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Increased prevalence of burnout symptoms in parents of chronically ill children
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Aim: To examine the prevalence of burnout symptoms in the context of parenting a chronically ill child. Methods: A total of 252 parents of children with Type 1 Diabetes Mellitus and 38 parents of children with Inflammatory Bowel Diseases participated in a population‐based study. A control group consisted of 124 randomly selected parents of healthy children. We used self‐report questionnaires to assess symptoms of burnout. Results: The main finding was that significantly more parents of children with chronic diseases (36%) scored for clinical burnout, compared with parents of healthy children (20%). Burnout symptoms were most prominent among mothers of children with diabetes, although fathers of children with diabetes and mothers and fathers of children with inflammatory bowel diseases also reported higher levels of various burnout symptoms. Conclusion: Burnout may be a useful model for understanding long‐term parental responses and should be acknowledged among the different types of psychological consequences of the multi‐faceted experience of parenting a child with chronic illness. Gender seems to influence the risk of burnout symptoms. Continued research about other background factors, and how the parents’ situation changes over time are warranted. In the clinic, we need to draw attention to the group of parents who may suffer from burnout.
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“Parents of children with a chronic illness or functional disability have an increased risk of stress-related problems.”
From Psychological inflexibility explains distress in parents whose children have chronic conditions (2018) · cites this paper as [3]
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Psychological distress of children with early‐onset type 1 diabetes and their mothers' well‐being
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“These symptoms are overrepresented in parents of children with chronic disorders [5].”
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Parental Burnout in the Context of Special Needs, Adoption, and Single Parenthood
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Child Characteristics and Their Reciprocal Effects on Parenting
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Burnout in the Primary Caregivers of Children With Chronic Conditions and its Related Factors
Ahmadi, B., Sabery, M., & Adib‐Hajbaghery, M. (2021) · Journal of Client-centered Nursing Care · doi:10.32598/jccnc.7.2.360.1 · Cited by 14
“One of these studies has reported that 36% of the Swedish parents who had children with type 1 diabetes or inflammatory bowel disorders experienced burnout (Lindström et al. 2010).”
BackgroundPatty, N. J. S., van Meeteren, K., Willemen, A. M., Mol, M. A. E., Verdonk, M., Ketelaar, M., & Schuengel, C. (2024) · Journal of Child and Family Studies · doi:10.1007/s10826-024-02825-y · Cited by 15
Care-giving Coping Strategies Among Mothers with Chronically Ill Children
Johnson, E. J., & Mendoza, S. (2018) · Journal of Social Service Research · doi:10.1080/01488376.2018.1476289 · Cited by 14
“Mothers are often the primary caregivers and may bear the stresses of raising an ill child to a greater extent than fathers (Compas et al., 2015; Dabrowska & Pisula, 2010b; Lindstrom et al., 2010b).”
BackgroundFamily Management Style and Psychosocial Health of Children with Chronic Conditions
Im, Y., & Kim, D. H. (2021) · Journal of Child and Family Studies · doi:10.1007/s10826-020-01870-7 · Cited by 14
Who are and are not the burnout moms? A cluster analysis study of French-speaking mothers
Lebert-Charron, A., Dorard, G., Wendland, J., & Boujut, É. (2021) · Journal of Affective Disorders Reports · doi:10.1016/j.jadr.2021.100091 · Cited by 14
Lee, W., Luca, S., Costain, G., Snell, M., Marano, M. M., Curtis, M., Dunsmore, K., Veenma, D. C. M., Walker, S., Cohn, R. D., et al. (2021) · Journal of Genetic Counseling · doi:10.1002/jgc4.1522 · Cited by 14
“…family's energy is focused on managing their child's day- to- day care; caregiver burden is particularly intense and well documented ("Canada's rare disease caregivers under immense stress, struggling with mental health issues, isolation, & financial burden;; Green, 2007; Lindstrom et al., 2010).”
BackgroundSportaktivität, Stress und Burnout
Wunsch, K., & Gerber, M. (2017) · Springer eBooks · doi:10.1007/978-3-662-49322-9_15 · Cited by 15
“…dass das Burnout-Phänomen nicht ausschließlich auf Arbeitsbelastungen zurückzuführen sei, sondern dass jeglicher chronischer wie unlösbarer Stress (z. B. in Paarbeziehungen oder bei der Pflege von Angehörigen) als Ursache für Burnout geltend gemacht werden könne (Lindström et al. 2010; Pines 1987).”
BackgroundSairanen, E., Lappalainen, R. I., Lappalainen, P., & Hiltunen, A. J. (2019) · Journal of Contextual Behavioral Science · doi:10.1016/j.jcbs.2019.11.010 · Cited by 23
Im, Y., & Jung, S. (2020) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2020.103674 · Cited by 12
Challenges associated with parenting youth with neurofibromatosis: A qualitative investigation
Pierre‐Louis, C., Heinhuis, T. J., Riklin, E. I. K., & Vranceanu, A. (2018) · American Journal of Medical Genetics Part A · doi:10.1002/ajmg.a.38640 · Cited by 12
“…to shock, sadness, and subsequent depression in parents that rarely gets addressed (Lindstr€om, Åman, & Norberg, 2010) and that the varied clinical NF manifestations and uncertainty associated with prognoses and treatment can significantly impact family relationships (Lindstr€om et al., 2010).”
