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Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis
Open accessAbstract
BACKGROUND: Health related quality of life (HRQoL) measurement is important in determining the impact of disease on daily functioning and subsequently informing interventions. In cystic fibrosis (CF) generic HRQoL measures have been employed but these may not be sufficiently specific. The aim of the current work was to develop and validate a disease specific HRQoL measure for adults and adolescents with cystic fibrosis. METHODS: Areas of concern to adults and adolescents with CF were identified by unstructured interviews, self-administered questionnaires, consultation with multidisciplinary specialist staff, a review of the relevant literature, and examination of other HRQoL measures. Items for the questionnaire were generated on the basis of this process. Continued evaluation and development of the Cystic Fibrosis Quality of Life (CFQoL) questionnaire was undertaken by a process of statistical analysis and continued feedback from patients. The full testing and validation of the CFQoL questionnaire took place over four phases: (1) initial item generation and testing of a preliminary questionnaire, (2) testing and validation of the second version of the questionnaire, (3) test-retest reliability of a third and final version of the questionnaire, and (4) sensitivity testing of the final version of the questionnaire. RESULTS: Nine domains of functioning were identified using principal components analysis with varimax rotation. Internal reliability of the identified domains was demonstrated using Cronbach alpha coefficients (range 0.72-0.92) and item to total domain score correlations. Concurrent validity (range r = 0.64-0.74), discriminatory ability between different levels of disease severity, sensitivity across transient changes in health (effect size range, moderate d = 0.56 to large d = 1.95), and test-retest reliability (r = 0.74-0.96) were also found to be robust. CONCLUSIONS: The CFQoL questionnaire is a fully validated disease specific measure consisting of 52 items across nine domains of functioning which have been identified by, and are of importance to, adolescents and adults with cystic fibrosis. This measure will be useful in clinical trials and longitudinal studies.
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“One trial (Quinn 2004) assessed QoL using scores on the CFQoL (Gee 2000).”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as Gee 2000
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Cites
Validating the SF-36 health survey questionnaire: new outcome measure for primary care.
Brazier, J. E., Harper, R., Jones, N. M., O’Cathain, A., Thomas, K. J., Usherwood, T. P., & Westlake, L. (1992) · BMJ · doi:10.1136/bmj.305.6846.160 · Cited by 4,660
Gender variations in clinical pain experience
Unruh, A. M. (1996) · Pain · doi:10.1016/0304-3959(95)00214-6 · Cited by 1,550
Handbook of multivariate experimental psychology
Nesselroade, J., & Cattell, R. (1968) · Springer eBooks · doi:10.1007/978-1-4613-0893-5 · Cited by 1,351
The SF36 health survey questionnaire: an outcome measure suitable for routine use within the NHS?
Garratt, A., Ruta, D. A., Abdalla, M., Buckingham, J. K., & Russell, I. T. (1993) · BMJ · doi:10.1136/bmj.306.6890.1440 · Cited by 1,153
The Meaning and Strategic Use of Factor Analysis
Cattell, R. B. (1988) · Springer eBooks · doi:10.1007/978-1-4613-0893-5_4 · Cited by 442
The Quality of Well-Being Scale: Applications in AIDS, Cystic Fibrosis, and Arthritis
Kaplan, R. M., Anderson, J. P., Wu, A. W., Mathews, W. C., Kozin, F., & Orenstein, D. (1989) · Medical Care · doi:10.1097/00005650-198903001-00003 · Cited by 344
Gender Differences in the Comparison of Self-Reported Disability and Performance Measures
Merrill, S., Seeman, T. E., Kasl, S. V., & Berkman, L. F. (1997) · The Journals of Gerontology Series A · doi:10.1093/gerona/52a.1.m19 · Cited by 290
The Quality of Well-being in Cystic Fibrosis
Orenstein, D. M., Nixon, P. A., Ross, E. A., & Kaplan, R. M. (1989) · CHEST Journal · doi:10.1378/chest.95.2.344 · Cited by 177
A two way view of gender bias in medicine
Ruiz, M. T., & Verbrugge, L. M. (1997) · Journal of Epidemiology and Community Health · doi:10.1136/jech.51.2.106 · Cited by 170
Piccinelli, M. P., & Simon, G. E. (1997) · Psychological Medicine · doi:10.1017/s0033291796004539 · Cited by 148
Research works printed but not linked: 5
- Weir DC, Freeman W, Roberts KT, et al. Comparison of the measure of quality of life in patients with cystic fibrosis (CF) and chronic airflow obstruction (CAO). Thorax 1991;46:288.
- Abbott J, Dodd M, Webb AK. Coping styles and treatment adherence in adults with cystic fibrosis. 21st European Cystic Fibrosis Conference, Davos, Switzerland, 1997.
- Brazier JE, Harper R, Jones NMB, et al. Validating the SF36 health survey questionnaire: new outcome measure for pri- mary care. BMJ 1992;305:160-4.
- Jenkinson C, Wright L, Coulter A. Quality of life measurement in health care. A review of measures and population norms for the UK SF-36. Health Services Research Unit, 1993.
- Mechanic D. Sex, illness, illness behaviour and the use of health services. Soc Sci Med 1978;128:207-14.
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Metadata
- Authors
- Gee, L.
- Affiliations
- University of Lancashire (GB)
- Corresponding author
- Gee, L
- Venue
- Thorax
- Publisher
- BMJ
- Published
- 2000-11-01
- Volume
- 55
- Issue
- 11
- Pages
- 946-954
- ISSN
- 0040-6376 (ISSN-L)
- PMC
- PMC1745639
- OpenAlex
- W2142930532
- Cited by
- 272
- References
- 24
- Citations by year
- 2026: 3 · 2025: 8 · 2024: 7 · 2023: 8 · 2022: 10 · 2021: 12 · 2020: 14 · 2019: 9 · 2018: 13 · 2017: 9 · 2016: 12 · 2015: 18 · 2014: 16 · 2013: 10 · 2012: 16
- FWCI
- 4.78
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Thorax (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- cystic fibrosis, health-related quality of life, disease-specific questionnaire, questionnaire development, questionnaire validation, adolescents, adults, test-retest reliability, sensitivity to change, concurrent validity, item generation
- MeSH terms
- Adolescent, Adult, Cystic Fibrosis, Female, Health Status, Humans, Life Style, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Sensitivity and Specificity, Reproducibility of Results
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