Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study
Open accessAbstract
Background: Health and social care professionals’ ability to address the needs of patients and their relatives at end of life is likely to have been impacted by the COVID-19 pandemic. Aim: To explore health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic to help inform current/future clinical practice and policy. Design: A qualitative interview study. Data were analysed using thematic analysis. Setting/participants: Sixteen health and social care professionals working across a range of clinical settings in supporting dying patients during the first wave (March–June 2020) of the COVID-19 pandemic in the United Kingdom. Results: Participants reported emotional and practical challenges to providing end of life care during the pandemic, including increases in patient numbers, reduced staffing levels and relying on virtual platforms for sensitive, emotive conversations with relatives. Participants were central to promoting connections between patients and their families at end of life and creating opportunities for a final contact before the death. However, the provision of support varied as a consequence of the pressures of the pandemic. Results are discussed under two themes: (1) challenges and facilitators to providing end of life care, and (2) support needs of relatives when a family member was dying during the COVID-19 pandemic. Conclusion: There is a need for flexible visiting arrangements at end of life during a pandemic. A systems-level approach is necessary to promote the wellbeing of health and social care professionals providing end of life care during and after a pandemic.
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The COVID-19 pandemic led to increased stress, distress, and burnout across the health and social care workforce, including palliative care.
“The COVID-19 pandemic led to increased stress, distress, and burnout across the health and social care workforce,9–12 including palliative care13–16 and exacerbated the need for healthcare staff support internationally.13–17”
From Feasibility of RESTORE: An online Acceptance and Commitment Therapy intervention to improve palliative care staff wellbeing. (2023) · cites this paper as [16]
The Results and Discussion describe emotional strain, fatigue and challenges to well-being among professionals providing end-of-life care during COVID-19; the Conclusion recommends access to psychological support. The study does not establish increased burnout or findings across the entire health and social care workforce internationally. Page numbers were not provided in our copy. (LLM, conf=0.84)
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Negotiating with technology: advancing the virtual in qualitative research methods
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COVID-19 PANDEMİSİNİN PALYATİF BAKIM SOSYAL HİZMET UYGULAMALARINA YANSIMALARI
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- Authors
- Hanna, J. R., Rapa, E., Dalton, L. J., Hughes, R., Quarmby, L. M., McGlinchey, T., Donnellan, W. J., Bennett, K. M., Mayland, C. R., & Mason, S. R.
- Affiliations
- University of Oxford (GB)
- University of Liverpool (GB)
- Oxford University Hospitals NHS Trust (GB)
- Corresponding author
- Hanna, Jeffrey R.
- ORCID
- Venue
- Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 2021-05-18
- Volume
- 35
- Issue
- 7
- Pages
- 1249-1257
- ISSN
- 0269-2163 (ISSN-L)
- 1477-030X
- PMC
- PMC8137863
- OpenAlex
- W3162037687
- Cited by
- 95
- References
- 32
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 21 · 2023: 25 · 2022: 29 · 2021: 6
- FWCI
- 17.51
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Palliative Medicine (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- Ulster University Research Portal (Ulster University) (acceptedVersion, cc-by)
- Strathprints: The University of Strathclyde institutional repository (University of Strathclyde) (acceptedVersion)
- Research Portal (Queen's University Belfast) (submittedVersion, cc-by)
- Funders
- University of Oxford
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Oncology › COVID-19 and healthcare impacts
- Keywords
- end-of-life care, COVID-19 pandemic, health and social care professionals, professional experience, employee well-being, family support, relatives of dying patients, virtual communication, labor shortage, palliative care
- MeSH terms
- COVID-19, SARS-CoV-2, United Kingdom, Health Personnel, Humans, Social Support, Terminal Care, Qualitative Research, Pandemics
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