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Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK
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OBJECTIVE: To identify common difficult decisions made by family carers on behalf of people with dementia, and facilitators of and barriers to such decisions, in order to produce information for family carers about overcoming barriers. DESIGN: Qualitative study to delineate decision areas through focus groups and complexity of decision making in individual interviews. SETTING: Community settings in London. PARTICIPANTS: 43 family carers of people with dementia in focus groups and 46 carers who had already made such decisions in individual interviews. RESULTS: Family carers identified five core problematic areas of decision making: accessing dementia related health and social services; care homes; legal-financial matters; non-dementia related health care; and making plans for the person with dementia if the carer became too ill to care for them. They highlighted the difficulties in making proxy decisions, especially against active resistance, and their altered role of patient manager while still a family member. Families devised strategies to gain agreement in order to ensure that the person with dementia retained dignity. CONCLUSIONS: The following strategies helped with implementation of decisions: introducing change slowly; organising legal changes for the carer as well as the patient; involving a professional to persuade the patient to accept services; and emphasising that services optimised, not impeded, independence. To access services, carers made patients' general practice appointments, accompanied them to the surgery, pointed out symptoms, gained permission to receive confidential information, asked for referral to specialist services, and used professionals' authority to gain patients' agreement. End of life decisions were particularly difficult. They were helped by knowledge of the person with dementia's previous views, clear prognostic information, and family support. Information sheets to help carers to overcome barriers to proxy decision making have been developed; their impact in practice has yet to be evaluated.
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“People with dementia and their relatives find decisions about the person with dementia living in a care home difficult.”
From How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study (2016) · cites this paper as [3]
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“In general, when they are well most people do not plan that they or their relatives will move into a care home [3].”
From How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study (2016) · cites this paper as [3]
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Cites
Qualitative Data Analysis: An Expanded Sourcebook
(1994) · Journal of Environmental Psychology · doi:10.1016/s0272-4944(05)80231-2 · Cited by 48,420
Global prevalence of dementia: a Delphi consensus study
Ferri, C. P., Prince, M. J., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., Hall, K. S., Hasegawa, K., Hendrie, H. C., Huang, Y., et al. (2005) · The Lancet · doi:10.1016/s0140-6736(05)67889-0 · Cited by 5,336
Making sense of qualitative data
Coffey, A. J., & Atkinson, P. (1996) · Medical Entomology and Zoology · Cited by 3,855
Smith, J. A. (1996) · Psychology & Health · doi:10.1080/08870449608400256 · Cited by 2,380
Living Well with Dementia: A National Dementia Strategy
(2009) · PsycEXTRA Dataset · doi:10.1037/e608082011-001 · Cited by 1,119
Are memory complaints predictive for dementia? A review of clinical and population-based studies