BackgroundAnne-Baba Tükenmişlik Ölçeğinin Psikometrik Özelliklerinin Belirlenmesi
Ardıç, A., & Gül, S. O. (2019) · İnönü Üniversitesi Eğitim Fakültesi Dergisi · doi:10.17679/inuefd.531692 · Cited by 13
Lappalainen, P., Gallego, A., Keinonen, K., Lappalainen, A.-L., Tolvanen, A. J., & Lappalainen, R. I. (2023) · Child & Family Behavior Therapy · doi:10.1080/07317107.2023.2233949 · Cited by 11
“…research has reported that parents of these children experience higher levels of stress, burnout, and poorer sleep, mental health, and quality of life when compared with parents of healthy children (Cohn et al., 2020; Cousino & Hazen, 2013; Khamis, 2007; Lindstr € om et al., 2010; Pinquart, 2018).”
BackgroundBurnout and Mental Health in Working Parents: Risk Factors and Practice Implications
Gawlik, K. S., Melnyk, B. M., & Tan, A. (2024) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2024.07.014 · Cited by 11
Tuning in to Kids: Theoretical basis, program description, and factors impacting effectiveness
Havighurst, S. S., Ambrosi, C. C., Harley, A. E., & Kehoe, C. E. (2025) · Journal of Applied Developmental Psychology · doi:10.1016/j.appdev.2025.101797 · Cited by 11
Reduced professional efficacy is associated with a blunted salivary alpha-amylase awakening response
Landolt, K., Maruff, P. T., Horan, B., Kingsley, M., Kinsella, G., O’Halloran, P., Hale, M. W., & Wright, B. J. (2018) · Physiology & Behavior · doi:10.1016/j.physbeh.2018.11.038 · Cited by 15
Masoumi, Z., Abdoli, F., Esmaeilzadeh, S., & Sadeghi, T. (2020) · Journal of Caring Sciences · doi:10.34172/jcs.2020.020 · Cited by 11
Positive and Negative Experiences of Parenting a Pre-school Child with 22q11.2 Deletion Syndrome
Goodwin, J., McCormack, L., & Campbell, L. (2017) · Advances in Neurodevelopmental Disorders · doi:10.1007/s41252-017-0010-z · Cited by 11
Findling, Y., Barnoy, S., & Itzhaki, M. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1259670 · Cited by 10
Portnoy, S., Korchak, G., Foxall, A., & Hurlston, R. (2022) · Clinical Child Psychology and Psychiatry · doi:10.1177/13591045221125617 · Cited by 10
“Accordingly, research has shown that parents of children with chronic conditions are more likely to experience reduced quality of life (QoL), and increased insecurity, anxiety, stress-related disorders and emotional and cognitive burnout (Lindström et al., 2010; Cousino & Hazen, 2013).”
Moreira, H. (2023) · Mindfulness in behavioral health · doi:10.1007/978-3-031-22348-8_16 · Cited by 13
Chronic Diseases in Children as a Challenge for Parenting
Pop-Jordanova, N. D. (2023) · PRILOZI · doi:10.2478/prilozi-2023-0004 · Cited by 9
Burnout syndrome among psychiatrists in Egyptian mental health hospital
zied, M. A., Fekry, M., Mohsen, N., Morsy, M. H. A., Serafy, D. E., & Salah, M. (2020) · Middle East Current Psychiatry · doi:10.1186/s43045-020-00028-x · Cited by 9
“[26] who found significant association between burnout and parenting chronically ill children in Sweden [4] who reviewed in Journal of Advanced Nursing the significant association between burnout and parenting intellectually”
BackgroundInformal Mindfulness Practices: A New Approach to the Prevention and Treatment of Parental Burnout
Urbanowicz, A. M., Shankland, R., Rance, J. Y., Bennett, P. D., & Gauchet, A. (2024) · The Family Journal · doi:10.1177/10664807241230048 · Cited by 8
“Parental burnout is a growing concern due to its prevalence 6,7 and deleterious consequences on family well-being which affect the parent, the couple, and the children (i.e., increased suicidal ideation, con�icts, violence, child neglect and abuse) 8 .”
Yan, T., Hou, Y., & Deng, M. (2024) · International Journal of Developmental Disabilities · doi:10.1080/20473869.2024.2331830 · Cited by 8
Metadata
- Authors
- Lindström, C., Åman, J., & Norberg, A.
- Affiliations
- Örebro University (SE)
- Karolinska Institutet (SE)
- Corresponding author
- Lindström, C
- ORCID
- Lindström, C
- Venue
- Acta Paediatrica
- Publisher
- Wiley
- Published
- 2010-02
- Volume
- 99
- Issue
- 3
- Pages
- 427-432
- ISSN
- 0365-1436 (ISSN-L)
- 0803-5253
- 1651-2227
- OpenAlex
- W2014887445
- Cited by
- 218
- References
- 34
- Citations by year
- 2026: 8 · 2025: 17 · 2024: 29 · 2023: 27 · 2022: 15 · 2021: 15 · 2020: 19 · 2019: 13 · 2018: 22 · 2017: 14 · 2016: 5 · 2015: 9 · 2014: 10 · 2013: 6 · 2012: 5
- FWCI
- 4.91
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Acta Paediatrica (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › General Health Professions › Healthcare professionals’ stress and burnout
- Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
- Keywords
- parental burnout, burnout symptoms, parents of children with chronic illness, type 1 diabetes, inflammatory bowel disease, gender differences, mothers, fathers, prevalence, parental psychological burden
- MeSH terms
- Adult, Child, Chronic Disease, Diabetes Mellitus, Type 1, Female, Humans, Male, Middle Aged, Parent-Child Relations, Parents, Surveys and Questionnaires, Stress, Psychological, Inflammatory Bowel Diseases, Prevalence, Case-Control Studies, Parenting, Young Adult
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