Cited by 3Diabetes Management and ResearchDiabetes Management and EducationDiabetes and associated disorders

“Diabetes is really simple on paper, but really complicated when you actually have it”: Understanding the daily stressors of adolescents living with Type 1 diabetes

Open access
Rechenberg, Kaitlyn, Geiss, Carley, Koerner, Rebecca, Ríos, Nicole, Menon, Usha·2024·Journal for Specialists in Pediatric Nursing

Abstract

Purpose: This study aims to explore the daily stressors experienced by adolescents with Type 1 diabetes (T1D) and the perceived impact of those stressors on their self-management and psychological well-being. Design and Methods: We conducted semistructured in-depth telephone interviews using a qualitative descriptive approach with 20 adolescents aged 14–17 years with T1D and analyzed subsequent data using thematic analysis. Results: Participants who were non-Hispanic white made up 85% of the sample, 75% identified as female and mean age was 15 years. The study identified two key themes: “the everyday stress of living with diabetes” and “managing stress and supporting psychological well-being.” Participants described heightened mental load, the impact of daily activities, stress associated with public diabetes management, and added stress due to COVID-19. Primary mitigation techniques included family support, peer support networks, activity engagement, and personal acceptance of their condition. Practice Implications: We found that there is a compound effect that occurs with balancing daily disease management with normative activities of daily living. These data will help guide the design of new interventions and tailoring of existing interventions. Future intervention development may include physical exercise, mindfulness training, and stress reducing techniques. © 2024 Wiley Periodicals LLC.

Integrity signals

Registry

Crossref · 10.1111/jspn.12424

Cites

23 of 23 references verified0 citation errors · 0 not checkable

Statistics

Nothing to recompute.

Claims the paper makes

15 of 28 cited sources checked · 5 supported · 0 flagged · accuracy not yet measured

  • Premisecitation

    Adolescents with Type 1 diabetes experience stressors associated with their developmental stage.

    “Adolescents with T1D experience stressors associated with their developmental stage (Chao et al., 2016; Hedge et al., 2023; Jaser et al., 2017)”
    Quote in the paperSubstantial claim2 of 3 sources checked
    • cites Chao et al., 2016 source
    • cites Hedge et al., 2023 source
    • cites Jaser et al., 2017 source
  • Interpretationcitation

    The findings support the idea that adolescents with Type 1 diabetes and/or their parents experience increased stress due to the potential of hypoglycemia during sports and other physical activities.

    “Our findings support the idea that adolescents with and/or parents of adolescents withT1D experience an increased level of stress due to the potential of hypoglycemia during sports and other physical activities (Roberts et al., 2020; Zaharieva et al., 2020).”
    Quote in the paperSubstantial claim2 of 2 sources checked
    • cites Roberts et al., 2020 source

      The Introduction (page unavailable) describes fear of hypoglycemia as a barrier to exercise, and the Discussion (page unavailable) reports more hypoglycemia-avoidance behaviors among youth doing more vigorous physical activity. The study also measured parents’ fear, but the cited passages do not establish that adolescents or parents experienced increased stress specifically during sports or other physical activity. (LLM, conf=0.84)

      Experimental — accuracy not yet measured
    • cites Zaharieva et al., 2020 source

      The Exercise and Physical Activity section (page unavailable) identifies fear of hypoglycemia as a primary barrier to physical activity for youth with type 1 diabetes, supporting the concern attributed to adolescents. It does not establish increased stress levels or say that parents experience stress specifically because of hypoglycemia risk during activity. (LLM, conf=0.84)

      Experimental — accuracy not yet measured
  • Premisecitation

    Adolescents with Type 1 diabetes struggle with glycemic excursions that occur as a result of physical activity.

    “adolescents with T1D struggle with glycemic excursions that occur as a result of physical activity (Chetty et al., 2019; Logan et al., 2019; Zaharieva et al., 2020).”
    Quote in the paperSubstantial claim2 of 3 sources checked
    • cites Chetty et al., 2019 source
    • cites Logan et al., 2019 source
    • cites Zaharieva et al., 2020 source
  • Premisecitation

    Adolescents with Type 1 diabetes rely on a strong social support network to manage their stress and mitigate the experience of social isolation.

