A quality study of a medical birth registry
Abstract
A quality control study was made of the Swedish Medical Birth Registry. This registry used one mode of data collection during 1973-1981 and another from 1982 onwards. The number of errors in the register was checked by comparing register information with a sample of the original medical records, and the variability in the use of diagnoses between hospitals was studied. Different types of errors were identified and quantified and the efficiency of the two methods of data collection evaluated.
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The Swedish Medical Birth Register contains approximately 99% of all deliveries occurring in Sweden.
“We based our study on the Swedish Medical Birth Register (MBR), which contains approximately 99% of all deliveries occurring in the country [28].”
From The effect of swedish snuff (snus) on offspring birthweight: a sibling analysis (2013) · cites this paper as [28]
The study's analyses are based on a nationwide birth registry covering nearly 99% of deliveries in Sweden.
“Our analyses are based on a nationwide birth registry covering nearly 99% of the deliveries occurring in Sweden [28].”
From The effect of swedish snuff (snus) on offspring birthweight: a sibling analysis (2013) · cites this paper as [28]
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MethodNeonate Characteristics After Maternal Use of Antidepressants in Late Pregnancy
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“The Swedish Medical Birth Registry also contains data on delivery and the newborn, obtained from copies of the medical records used at delivery and at the pediatric examination of the newborn.(13,14) In the present study, the following variables were used: maternal age, parity (number of previously born infants plus 1…”
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“se Medical Birth Register (1973–) [51,60] Perinatal characteristics, e.”
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Self-citationPerinatal Factors Associated With Cerebral Palsy in Children Born in Sweden
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Maternal Hemoglobin Concentration During Pregnancy and Risk of Stillbirth
Stephansson, O. (2000) · JAMA · doi:10.1001/jama.284.20.2611 · Cited by 177 · see citing works
Waldenström, U., Cnattingius, S., Vixner, L., & Norman, M. (2016) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.14368 · Cited by 176 · see citing works
Self-citationStephansson, O., Granath, F. N., Svensson, �., Haglund, Ekbom, A., & Kieler, H. (2011) · Clinical Epidemiology · doi:10.2147/clep.s16305 · Cited by 175 · see citing works
“Data from the PDR contains all expenditures of prescribed drugs in pharmacies in Sweden.”
BackgroundInfluentialGyhagen, M., Bullarbo, M., Nielsen, T., & Milsom, I. (2012) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.2012.03301.x · Cited by 175 · see citing works
Women with schizophrenia: pregnancy outcome and infant death among their offspring
NILSSON, E., Lichtenstein, P., Cnattingius, S., Murray, R. M., & Hultman, C. M. (2002) · Schizophrenia Research · doi:10.1016/s0920-9964(01)00370-x · Cited by 175 · see citing works
Self-citationBirth Weight and Risk for Childhood Leukemia in Denmark, Sweden, Norway, and Iceland
Hjalgrim, L. L., Rostgaard, K., Hjalgrim, H., Westergaard, T., Thomassen, H., Forestier, E., Gustafsson, G., Kristinsson, J., Melbye, M., & Schmiegelow, K. (2004) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/djh287 · Cited by 171 · see citing works
Schlecht, N. F., Franco, E. L., Pintos, J., & Kowalski, L. P. (1999) · Epidemiology · doi:10.1097/00001648-199907000-00012 · Cited by 169 · see citing works
Methods of resuscitation in low‐Apgar‐score newborn infants— a national survey
Palme‐Kilander, C. (1992) · Acta Paediatrica · doi:10.1111/j.1651-2227.1992.tb12094.x · Cited by 169 · see citing works
“(<7days)(-28days)(>28days) 20(15) (4) ( I ) 19(14)(5)(-) 8(7)(1)(-) 24(21)(-)(3) 71 (57)(10)(4) Alive Neonatal seizures 1 3 23 27 No seizures 9 16 10 18 53”
BackgroundBjörkenstam, C., Kosidou, K., & Björkenstam, E. (2017) · British medical journal · doi:10.1136/bmj.j1334 · Cited by 161 · see citing works
The Influence of Gestational Age and Smoking Habits on the Risk of Subsequent Preterm Deliveries
Cnattingius, S., Granath, F. N., Petersson, G., & Harlow, B. L. (1999) · New England Journal of Medicine · doi:10.1056/nejm199909233411303 · Cited by 167 · see citing works
Self-citationBirth Outcomes in Women with Inflammatory Bowel Disease
Bröms, G., Granath, F. N., Linder, M., Stephansson, O., Elmberg, M., & Kieler, H. (2014) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000060 · Cited by 166 · see citing works
Asthma during pregnancy – a population based study
Källén, B. A. J., Rydhstroem, H., & Åberg, A. (2000) · European Journal of Epidemiology · doi:10.1023/a:1007678404911 · Cited by 166 · see citing works
“An evaluation of the register has been published [12].”
