The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.
Protecting Communities in Biomedical Research
Abstract
Although for the last 50 years, ethicists dealing with human experimentation have focused primarily on the need to protect individual research subjects and vulnerable groups, biomedical research, especially in genetics, now requires the establishment of standards for the protection of communities. We have developed such a strategy, based on five steps. (i) Identification of community characteristics relevant to the biomedical research setting, (ii) delineation of a typology of different types of communities using these characteristics, (iii) determination of the range of possible community protections, (iv) creation of connections between particular protections and one or more community characteristics necessary for its implementation, and (v) synthesis of community characteristics and possible protections to define protections appropriate for each type of community. Depending on the particular community, consent and consultation, consultation alone, or no added protections may be required for research.
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Participatory research with Native Community of Kahnawake creates innovative code of research ethics
Macaulay, A. C., Delormier, T., McComber, A. M., Cross, E. J., Potvin, L. P., Paradis, G., Kirby, R. L., Saad-Haddad, C., & Desrosiers, S. (1998) · Canadian Journal of Public Health · doi:10.1007/bf03404399 · Cited by 174
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O'Neill, O. (2002) · Cambridge University Press eBooks · doi:10.1017/cbo9780511606250 · Cited by 1,202
What Makes Clinical Research in Developing Countries Ethical? The Benchmarks of Ethical Research
Emanuel, E. J., Wendler, D., Killen, J., & Grady, C. (2004) · The Journal of Infectious Diseases · doi:10.1086/381709 · Cited by 966
Self-citationRegistries for Evaluating Patient Outcomes: A User’s Guide
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Grand Challenges in Global Health: Community Engagement in Research in Developing Countries
Tindana, P. O., Singh, J. A., Tracy, C. S., Upshur, R. E. G., Daar, A. S., Singer, P. A., Frohlich, J., & Lavery, J. V. (2007) · PLoS Medicine · doi:10.1371/journal.pmed.0040273 · Cited by 411
Should donors be allowed to give broad consent to future biobank research?
Hansson, M. G., Dillner, J., Bartram, C. R., Carlson, J. A., & Helgesson, G. (2006) · The Lancet Oncology · doi:10.1016/s1470-2045(06)70618-0 · Cited by 382
Metadata
- Authors
- Weijer, C., & Emanuel, E. J.
- Venue
- Science
- Published
- 2000-08-18
- Volume
- 289
- Issue
- 5482
- Pages
- 1142-1144
- ISSN
- 0036-8075 (ISSN-L)
- 1095-9203
- OpenAlex
- W1498556839
- Cited by
- 288
- References
- 1
- FWCI
- 16.89
- Type
- journal article
- Language
- en
- Open access
- closed
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- Weijer, C., & Emanuel, E. J. (2000). Protecting Communities in Biomedical Research. Science. https://doi.org/10.1126/science.289.5482.1142
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.