Family caregiver challenges in dementia care in a country with undeveloped dementia services
Open accessAbstract
Aims: To examine socially, culturally and politically constructed factors affecting family caregiver practice in dementia care, and to identify possible changes in a country with undeveloped dementia services. Background: In China and many other low‐ and middle‐income countries, social transformations are weakening the family care model, which has an impact on the population with dementia. Exploring the challenges that caregivers face may help the international healthcare community to improve dementia services. Design: A double hermeneutic approach informed by Giddens' Structuration Theory was used. Methods: In‐depth semi‐structured interviews with 23 family caregivers of people with dementia were conducted in 2012. The interviews were audiotaped, transcribed and analysed. Findings: Analyses revealed three consequences of socially constructed factors in dementia care, which constrained caregiver practice. First, caregivers were unable to manage behavioural and psychological symptoms of dementia. Untreated aggressive behaviours caused harm to the person with dementia and endangered the caregiver and the public. Second, the burden on the primary caregiver was evident and caregivers received limited support. Third, there was little coordination between primary and specialist care services for people with dementia. On critical reflection of potential changes that could improve dementia services, caregivers suggested that community nurses have a leading role in coordinating dementia services and supporting caregivers. Conclusion: Relying on family caregivers to care for people with dementia without the prevision of dementia services by the public healthcare system generates negative health outcomes for both care recipients and caregivers. The nursing workforce should be developed to support dementia services.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Carers' knowledge (e.g., health literacy, the patient's care needs) was linked to their experience of carer burden, and use of urgent care after returning home, and contributed to the ways they engaged with information provided at discharge.
“Carers’ knowledge (e.g., health literacy, the patient’s care needs) was linked to their experience of carer burden, and use of urgent care after returning home, and contributed to the ways they engaged with information provided at discharge [43, 44, 57, 59, 60, 64, 66, 67].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [57]
Split into 2 atoms — 0 confirmed, 2 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Lincoln, Y. S., Guba, E. G., & Pilotta, J. J. (1985) · International Journal of Intercultural Relations · doi:10.1016/0147-1767(85)90062-8 · Cited by 45,787 · see citing works
(1984) · Cited by 21,166 · see citing works
Handbook of qualitative research
Griffin, T. F. (1999) · Psychology and Marketing · doi:10.1002/(sici)1520-6793(199907)16:4 · Cited by 9,061 · see citing works
Closing the gap in a generation: health equity through action on the social determinants of health
Marmot, M. G., Friel, S., Bell, R., Houweling, T. A. J., & Taylor, S. A. J. (2008) · The Lancet · doi:10.1016/s0140-6736(08)61690-6 · Cited by 8,238 · see citing works
Global prevalence of dementia: a Delphi consensus study
Ferri, C. P., Prince, M. J., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., Hall, K. S., Hasegawa, K., Hendrie, H. C., Huang, Y., et al. (2005) · The Lancet · doi:10.1016/s0140-6736(05)67889-0 · Cited by 5,336 · see citing works
Rethinking Critical Theory and Qualitative Research
Kincheloe, J. L., & McLaren, P. L. (2011) · SensePublishers eBooks · doi:10.1007/978-94-6091-397-6_23 · Cited by 2,519 · see citing works
Colombo, D. G. E. (2010) · Revista de Direito Sanitário · doi:10.11606/issn.2316-9044.v10i3p253-266 · Cited by 1,787 · see citing works
Family caregivers of people with dementia
Brodaty, H., & Donkin, M. (2009) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2009.11.2/hbrodaty · Cited by 1,644 · see citing works
Effectiveness of Collaborative Care for Older Adults With Alzheimer Disease in Primary Care