BackgroundSelf-citationGestational diabetes and preeclampsia
Östlund, I., Haglund, B., & Hanson, U. (2003) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2003.07.001 · Cited by 165 · see citing works
“The register covers more than 99% of all births in Sweden [11], and includes a wide range of data concerning the pregnancy, mother, and infant, e.”
BackgroundRheumatoid arthritis and birth outcomes: a Danish and Swedish nationwide prevalence study
Nørgaard, M., Larsson, H. J., Pedersen, L. H., Granath, F. N., Askling, J., Kieler, H., Ekbom, A., Sørensen, H. T., & Stephansson, O. (2010) · Journal of Internal Medicine · doi:10.1111/j.1365-2796.2010.02239.x · Cited by 164 · see citing works
Perinatally acquired brachial plexus palsy–a persisting challenge
Bager, B. (1997) · Acta Paediatrica · doi:10.1111/j.1651-2227.1997.tb14849.x · Cited by 164 · see citing works
Physical symptoms after childbirth: prevalence and associations with self‐rated health
Schytt, E., Lindmark, G., & Waldenström, U. (2005) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.2004.00319.x · Cited by 163 · see citing works
“Methods Data were collected by means of questionnaires in early pregnancy, two months and one year after the birth and from the Swedish Medical Birth Register.”
MethodInfluentialNilsson, E. M. E., Ros, H. S., Cnattingius, S., & Lichtenstein, P. (2004) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.2004.00042x.x · Cited by 163 · see citing works
“The Medical Birth Register covers 99% of all births in Sweden from 1973 and onwards and includes prospectively collected information about complications during pregnancy and delivery.(26,27) In Sweden, prenatal care is standardised and free of charge.”
BackgroundSelf-citationLeon, D. A. (2000) · American Journal of Epidemiology · doi:10.1093/aje/152.7.597 · Cited by 162 · see citing works
“A total of 211,627 singleton male livebirths delivered in Sweden from 1973 to 1976 were identified in the MBR.”
BackgroundInfluentialPerinatal outcomes after bariatric surgery: nationwide population based matched cohort study
Roos, N., Neovius, M., Cnattingius, S., Lagerros, Y. T., Sääf, M., Granath, F. N., & Stephansson, O. (2013) · BMJ · doi:10.1136/bmj.f6460 · Cited by 160 · see citing works
Self-citationDahlquist, G. G., & K�ll�n, B. (1992) · Diabetologia · doi:10.1007/bf00400261 · Cited by 160 · see citing works
“The Medical Birth Registry run by the Swedish National Board of Health started in 1973 and collects data on the pregnancy, delivery and neonatal period for nearly all infants in Sweden [12].”
BackgroundMethodInfluentialSelf-citationEarly dating by ultrasound and perinatal outcome
Högberg, U., & Larsson, N. O. (1997) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.3109/00016349709034900 · Cited by 160 · see citing works
Cnattingius, S., & Lambe, M. P. (2002) · Seminars in Perinatology · doi:10.1053/sper.2002.34771 · Cited by 160 · see citing works
Self-citationObstetric risk factors for stress urinary incontinence: a population-based study
Persson, J. (2000) · Obstetrics and Gynecology · doi:10.1016/s0029-7844(00)00950-9 · Cited by 157 · see citing works
“Data have been (and still are) collected consecutively in all Swedish hospitals by using the same standardized forms.(20) In linking this registry with the Hospital Discharge Registry, we identified women who had delivered in 1973 or later and who had been operated on for stress urinary incontinence (n 5 4634).”
Method
- Authors
- Cnattingius, S., Ericson, A., Gunnarskog, J., & Källén, B.
- Affiliations
- National Board of Health and Welfare (SE)
- Lund University (SE)
- Venue
- Scandinavian Journal of Social Medicine
- Publisher
- SAGE Publications
- Published
- 1990-06
- Volume
- 18
- Issue
- 2
- Pages
- 143-148
- ISSN
- 0300-8037 (ISSN-L)
- OpenAlex
- W2035263233
- Cited by
- 972
- References
- 14
- Citations by year
- 2026: 6 · 2025: 10 · 2024: 27 · 2023: 27 · 2022: 26 · 2021: 32 · 2020: 46 · 2019: 31 · 2018: 26 · 2017: 34 · 2016: 36 · 2015: 39 · 2014: 38 · 2013: 45 · 2012: 44
- FWCI
- 31.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Scandinavian Journal of Social Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Social Sciences › Decision Sciences › Management Science and Operations Research › Data Quality and Management
- Keywords
- medical birth registry, data quality, data errors, medical records, hospital diagnoses, interhospital variation, data collection methods, quality control
- MeSH terms
- Birth Certificates, Diagnosis, Humans, Infant, Newborn, Medical Records, Quality Control, Registries, Sweden
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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