    “Adolescents with T1D rely on a strong social support network to manage their stress and mitigate the experience of social isolation (Chetty et al., 2019; Jaser et al., 2017).”
    Quote in the paperSubstantial claim2 of 2 sources checked
    • cites Chetty et al., 2019 source

      The Introduction discusses stress and anxiety as factors affecting glucose responses to exercise, and says health professionals can help families with exercise-related challenges. It does not say that adolescents rely on social support to manage stress or reduce social isolation. Searches for social support, peer support, and isolation found no passage addressing that claim. (LLM, conf=0.76)

      Experimental — accuracy not yet measured
    • cites Jaser et al., 2017 source

      The Results (Adolescent Stress; page unavailable) identify feeling different from peers as a diabetes-related stressor, and the Discussion recommends supporting adolescents’ coping efforts. Neither passage shows that adolescents rely on a social support network to manage stress or that such a network mitigates social isolation. Searches for social support, social isolation, and support-seeking found no passage addressing that relationship. (LLM, conf=0.74)

      Experimental — accuracy not yet measured
  • Findingown data

    The COVID-19 pandemic increased stress for participants in many ways.

    “The COVID-19 pandemic increased stress for participants in many ways.”
    Quote in the paperNot a substantial claim
  • May combine two claims. 20
  • Classified as probably not a substantial claim. 22
  • The quote only partly states this claim. 1
  • May combine two claims.

    Premisecitation

    Adolescents with Type 1 diabetes are transitioning to independent management, which is often associated with additional stress and family conflict.

    “and are transitioning to independent management of their diabetes, which is often associated with additional stress and family conflict on top of the already complex requirements of the disease (Brazeau et al., 2018; Ersig et al., 2016; Karavanaki et al., 2023).”
    Quote in the paperSubstantial claim1 of 3 sources checked
    • cites Brazeau et al., 2018 source

      The Introduction (page not specified) describes complex diabetes self-management and the challenge of establishing autonomy in youth, especially emerging adults. It does not say that adolescents' transition to independent diabetes management is often associated with additional stress or family conflict. (LLM, conf=0.84)

      Experimental — accuracy not yet measured
    • cites Ersig et al., 2016 source
    • cites Karavanaki et al., 2023

      Couldn’t be matched to a paper in Crossref, so it can’t be checked.

  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Premisecitation

    Daily management tasks for children and adolescents can take an average of 78 minutes per day and up to 5 hours per day.

    “These daily management tasks for children and adolescents can take an average of 78 min per day and up to 5 h per day (Shubrook et al., 2018).”
    Quote in the paperNot a substantial claim1 of 1 sources checked
    • cites Shubrook et al., 2018 source

      The Results section, “Summary of Survey Results for a Child with Type 1 Diabetes,” estimates 78 minutes per day for routine self-care and 305 minutes (about 5 hours) for all self-management tasks. These are different categories of estimated time, not an average and an upper limit for the same tasks. The survey scenario concerns a child with type 1 diabetes; the cited passage does not establish the figures for adolescents generally. (LLM, conf=0.88)

      Experimental — accuracy not yet measured
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Premisecitation

    Telephone interviews are a reliable way of collecting qualitative data.

    “Telephone interviews have been established as a reliable way of collecting qualitative data (Novick, 2008).”
    Quote in the paperNot a substantial claim1 of 1 sources checked
    • cites Novick, 2008 source
  • Classified as probably not a substantial claim. May combine two claims.

    Premisecitation

    Daily management of Type 1 diabetes includes constant monitoring of blood glucose, administering insulin, meal planning, recordkeeping, and complex problem solving.

    “General daily management of T1D includes constant monitoring of blood glucose, administering insulin by pump and/or injection, meal planning, recordkeeping, and complex problem solving (Shubrook et al., 2018).”
    Quote in the paperSubstantial claim1 of 1 sources checked
    • cites Shubrook et al., 2018 source

      The Methods and Results describe blood-glucose checks, insulin injections, meal planning, recordkeeping, and problem-solving for a child with type 1 diabetes (page not available). The survey specifies four checks and four injections per day; it does not establish constant monitoring or address insulin pumps as an administration method. (LLM, conf=0.88)

      Experimental — accuracy not yet measured
  • Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.

