Diabetes distress among adolescents with type 1 diabetes: a systematic review
Open accessAbstract
Diabetes distress (DD) refers to the negative emotions arising from living with diabetes and the burden of self-management. Among adults, the prevalence and significance of DD are well established, but this is not the case among adolescents. This systematic review investigated among adolescents with type 1 diabetes: the prevalence of DD; demographic, clinical, behavioral and psychosocial correlates of DD and interventions that reduce DD. Consistent with adult studies, around one third of adolescents experience elevated DD and this is frequently associated with suboptimal glycemic control, low self-efficacy and reduced self-care. Three measures of DD have been developed specifically for adolescents, as those designed for adults may not be sufficiently sensitive to adolescent concerns. Interventions reducing DD in the short term include strategies such as cognitive restructuring, goal setting and problem solving. Further work is needed to investigate sustainability of effect. Rigorous research is needed to progress this field among adolescents.
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Almost a third of adolescents with Type 1 diabetes report diabetes-related stress and distress.
“Almost a third of adolescents with T1D report diabetes-related stress and distress (Hagger et al., 2016).”
From “Diabetes is really simple on paper, but really complicated when you actually have it”: Understanding the daily stressors of adolescents living with Type 1 diabetes (2024) · cites this paper as Hagger et al., 2016
About one-third of adolescents with diabetes develop diabetes distress, which may be linked to declines in self-management and suboptimal blood glucose.
“About one-third of adolescents with diabetes develop diabetes distress, which may be associated with declines in self-management behaviors and suboptimal blood glucose levels (44).”
From Psychosocial care for people with diabetes: a position statement of the American Diabetes Association (2016) · cites this paper as [44]
Diabetes distress is very common.
“Diabetes distress is very common (321,(358)(359)(360).”
From 5. Facilitating Positive Health Behaviors and Well-being to Improve Health Outcomes:<i>Standards of Care in Diabetes—2023</i> (2023) · cites this paper as [360]
Similar rates of diabetes distress have been identified among adolescents with type 1 diabetes and in parents of youth with type 1 diabetes.
“Similar rates have been identified among adolescents with type 1 diabetes (360) and in parents of youth with type 1 diabetes.”
From 5. Facilitating Positive Health Behaviors and Well-being to Improve Health Outcomes:<i>Standards of Care in Diabetes—2023</i> (2023) · cites this paper as [360]
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- Authors
- Hagger, V., Hendrieckx, C., Sturt, J., Skinner, T. C., & Speight, J.
- Affiliations
- Deakin University (AU)
- King's College London (GB)
- Charles Darwin University (AU)
- Corresponding author
- Hagger, Virginia
- Venue
- Current Diabetes Reports
- Published
- 2016-01
- Volume
- 16
- Issue
- 1
- Pages
- 9-9
- ISSN
- 1534-4827 (ISSN-L)
- 1539-0829
- OpenAlex
- W2237186256
- Cited by
- 338
- References
- 80
- Citations by year
- 2026: 30 · 2025: 44 · 2024: 42 · 2023: 42 · 2022: 45 · 2021: 37 · 2020: 29 · 2019: 29 · 2018: 21 · 2017: 13 · 2016: 6
- FWCI
- 3.38
- Type
- journal article
- Language
- en
- Open access
- green
- figshare.com
- Licence
- Locations
- Current Diabetes Reports (publishedVersion)
- PubMed (publishedVersion)
- Figshare (submittedVersion, cc-by)
- Research Portal (King's College London) (submittedVersion)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Research
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Diabetes and associated disorders
- Keywords
- diabetes distress, type 1 diabetes, adolescents, glycemic control, self-efficacy, self-care, psychosocial correlates, prevalence, cognitive restructuring, goal setting, problem solving, diabetes self-management
- MeSH terms
- Adolescent, Blood Glucose, Diabetes Mellitus, Type 1, Humans, Self Care, Stress, Psychological, Cognitive Behavioral Therapy, Self Efficacy
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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