Callahan, C. M., Boustani, M. A., Unverzagt, F. W., Austrom, M. G., Damush, T. M., Perkins, A. J., Fultz, B. A., Hui, S. L., Counsell, S. R., & Hendrie, H. C. (2006) · JAMA · doi:10.1001/jama.295.18.2148 · Cited by 799 · see citing works
Prince, M. J., Prina, M. A., & Guerchet, M. (2009) · Cited by 383 · see citing works
Batsch, N., & Mittelman, M. S. (2012) · Cited by 329 · see citing works
Dias, A., Dewey, M. E., D'Souza, J., Dhume, R., Motghare, D. D., Shaji, K. S., Menon, R., Prince, M. J., & Patel, V. (2008) · PLoS ONE · doi:10.1371/journal.pone.0002333 · Cited by 269 · see citing works
Huang, S., Lee, M., Liao, Y., Wang, W., & Lai, T. (2011) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2011.04.009 · Cited by 226 · see citing works
Behavioural and psychological symptoms of dementia: a seven‐tiered model of service delivery
Brodaty, H., Draper, B., & Low, L. (2003) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2003.tb05169.x · Cited by 172 · see citing works
Enhancing Dementia Care: A Primary Care–Based Memory Clinic
Lee, L. S., Hillier, L. M., Stolee, P., Heckman, G. A., Gagnon, M., McAiney, C. A., & Harvey, D. W. (2010) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2010.03130.x · Cited by 146 · see citing works
Ducharme, F., Lévesque, L., Lachance, L., Kergoat, M., Legault, A., Beaudet, L., & Zarit, S. H. (2011) · The Gerontologist · doi:10.1093/geront/gnr014 · Cited by 141 · see citing works
Sousa, R., Ferri, C. P., Acosta, D. M., Guerra, M., Huang, Y., Jacob, K. S., Thiyagarajan, J. A., Hernández, M. A. G., Liu, Z., Pichardo, G. R., et al. (2010) · BMC Geriatrics · doi:10.1186/1471-2318-10-53 · Cited by 139 · see citing works
Burden Experienced by Caregivers of Relatives with Dementia in Taiwan
Chou, K., LaMontagne, L. L., & Hepworth, J. T. (1999) · Nursing Research · doi:10.1097/00006199-199907000-00003 · Cited by 133 · see citing works
Chien, W. T., & Lee, I. Y. M. (2010) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2010.05537.x · Cited by 128 · see citing works
Gallagher-Thompson, D., Tzuang, Y. M., Au, A., Brodaty, H., Charlesworth, G., Gupta, R., Lee, S. E., Losada, A., & Shyu, Y.-I. (2012) · Clinical Gerontologist · doi:10.1080/07317115.2012.678190 · Cited by 128 · see citing works
Prince, M., Brodaty, H., Uwakwe, R., Acosta, D., Ferri, C. P., Guerra, M., Huang, Y., Jacob, K., Llibre Rodriguez, J. J., Salas, A., et al. (2012) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2727 · Cited by 119 · see citing works
Si, G., Ferri, C. P., Mikhaylova, N. M., Sokolova, O., Banerjee, S., & Prince, M. J. (2008) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2126 · Cited by 116 · see citing works
Xiao, L. D., Willis, E., & Jeffers, L. (2013) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2013.08.005 · Cited by 105 · see citing works
Self-citationLiu, Z., Albanese, E., Li, S., Huang, Y., Ferri, C. P., Yan, F., Sousa, R., Dang, W., & Prince, M. J. (2009) · BMC Public Health · doi:10.1186/1471-2458-9-394 · Cited by 104 · see citing works
Predictive Factors for the Objective Burden of Informal Care in People With Dementia
Wolfs, C. A. G., Kessels, A. G. H., Severens, J. L., Brouwer, W. B. F., de Vugt, M. E., Verhey, F. R. J., & Dirksen, C. D. (2011) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e31823a6108 · Cited by 85 · see citing works
The Nature and Scope of Stressful Spousal Caregiving Relationships
Davis, L. L., Gilliss, C. L., Deshefy‐Longhi, T., Chestnutt, D. H., & Molloy, M. A. (2011) · Journal of Family Nursing · doi:10.1177/1074840711405666 · Cited by 76 · see citing works
Xiao, L. D., Shen, J., & Paterson, J. (2013) · Journal of Transcultural Nursing · doi:10.1177/1043659613493329 · Cited by 69 · see citing works
Self-citationChang, Y.-P., Schneider, J. K., & Sessanna, L. (2011) · Journal of Aging Studies · doi:10.1016/j.jaging.2011.05.001 · Cited by 66 · cited 1× · see citing works
“…dementia is becoming less prominent due to rapid societal changes, such as the ‘one-child policy’, the rapid growth of internal migration for employment and the improved social status of women in the workforce, who were traditionally the home-based caregivers (Chang et al. 2011, Xiao et al. 2013a).”
