Cited by 258Patient-Provider Communication in HealthcareCancer survivorship and careWomen's cancer prevention and management

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Patient Participation in Deciding Breast Cancer Treatment and Subsequent Quality of Life

Street, Richard L., Voigt, Becky·1997·Medical Decision Making

DOI 10.1177/0272989x9701700306

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Abstract

This investigation of patients with early breast cancer examined relationships among patient involvement in deciding treatment (i.e., whether to undergo breast removal or breast conservation), perceptions of control over treatment decisions, and subsequent health-related quality of life. It was predicted 1) that patients who more actively participated in consultations to decide treatment would perceive more decision control than would more passive patients and 2) that patients who perceived greater decision control would report better health-related quality of life following treatment than would patients perceiving less decision control. Sixty patients with stage I or II breast cancer allowed their consultations with surgeons to be audiorecorded. Following these visits, patients reported on their involvement in the consultation, optimism for the future, knowledge about treatment, and two aspects of perceived decision control, the perception of having a choice for treatment and the extent to which the doctor or patient was responsible for the decision. Six and 12 months postoperatively, 51 patients (85%) returned a follow-up survey assessing perceived decision control and health-related quality of life. The first prediction received some support. The patients who had more actively participated in their consultations, particularly in terms of offering opinions, assumed more responsibility for treatment decisions during the year following surgery than did less expressive patient…

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Items 101–200 of 246

Effective follow-up consultations: the importance of patient-centered communication and shared decision making
Brand, P. L. P., & Stiggelbout, A. M. (2013) · Paediatric Respiratory Reviews · doi:10.1016/j.prrv.2013.01.002 · Cited by 52
Evaluation of a Shared Decision Making Program for Women Suspected to Have a Genetic Predisposition to Breast Cancer
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Education and role modelling for clinical decisions with female cancer patients
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Phase I–III development of the EORTC QLQ-ANL27, a health-related quality of life questionnaire for anal cancer
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Is mastectomy overused? A call for an expanded research agenda.
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Variation in Physician-patient Discussion of Breast Reconstruction
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Interpersonal influences and attitudes about adjuvant therapy treatment decisions among non-metastatic breast cancer patients: an examination of differences by age and race/ethnicity in the BQUAL study
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Shared decision making: Prostate cancer patients’ appraisal of treatment alternatives and oncologists’ eliciting and responding behavior, an explorative study
Pieterse, A. H., Henselmans, I., de Haes, J. C. J. M., Koning, C. C. E., Geijsen, E. D., & Smets, E. M. A. (2011) · Patient Education and Counseling · doi:10.1016/j.pec.2011.05.012 · Cited by 40
“Also, it might help to better prepare patients for the consequences of their disease and treatment, and improve their psychological adjustment to their situation in the long run [14–16].”
Background
What can patients do to improve health care?
Wensing, M., & Grol, R. P. T. M. (1998) · Health Expectations · doi:10.1046/j.1369-6513.1998.00005.x · Cited by 40
The OPTION scale for the assessment of shared decision making (SDM): methodological issues.
Nicolai, J., Moshagen, M., Eich, W., & Bieber, C. (2012) · Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen · doi:10.1016/j.zefq.2012.03.002 · Cited by 43
“Shared decision making (SDM) appears to be effective in producing better psychological outcomes as well as in increasing patient satisfaction [3—5].”
Background
Biopsychosocial functioning of women after mastectomy.
Skrzypulec, V., Tobór, E., Drosdzol, A., & Nowosielski, K. (2009) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2008.02476.x · Cited by 42
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Kumar, P., & Temel, J. (2013) · Journal of Clinical Oncology · doi:10.1200/jco.2013.49.6562 · Cited by 41
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Caldon, L., Walters, S., Ratcliffe, J., & Reed, M. (2007) · European Journal of Cancer · doi:10.1016/j.ejca.2007.04.021 · Cited by 41
Quality of Life After Hyperthermic Isolated Limb Perfusion for Locally Advanced Extremity Soft Tissue Sarcoma
Thijssens, K., Hoekstra-Weebers, J., van Ginkel, R. V., & Hoekstra, H. (2006) · Annals of Surgical Oncology · doi:10.1245/aso.2006.05.023 · Cited by 41
Factors affecting patients’ perceptions of choice regarding adjuvant chemotherapy for breast cancer
Jansen, S., Otten, W., & Stiggelbout, A. (2006) · Breast Cancer Research and Treatment · doi:10.1007/s10549-006-9178-z · Cited by 39
“Patients who perceive that they have decisional control in treatment decision-making may regain a sense of control and mastery over their disease or treatment [1–4], which may ultimately lead to a higher quality of life [1,3–6].”
