Extended safety and support systems for people with dementia living at home
Abstract
Purpose: – The purpose of this paper is to highlight the complexity surrounding the implementation of advanced electronic tracking, communication and emergency response technologies, namely, an extended safety and support (ESS) system for people with dementia (pwd) living at home. Results are presented from a Swedish demonstration study (2011-2012) conducted in 24 municipalities. Design/methodology/approach: – It is a descriptive intervention study with a pre-post test design. Questionnaires were administered to pwd, carers and professionals at the outset and eight months later. ESS logging data were analyzed. Findings: – ESS usage rates varied widely. A total of 650 alerts were triggered, mainly when the pwd was outdoors. Activities were reduced amongst pwd, most likely due to a progression of their disease. Carers noted that pwd were more independent than previously on those occasions when they engaged in outdoor activities. Staff considered that nearly half of pwd could remain living at home due to the ESS, compared with a third amongst carers. In total, 50 per cent of carers felt it was justified to equip their relative with an ESS without their explicit consent, compared to one in eight staff. Research limitations/implications: – A limitation is the amount of missing data and high drop- out rates. Researchers should recruit pwd earlier in their illness trajectory. A mixed-methods approach to data collection is advisable. Practical implications: – Carers played a crucial role in the adoption of ESS. Staff training/supervision about assistive devices and services is recommended. Social implications: – Overall, use of ESS for pwd living at home was not an ethical problem. Originality/value: – The study included key stakeholder groups and a detailed ethical analysis was conducted.
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In eleven studies, the IAT was accepted but not used in the following implementation period, resulting in poor adherence.
“In eleven studies, the IAT was accepted but not used in the following implementation period, therefore resulting in poor adherence [24, 29, 34–38, 41, 44, 46, 47].”
From Acceptance and use of innovative assistive technologies among people with cognitive impairment and their caregivers: a systematic review (2019) · cites this paper as [37]
Only one-third of the participants were satisfied with the look and feel of the IAT.
“one of the studies showed that only 1/3 of the participants were satisfied with the “look and feel” of the IAT [37].”
From Acceptance and use of innovative assistive technologies among people with cognitive impairment and their caregivers: a systematic review (2019) · cites this paper as [37]
Cites
Ethical and Methodological Issues in Interviewing Persons With Dementia
Hellström, I., Nolan, M., Nordenfelt, L., & Lundh, U. (2007) · Nursing Ethics · doi:10.1177/0969733007080206 · Cited by 348 · see citing works
Including older people with dementia in research: Challenges and strategies
Hubbard, G., DOWNS, M. G., & Tester, S. (2003) · Aging & Mental Health · doi:10.1080/1360786031000150685 · Cited by 272 · see citing works
Home care for older people in Sweden: a universal model in transition
Szebehely, M., & Trydegård, G. (2011) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2011.01046.x · Cited by 268 · see citing works
User-Sensitive Inclusive Design
Newell Alan, F., Gregor, P., Morgan, M., Pullin, G., & Macaulay, C. (2010) · Universal Access in the Information Society · doi:10.1007/s10209-010-0203-y · Cited by 253 · see citing works
Robinson, L., Brittain, K., Lindsay, S., Jackson, D., & Olivier, P. (2009) · International Psychogeriatrics · doi:10.1017/s1041610209008448 · Cited by 243 · see citing works
Livingston, G., Leavey, G., Manela, M., Livingston, D., Rait, G., Sampson, E., Bavishi, S., Shahriyarmolki, K., & Cooper, C. (2010) · BMJ · doi:10.1136/bmj.c4184 · Cited by 239 · see citing works
Dyadic Intervention for Family Caregivers and Care Receivers in Early-Stage Dementia
Whitlatch, C. J., Judge, K., Zarit, S. H., & Femia, E. E. (2006) · The Gerontologist · doi:10.1093/geront/46.5.688 · Cited by 214 · see citing works
Ethical aspects of using GPS for tracking people with dementia: recommendations for practice
Landau, R., & Werner, S. (2011) · International Psychogeriatrics · doi:10.1017/s1041610211001888 · Cited by 147 · see citing works
Shared decision-making and patient autonomy
Sandman, L., & Munthe, C. (2009) · Theoretical Medicine and Bioethics · doi:10.1007/s11017-009-9114-4 · Cited by 138 · see citing works
Self-citationPot, A. M., Willemse, B. M., & Horjus, S. (2012) · Aging & Mental Health · doi:10.1080/13607863.2011.596810 · Cited by 133 · see citing works
Bamford, C. H., & Bruce, E. (2000) · Ageing and Society · doi:10.1017/s0144686x99007898 · Cited by 133 · see citing works
Further evidence of the reliability and validity of the body esteem scale
Franzoi, S. L. (1994) · Journal of Clinical Psychology · doi:10.1002/1097-4679(199403)50:2 · Cited by 99 · see citing works
Hanson, E. J., Magnusson, L., Arvidsson, H., Claesson, A., Keady, J. D., & Nolan, M. (2007) · Dementia · doi:10.1177/1471301207081572 · Cited by 97 · see citing works
Self-citationLandau, R., Werner, S., Auslander, G. K., Shoval, N., & Heinik, J. (2009) · The British Journal of Social Work · doi:10.1093/bjsw/bcp037 · Cited by 85 · see citing works
Informal Caregiving for Elders in Sweden: An Analysis of Current Policy Developments
Johansson, L., Long, H. K., & Parker, M. G. (2011) · Journal of Aging & Social Policy · doi:10.1080/08959420.2011.605630 · Cited by 80 · see citing works
Olsson, A.-K., Engström, M., Skovdahl, K., & Lampic, C. (2011) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2011.00916.x · Cited by 78 · see citing works
White, E. B., & Montgomery, P. (2012) · Dementia · doi:10.1177/1471301212460445 · Cited by 78 · see citing works
Everyday Ethical Problems in Dementia Care: A teleological Model
Bolmsjö, I., Edberg, A., & Sandman, L. (2006) · Nursing Ethics · doi:10.1191/0969733006ne890oa · Cited by 78 · see citing works
Self-citationMagnusson, L., Hanson, E. J., Brito, L., Berthold, H., Chambers, M. G. A., & Daly, T. (2002) · International Journal of Nursing Studies · doi:10.1016/s0020-7489(01)00034-7 · Cited by 77 · see citing works
Self-citationFreedom of choice and decision-making in health and social care
Tyrrell, J., Genin, N., & Myslinski, M. (2006) · Dementia · doi:10.1177/1471301206069915 · Cited by 76 · see citing works
MAGNUSSON, L., HANSON, E., & NOLAN, M. (2005) · Ageing and Society · doi:10.1017/s0144686x05003673 · Cited by 67 · see citing works
Self-citationWhite, E. B., Montgomery, P., & McShane, R. (2010) · British Journal of Occupational Therapy · doi:10.4276/030802210x12706313443901 · Cited by 54 · see citing works
Thompson, S. C. G., Galbraith, M. E., Thomas, C., Swan, J., & Vrungos, S. (2002) · Psychology and Health · doi:10.1080/08870440290029557 · Cited by 50 · see citing works
Who should make the decision on the use of GPS for people with dementia?