Jonker, C., Geerlings, M. I., & Schmand, B. A. (2000) · International Journal of Geriatric Psychiatry · doi:10.1002/1099-1166(200011)15:11 · Cited by 983
Selwood, A., Johnston, K., Katona, C., Lyketsos, C., & Livingston, G. (2007) · Journal of Affective Disorders · doi:10.1016/j.jad.2006.10.025 · Cited by 342
Self-citationButcher, H., Holkup, P., Park, M., & Maas, M. (2001) · Research in Nursing and Health · doi:10.1002/nur.10005 · Cited by 130
‘Making the best of things’: relatives' experiences of decisions about care-home entry
Davies, S., & Nolan, M. (2003) · Ageing and Society · doi:10.1017/s0144686x03001259 · Cited by 111
What to tell dementia caregivers—the rule of threes
Wald, C., Fahy, M., Walker, Z., & Livingston, G. (2003) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.828 · Cited by 89
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- [11]Potkins D, Bradley S, Shrimanker J, O’Brien J, Swann A, Ballard C. End of life treatment decisions in people with dementia: carers’ views and the factors which influence them. Int J Geriatr Psychiatry 2000; 15: 1005-8. 11113979
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Sorted by citations
Items 101–200 of 239
Jensen, I., Lescher, E., Stiel, S., Wegner, F., Höglinger, G. U., & Klietz, M. (2021) · Brain Sciences · doi:10.3390/brainsci11111470 · Cited by 19
Harding, A. J. E., Doherty, J., Bavelaar, L., Walshe, C., Preston, N. J., Kaasalainen, S., Sussman, T., van der Steen, J. T., Cornally, N., Hartigan, I., et al. (2022) · BMC Geriatrics · doi:10.1186/s12877-022-03533-2 · Cited by 19
Relatives’ participation in everyday care in special care units for persons with dementia
Helgesen, A. K., Athlin, E. E., & Larsson, M. (2014) · Nursing Ethics · doi:10.1177/0969733014538886 · Cited by 19
Jones, C., Edwards, R. T., & Hounsome, B. (2014) · ISRN Family Medicine · doi:10.1155/2014/919613 · Cited by 20
Family caregiver strategies to encourage older relatives with dementia to use social services
Takai, Y., Yamamoto‐Mitani, N., Okamoto, Y., Fukahori, H., Ko, A., & Tanaka, M. (2013) · Journal of Advanced Nursing · doi:10.1111/jan.12155 · Cited by 18
Ethical Considerations in Electronic Monitoring of the Cognitively Impaired
Yang, Y. T., & Kels, C. G. (2017) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2017.02.160219 · Cited by 18
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers
Khemai, C., Meijers, J. M., Mujezinovic, I., Bolt, S. R., Pieters, S., Moser, A., Schols, J. M. G. A., & Janssen, D. J. A. (2022) · Dementia · doi:10.1177/14713012221098259 · Cited by 17
Dooley, J., Booker, M. J., Barnes, R., & Xanthopoulou, P. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-037673 · Cited by 18
Fisher, E., Crawley, S., Sampson, E. L., Cooper, C., Jones, R., Anantapong, K., & Moore, K. J. (2022) · Dementia · doi:10.1177/14713012211066674 · Cited by 17
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Brooke, J. M., & Kirk, M. (2014) · British Journal of Community Nursing · doi:10.12968/bjcn.2014.19.10.490 · Cited by 17
Looking ahead to a future with Alzheimer's disease: coping with the unknown
Ashworth, R. (2019) · Ageing and Society · doi:10.1017/s0144686x19000151 · Cited by 17
Jongsma, K. R., Perry, J., Schicktanz, S., & Radenbach, K. (2020) · BMC Psychiatry · doi:10.1186/s12888-020-02741-7 · Cited by 17
Use of health and social care services in a cohort of Italian dementia patients.
Scalmana, S., Napoli, A. D., Franco, F., Vanacore, N., Lallo, D. D., Giarrizzo, M. L., & Guasticchi, G. (2013) · Europe PMC (PubMed Central) · Cited by 17
Lorito, C. D., Bosco, A., Pollock, K., Harwood, R., das Nair, R., Logan, P., Goldberg, S. E., Booth, V., Vedhara, K., Godfrey, M., et al. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17051544 · Cited by 20
Loss and grief: The experience of transition to residential aged care
