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The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials

Epstein, Steven·1995·Science, Technology, & Human Values
DOI 10.1177/016224399502000402
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Abstract

In an unusual instance of lay participation in biomedical research, U.S. AIDS treatment activists have constituted themselves as credible participants in the process of knowledge construction, thereby bringing about changes in the epistemic practices of biomedical research. This article examines the mechanisms or tactics by which these lay activists have constructed their credibility in the eyes of AIDS researchers and government officials. It considers the inwlications of such interventions for the conduct of medical research; examines some of the ironies, tensions, and limitations in the process; and argues for the importance of studying social movements that engage with expert knowledge.

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Metadata

Authors
Epstein, S.
Venue
Science, Technology, & Human Values
Publisher
SAGE Publications
Published
1995-10
Volume
20
Issue
4
Pages
408-437
ISSN
  • 0162-2439 (ISSN-L)
  • 1552-8251
DOI
10.1177/016224399502000402
OpenAlex
W2118257626
Cited by
1,193
References
6
FWCI
21.46
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)

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Epstein, S. (1995). The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials. Science, Technology, & Human Values. https://doi.org/10.1177/016224399502000402

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