BackgroundResult
Specialist–Primary Care Provider–Patient Communication in Telemedical Consultations
Street, R. L., Wheeler, E. J., & McCaughan, W. (2000) · Telemedicine Journal · doi:10.1089/107830200311842 · Cited by 35
Self-citation
What Is Lacking in Patient-Physician Communication: Perspectives from Asian American Breast Cancer Patients and Oncologists
Lee, S.-M., Chen, L., Ma, G. X., & Fang, C. Y. (2012) · Journal of behavioral health · doi:10.5455/jbh.20120403024919 · Cited by 38
“A growing body of literature has suggested that a positive communication experience with the health care team is associated with greater satisfaction with care [3–5], greater psychological adjustment [6], reduced anxiety and depression [5,7], and higher quality of life [4,8] among cancer patients.”
Background
Psychosocial Impact of Cancer in Low-Income Rural/Urban Women: Phase II
Lyons, P., & Shelton, M. (2004) · Online Journal of Rural Nursing and Health Care · doi:10.14574/ojrnhc.v4i1.210 · Cited by 37
“…care professionals are important factors in adjustment to breast cancer (Hoskins et al. 1996; Lackey, Gates, & Brown, 2001; Loveys & Klaich, 1991; Street and Voight 1997) found that quality of life was higher for women who perceived greater responsibility and choice for treatment decisions than…”
Background
Effect of advanced cancer patients’ awareness of disease status on treatment decisional conflicts and satisfaction during palliative chemotherapy: a Korean prospective cohort study
Baek, S. K., Kim, S., Heo, D., Yun, Y., & Lee, M. (2012) · Supportive Care in Cancer · doi:10.1007/s00520-011-1218-5 · Cited by 36
“Western healthcare ideology supports communication between physicians and patients [20] and encourages patient participation in treatment decisions [21, 22].”
Background
Racial and Ethnic Differences in Communication Quality During Family-Centered Rounds.
Parente, V. M., Reid, H. W., Robles, J. M., Johnson, K. S., Svetkey, L., Sanders, L. L., Olsen, M., & Pollak, K. (2022) · Pediatrics · doi:10.1542/peds.2021-055227 · Cited by 35
Cancer-Relevant Self-Efficacy Is Related to Better Health-Related Quality of Life and Lower Cancer-Specific Distress and Symptom Burden Among Latina Breast Cancer Survivors
Baik, S. H., Oswald, L. B., Buitrago, D., Buscemi, J., Iacobelli, F., Perez-Tamayo, A. M., Guitelman, J., Diaz, A., Penedo, F. J., & Yanez, B. R. (2020) · International Journal of Behavioral Medicine · doi:10.1007/s12529-020-09890-9 · Cited by 47
“It is possible that the positive impact of cancer knowledge on greater patient satisfaction and engagement in treatment decision-making [28, 61] may be different among survivors who have completed active cancer treatment and have fewer cancer care needs compared to patients still undergoing active treatment.”
Background
The Imperative for Patient-Centered Clinical Decision Support
Marcial, L. H., Richardson, J. E., Lasater, B. M., Middleton, B., Osheroff, J. A., Kawamoto, K., Ancker, J. S., Leeuwen, D. V., Lomotan, E. A., Al-Showk, S., et al. (2018) · eGEMs (Generating Evidence & Methods to improve patient outcomes) · doi:10.5334/egems.259 · Cited by 35
Effects of Patient-Centered Care on Patient Outcomes: An Evaluation
Sidani, S. (2008) · Research and Theory for Nursing Practice · doi:10.1891/1541-6577.22.1.24 · Cited by 35
“This process increases their self-care knowledge and sense of control, which results in active engagement in and satisfaction with care, and improvement in functioning (Dingman, Williams, Fosbinder, & Warnick, 1999; Street & Voigt, 1997; Wensing & Elwyn, 2003).”
