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Cited by 162Celiac Disease Research and ManagementChild Nutrition and Feeding IssuesEosinophilic Esophagitis

Coeliac disease and the gluten‐free diet: a review of the burdens; factors associated with adherence and impact on health‐related quality of life, with specific focus on adolescence

White, L. E., Bannerman, E., Gillett, P. M.·2016·Journal of Human Nutrition and Dietetics
DOI 10.1111/jhn.12375
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Abstract

Adherence and non-adherence to a gluten-free diet (GFD) may impact negatively on health-related quality of life (HRQoL). Understanding the factors that influence compliance could help inform management and also guide support. With a particular focus on adolescence, this narrative review critiques current literature on the burdens associated with following a GFD and the factors associated with adherence. Studies highlight a variety of burdens faced by individuals with coeliac disease, including the cost, access and availability of gluten-free (GF) foods, as well as the dilemmas experienced when eating out, travelling and socialising with friends. A number of studies report that adolescents face stigmatisation and feel isolated in social situations and at school. Additional burdens that are highlighted are a lack of knowledge regarding CD and GFD difficulties in interpreting food labels, as well as dissatisfaction with the organoleptic properties of GF foods. Factors associated with poor adherence in adolescence include older age, an absence of immediate symptoms, difficulties eating out and poor palatability of GF foods. Conversely, better emotional support and stronger organisation skills have been associated with superior adherence. Significant associations have been reported between HRQoL measures and adherence, although the findings are inconsistent. Limitations in research methodologies exist and data are restricted to just a few countries. Further research specific to ad…

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  • This feeling of stigmatization and social isolation needs to be addressed in the patient-physician communication and requires particular attention and support.

    “This feeling of stigmatization and social isolation needs to be addressed in the patient-physician communication and requires particular attention and support (107).”

    From ESPGHAN Position Paper on Management and Follow-up of Children and Adolescents With Celiac Disease. (2022) · cites this paper as [107]

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Authors
White, L. E., Bannerman, E., & Gillett, P. M.
Affiliations
  • Queen Margaret University (GB)
  • Royal Hospital for Sick Children (GB)
Corresponding author
White, L. E.
ORCID
Gillett, P. M.
Venue
Journal of Human Nutrition and Dietetics
Publisher
Wiley
Published
2016-05-23
Volume
29
Issue
5
Pages
593-606
ISSN
  • 0952-3871 (ISSN-L)
  • 1365-277X
DOI
10.1111/jhn.12375
OpenAlex
W2406338160
Cited by
162
References
7
Citations by year
2026: 17 · 2025: 24 · 2024: 15 · 2023: 16 · 2022: 16 · 2021: 13 · 2020: 30 · 2019: 12 · 2018: 8 · 2017: 10 · 2016: 1
FWCI
1.74
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Journal of Human Nutrition and Dietetics (publishedVersion)
  • PubMed (publishedVersion)
  • Queen Margaret University Publications Repository (Queen Margaret University) (acceptedVersion)
  • Queen Margaret University Publications Repository (Queen Margaret University) (submittedVersion)
Funders
  • University of Edinburgh
  • Coeliac UK
Topics
  • Health Sciences › Medicine › Gastroenterology › Celiac Disease Research and Management
  • Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
  • Health Sciences › Medicine › Surgery › Eosinophilic Esophagitis
Keywords
celiac disease, gluten-free diet, dietary adherence, health-related quality of life, adolescents, food labeling, social eating, stigma, emotional support, predictors of adherence
MeSH terms
Activities of Daily Living, Adolescent, Adult, Anxiety, Celiac Disease, Child, Child Nutritional Physiological Phenomena, Food Preferences, Humans, Health Knowledge, Attitudes, Practice, Patient Compliance, Quality of Life, Social Support, Adolescent Nutritional Physiological Phenomena, Cost of Illness, Evidence-Based Medicine, Foods, Specialized, Diet, Gluten-Free, Precision Medicine

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