    Premisecitation

    Individuals with Type 1 diabetes are at risk for severe infection, hospitalization, increased mortality rates, and anxiety.

    “Studies have shown that high-risk groups including individuals with T1D are at risk for severe infection, hospitalization, increased mortality rates, and anxiety (Caballero et al., 2020; Karavanaki et al., 2023; Wade et al., 2022).”
    Quote in the paperNot a substantial claim1 of 3 sources checked
    • cites Caballero et al., 2020 source

      The Introduction reports that people with diabetes face increased COVID-19 morbidity and mortality, including ICU treatment, and the management section describes greater risk of serious disease and hospitalization. The Perspective from Latin America reports fear of infection and death among people living with diabetes. These passages do not establish the full set of risks specifically for people with type 1 diabetes, or explicitly report anxiety; page numbers are unavailable in our copy. (LLM, conf=0.86)

      Experimental — accuracy not yet measured
    • cites Karavanaki et al., 2023

      Couldn’t be matched to a paper in Crossref, so it can’t be checked.

    • cites Wade et al., 2022 source
  • May combine two claims.

    Premisecitation

    Diabetes-related stigma is persistent and negatively affects quality of life.

    “This is a common finding throughout the existing literature as diabetes-related stigma is persistent and negatively affects quality of life (Brazeau et al., 2018; Eitel et al., 2023).”
    Quote in the paperSubstantial claim2 of 2 sources checked
    • cites Brazeau et al., 2018 source

      The Discussion (Principal Findings; page unavailable) reports that respondents with stigma had a lower sense of well-being, supporting an association with poorer quality of life. The study is cross-sectional, however, so it does not establish that stigma persists over time or that stigma causes the reduction in well-being. (LLM, conf=0.86)

      Experimental — accuracy not yet measured
    • cites Eitel et al., 2023 source

      The paper’s Abstract section reports associations between diabetes stigma and depressive symptoms, anxiety, diabetes distress, and emotional distress, supporting a negative effect on well-being. It does not establish that stigma persists over time or report a direct quality-of-life outcome; its Type 1 and Type 2 Diabetes Outcomes sections focus on clinical associations. (LLM, conf=0.80)

      Experimental — accuracy not yet measured
  • May combine two claims.

    Findingown data

    Stress related to school and sleep was reported.

    “In addition to participation in sports, stress related to school and sleep were reported.”
    Quote in the paperNot a substantial claim
  • May combine two claims.

    Findingown data

    The sample consisted of 20 adolescents with mean age 15 years, 85% non-Hispanic white, 10% Asian, 75% female, 75% insulin pump users, and mean hemoglobin A1c 7.6%.

    “In our sample of 20 adolescents, the mean age was 15 years, 85% identified as non-Hispanic white and 10% identified as Asian, 75% identified as female, 75% utilized insulin pumps, and mean hemoglobin A1c was 7.6%.”
    Quote in the paperNot a substantial claim
  • May combine two claims.

    Findingown data

    Participants reported four main types of stress related to Type 1 diabetes: increased mental load of management tasks, impact on daily activities, embarrassment and stress of public management, and COVID-19 risk and social isolation.

    “Participants reported four main types of stress related to their T1D: (1) Increased mental load of management tasks, (2) impact on daily activities, (3) embarrassment and stress of public management, and (4) COVID-19 risk and social isolation.”
    Quote in the paperSubstantial claim
  • May combine two claims.

    Findingown data

    Parental involvement can be annoying and cause additional stress.

    “While participants were appreciative of an elevated level of involvement, they also recognized how it can be “annoying” and cause additional stress.”
    Quote in the paperNot a substantial claim
  • May combine two claims.

    Findingown data

    Engaging in physical activity was a common technique to relieve stress, with outdoor activities described as particularly relieving.

    “Engaging in physical activity (e.g., sports, walking, yoga, dance) were common techniques to relieve stress, with outdoor activities described as particularly “relieving.””
    Quote in the paperNot a substantial claim
  • May combine two claims.