Background
Engaging Patient Advocates and Other Stakeholders to Design Measures of Patient-Centered Communication in Cancer Care
Treiman, K., McCormack, L., Olmsted, M. G., Roach, N., Reeve, B., Martens, C. E., Moultrie, R., & Sanoff, H. (2017) · Patient · doi:10.1007/s40271-016-0188-6 · Cited by 34
"Making All the Difference in the World": How Physicians Can Help HIV-Seropositive Patients Become More Involved in Their Healthcare
Gerbert, B., Love, C., Caspers, N., Linkins, K., & Burack, J. H. (1999) · AIDS Patients Care and STDs · doi:10.1089/apc.1999.13.29 · Cited by 33
Cancer treatment decision-making among young adults with lung and colorectal cancer: A comparison with adults in middle age
Mack, J. W., Cronin, A., Fasciano, K., Block, S., & Keating, N. L. (2015) · Psycho-Oncology · doi:10.1002/pon.3949 · Cited by 32
Explanatory factors for variation in the use of breast conserving surgery and radiotherapy in the Netherlands, 1990-2001.
Siesling, S., van de Poll-Franse, L. V., Jobsen, J., van Driel, O. J. V., & Voogd, A. (2007) · Breast · doi:10.1016/j.breast.2007.05.004 · Cited by 32
Treatment Choice and Placebo Expectation Effects
Geers, A. L., & Rose, J. P. (2011) · Social and Personality Psychology Compass · doi:10.1111/j.1751-9004.2011.00385.x · Cited by 28
Information exchange in oncology outpatient clinics: source, valence and uncertainty
Rogers, M., & Todd, C. (2002) · Psycho-Oncology · doi:10.1002/pon.575 · Cited by 31
“A search of the English language literature using BIDS, Medline and follow-up of cited references revealed 16 papers reporting observed interactions between cancer patients and oncologists (Blanchard et al., 1983, 1986, 1988, 1990; Borgers et al., 1993; Brown et al., 1999; Butow et al., 1995; Ford et al., 1996; Glaser…”
Method
Implementation of educational video improves patient understanding of basic breast cancer concepts in an undereducated county hospital population
Bouton, M. E., Shirah, G. R., Nodora, J., Pond, E., Hsu, C.-H., Klemens, A. E., Martinez, M. E., & Komenaka, I. K. (2012) · Journal of Surgical Oncology · doi:10.1002/jso.22046 · Cited by 31
“Less educated patients who are also less knowledgeable about their treatment options are more likely to be passive in their decision making, which is correlated with lower subsequent scores on quality of life assessment scales following breast cancer treatment [9,19,20].”
BackgroundInfluential
Patients' perception of communication with clinicians during screening and discussion of cancer supportive care needs.
Jones, R. L., Regan, M., Ristevski, E., & Breen, S. (2011) · Patient Education and Counseling · doi:10.1016/j.pec.2010.12.006 · Cited by 29
“Actively participating in interactions with clinicians has been found, in a previous study of breast cancer patients, to encourage active participation in decision making about treatment [35].”
Knowledge of risk management strategies, and information and risk management preferences of women at increased risk for ovarian cancer
Tiller, K., Meiser, B., Gould, L., Tucker, K., Dudding, T., Franklin, J., Friedlander, M., & Andrews, L. (2005) · Psycho-Oncology · doi:10.1002/pon.840 · Cited by 29
“These results are consistent with those of previous studies on information preferences of cancer patients in general (Fallowfield et al., 1995; Street and Voight, 1997; Jefford and Tattersall, 2002) and patients with ovarian cancer in particular (Elit et al., 1996; Stewart et al., 2000).”
Cancer patient and clinician acceptability and feasibility of a supportive care screening and referral process
Ristevski, E., Regan, M., Jones, R. L., Breen, S., Batson, A., & McGrail, M. (2015) · Health Expectations · doi:10.1111/hex.12045 · Cited by 28
Patients' decision-making in a UK specialist centre with high mastectomy rates.
Ballinger, R., Mayer, K. F., Lawrence, G., & Fallowfield, L. (2008) · Breast · doi:10.1016/j.breast.2008.08.001 · Cited by 28
Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline
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“This will help improve patients’ QOL after surgery by providing timely and appropriate treatments while maintaining the patient-physician relationship when voice changes occur after surgery [53-56].”
Background
Treatment preferences in human papillomavirus-associated oropharyngeal cancer.
Windon, M., D'Souza, G., & Fakhry, C. (2018) · Future Oncology · doi:10.2217/fon-2018-0063 · Cited by 26
Patient Preference and Decision Making for Initiating Metastatic Colorectal Cancer Medical Treatment
Fu, A., Graves, K., Jensen, R. E., Marshall, J., Formoso, M., & Potosky, A. (2015) · Journal of Cancer Research and Clinical Oncology · doi:10.1007/s00432-015-2073-4 · Cited by 26
Developing a self‐rating measure of patient competence in the context of oncology: a multi‐center study
Giesler, J. M., & Weis, J. (2008) · Psycho-Oncology · doi:10.1002/pon.1330 · Cited by 30
Development and evaluation of an information booklet/decision-making guide for patients with colorectal cancer considering therapy in addition to surgery.
