Effects of a psychoeducational program on caregivers of patients with dementia
Open accessAbstract
BACKGROUND: The number of demented patients has increased significantly in recent years. The many challenges that dementia causes increase the stress of their caregivers and lead to shortening the time to institutionalization compared to the general population. A psychoeducational program for these accompanying persons was set up in Brussels. This type of program resulted in a 557-day delay in institutionalization in New York City. The objective of our study was to check whether our program also has such an impact, but also to see its potential effect on the psychobehavioral disorders of patients and the burden of caregivers. METHODS: We recruited two groups without randomization: psychoeducated caregivers and caregivers interested in the program and contacted regularly (every 6 months) without having participated. They were all contacted by telephone and responded to the NCPI and Zarit Burden Scale (ZBS) questionnaires. RESULTS: We could not demonstrate any significant impact, either on the institutionalization delay (p = 0.960), on the frequency of psychobehavioral disorders in demented patients (p > 0.05), or on the burden of caregivers (p = 0.403). However, the survival rate among the demented patients with psychoeducated caregivers was significantly higher than that among the demented patients with nonpsychoeducated caregivers (p < 0.001). CONCLUSIONS: Our small-sample, nonrandomized study did not reveal any differences in institutionalization delay, caregiver burden, or perception of psychobehavioral disorders related to our psychoeducational program. A new study should be carried out on the impact of psychoeducation on the survival of demented patients, in view of our preliminary analyses.
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Education on disease progression and practical coping strategies were identified as key needs.
“Education on disease progression and practical coping strategies were identified as key needs (Brooks et al., 2022b; Damien et al., 2020).”
From Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers. (2026) · cites this paper as Damien et al., 2020
The Introduction (p. 140) describes a psychoeducational program for dementia caregivers, and the Discussion says participants needed support or psychological education. Neither passage identifies education about disease progression or practical coping strategies as key needs. The Selection and Collected Data section says the program details are in supplementary appendices, rather than stating them in our copy (searched for program content and coping strategies). (LLM, conf=0.72)
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- Authors
- Damien, C., Elands, S., Van Den Berge, D., & Bier, J.-C.
- Affiliations
- Université Libre de Bruxelles (BE)
- Venue
- Dementia and Geriatric Cognitive Disorders
- Publisher
- S. Karger AG
- Published
- 2020
- Volume
- 49
- Issue
- 2
- Pages
- 138-145
- ISSN
- 1420-8008 (ISSN-L)
- 1421-9824
- OpenAlex
- W3086054679
- Cited by
- 4
- References
- 25
- Citations by year
- 2025: 2 · 2024: 1 · 2022: 1
- FWCI
- 0.18
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Dementia and Geriatric Cognitive Disorders (publishedVersion)
- PubMed (publishedVersion)
- Dépôt institutionnel de l'Université libre de Bruxelles (Université Libre de Bruxelles) (submittedVersion, other-oa)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Keywords
- dementia, psychoeducational intervention, caregivers, caregiver burden, patient survival, Zarit Burden Interview, caregiver education
- MeSH terms
- Caregiver Burden, Aged, Aged, 80 and over, Dementia, Female, Humans, Institutionalization, Male, Middle Aged, Caregivers, Cost of Illness
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