BackgroundDementia services in Australia
Brodaty, H., & Cumming, A. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2587 · Cited by 58 · see citing works
Assessment of burden in caregivers of Alzheimer's disease from India
Pattanayak, R. D., Jena, R., Tripathi, M., & Khandelwal, S. K. (2010) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2010.06.002 · Cited by 47 · see citing works
Wang, L., Chien, W. T., & Lee, I. Y. M. (2012) · Contemporary Nurse · doi:10.5172/conu.2012.40.2.210 · Cited by 44 · see citing works
Johnson, D. K., Niedens, M., Wilson, J. R., Swartzendruber, L., Yeager, A., & Jones, K. M. (2012) · The Gerontologist · doi:10.1093/geront/gns104 · Cited by 40 · see citing works
Positive thinking on dementia in primary care: Gnosall Memory Clinic.
Greening, L., Greaves, I., Greaves, N., & Jolley, D. J. (2009) · PubMed · Cited by 30 · see citing works
Waldemar, G., Waldorff, F. B., Buss, D. V., Eckermann, A., Keiding, N., Rishøj, S., Siersma, V., Sørensen, J., Sørensen, L. V., & Vogel, A. (2010) · Neuroepidemiology · doi:10.1159/000322942 · Cited by 28 · see citing works
Wei, X., Zakus, D., Liang, H., & Sun, X. (2005) · The International Journal of Health Planning and Management · doi:10.1002/hpm.814 · Cited by 24 · see citing works
Criteria for the diagnosis of dementia
Ballard, C. G. (2010) · CRC Press eBooks · doi:10.1201/b13196-17 · Cited by 21 · see citing works
Do Nurse-Led Skill Training Interventions Affect Informal Caregivers' Out-of-Pocket Expenditures?
Houtven, C. H. V., Thorpe, J., Chestnutt, D. H., Molloy, M. A., Boling, J., & Davis, L. (2012) · The Gerontologist · doi:10.1093/geront/gns045 · Cited by 13 · see citing works
Including fathers in preventing non-accidental head injury.
Coles, L., & Collins, L. (2009) · PubMed · Cited by 11 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Liu, S., Li, C., Shi, Z., Wang, X., Zhou, Y., Liu, S., Liu, J., Yu, T., & Ji, Y. (2016) · Journal of Clinical Nursing · doi:10.1111/jocn.13601 · Cited by 265 · see citing works
Whitehead, L., Jacob, E. R., Towell‐Barnard, A., Abu‐Qamar, M. Z., & Cole‐Heath, A. (2017) · Journal of Clinical Nursing · doi:10.1111/jocn.13775 · Cited by 199 · see citing works
Feng, J., Wang, Z., & Yu, Y.-Y. (2020) · Social Science & Medicine (1967) · doi:10.1016/j.socscimed.2020.113081 · Cited by 157 · see citing works
Wang, Y., Xiao, L. D., Luo, Y., Xiao, S.-Y., Whitehead, C., & Davies, O. (2018) · BMC Geriatrics · doi:10.1186/s12877-018-0821-4 · Cited by 128 · see citing works
Self-citationFamily caregiver challenges in dementia care in Australia and China: a critical perspective
Xiao, L. D., Wang, J., He, G., Bellis, A. D., Verbeeck, J., & Kyriazopoulos, H. (2014) · BMC Geriatrics · doi:10.1186/1471-2318-14-6 · Cited by 123 · see citing works
Self-citationRababa, M., Al-Sabbah, S., & Hayajneh, A. A. (2021) · Journal of Pain Research · doi:10.2147/jpr.s332423 · Cited by 109 · see citing works
Chen, H., & Ning, J. (2022) · Health Policy and Planning · doi:10.1093/heapol/czac003 · Cited by 78 · see citing works
Association of healthy lifestyle with cognitive function among Chinese older adults
Wang, Z., Pang, Y., Liu, J., Wang, J., Xie, Z., & Huang, T. (2020) · European Journal of Clinical Nutrition · doi:10.1038/s41430-020-00785-2 · Cited by 75 · see citing works
Self-citationWen-hong, Z., Jones, C., Wu, M., & Moyle, W. (2020) · Journal of Clinical Nursing · doi:10.1111/jocn.15451 · Cited by 70 · see citing works
Wang, Y., Xiao, L. D., Ullah, S., He, G.-P., & Bellis, A. D. (2016) · Nurse Education Today · doi:10.1016/j.nedt.2016.10.016 · Cited by 70 · see citing works
Self-citationLaparidou, D., Middlemass, J., Karran, T., & Siriwardena, A. N. (2018) · Dementia · doi:10.1177/1471301217751226 · Cited by 56 · see citing works