Jefford, M., Gibbs, A., & Reading, D. (2005) · European Journal of Cancer Care · doi:10.1111/j.1365-2354.2005.00504.x · Cited by 26
Treatment decision-making among patients with oropharyngeal squamous cell cancer: A qualitative study
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“It is important to understand the needs of these patients in order to inform shared decision-making, which in turn can improve engagement, patient satisfaction, [11] quality of life, [12,13] and health outcomes [14].”
Background
Can patient satisfaction with decisions predict compliance with surgery?
Parhiscar, A., & Rosenfeld, R. (1999) · Otolaryngology Head & Neck Surgery · doi:10.1067/mhn.2002.123445 · Cited by 25
“Made best decision possible — — 6 (4) 66 (44) 79 (52) Decision consistent with values — — 3 (2) 63 (42) 85 (56)”
Method
Patient-provider communication and hormonal therapy side effects in breast cancer survivors
Lin, J. J., Chao, J., Bickell, N. A., & Wisnivesky, J. P. (2016) · Women & Health · doi:10.1080/03630242.2016.1235071 · Cited by 28
Learning to Cope: How Far Is Too Close?
Wolpin, B. M., Chabner, B. A., Lynch, T. J., & Penson, R. T. (2005) · The Oncologist · doi:10.1634/theoncologist.10-6-449 · Cited by 19
Education and patient preferences for treating type 2 diabetes: a stratified discrete-choice experiment
Janssen, E. M., Longo, D. R., Bardsley, J. K., & Bridges, J. F. P. (2017) · Patient Preference and Adherence · doi:10.2147/ppa.s139471 · Cited by 24
“25 In diabetes, time preference for the future is significantly related to diabetes complications.”
Distributed Cognition in Cancer Treatment Decision Making: An Application of the DECIDE Decision-Making Styles Typology
Krieger, J. L., Krok-Schoen, J., Dailey, P., Palmer-Wackerly, A. L., Schoenberg, N., Paskett, E., & Dignan, M. (2017) · Qualitative Health Research · doi:10.1177/1049732316645321 · Cited by 22
Reducing Racial Disparities in Breast Cancer Survivors' Ratings of Quality Cancer Care
Sheppard, V. B., Hurtado‐de‐Mendoza, A., Talley, C. H., Zhang, Y., Cabling, M. L., & Makambi, K. H. (2016) · Journal for Healthcare Quality · doi:10.1097/jhq.0000000000000046 · Cited by 22
Patterns of Use and Patient Satisfaction with Breast Reconstruction among Obese Patients: Results from a Population-Based Study
Kulkarni, A. R., Katz, S., Hamilton, A., Graff, J., & Alderman, A. (2012) · Plastic and Reconstructive Surgery · doi:10.1097/prs.0b013e3182589af7 · Cited by 21
A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer
Youl, P., Baade, P., Aitken, J., Chambers, S., Turrell, G., Pyke, C., & Dunn, J. (2011) · BMC Cancer · doi:10.1186/1471-2407-11-415 · Cited by 21
“Perceptions of control over treatment choices will be assessed using questions developed by Street and Voigt [54] and Jansen et al.”
Socio‐economic differences in patient participation behaviours in doctor–patient interactions—A systematic mapping review of the literature
Allen, S., Rogers, S., & Harris, R. V. (2019) · Health Expectations · doi:10.1111/hex.12956 · Cited by 20
Patients’ Views on Healthcare
Wensing, M., & Grol, R. (2000) · Disease Management & Health Outcomes · doi:10.2165/00115677-200007030-00001 · Cited by 20
“[56] It is unclear whether shared decision-making can be combined with implementation of evidence-based practice, because patients may prefer treatments which are not evidence based or where the evidence on effectiveness is negative.”
Background
Exome Sequencing Disclosures in Pediatric Cancer Care: Patterns of Communication among Oncologists, Genetic Counselors, and Parents
Scollon, S., Majumder, M., Bergstrom, K., Wang, T., McGuire, A., Robinson, J., Gutierrez, A., Lee, C. H., Hilsenbeck, S., Plon, S., et al. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.11.007 · Cited by 19
Self-citation
Glaucoma patient-provider communication about vision quality-of-life
Sleath, B., Sayner, R., Vitko, M. L., Carpenter, D. M., Blalock, S. J., Muir, K. W., Giangiacomo, A. L., Hartnett, M., & Robin, A. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.11.018 · Cited by 19
“Nonetheless, empowering and involving patients in decisions made during medical visits can improve patient qualityof-life [7-12].”
