children with type 1 diabetes: a register-based matched cohort study in Sweden
Kennedy, B., Wernroth, M.-L., Batra, G., Hammar, U., Linroth, C., Grönberg, A., Byberg, L., & Fall, T. (2024) · Diabetologia · doi:10.1007/s00125-024-06200-w · Cited by 1
“…cross-sectional studies have indicated that the parents of children with type 1 diabetes experience emotional distress around the time of diagnosis [3], but also that parents, and mothers in particular, face an elevated risk of developing stress-related symptoms at a later stage [4, 5].”
Background
Families with Severe Medical Conditions in Children: Effects and Interventions
Wilson, M. (2014) · UST Research Online (University of St. Thomas - Minnesota) · Cited by 1
CONFIRMATORY FACTOR ANALYSIS OF THE MBI IN COLOMBIAN PARENTS OF CHILDREN WITH TRISOMY 21
Jaramillo, S., Moreno, S., & Rodríguez, V. (2017) · doi:10.4473/tpm24.2.7 · Cited by 1
Parenting through the COVID-19 pandemic
Morrison, N. M. V., & Morrison, B. W. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-824289-6.00008-8 · Cited by 1
PSYCHOLOGICAL FACTORS OF WOMEN'S PARENTAL BURNOUT
Bulatevych, N., & Oryniak, О. (2023) · Socialization & Human Development International Scientific Journal · doi:10.37096/shdisj-22-1.1-0007 · Cited by 1
Mentalization and Self-compassion as Protective Factors for Parental Burnout among Parents with Disabled ChildrenPreprint
Manshadi, Z. D., Fathi, E., Manshadi, M. A. D., & Keyvanmanesh, N. (2023) · Research Square · doi:10.21203/rs.3.rs-2681337/v1 · Cited by 1
Preventing and reducing parental burnout : A clinical trial of three interventions based on cognitive behavioural therapy, second wave positive psychology, and informal mindfulness practices.
Urbanowicz, A. M. (2022) · theses.fr (ABES) · doi:10.23889/suthesis.61639 · Cited by 1
Parenting children with type 1 diabetes. A cross-sectional study of associations between the psychological and contextual characteristics of parents, parenting behaviour and the characteristics of children in a population-based sample
Haugstvedt, A. (2012) · NORA - Norwegian Open Research Archives
An Exploration of Burnout in Individuals with Type D Personality
Kelly, C. A. (2015) · ScholarWorks (Walden University)
A Mixed Research Synthesis: Sibling Experiences when Living witha Young Person with Type 1 Diabetes Mellitus
Barbara, M. N., leco, & Mason, A. E. (2015) · Research and reviews: journal of nursing and health sciences
Vivencias y proceso de adaptación a la enfermedad, del padre y los hermanos de un niño con diabetes tipo 1: revisión bibliográfica descriptiva Experiences and adaptation to illness, father and brothers of a child with diabetes type 1: descriptive literature review
Almeda, J., Galeano, C. M., Cerdán, G., Almeda Ortega, J., & Ga, M. (2014)
Die Kölner Nephro-Krabbelgruppe
Körner, L. M., Brengmann, S., Peer, M. I., Düchting, C., & Weber, L. T. (2017) · Monatsschrift Kinderheilkunde · doi:10.1007/s00112-017-0387-9
PERCEIVED MATERNAL STRESS, COPING STRATEGIES, AND SUGGESTED INTERVENTIONS IN CARING FOR CHILDREN WITH BOTH MEDICAL COMPLEXITIES AND DEVELOPMENTAL DELAYS
Poff, L. (2021) · CSUSB ScholarWorks (California State University, San Bernardino)
A Qualitative Exploration of the Information and Service Needs of Youth Siblings of Individuals with Cystic Fibrosis