Zizzo, G., Mackenzie, C., Irizarry, C., & Goodwin‐Smith, I. (2020) · Australian Journal of Social Issues · doi:10.1002/ajs4.105 · Cited by 16
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Fetherstonhaugh, D., Rayner, J., & Tarzia, L. (2016) · Dementia · doi:10.1177/1471301216678104 · Cited by 16
Keeling, A. (2017) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2017.05.005 · Cited by 20
Kinnunen, K. M., Rapaport, P., Webster, L., Barber, J., Kyle, S. D., Hallam, B., Cooper, C., Horsley, R., Pickett, J., Vikhanova, A., et al. (2018) · Health Technology Assessment · doi:10.3310/hta22710 · Cited by 16
Self-citationLeavey, G., Abbott, A., Watson, M., Todd, S., COATES, V. E., McIlfactrick, S. J., McCormack, B. G., Waterhouse‐Bradley, B., & Curran, E. (2016) · BMC Health Services Research · doi:10.1186/s12913-016-1617-x · Cited by 15
Self-citation‘Deferred or chickened out?’ Decision making among male carers of people with dementia
Sampson, M. S., & Clark, A. (2016) · Dementia · doi:10.1177/1471301214566663 · Cited by 15
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Manthorpe, J., Samsi, K., & Rapaport, J. (2012) · Dementia · doi:10.1177/1471301212454354 · Cited by 15
Ogliari, G., Turner, Z., Khalique, J., Gordon, A. L., Gladman, J. R. F., & Chadborn, N. (2020) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.5263 · Cited by 15
Manthorpe, J., Samsi, K., & Rapaport, J. (2012) · Aging & Mental Health · doi:10.1080/13607863.2011.628971 · Cited by 14
International reflections on caring for people with advanced dementia
Yumoto, Y., Kernohan, G. W., Morioka, N., & Ogata, Y. (2018) · Public Health Nursing · doi:10.1111/phn.12572 · Cited by 14
Aker, N., West, E., Davies, N., Moore, K. J., Sampson, E. L., Nair, P., & Kupeli, N. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-07019-6 · Cited by 17
Self-citationHynes, C., Hodges, V., Wyld, L., & Mitchell, C. A. (2022) · Health Expectations · doi:10.1111/hex.13466 · Cited by 13
Mitoku, K., & Shimanouchi, S. (2014) · The Open Nursing Journal · doi:10.2174/1874434620140512001 · Cited by 14
West, E., Nair, P., Aker, N., Sampson, E. L., Moore, K. J., Manthorpe, J., Rait, G., Walters, K. R., Kupeli, N., & Davies, N. (2022) · Health Expectations · doi:10.1111/hex.13552 · Cited by 13
Self-citationŠilarova, B., Rand, S. E., Towers, A., & Jones, K. (2023) · Health and Quality of Life Outcomes · doi:10.1186/s12955-023-02122-0 · Cited by 13
Yamaguchi, Y., Mori, H., Ishii, M., Okamoto, S., Yamaguchi, K., Iijima, S., Ogawa, S., Ouchi, Y., & Akishita, M. (2015) · Geriatrics and gerontology international/Geriatrics & gerontology international · doi:10.1111/ggi.12615 · Cited by 13
Lethin, C., Hallberg, I. R., Vingare, E., & Giertz, L. (2019) · Healthcare · doi:10.3390/healthcare7020080 · Cited by 13
Cronfalk, B. S., Norberg, A., & Ternestedt, B. (2018) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12442 · Cited by 12
Parsons, C., & Gamble, S. (2019) · BMC Palliative Care · doi:10.1186/s12904-018-0387-0 · Cited by 12
Fukui, C., Sakka, M., Amiya, R. M., Sato, I., & Kamibeppu, K. (2017) · International Psychogeriatrics · doi:10.1017/s1041610217002356 · Cited by 12
Robertson, S., Cooper, C., Hoe, J., Lord, K., Rapaport, P., & Livingston, G. (2019) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.5193 · Cited by 11
Self-citationCouture, M., Ducharme, F., Sasseville, M., Bradette, C., & Gaudet, K. (2020) · Geriatric Nursing · doi:10.1016/j.gerinurse.2019.09.002 · Cited by 13
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Martin, C., Burton, M., & Wyld, L. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13640 · Cited by 11
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Solomons, L. C., Solomons, J., & Gosney, M. (2013) · Aging Health · doi:10.2217/ahe.13.27 · Cited by 11
