Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease
Abstract
BACKGROUND: Frontotemporal dementia (FTD) has devastating effects on patients and caregivers, yet the factors underlying caregiver stress are poorly understood. METHODS: 108 caregivers (79 = FTD, 29 = Alzheimer's disease) participated in a postal survey. Self-report measures of perceived stress, depression, social networks, as well as patient-based measures of behaviour change and activities of daily living were completed. RESULTS: Depression was a cardinal feature in FTD caregivers, and it accounted for more than 58% of stress scores. Both depression and stress were significantly higher than in AD. Neither the severity of behaviour changes nor functional disability explained caregiver stress. CONCLUSION: Caregiver stress is a multidimensional construct, and FTD caregivers should receive more support than currently available. Depression plays a key role in coping ability.
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Frontotemporal dementia can lead to greater carer burden and depression than Alzheimer's disease.
“It has been found that frontotemporal dementia can lead to greater carer burden and depression than Alzheimer's disease (Mioshi et al. , 2009; Nunnemann et al. , 2012)”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Mioshi et al., 2009
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- Authors
- Mioshi, E., Bristow, M., Cook, R., & Hodges, J. R.
- Affiliations
- Neuroscience Research Australia (AU)
- Anglia Ruskin University (GB)
- MRC Cognition and Brain Sciences Unit (GB)
- Venue
- Dementia and Geriatric Cognitive Disorders
- Publisher
- S. Karger AG
- Published
- 2009
- Volume
- 27
- Issue
- 1
- Pages
- 76-81
- ISSN
- 1420-8008 (ISSN-L)
- 1421-9824
- OpenAlex
- W2059976515
- Cited by
- 133
- References
- 20
- Citations by year
- 2025: 3 · 2024: 4 · 2023: 12 · 2022: 4 · 2021: 4 · 2020: 3 · 2019: 7 · 2018: 5 · 2017: 9 · 2016: 11 · 2015: 11 · 2014: 14 · 2013: 16 · 2012: 9
- FWCI
- 6.17
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Dementia and Geriatric Cognitive Disorders (publishedVersion)
- PubMed (publishedVersion)
- UEA Digital Repository (University of East Anglia) (submittedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- caregiver stress, frontotemporal dementia, Alzheimer's disease, caregiver depression, perceived stress, social networks, behavior change, activities of daily living, functional disability, coping, caregiver support
- MeSH terms
- Activities of Daily Living, Aged, Alzheimer Disease, Behavior, Dementia, Depression, Female, Humans, Male, Psychometrics, Sex Factors, Social Support, Stress, Psychological, Caregivers
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