Liang, J., Aranda, M., & Lloyd, D. A. (2020) · Journal of Aging and Health · doi:10.1177/0898264320926062 · Cited by 56 · see citing works
Overview of dementia care under the three‐tier long‐term care system of China
Wang, S., Cheung, D. S. K., & Leung, A. Y. M. (2018) · Public Health Nursing · doi:10.1111/phn.12573 · Cited by 53 · see citing works
Factors contributing to caregiver burden in dementia in a country without formal caregiver support
Wang, J., Xiao, L. D., He, G., Ullah, S., & Bellis, A. D. (2014) · Aging & Mental Health · doi:10.1080/13607863.2014.899976 · Cited by 47 · see citing works
Self-citationBraun, A., Trivedi, D. P., Dickinson, A. M., Hamilton, L. K., Goodman, C. M., Gage, H., Ashaye, K., Iliffe, S., & Manthorpe, J. (2018) · Dementia · doi:10.1177/1471301218762856 · Cited by 44 · see citing works
Dementia care in low and middle-income countries
Fam, J., Mahendran, R., & Kua, E. H. (2019) · Current Opinion in Psychiatry · doi:10.1097/yco.0000000000000523 · Cited by 43 · see citing works
Wang, F., Xiao, L. D., Wang, K., Li, M., & Yang, Y. (2017) · Applied Nursing Research · doi:10.1016/j.apnr.2017.09.008 · Cited by 42 · see citing works
Self-citationThe Experiences of People with Dementia and Their Caregivers in Dementia Diagnosis
Lian, Y., Xiao, L. D., Zeng, F., Wu, X., Wang, Z., & Ren, H. (2017) · Journal of Alzheimer s Disease · doi:10.3233/jad-170370 · Cited by 41 · see citing works
Self-citationFactors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis
Contreras, M., Mioshi, E., & Kishita, N. (2020) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/0891988720924713 · Cited by 41 · see citing works
Caregiver distress and associated factors in dementia care in the community setting in China
Wang, J., Xiao, L. D., Li, X., Bellis, A. D., & Ullah, S. (2015) · Geriatric Nursing · doi:10.1016/j.gerinurse.2015.04.013 · Cited by 36 · see citing works
Self-citationDementia caregiver interventions in Chinese people: A systematic review
Wu, B., Petrovsky, D., Wang, J., Xu, H., Zhu, Z., McConnell, E. S., & Corrazzini, K. N. (2018) · Journal of Advanced Nursing · doi:10.1111/jan.13865 · Cited by 35 · see citing works
Self-citationResident and staff perspectives of person-centered climate in nursing homes: a cross-sectional study
Yun-xia, Y., Li, H., Xiao, L. D., Zhang, W., Xia, M., & Feng, H. (2019) · BMC Geriatrics · doi:10.1186/s12877-019-1313-x · Cited by 31 · see citing works
Self-citationMaggio, M. G., Rosa, G. L., Calatozzo, P., Andaloro, A., Cuzzola, M. F., Cannavò, A., Militi, D., Manuli, A., Oddo, V., Pioggia, G., et al. (2021) · Journal of Clinical Medicine · doi:10.3390/jcm10245953 · Cited by 29 · see citing works
Caregivers’ Dementia Knowledge and Care Approach in Residential Aged Care Facilities in China
Dai, Y., Zhao, J. W., Li, S., Zhao, C., Gao, Y., & Johnson, C. E. (2020) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317520937096 · Cited by 28 · see citing works
Wang, Y., Xiao, L. D., & He, G. (2014) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2014.11.011 · Cited by 26 · see citing works
Self-citationPerson-Centered Dementia Care in China: A Bilingual Literature Review
Wang, J., Wu, B., Bowers, B. J., Lepore, M., Ding, D., McConnell, E. S., & Corazzini, K. (2019) · Gerontology and Geriatric Medicine · doi:10.1177/2333721419844349 · Cited by 27 · see citing works
Self-citationXian, G., Chai, Y., Gong, Y., He, W., Ma, C., Zhang, X., Zhang, J., & Ma, Y. (2024) · BMC Geriatrics · doi:10.1186/s12877-024-04922-5 · Cited by 30 · see citing works
Wang, J., Xiao, L. D., & Li, X. (2018) · Aging & Mental Health · doi:10.1080/13607863.2018.1426717 · Cited by 25 · see citing works
Self-citationXu, X., & Chen, L. (2019) · Journal of Medical Economics · doi:10.1080/13696998.2019.1600525 · Cited by 24 · see citing works
Nurse‐led cognitive screening model for older adults in primary care