Shivak, S. M. (2020) · doi:10.82465/4144
Sportaktivität, Stress und Burnout
Wunsch, K., & Gerber, M. (2016) · Springer eBooks · doi:10.1007/978-3-662-49411-0_15-1
Sportaktivität, Stress und Burnout
Wunsch, K., & Gerber, M. (2017) · Springer eBooks · doi:10.1007/978-3-662-49411-0_15-2
Le burn-out parental
(2018) · Carrefour des psychothérapies · doi:10.3917/dbu.roska.2017.01.0303
BURNOUT E A MATERNIDADE: ESTUDO DESCRITIVO DA SUA CORRELAÇÃO SITUACIONAL FATORES
PORTUGAL, J. C. A., MUSSI, C. S. D. P., Lacerda, C. G. D. S., SANTOS, R. D. S., KARL, M. A., RODRIGUEZ, M. L. D. R., Barbosa, Í. N., Cyríaco, M. C., Yassin, S. L., & Noivo, I. S. (2022) · Editora Pasteur eBooks · doi:10.29327/558744.3-2
Acerca de una posible reevaluación de las causas y estrategias de protección subyacentes a la dinámica del desgaste parental en Costa Rica
Balladares, J. T., León, J. R. S., & Villalobos, A. R. (2022) · Actualidades en Psicología · doi:10.15517/ap.v36i133.41153
TO WHAT EXTENT DOES A CHILD’S CHRONIC ILLNESS INFLUENCE PARENTAL STRESS?
HOWARTH, M. (2021) · Psych-Talk · doi:10.53841/bpstalk.2021.1.100.9
Cognitive Behavioural Stress Management (CBSM) for Parents: Prevention and Reduction of Parental BurnoutPreprint
Urbanowicz, A. M., Shankland, R., Rance, J. Y., Bennett, P. D., Leys, C., & Gauchet, A. (2022) · SSRN Electronic Journal · doi:10.2139/ssrn.4143679
Die Interdisziplinäre Familienmedizinische Sprechstunde in der Kinderheilkunde – Ein integrativer Ansatz für komplex belastete Familien mit einem chronisch kranken Kind
Zumbaum-Fischer, F., Hartmann, M., Kotzaeridou, U., Mondry, A., Resch, F., Hoffmann, G. F., & Friederich, H. (2023) · PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie · doi:10.1055/a-2136-7397
“Es besteht somit Bedarf dem gesamten Familiensystem in Diagnostik und Behandlung besondere Aufmerksamkeit zu schenken [5].”
Background
Direct and Indirect Predictors of Burden in Arab-Bedouin and Jewish-Israeli Mothers Caring for a Child with Epilepsy
Joss, I., Bachner, Y. G., Shorer, T., Shorer, Z., & O’Rourke, N. (2023) · Healthcare · doi:10.3390/healthcare11192662
Pediatric Palliative Care: Implications for Families and Caregivers
Chénard, J., Friedel, M., Olivier-d’Avignon, M., & Dubois, A.-C. (2023) · Enfances Familles Générations · doi:10.7202/1108402ar
Maternal Burnout: Prevalence and Associated Factors in Northern Benin (2023)
Ataïgba, I. N. E., Aza-Gnandji, G. G., Koïvogui, D. S., Dagan, O. C., Tokpanoude, C. N. I., Adoufou, A. K., Djidonou, A., Tchégnonsi, F. T., & Gandaho, P. (2024) · Open Journal of Psychiatry · doi:10.4236/ojpsych.2024.141003
PECULIARITIES OF MOTHER'S PARENTAL BURNOUT IN WAR TIMES
Bulatevych, N., & LUKYANETS, V. (2023) · Bulletin of Taras Shevchenko National University of Kyiv Social work · doi:10.17721/2616-7786.2023/9-1/7
Disproportionately High Rates of Burnout Among Disabled Caregivers During the COVID-19 PandemicPreprint
Streuli, S. A., Beckett, I., Flores, M., Omaleki, V., Hassani, A., Le, T., Garfein, R. S., & Fielding-Miller, R. K. (2024) · Research Square · doi:10.21203/rs.3.rs-4391256/v1
Parenting Styles and Development
Relva, I. C., Simões, M., Costa, M., Pacheco, A., & Galluzzo, M. (2024) · Springer eBooks · doi:10.1007/978-3-030-68127-2_601-1
Learning together when feeling alone: The experience of parents with chronically ill children in a self-compassion programPreprint
