The DOI matches its Crossref record; 3 of the 3 references it cites were found in a registry or an index.
Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
Open accessAbstract
Researchers, institutional review boards (IRBs), participants in human subjects research, and their families face an important but largely neglected problem — how should incidental findings (IFs) be managed in human subjects research. If researchers unexpectedly stumble upon information of potential health or reproductive significance, should they seek expert evaluation, contact the participant’s physician, tell the research participant, or respond with some combination? What should consent forms and the entire consent process say about how IFs will be handled in research? What should IRBs require?
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Citations
Cites
Disclosing Individual Results of Clinical Research: Implications of Respect for Participants
Shalowitz, D. I., & Miller, F. G. (2005) · JAMA · doi:10.1001/jama.294.6.737 · Cited by 265
Richardson, H. S., & Belsky, L. (2004) · The Hastings Center Report · doi:10.2307/3528248 · Cited by 217
Chidiac, R. M., & Aron, D. C. (1997) · Endocrinology and Metabolism Clinics of North America · doi:10.1016/s0889-8529(05)70242-5 · Cited by 140
Cited by
Incidental findings on brain magnetic resonance imaging: systematic review and meta-analysis
Morris, Z., Whiteley, W. N., Longstreth, W. T., Weber, F., Lee, Y.-C., Tsushima, Y., Alphs, H., Ladd, S. C., Warlow, C., Wardlaw, J. M., et al. (2009) · BMJ · doi:10.1136/bmj.b3016 · Cited by 792
Using electronic health records to drive discovery in disease genomics
Kohane, I. S. (2011) · Nature Reviews Genetics · doi:10.1038/nrg2999 · Cited by 325
Genetic studies of quantitative MCI and AD phenotypes in ADNI: Progress, opportunities, and plans
Saykin, A. J., Shen, L., Yao, X., Kim, S., Nho, K., Risacher, S. L., Ramanan, V. K., Foroud, T. M., Faber, K. M., Sarwar, N., et al. (2015) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2015.05.009 · Cited by 306
PG4KDS: A model for the clinical implementation of pre‐emptive pharmacogenetics
Hoffman, J. M., Haidar, C. E., Wilkinson, M. R., Crews, K. R., Baker, D. K., Kornegay, N. M., Yang, W., Pui, C., Reiss, U. M., Gaur, A. H., et al. (2014) · American Journal of Medical Genetics Part C: Seminars in Medical Genetics · doi:10.1002/ajmg.c.31391 · Cited by 276
The tension between data sharing and the protection of privacy in genomics research
Kaye, J. (2012) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev-genom-082410-101454 · Cited by 240
Metadata
- Authors
- Wolf, S. M., Lawrenz, F. P., Nelson, C. A., Kahn, J. P., Cho, M. K., Clayton, E. W., Fletcher, J. G., Georgieff, M. K., Hammerschmidt, D., Hudson, K., Illes, J., Kapur, V., Keane, M. A., Koenig, B. A., LeRoy, B. S., McFarland, E. G., Paradise, J., Parker, L. S., Terry, S. F., Van Ness, B., & Wilfond, B. S.
- Venue
- Journal of Law, Medicine & Ethics
- Publisher
- Cambridge University Press (CUP)
- Published
- 2008
- Volume
- 36
- Issue
- 2
- Pages
- 219-248
- ISSN
- 1073-1105 (ISSN-L)
- 1748-720X
- OpenAlex
- W1983973208
- Cited by
- 706
- References
- 3
- FWCI
- 30.38
- Type
- journal article
- Language
- en
- Open access
- green
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- The paper
- Wolf, S. M., Lawrenz, F. P., Nelson, C. A., Kahn, J. P., Cho, M. K., Clayton, E. W., Fletcher, J. G., Georgieff, M. K., Hammerschmidt, D., Hudson, K., Illes, J., Kapur, V., Keane, M. A., Koenig, B. A., LeRoy, B. S., McFarland, E. G., Paradise, J., Parker, L. S., Terry, S. F., . . . Wilfond, B. S. (2008). Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations. Journal of Law, Medicine & Ethics. https://doi.org/10.1111/j.1748-720x.2008.00266.x
Data sources
Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