    Findingown data

    Relationships with others with Type 1 diabetes offered meaningful support and helped participants feel not alone.

    “Participants described how relationships with others with T1D offered meaningful support from people who “fully understand” and helped them feel “not alone.””
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductnone given

    Sampling continued until data redundancy was agreed upon by all coders.

    “Sampling continued until data redundancy was agreed upon by all coders (C. G., K. R.).”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductnone given

    Data saturation was achieved.

    “We continued interviewing until data saturation was achieved.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Premisecitation

    Type 1 diabetes is an autoimmune disease in which the pancreas cannot produce insulin.

    “Type 1 diabetes (T1D) is an autoimmune disease in which the pancreas is unable to produce insulin (Centers for Disease Control and Prevention, 2023b).”
    Quote in the paperNot a substantial claim0 of 1 sources checked
    • cites Centers for Disease Control and Prevention, 2023b

      Couldn’t be matched to a paper in Crossref, so it can’t be checked.

  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductown data

    Member checking was conducted by sharing findings with participants.

    “We underwent a process of member checking, sharing findings with participants to cross-check findings.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.

    Premisecitation

    Type 1 diabetes is usually diagnosed before age 18, with diagnosis peaking at ages 13 to 14.

    “T1D is usually diagnosed before the age of 18, with diagnosis peaking at ages 13 to 14 years (Centers for Disease Control and Prevention, 2023a).”
    Quote in the paperNot a substantial claim0 of 1 sources checked
    • cites Centers for Disease Control and Prevention, 2023a

      Couldn’t be matched to a paper in Crossref, so it can’t be checked.

  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductown data

    80% coding agreement was achieved.

    “Using the final codebook, the interviews were then coded again by two coders (C. G., K. R.) concurrently until 80% coding agreement was achieved.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Premisecitation

    Almost a third of adolescents with Type 1 diabetes report diabetes-related stress and distress.

    “Almost a third of adolescents with T1D report diabetes-related stress and distress (Hagger et al., 2016).”
    Quote in the paperNot a substantial claim0 of 1 sources checked
    • cites Hagger et al., 2016 source
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductown data

    The study was approved by the University of South Florida Institutional Review Board.

    “The University of South Florida Institutional Review Board approved this study.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.

    Premisecitation

    Type 1 diabetes is a chronic, lifelong condition that requires daily administration of multiple insulin injections titrated with diet and exercise.

    “T1D is a chronic, lifelong condition requiring daily administration of multiple insulin injections titrated with diet and exercise (Centers for Disease Control and Prevention, 2023b).”
    Quote in the paperNot a substantial claim0 of 1 sources checked
    • cites Centers for Disease Control and Prevention, 2023b

      Couldn’t be matched to a paper in Crossref, so it can’t be checked.

  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductown data

    Two coders employed a conceptual coding method.

    “A conceptual coding method was employed by two coders (C. G., K. R.).”
    Quote in the paperNot a substantial claim
  • Classified as probably not a substantial claim. May combine two claims.

    Study design and conductown data

    Informed consent and adolescent assent were obtained.

    “Informed consent and adolescent assent were obtained from adolescents and parent or legal guardian after eligibility was established.”
    Quote in the paperSubstantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductnone given

    A detailed audit trail was maintained throughout the study.

    “A detailed audit trail was maintained throughout the study.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductnone given

    Field notes and detailed memos were used to refine themes and bolster reliability.

    “We also used field notes and detailed memos to refine themes and further bolster reliability of findings.”
    Quote in the paperNot a substantial claim
  • Classified as probably not a substantial claim. May combine two claims.

    Study design and conductown data

    The sample was 85% non-Hispanic white, and further studies are required to explore the experiences of adolescents in diverse racial/ethnic groups.

    “This sample identified as 85% non-Hispanic, white, and further studies are required to explore the experiences of adolescents in diverse racial/ethnic groups.”
    Quote in the paperSubstantial claim
  • May combine two claims.

    Study design and conductnone given

    The sample included adolescents of varied ages, biological sex, and treatment modalities, which increased the generalizability of the study.