Franco, P., Knox, M. C., Gulbas, L. E., & Gregory, K. (2024) · Research Square · doi:10.21203/rs.3.rs-4769435/v1
Healthcare Transition to Adult-Focused Services with Chronic or End-Stage Kidney Disease
Ferris, M., Ferris, M. T., Hart, L. C., Martin, S., Girdwood, T., Shabanowitz, N., Porter, J. S., Álvarez-Elías, A. C., Costigan, C., & Gilleskie, D. (2024) · Springer eBooks · doi:10.1007/978-3-031-64672-0_12
Validation of the Lithuanian Version of the Parental Burnout Assessment (PBA-LT)
Bredelytė, A., Kreivinienė, B., & Skarbalius, E. (2025) · SOCIAL WELFARE INTERDISCIPLINARY APPROACH · doi:10.15388/sw.2025.15.1
Exploring participation of parents of children with complex care needs in higher education
Willemen, A., Ertmer, F., Verdam, M. C., & de la Croix, A. (2025) · Discover Education · doi:10.1007/s44217-025-00528-0
“Third, parents of children with complex care needs often already feel overwhelmed and exhausted, and they experience their role as parent caregivers as heavy and intensive [17, 18].”
Parental Burnout Assessment (PBA)
Roskam, I., Bayot, M., & Mikolajczak, M. (2025) · Springer eBooks · doi:10.1007/978-3-031-47219-0_81
Validation of the Qatari-Arabic version of Parental Burnout Assessment in parents of children with and without neurodevelopmental disabilities
Hassanein, E. E. A., Al‐Ahmadi, A., & Ayaad, L. (2025) · International Journal of Developmental Disabilities · doi:10.1080/20473869.2025.2534820 · Cited by 1
Correlates of depression and anxiety among family caregivers of pediatric patients with cancer in Lebanon
Baissary, J., Hallit, S. R., Assaf, M., Fekih‐Romdhane, F., Farhat, M., & Noun, P. (2025) · Archives de Pédiatrie · doi:10.1016/j.arcped.2025.10.006

Authors: Lindström, C., Åman, J., & Norberg, A.
Affiliations: Örebro University (SE)
Karolinska Institutet (SE)
Corresponding author: Lindström, C
ORCID: Lindström, C
Venue: Acta Paediatrica
Publisher: Wiley
Published: 2010-02
Volume: 99
Issue: 3
Pages: 427-432
ISSN: 0365-1436 (ISSN-L)
0803-5253
1651-2227
DOI: 10.1111/j.1651-2227.2009.01586.x
OpenAlex: W2014887445
Cited by: 218
References: 34
Citations by year: 2026: 8 · 2025: 17 · 2024: 29 · 2023: 27 · 2022: 15 · 2021: 15 · 2020: 19 · 2019: 13 · 2018: 22 · 2017: 14 · 2016: 5 · 2015: 9 · 2014: 10 · 2013: 6 · 2012: 5
FWCI: 4.91
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: Acta Paediatrica (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Health Professions › General Health Professions › Healthcare professionals’ stress and burnout
Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
Keywords: parental burnout, burnout symptoms, parents of children with chronic illness, type 1 diabetes, inflammatory bowel disease, gender differences, mothers, fathers, prevalence, parental psychological burden
MeSH terms: Adult, Child, Chronic Disease, Diabetes Mellitus, Type 1, Female, Humans, Male, Middle Aged, Parent-Child Relations, Parents, Surveys and Questionnaires, Stress, Psychological, Inflammatory Bowel Diseases, Prevalence, Case-Control Studies, Parenting, Young Adult

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Increased prevalence of burnout symptoms in parents of chronically ill children

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