Yang, Y., Xiao, L. D., Deng, L., Wang, Y., Li, M., & Ullah, S. (2014) · Geriatrics and gerontology international/Geriatrics & gerontology international · doi:10.1111/ggi.12339 · Cited by 22 · see citing works
Self-citationUse of a Humanoid Robot in Supporting Dementia Care: A Qualitative Analysis
Liao, Y. K., Jao, Y., Boltz, M. P., Adekeye, O. T., Berish, D. E., Yuan, F., & Zhao, X. (2023) · SAGE Open Nursing · doi:10.1177/23779608231179528 · Cited by 20 · see citing works
Huang, Y., Li, X., Liu, Z., Huo, J. S., Guo, J., Chen, Y., Chen, Y., & Chen, R. (2022) · PLoS ONE · doi:10.1371/journal.pone.0263077 · Cited by 22 · see citing works
Determining a cutoff score for the family burden interview schedule using three statistical methods
Yu, Y., Liu, Z., Zhou, W., Zhao, M., Tang, B.-W., & Xiao, S. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0734-8 · Cited by 18 · see citing works
Xu, X., Leung, D. Y. L., Leung, A. Y. M., Kwan, R. Y. C., Liang, T., & Chai, A. (2022) · Dementia · doi:10.1177/14713012221093879 · Cited by 18 · see citing works
Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties
Sharma, S., Halim, N. A. A., & Maniam, P. (2024) · Healthcare · doi:10.3390/healthcare12020133 · Cited by 18 · see citing works
Xiuxiang, Z., Zhang, X., & Hockley, J. (2020) · Journal of research in nursing · doi:10.1177/1744987120925128 · Cited by 18 · see citing works
Hu, M., Li, X., Zhu, Y., Chen, Z., Lai, C., Liu, R., Xiao, S., & Phillips, M. R. (2024) · The Lancet Regional Health - Western Pacific · doi:10.1016/j.lanwpc.2024.101184 · Cited by 17 · see citing works
Ansah, J. P., Koh, V., Chiu, C., Chei, C., Zeng, Y., Yin, Z., Shi, X., & Matchar, D. B. (2017) · System Dynamics Review · doi:10.1002/sdr.1581 · Cited by 17 · see citing works
The intergenerational relationship patterns between aging parents and their adult children
Torabian, M., Zanjari, N., Fadayevatan, R., Froughan, M., & Harouni, G. G. (2022) · Journal of Family Medicine and Primary Care · doi:10.4103/jfmpc.jfmpc_1972_21 · Cited by 16 · see citing works
Strini, V., Prendin, A., Cerrone, V., Schiavolin, R., de Barbieri, I., Andretta, V., Fortino, L., Santella, B., Franci, G., Capunzo, M., et al. (2024) · Translational Medicine UniSa · doi:10.37825/2239-9747.1044 · Cited by 16 · see citing works
Effects of Hand Exercise on Eating Action in Patients With Alzheimer’s Disease
Chen, L., Li, H., Chen, X., Jin, S., Chen, Q., Chen, M., & Li, N. (2018) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317518803722 · Cited by 15 · see citing works
Wen-hong, Z., Wu, M., Petsky, H., & Moyle, W. (2022) · Dementia · doi:10.1177/14713012221106817 · Cited by 13 · see citing works
Huynh-Truong, H. L., Shyu, Y. L., Tran, T. K. L., Huang, H., & Do, V. A. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-04199-0 · Cited by 12 · see citing works
Wang, Q., Sheng, Y., Wu, F., Zhang, Y., & Xu, X. (2019) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317519855154 · Cited by 12 · see citing works
The Level of Burden among Caregivers of Patients with Alzheimer’s Disease in Saudi Arabia
Badawoud, A. M., AlQadheeb, Y. K., AlZahrani, S. S., AlGhamdi, R. A., Alanazi, E. A., AlFozan, S. M., AlJafer, N. S., Asiri, I. M., & Alotaibi, F. M. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20042864 · Cited by 11 · see citing works
Pre-decision regret before transition of dependents with severe dementia to long-term care
Hanssen, I., Mkhonto, F. M., Øieren, H., Sengane, M. L., Sørensen, A. L., & Tran, P. T. M. (2022) · Nursing Ethics · doi:10.1177/09697330211015339 · Cited by 10 · see citing works
“Caregivers find it particularly difficult to manage wandering, psychotic behaviours(12) and aggression.(11) This was mirrored among our interviewees as many found themselves ‘trapped’ and ‘imprisoned’.”