    “In addition, the sample included adolescents of varied ages, biological sex, and treatment modalities, which increased the generalizability of the study.”
    Quote in the paperNot a substantial claim
  • May combine two claims. The quote only partly states this claim.

    Premisecitation

    Discomfort from public management results in social withdrawal, social awkwardness, and avoidance of social situations.

    “This level of discomfort results in social withdrawal and social awkwardness, as well as avoidance of social situations (Seo, 2021).”
    Quote in the paperSubstantial claim0 of 1 sources checked
    • cites Seo, 2021 source
  • Classified as probably not a substantial claim.

    Study design and conductreasoning

    The qualitative descriptive approach allowed an in-depth exploration of experiences of living with the daily burden of Type 1 diabetes.

    “We used a qualitative descriptive approach, allowing an in-depth exploration of the experiences of living with the daily burden of T1D.”
    Quote in the paperSubstantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.

    Study design and conductnone given

    Strategies to ensure methodological trustworthiness included two experienced coders, reflective journaling, and a detailed audit trail.

    “We used several strategies to ensure methodological trustworthiness, including two experienced coders, reflective journaling, and a detailed audit trail.”
    Quote in the paperNot a substantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing), S4 (based). May combine two claims.

    Study design and conductnone given

    Data were collected during the COVID-19 pandemic, which introduced unique stressors that do not apply to non-pandemic times.

    “The data were collected during the COVID-19 pandemic, which introduced unique stressors that do not apply to non-pandemic times.”
    Quote in the paperNot a substantial claim
  • May combine two claims.

    Interpretationown data

    Embarrassment and stress related to public management of Type 1 diabetes was an important factor in daily self-management behaviors and a major contributor to primary daily stressors.

    “Embarrassment and stress related to the public management of T1D was an important factor in daily self-management behaviors as well as a major contributor to their perception of their primary daily stressors.”
    Quote in the paperSubstantial claim
  • May combine two claims.

    Interpretationown data

    The findings align with current literature and add the description of mental exhaustion and the compounding that occurs with balancing daily disease management with normative activities of daily living.

    “Our findings align with the current body of literature and add the description of “mental exhaustion” and the compounding that occurs with balancing daily disease management with normative activities of daily living.”
    Quote in the paperSubstantial claim
  • Probably not a substantial claim: may not pass S3 (load-bearing).

    Study design and conductreasoning

    Recruitment through online ads may not capture experiences of adolescents who do not have access to or are not active on social media.

    “Additionally, participants were recruited through online ads, which may not capture experiences of adolescents who don’t have access to or are not active on social media.”
    Quote in the paperNot a substantial claim
34 of 34
  • The paper relies on this without support.

    Self-management and glycemic control decline during the age span of 14 to 17 years.

    “We selected adolescents 14 to 17 years of age to capture early and middle adolescence, as this age span coincides with the period when self-management and glycemic control decline.”
  • The paper relies on this without support.

    Organized sports and accompanying physical activity play a significant role in the social lives of children and adolescents.

    “Organized sports and accompanying physical activity play a significant role in the social lives of children and adolescents.”
2 of 2

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Authors
Rechenberg, K., Geiss, C., Koerner, R., Ríos, N., & Menon, U.
Affiliations
  • University of South Florida (US)
  • Moffitt Cancer Center (US)
Corresponding author
Rechenberg, Kaitlyn
Venue
Journal for Specialists in Pediatric Nursing
Publisher
Wiley
Published
2024-02-07
Volume
29
Issue
2
Pages
e12424-e12424
ISSN
  • 1539-0136 (ISSN-L)
  • 1744-6155
OpenAlex
W4391649520
Cited by
3
References
23
Citations by year
2026: 1 · 2025: 2
FWCI
0.73
Type
journal article
Language
en
Open access
Locations
  • Journal for Specialists in Pediatric Nursing (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (submittedVersion)
Funders
National Institute of Nursing Research
Topics
  • Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Research
  • Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Diabetes and associated disorders
Keywords
type 1 diabetes, adolescents, daily hassles, diabetes self-management, psychological well-being, mental workload, COVID-19 stress, family support

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