Dissemination of a successful dementia care program: Lessons to facilitate spread of innovations
Open accessAbstract
Background: Despite the effectiveness of innovations to improve the care of persons with dementia, there has been limited diffusion of these into widespread clinical practice. We aimed to identify common barriers and address them directly in the initial phase of dissemination of a successful dementia care program. Methods: Description of and early experience with a dissemination strategy of the UCLA Alzheimer's and Dementia Care Program to health care systems nationwide. We measured site‐identified goals for the program and indicators of success, number of adopting sites, and participants in their programs. Results: From January 2019 to December 2021, 80 sites expressed interest in adopting the program, 14 (18%) sites adopted it, and 10 of these sites have begun caring for patients. Another 4 sites have implemented the program as part of a randomized clinical trial. To date, over 1690 persons living with dementia and their caregivers have received Alzheimer's and Dementia Care (ADC) care at 14 adopting sites. Key lessons from the early dissemination efforts include the importance of identifying a strong product champion at the adopting site, creating a business case for adoption, training of clinical staff and adapting the model to fit local cultures and workflow, as well as recognizing the likely long length of time needed for the decision to adopt and implementation process. Conclusions: Despite many obstacles to dissemination, with local champions and technical assistance, successful innovations in dementia care can be implemented in diverse health systems. The ability to adopt sites to bring the program to full scale and achieve comparable outcomes to the original program remains to be determined.
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When dementia caregiver interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach many families while helping caregivers cope with their responsibilities.
“When interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach a large number of families while also helping caregivers cope with their responsibilities (this includes the Alzheimer's Association 24/7 Helpline).[560][561][562]”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [562]
The Introduction reports that numerous dementia caregiver interventions improve caregiver efficacy, and the Results report that the ADC program reached more than 1,690 people with dementia and their caregivers at adopting sites. But the paper does not establish that implemented interventions are generally successful at improving service delivery: it emphasizes limited uptake, and outcomes at adopting sites were not yet reported. It also does not evaluate the Alzheimer's Association 24/7 Helpline. (LLM, conf=0.85)
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2023 Alzheimer's disease facts and figures
(2023) · Alzheimer's & Dementia · doi:10.1002/alz.13016 · Cited by 3,212 · see citing works
2024 Alzheimer's disease facts and figures
(2024) · Alzheimer's & Dementia · doi:10.1002/alz.13809 · Cited by 2,536 · see citing works
- Authors
- Reuben, D. B., Evertson, L. C., Jackson‐Stoeckle, R., Epstein‐Lubow, G., Spragens, L. H., Haggerty, K. L., Serrano, K. S., & Jennings, L. A.
- Affiliations
- University of California, Los Angeles (US)
- Education Development Center, Inc. Waltham Massachusetts USA
- Alpert Medical School of Brown University Providence Rhode Island USA
- Spragens and Associates (United States) (US)
- Education Development Center (US)
- University of Oklahoma Health Sciences Center (US)
- Corresponding author
- Reuben, David B.
- Venue
- Journal of the American Geriatrics Society
- Publisher
- Wiley
- Published
- 2022-06-09
- Volume
- 70
- Issue
- 9
- Pages
- 2686-2694
- ISSN
- 0002-8614 (ISSN-L)
- 1532-5415
- PMC
- PMC9489616
- OpenAlex
- W4281684907
- Cited by
- 24
- References
- 16
- Citations by year
- 2026: 2 · 2025: 10 · 2024: 4 · 2023: 3 · 2022: 5
- FWCI
- 6.31
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of the American Geriatrics Society (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- National Institute on Aging (R21AG054681)
- Commonwealth Fund
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Health Sciences Research and Education
- Keywords
- dementia care, innovation dissemination, program adoption, implementation barriers, product champions, technical assistance, clinical staff training, health care system, caregivers
- MeSH terms
- Alzheimer Disease, Delivery of Health Care, Dementia, Humans, Caregivers
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