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Meyer, K. (2017) · Qualitative Social Work · doi:10.1177/1473325017699265 · Cited by 11
Rees, J., Burton, A., Walters, K. R., Leverton, M., Rapaport, P., Herat-Gunaratne, R., Beresford‐Dent, J., & Cooper, C. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-041873 · Cited by 12
Self-citationKonno, R., Inoue, K., Matsushita, Y., Hashimoto, K., Wiechula, R., To, T. H. M., & Schultz, T. (2024) · Research on Aging · doi:10.1177/01640275241227909 · Cited by 11
Narrative intelligence in nursing: Storying patient lives in dementia care
Witham, G., & Haigh, C. A. (2018) · Nursing Inquiry · doi:10.1111/nin.12244 · Cited by 10
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Lee, L., Hillier, L., Lu, S. K., & Ward, D. (2020) · Journal of Palliative Care · doi:10.1177/0825859720973937 · Cited by 7
Salai, A.-M., Kirton, A., Cook, G. A., & Holmquist, L. E. (2022) · Frontiers in Dementia · doi:10.3389/frdem.2022.1049464 · Cited by 9
Takechi, H., Mori, T., Hashimoto, T., & Nakamura, S. (2014) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000358821 · Cited by 9
Schou‐Juul, F., Nørgaard, S. M., & Lauridsen, S. (2022) · Dementia · doi:10.1177/14713012221131856 · Cited by 9
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Gridley, K., & Parker, G. M. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13437 · Cited by 9
McCloskey, B., Hughes, C. M., & Parsons, C. (2018) · Palliative Medicine · doi:10.1177/0269216318757163 · Cited by 9
Redley, M., Hughes, J. C., & Holland, A. J. (2010) · BMJ · doi:10.1136/bmj.c4085 · Cited by 9
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Magnusson, L., Sandman, L., Gustav Rosén, K., & Hanson, E. (2014) · Journal of Assistive Technologies · doi:10.1108/jat-10-2014-0021 · Cited by 8
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Marshall, H., & Sprung, S. (2017) · British Journal of Community Nursing · doi:10.12968/bjcn.2017.22.8.384 · Cited by 8
Fowler, N. R., Schonberg, M. A., Sachs, G. A., Schwartz, P. H., Gao, S., Lane, K. A., Inger, L., & Torke, A. M. (2018) · Trials · doi:10.1186/s13063-018-3039-z · Cited by 8
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Forbes, H. J., Wong, A. Y. S., Morton, C. E., Bhaskaran, K., Smeeth, L. L., Richards, M., Schmidt, S. A. J., Langan, S., & Warren‐Gash, C. (2019) · Journal of Alzheimer s Disease · doi:10.3233/jad-190571 · Cited by 8
Hodges, V., Hynes, C., Lassa, S., & Mitchell, C. A. (2021) · BMJ Open · doi:10.1136/bmjopen-2021-052608 · Cited by 7
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Gabriel, M., Stirling, C., Faulkner, D., & Lloyd, B. (2014) · Adelaide Research & Scholarship (AR&S) (University of Adelaide) · Cited by 7
Convey, H., Holt, J., & Summers, B. A. (2018) · Journal of Advanced Nursing · doi:10.1111/jan.13563 · Cited by 6
Family Members' Experience of Discussions on End-of-Life Care in Nursing Homes in Japan
Kato, H., & Tamura, K. (2020) · Journal of Hospice and Palliative Nursing · doi:10.1097/njh.0000000000000677 · Cited by 6
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Rentmeester, C. A. (2014) · International Journal of Mental Health · doi:10.2753/imh0020-7411430104 · Cited by 6
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Self-citationSullivan, K. A., Purser, K., Graham, K., & Parkinson, L. (2022) · Psychiatry Psychology and Law · doi:10.1080/13218719.2022.2060364 · Cited by 5
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Dempsey, D. (2014) · Nursing and Residential Care · doi:10.12968/nrec.2014.16.5.269 · Cited by 5
Afram, B. (2015) · Research Publications (Maastricht University) · doi:10.26481/dis.20150501ba · Cited by 5
