The DOI matches its Crossref record; 46 of the 46 references it cites were found in a registry or an index.
Review of 103 Swedish Healthcare Quality Registries
Open accessAbstract
Background and objectives: In the past two decades, an increasing number of nationwide, Swedish Healthcare Quality Registries (QR s) focusing on specific disorders have been initiated, mostly by physicians. Here, we describe the purpose, organization, variables, coverage and completeness of 103 Swedish QR s. Methods: From March to September 2013, we examined the 2012 applications of 103 QR s to the Swedish Association of Local Authorities and Regions (SALAR) and also studied the annual reports from the same QR s. After initial data abstraction, the coordinator of each QR was contacted at least twice between June and October 2013 and asked to confirm the accuracy of the data retrieved from the applications and reports. Results: About 60% of the QR s covered ≥80% of their target population (completeness). Data recorded in Swedish QR s include aspects of disease management (diagnosis, clinical characteristics, treatment and lead times). In addition, some QR s retrieve data on self‐reported quality of life (EQ 5D, SF‐36 and disease‐specific measures), lifestyle (smoking) and general health status (World Health Organization performance status, body mass index and blood pressure). Conclusion: Detailed clinical data available in Swedish QR s complement information from government‐administered registries and provide an important source not only for assessment and development of quality of care but also for research.
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Ludvigsson, J., Nørgaard, M., Weiderpass, E., Håberg, S., LaFolie, P., Sarkkola, C., von Kraemer, S., Zoega, H., & Knudsen, G. P. (2015) · Clinical Epidemiology · doi:10.2147/clep.s90589 · Cited by 357
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Hoque, D. M. E., Kumari, V., Hoque, M., Ruseckaite, R., Romero, L., & Evans, S. M. (2017) · PLOS ONE · doi:10.1371/journal.pone.0183667 · Cited by 300
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Ludvigsson, J. F., Appelros, P., Askling, J., Byberg, L., Carrero, J.-J., Ekström, A. M., Ekström, M., Smedby, K. E., Hagström, H., James, S., et al. (2021) · Clinical Epidemiology · doi:10.2147/clep.s282475 · Cited by 284
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Metadata
- Authors
- Emilsson, L., Lindahl, B., Köster, M., Lambe, M., & Ludvigsson, J. F.
- Venue
- Journal of Internal Medicine
- Publisher
- Wiley
- Published
- 2014-09-27
- Volume
- 277
- Issue
- 1
- Pages
- 94-136
- ISSN
- 0954-6820 (ISSN-L)
- 1365-2796
- OpenAlex
- W2171241740
- Cited by
- 351
- References
- 46
- FWCI
- 51.99
- Type
- journal article
- Language
- en
- Open access
- bronze
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