BackgroundInfluentialEvans, I., Patel, R., Stoner, C. R., Melville, M., & Spector, A. E. (2024) · Behavioral Sciences · doi:10.3390/bs14030177 · Cited by 12 · see citing works
Chen, F., Hu, Z., Li, Q., Zheng, X., Li, M., Salcher‐Konrad, M., Comas‐Herrera, A., Knapp, M. R. J., & Cheng, S. (2025) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70054 · Cited by 12 · see citing works
Zhao, Y., Liu, L., Ding, Y., Shan, Y., & Chan, H. Y. L. (2022) · BMC Nursing · doi:10.1186/s12912-022-00815-3 · Cited by 11 · see citing works
Lawson, L., Cooper, M., Tolley, C., Hand, A., & Nazar, H. (2025) · BMC Geriatrics · doi:10.1186/s12877-025-06123-0 · Cited by 10 · see citing works
“Carers’ knowledge (e.g., health literacy, the patient’s care needs) was linked to their experience of carer burden, and use of urgent care after returning home, and contributed to the ways they engaged with information provided at discharge [43, 44, 57, 59, 60, 64, 66, 67].”
Ikanga, J. N., Reyes, A., Zhao, L., Hill‐Jarrett, T. G., Hammers, D. B., Epenge, E., Esambo, H., Kavugho, I., Esselakoy, C., Gikelekele, G., et al. (2023) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.6004 · Cited by 12 · see citing works
Nia, H. S., Froelicher, E. S., Hosseini, L., Farahani, M. A., & Hejazi, S. S. (2022) · Frontiers in Public Health · doi:10.3389/fpubh.2022.921858 · Cited by 10 · see citing works
Wang, Y., Xiao, L. D., Yu, Y., Huang, R., You, H., & Liu, M. (2021) · BMC Geriatrics · doi:10.1186/s12877-021-02575-2 · Cited by 10 · see citing works
Self-citationWangliu, Y., & Chen, J. (2024) · Journal of Advanced Nursing · doi:10.1111/jan.16118 · Cited by 9 · see citing works
Rababa, M., Aldrawsheh, A., Hayajneh, A. A., & Da’seh, A. (2022) · Ageing International · doi:10.1007/s12126-022-09512-7 · Cited by 9 · see citing works
Wang, J., Zhao, Y., Cui, Y., Ding, Y., Xing, Y., & Li, X. (2024) · Geriatric Nursing · doi:10.1016/j.gerinurse.2024.02.003 · Cited by 8 · see citing works
Self-citationGhassani, A. A., & Rababa, M. (2021) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000516086 · Cited by 8 · see citing works
Perceived Grief Among Caregivers of Patients With Dementia in China
Li, J., Li, Y., & Li, P. (2019) · Clinical Nursing Research · doi:10.1177/1054773819839265 · Cited by 8 · see citing works
Rashid, N. S. A., Marzuki, M. F. M., Abdullah, N. N., Mohamad, M., Takshe, A. A., Yunus, R. M., & Chen, X. W. (2024) · Scientific Reports · doi:10.1038/s41598-024-69947-7 · Cited by 8 · see citing works
Widiyaningsih, W., Pradana, A. A., Susanto, H., & Chiu, H. (2025) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2025.105191 · Cited by 8 · see citing works
Liu, G. (2019) · International Journal of Psychological and Brain Sciences · doi:10.11648/j.ijpbs.20190401.11 · Cited by 7 · see citing works
Ghassani, A. A., & Rababa, M. (2021) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000518715 · Cited by 6 · see citing works
Filial Piety Under Pressure: A Qualitative Study of Dementia Caregiver Burdens in Rural China
Kong, D. (2026) · Journal of Gerontological Social Work · doi:10.1080/01634372.2025.2611754 · Cited by 5 · see citing works
Dementia Research Activity in Sri Lanka: A Review
Abhayasinghe, K. M. P. W., Dissanayake, L., Benjamin, S., Paul, C., & Athula, S. (2020) · Journal of Neurodegenerative Disorders · doi:10.36959/459/603 · Cited by 4 · see citing works
The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment
Tokovská, M., & Šolcová, J. (2022) · Healthcare · doi:10.3390/healthcare10122441 · Cited by 5 · see citing works
