Outcomes Important to People With Intellectual Disabilities
Abstract
Abstract An emphasis on the outcomes of health and social care services has become increasingly apparent within public policy in the United Kingdom. Alongside this, working in partnership has been a key theme, despite a relatively underdeveloped evidence base. Of central importance, however, must be whether directives toward partnership working are delivering improved outcomes, and in particular, the outcomes that are valued by service users. The authors describe a project that sought to identify the outcomes important to people with intellectual disabilities, and where possible, whether partnerships delivered these outcomes. The research was primarily based on interviews with service users and carers, and involved people with intellectual disabilities as both researchers and research subjects. The project categorized key outcomes in two categories (quality of life and process) and identified ways in which health and social care partnerships can deliver the outcomes service users want. If agencies are to deliver good outcomes to users, as increasingly emphasized in policy, this focus should accurately reflect the outcomes that users themselves define as important.
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Fear and embarrassment is a barrier to accessing health care for individuals with intellectual disabilities and/or autism.
“Fear and embarrassment is a barrier to accessing health care for individuals with intellectual disabilities and/or autism.57–59”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [58]
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- Authors
- Miller, E., Cooper, S., Cook, A., & Petch, A.
- Affiliations
- University of Glasgow (GB)
- Queen Margaret University (GB)
- University of Edinburgh (GB)
- Corresponding author
- Miller, Emma
- Venue
- Journal of Policy and Practice in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2008-08-28
- Volume
- 5
- Issue
- 3
- Pages
- 150-158
- ISSN
- 1741-1122 (ISSN-L)
- 1741-1130
- OpenAlex
- W1977396098
- Cited by
- 43
- References
- 30
- Citations by year
- 2026: 1 · 2025: 1 · 2023: 5 · 2022: 2 · 2021: 1 · 2020: 6 · 2019: 1 · 2018: 2 · 2017: 2 · 2016: 2 · 2015: 1 · 2014: 4 · 2013: 1 · 2012: 5
- FWCI
- 2.97
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Policy and Practice in Intellectual Disabilities (publishedVersion)
- ENLIGHTEN (Jurnal Bimbingan dan Konseling Islam) (submittedVersion)
- Queen Margaret University Publications Repository (Queen Margaret University) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- intellectual disability, service user outcomes, partnership working, integrated care, quality of life, caregivers, health and social care policy
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