Tuijt, R., Manthorpe, J., Rait, G., Frost, R., Wilcock, J., & Walters, K. R. (2025) · Dementia · doi:10.1177/14713012251372224 · Cited by 4
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Stars, I., Konstantinova, K., Rozenberga, E. E., Olsena, S., & Baidina, K. (2025) · Healthcare · doi:10.3390/healthcare13121416 · Cited by 6
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Scerri, C., Abela, A., & Scerri, A. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-819344-0.00002-8 · Cited by 4
Family of older adults with mental disorder: perception of mental health professionals
Saidel, M. G. B., & Campos, C. J. G. (2017) · Revista Brasileira de Enfermagem · doi:10.1590/0034-7167-2016-0646 · Cited by 4
Housing priorities of people with dementia: security, continuity and support
Gabriel, M., Faulkner, D., & Stirling, C. (2015) · eCite Digital Repository (University of Tasmania) · Cited by 4
Gonella, S. S. M., Giulio, P. D., Olagnero, J. M., Quaranta, D., Nagliati, G., Dimonte, V., & Campagna, S. (2026) · BMC Geriatrics · doi:10.1186/s12877-026-07201-7 · Cited by 4
The Enduring Promise of Personalising Patient Preference Prediction
Earp, B. D., Mann, S. P., van Veenendaal, T., Allen, J. W., Salloch, S., Jongsma, K. R., Braun, M., Sinnott-Armstrong, W. P., Savulescu, J., Wendler, D. S., et al. (2026) · Neuroethics · doi:10.1007/s12152-026-09635-7 · Cited by 3
Kuzmik, A., & Boltz, M. P. (2024) · Clinical Gerontologist · doi:10.1080/07317115.2024.2388144 · Cited by 3
Sabatini, S., Martyr, A., Gamble, L. D., Matthews, F. E., Thom, J. M., Henderson, C., Allan, L. M., Pentecost, C., Quinn, C., Hunt, A., et al. (2024) · Aging & Mental Health · doi:10.1080/13607863.2024.2383367 · Cited by 3
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Österholm, J. (2016) · Linköping studies in arts and science · doi:10.3384/diss.diva-127392 · Cited by 3
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Faull, C. (2012) · doi:10.1002/9781118426869.ch1 · Cited by 3
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Park, H., Kang, S., & Kim, Y. (2025) · Healthcare · doi:10.3390/healthcare13111297 · Cited by 2
Qualitative Evidence in Working with Cognitively Impaired Older Adults
Lingler, J. H., & Hu, L. (2015) · Handbooks in health, work, and disability · doi:10.1007/978-1-4939-2920-7_17 · Cited by 2
Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
Riquelme-Galindo, J., García‐Sanjuán, S., Lillo‐Crespo, M., & Martorell‐Poveda, M. (2020) · Aquichan · doi:10.5294/aqui.2020.20.4.4 · Cited by 2
Former Wishes and Current Desires
Touwen, D. P. (2012) · Ethics and health policy · doi:10.1007/978-94-007-3870-6_9 · Cited by 2
Leavey, G., Corry, D. A. S., Waterhouse‐Bradley, B., Curran, E., Todd, S., McIlfatrick, S., COATES, V. E., Watson, M., Abbott, A., McCrory, B., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-036249 · Cited by 2
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Mullins, J. M. (2018) · ORCA Online Research @Cardiff (Cardiff University) · doi:10.13140/rg.2.2.35036.95366 · Cited by 2
Livingston, G., & Rapaport, P. (2019) · Cambridge University Press eBooks · doi:10.1017/9781108593946.024 · Cited by 1
Self-citationAn Overview on Dementia: A Major Symptom of Alzheimer's Disease
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Kuroda, Y., Goto, A., Uchida, K., Sugimoto, T., Fujita, K., Yokoyama, Y., Nakagawa, T., Saito, T., Noguchi, T., Komatsu, A., et al. (2024) · Cancer Medicine · doi:10.1002/cam4.70311 · Cited by 1
Barnes-Harris, M., Datla, S., Abel, A. A. I., Clark, A. L., & Johnson, M. J. (2024) · PLoS ONE · doi:10.1371/journal.pone.0314631 · Cited by 1
Poe, A. A., Bibriescas, N., Xiao, C., & Puga, F. (2025) · Western Journal of Nursing Research · doi:10.1177/01939459251343736 · Cited by 1