Primary care service utilisation pattern in dementia: a 10-year longitudinal population-based study
Tjin, A., Thang, L. L., & Stewart, R. J. (2026) · Age and Ageing · doi:10.1093/ageing/afag016 · Cited by 3 · see citing works
Factors Associated with the Quality of Life in Family Caregivers of People with Dementia in Taiwan
Yeh, T.-Y., Su, J., & Chang, C.-C. (2022) · Taiwanese Journal of Psychiatry · doi:10.4103/tpsy.tpsy_29_22 · Cited by 3 · see citing works
Strong Structuration Theory (SST) and Global Public Health
Seguin, M. (2023) · Springer eBooks · doi:10.1007/978-3-031-25110-8_19 · Cited by 3 · see citing works
Kılıç, B. Ş., Hi̇çdurmaz, D., Ayhan, Y., & Saka, E. (2023) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/02793695-20231106-01 · Cited by 3 · see citing works
Mahomed, A., & Pretorius, C. (2024) · Dementia · doi:10.1177/14713012241234155 · Cited by 3 · see citing works
The Use of Social Media in Dementia Care: A Scoping Review
Azzahrani, M. S., Spanevello, M., Tsega, G., & Endeshaw, M. (2025) · Advances in Alzheimer s Disease · doi:10.4236/aad.2025.141001 · Cited by 3 · see citing works
Dementia Care in Indonesia: Care Networks, Awareness & Perception
van der Ploeg, E. S., Handajani, Y. S., & Schröder‐Butterfill, E. (2025) · Journal of Cross-Cultural Gerontology · doi:10.1007/s10823-025-09544-x · Cited by 5 · see citing works
Sadeghi-Mahalli, N., Shahboulaghi, F. M., Arsalani, N., Fallahi‐Khoshknab, M., Foroughan, M., & Atazadeh, M. (2024) · Geriatric Nursing · doi:10.1016/j.gerinurse.2024.10.011 · Cited by 2 · see citing works
Structural stigma: a fundamental cause of inequalities among carers of people with dementia
Oliveira, D., & Musyimi, C. W. (2025) · International Journal of Care and Caring · doi:10.1332/23978821y2025d000000105 · Cited by 3 · see citing works
Provision and Utilisation of Community Care Services in Beijing, China
Cheng, Y., Guang, R., Sun, X., Phillips, D. R., & Rosenberg, M. W. (2023) · China Perspectives · doi:10.4000/chinaperspectives.15719 · Cited by 1 · see citing works
Sadeghi-Mahalli, N., Shahboulaghi, F. M., Arsalani, N., Fallahi‐Khoshknab, M., Foroughan, M., & Atazadeh, M. (2025) · Journal of Women & Aging · doi:10.1080/08952841.2025.2534118 · Cited by 1 · see citing works
Caregivers’ experience of caring for family members with complex health needs in Latvia
Petrova, I., & Pipere, A. (2024) · Health Promotion International · doi:10.1093/heapro/daae070 · Cited by 1 · see citing works
Sadeghi-Mahalli, N., Shahboulaghi, F. M., Arsalani, N., Fallahi‐Khoshknab, M., Foroughan, M., & Atazadeh, M. (2024) · Aging & Mental Health · doi:10.1080/13607863.2024.2385453 · Cited by 1 · see citing works
Giap, T., & Giap, A.-T. (2025) · Springer eBooks · doi:10.1007/978-981-92-1290-3_83 · Cited by 1 · see citing works
Zhang, L., Sharir, J. Y., Wang, Y., Li, R., & Chen, H. (2018) · Lecture notes in computer science · doi:10.1007/978-3-319-92037-5_14
Health Economics for Neuropsychological Diseases in China
Cui, H., & Wang, G. (2019) · Springer eBooks · doi:10.1007/978-3-319-56015-1_17-1
Mental anorexia - Medico-lega psychiatric risks
Scripcaru, C., Iliescu, D. B., Şpac, S., & Scripcaru, A. (2022) · Bulletin of Integrative Psychiatry · doi:10.36219/bpi.2022.2.07
Factors associated with the grief among family caregivers of patients with dementia in ChinaPreprint
WU, J., Shen, Q., LIU, Y. J., XU, Y., & Chen, Y. (2022) · Research Square · doi:10.21203/rs.3.rs-2099255/v1
Health Economics for Neuropsychological Diseases in China