Landau, R., Auslander, G. K., Werner, S., Shoval, N., & Heinik, J. (2010) · Aging & Mental Health · doi:10.1080/13607861003713166 · Cited by 49 · see citing works
Werner, S., Auslander, G. K., Shoval, N., Gitlitz, T., Landau, R., & Heinik, J. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212001135 · Cited by 43 · see citing works
Olsson, A., Engström, M., Lampic, C., & Skovdahl, K. (2013) · BMC Geriatrics · doi:10.1186/1471-2318-13-11 · Cited by 43 · see citing works
Caregivers’ expectations and care receivers’ competence
Izal, M., Montorio, I., Márquez, M. O., & Losada‐Baltar, A. (2005) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2005.01.001 · Cited by 36 · see citing works
Net costs of dementia in Sweden – An Incidence Based 10 Year Simulation Study
Sköldunger, A., Wimo, A., & Johnell, K. (2012) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2828 · Cited by 18 · see citing works
Should patients with dementia who wander be electronically tagged? No
O’Neill, D. J. (2013) · BMJ · doi:10.1136/bmj.f3606 · Cited by 18 · see citing works
Magnusson, L., & Hanson, E. J. (2012) · Technology and Disability · doi:10.3233/tad-2012-0351 · Cited by 15 · see citing works
Self-citationSavitch, N., Zaphiris, P., Smith, M. W., Litherland, R., Aggarwal, N., & Potier, E. (2006) · Springer eBooks · doi:10.1007/1-84628-365-5_24 · Cited by 12 · see citing works
Should patients with dementia who wander be electronically tagged? Yes
McShane, R. H. (2013) · BMJ · doi:10.1136/bmj.f3603 · Cited by 9 · see citing works
Using Video to Include the Experiences of People withDementia in Research
Cook, A. (2003) · Cited by 7 · see citing works
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Schneider, C., Nißen, M., Kowatsch, T., & Vinay, R. (2024) · BMJ Open · doi:10.1136/bmjopen-2023-080545 · Cited by 27 · see citing works
Ehn, M., Richardson, M. X., Stridsberg, S. L., Redekop, K., & Andersson, S. W. (2021) · Journal of Medical Internet Research · doi:10.2196/27267 · Cited by 25 · see citing works
Touzery, S. H., Smole-Orehek, K., & Dolničar, V. (2022) · Geriatrics · doi:10.3390/geriatrics7050086 · Cited by 13 · see citing works
Lee, K. H., Lee, J. Y., & Kim, B. (2022) · Worldviews on Evidence-Based Nursing · doi:10.1111/wvn.12591 · Cited by 6 · see citing works
Fänge, A. M., Thordardottir, B., Ya-Nyonge, M. A., & Lethin, C. (2020) · Healthcare · doi:10.3390/healthcare8030240 · Cited by 5 · see citing works
Melander, C., Olsson, M. B., Jayousi, S., Martinelli, A., & Mucchi, L. (2019) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-030-34833-5_23 · Cited by 1 · see citing works
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- Authors
- Magnusson, L., Sandman, L., Gustav Rosén, K., & Hanson, E.
- Affiliations
- University of Borås (SE)
- Linnaeus University (SE)
- Venue
- Journal of Assistive Technologies
- Publisher
- Emerald
- Published
- 2014-12-09
- Volume
- 8
- Issue
- 4
- Pages
- 188-206
- ISSN
- 1754-9450 (ISSN-L)
- OpenAlex
- W2024389000
- Cited by
- 8
- References
- 33
- Citations by year
- 2024: 1 · 2023: 1 · 2022: 2 · 2021: 1 · 2020: 1 · 2019: 2
- FWCI
- 0.00
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Assistive Technologies (publishedVersion)
- Borås Academic Digital Archive (University of Borås) (submittedVersion)
- Topics
- Social Sciences › Demography › Technology Use by Older Adults
- Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- dementia, home care, electronic tracking, emergency response systems, caregiver perspectives, assistive technology adoption, ethical considerations, independent living, outdoor activities
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