Gaxhja, E., Toçi, I., Saja, D., Sula, E., Gugu, M., & Sperling, D. (2025) · Dementia · doi:10.1177/14713012251375380 · Cited by 1
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McIlroy, D., Montgomery, L., & Davidson, G. (2026) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2025.102185 · Cited by 1
Bloom, R. F., Lou, Y., Monin, J. K., Fried, T. R., & Mroz, E. L. (2026) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbag091 · Cited by 1
Spam, M., Hettinga, M., Smits, C. H. M., de Ven, L. G.-V., Jukema, J., Vernooij-Dassen, M. J. F. J., & Eefsting, J. A. (2014) · International Conference on eHealth, Telemedicine, and Social Medicine · Cited by 1
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Span, M., Hettinga, M., Smits, C. H. M., de Ven, L. G.-V., Jukema, J., Vernooij-Dassen, M. J. F. J., & Eefsting, J. A. (2014) · Cited by 1
Leverton, M. (2019) · Oral Presentations · doi:10.1136/bmjopen-2019-qhrn.29 · Cited by 1
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Williams, S., Mashlan, W., & Watts, T. E. (2019) · Nursing Older People · doi:10.7748/nop.2019.e1181 · Cited by 1
Moth, R. (2019) · Oral Presentations · doi:10.1136/bmjopen-2019-qhrn.28 · Cited by 1
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Thomas, L., & Lewis, G. (2018) · Cambridge University Press eBooks · doi:10.1017/9781911623038.003 · Cited by 1
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Norwood, K., & Webster, M. (2023) · Emerald Group Publishing Limited eBooks · doi:10.1108/s2398-601820230000009004 · Cited by 1
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Aerschot, L. V., Halonen, U., Leinonen, E., & Kröger, T. (2025) · International Journal of Care and Caring · doi:10.1332/23978821y2025d000000122 · Cited by 2
Acute Large-Bowel Obstruction in an Institutionalized Man
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Melander, C., Olsson, M. B., Jayousi, S., Martinelli, A., & Mucchi, L. (2019) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-030-34833-5_23 · Cited by 1
Metadata
- Authors
- Livingston, G., Leavey, G., Manela, M., Livingston, D., Rait, G., Sampson, E., Bavishi, S., Shahriyarmolki, K., & Cooper, C.
- Affiliations
- University College London (GB)
- University of Ulster (GB)
- Medical Research Council (GB)
- Corresponding author
- Livingston, G.
- Venue
- BMJ
- Publisher
- BMJ
- Published
- 2010-08-18
- Volume
- 341
- Issue
- aug18 1
- Pages
- c4184-c4184
- ISSN
- 0007-1447 (ISSN-L)
- 0959-8138
- 1468-5833
- PMC
- PMC2923693
- OpenAlex
- W1996631590
- Cited by
- 239
- References
- 16
- Citations by year
- 2026: 9 · 2025: 8 · 2024: 6 · 2023: 8 · 2022: 11 · 2021: 12 · 2020: 19 · 2019: 23 · 2018: 21 · 2017: 21 · 2016: 18 · 2015: 18 · 2014: 23 · 2013: 18 · 2012: 14
- FWCI
- 13.36
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- cc-by-nc
- Locations
- BMJ (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- UCL Discovery (University College London) (submittedVersion, cc-by-nc)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Funders
- Alzheimer's Society
- Bupa Foundation
- University College London Hospitals NHS Foundation Trust
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Psychology › Clinical Psychology › Healthcare Decision-Making and Restraints
- Keywords
- dementia, family caregivers, proxy decision-making, barriers to decision-making, end-of-life decisions, care homes, patient dignity
- MeSH terms
- Automobile Driving, Decision Making, Dementia, Family Relations, Female, Health Education, Humans, Male, Middle Aged, Nursing Homes, Patient Care Planning, Terminal Care, Resuscitation Orders, Mental Competency, Caregivers, Patient Selection
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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