Cui, H., & Wang, G. (2022) · Springer eBooks · doi:10.1007/978-3-030-62059-2_17
Strong Structuration Theory (SST) and Global Public Health
Seguin, M. (2023) · Springer eBooks · doi:10.1007/978-3-030-96778-9_19-1
Aldrawsheh, A., Rababa, M., Hayajneh, A. A., Abusbaitan, H. A., & Eyadat, A. M. (2023) · Ageing International · doi:10.1007/s12126-023-09535-8
Waterman, C. (2024) · International Journal of Care and Caring · doi:10.1332/23978821y2024d000000044
Understanding Alzheimer’s Disease: A Multidisciplinary Perspective
Akbarzadehmoallemkoalei, M., Yektakasmaei, M. P., Tabar, S. S. S., Zolfaghari, K., Noorikoloori, S., Niktalab, P., Rouzrokh, S., Sheykhzadeh, Z., Sanavi, M. A., Dozdouzan, M. A., et al. (2024) · Integrated science · doi:10.1007/978-3-031-72079-6_14
Weiss, S., Harris, K. A., Carney, O. L., Maza, V. I., Wickline, S., Henderson, A. D., Widjaja, T., Garrett, B., Hill, D. L., Liskovec, L., et al. (2025) · Journal of Alzheimer s Disease · doi:10.1177/13872877251378478
Zhao, Y., Liu, L., Ding, Y., Shan, Y., & Chan, H. Y. L. (2022) · Figshare · doi:10.6084/m9.figshare.19092519
Zhao, Y., Liu, L., Ding, Y., Shan, Y., & Chan, H. Y. L. (2022) · Figshare · doi:10.6084/m9.figshare.19092516
Jagoda, T., Dharmaratne, S. D., & Rathnayake, S. (2026) · Geriatric Nursing · doi:10.1016/j.gerinurse.2026.103847
Navigating the Continuum: System-Level Requirements for High-Quality Dementia Care Transitions
Lotfalinezhad, E., Freeman, S., Kearns, W. D., Chehrehgosha, M., Nadrian, H., Stokes, J. E., Barati, F., Amirkhani-Ardeh, S., Mancheri, H., Jouybari, L. M., et al. (2026) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/15333175261471717
Dhankhar, S., Gautam, R. K., Chauhan, S., Sharma, H., Saini, M., Singh, T. G., Kumar, D., Gauttam, V. K., Mittal, P., & Chopra, H. (2026) · Scripta Medica · doi:10.5937/scriptamed57-62706
- Authors
- Wang, J., Xiao, L. D., He, G., & De Bellis, A.
- Affiliations
- Central South University (CN)
- Flinders University (AU)
- School of Nursing Central South University Changsha Hunan Province China
- School of Nursing and Midwifery Flinders University Adelaide South Australia Australia
- Corresponding author
- Xiao, Lily Dongxia
- Venue
- Journal of Advanced Nursing
- Publisher
- Wiley
- Published
- 2013-11-06
- Volume
- 70
- Issue
- 6
- Pages
- 1369-1380
- ISSN
- 0309-2402 (ISSN-L)
- 1365-2648
- OpenAlex
- W2052831045
- Cited by
- 95
- References
- 38
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 14 · 2023: 9 · 2022: 15 · 2021: 6 · 2020: 8 · 2019: 9 · 2018: 9 · 2017: 4 · 2016: 2 · 2015: 1 · 2014: 4
- FWCI
- 1.65
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Advanced Nursing (publishedVersion)
- PubMed (publishedVersion)
- Flinders Academic Commons (Flinders University) (acceptedVersion)
- Flinders Academic Commons (Flinders University) (submittedVersion)
- Funders
- Flinders/Central South University Collaborative Research Project (01.601.37930)
- Education Department of Hunan Province (CX2012B084)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Keywords
- family caregivers, dementia care, caregiver burden, behavioral and psychological symptoms of dementia, dementia services, low- and middle-income countries, China, community nurses, social construction of care, nursing workforce, caregiver support
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Aged, 80 and over, Aggression, China, Community Health Services, Dementia, Developing Countries, Female, Health Services Accessibility, Humans, Male, Middle Aged, Psychiatric Nursing, Social Support, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