Background
Understanding the Needs of Patients with Metastatic Breast Cancer: Results of the Make Your Dialogue Count Survey
Brufsky, A., Ormerod, C., Dickson, R. B., & Citron, M. L. (2017) · The Breast Journal · doi:10.1111/tbj.12675 · Cited by 19
Factors Contributing to the Preference of Korean Patients with Crohn's Disease When Selecting an Anti-Tumor Necrosis Factor Agent (CHOICE Study)
Kim, E. S., Kim, K. O., Jang, B. I., Lee, C. K., Kim, H. J., Lee, K., Kim, Y. S., Eun, C. S., Jung, S.-A., Yang, S., et al. (2015) · Gut and Liver · doi:10.5009/gnl15126 · Cited by 18
“More patients are engaged in the decision process of treatment in this digital age where patients become more educated and more sophisticated researchers on the benefits and risks of their therapy.(15,19,32) In particular, there is a lot of room for patient involvement during IBD treatment due to the uncertainty of th…”
Background
Decision Making About Treatment of Hypothetical Prostate Cancer
Steginga, S., & Occhipinti, S. (2002) · Journal of Psychosocial Oncology · doi:10.1300/j077v20n03_05 · Cited by 18
“For example, prospective studies of decision making among women with breast cancer have failed to find significant relationships between perceived decisional control and choice at the time of treatment and later adjustment (Stanton et al., 1998; Street & Voight, 1997).”
Background
Association of Breast Cancer Knowledge With Receipt of Guideline-Recommended Breast Cancer Treatment.
Freedman, R., Kouri, E., West, D., Lii, J., & Keating, N. (2016) · Journal of Oncology Practice · doi:10.1200/jop.2015.008508 · Cited by 17
Breast cancer and menopause: perceptions of diagnosis, menopausal therapies and health behaviors
Sayakhot, P., Vincent, A., & Teede, H. (2012) · Climacteric · doi:10.3109/13697137.2011.603772 · Cited by 17
Health-related quality of life after liver transplantation: it's not all about the liver.
Bucuvalas, J., & Britto, M. (2003) · Journal of Pediatric Gastroenterology and Nutrition - JPGN · doi:10.1097/00005176-200308000-00002 · Cited by 17
Breast cancer knowledge and understanding treatment rationales among diverse breast cancer survivors
Freedman, R., Ko, N., Lederman, R., Gagnon, H., Fikre, T., Gundersen, D., Revette, A., Odai-Afotey, A., Kantor, O., Hershman, D., et al. (2022) · Breast Cancer Research and Treatment · doi:10.1007/s10549-022-06752-8 · Cited by 16
“Although the specific impact of this knowledge has not been studied in breast cancer populations, limited cancer knowledge may impact screening [18–20], cancerrelated outcomes [9, 17, 21–25], and satisfaction with care [10, 26, 27].”
Background
Doctor–patient relationship mediates the effects of shared decision making on health-related quality of life among women living with breast cancer
Kugbey, N., Asante, K. O., & Meyer-Weitz, A. (2018) · South African Journal of Psychology · doi:10.1177/0081246318801159 · Cited by 16
The cost of cancer care--balancing our duties to patients versus society: are they mutually exclusive?
Kumar, P., & Moy, B. (2013) · The Oncologist · doi:10.1634/theoncologist.2013-0078 · Cited by 16
Oncology Residents’ Perspectives on Communication Skills and Shared Decision Making
Samant, R., Aivas, I., Bourque, J., & Tucker, T. (2010) · Journal of Cancer Education · doi:10.1007/s13187-010-0094-x · Cited by 16
Experiences with health care and health-related quality of life of patients with hematologic malignancies in Mexico
Doubova, S., Terreros-Muñoz, E., Delgado-López, N., Montaño-Figueroa, E., Infante-Castañeda, C., & Pérez-Cuevas, R. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05498-7 · Cited by 15
Understanding Breast Cancer Knowledge and Barriers to Treatment Adherence: A Qualitative Study Among Breast Cancer Survivors
Freedman, R. A., Revette, A. C., Hershman, D. L., Silva, K., Sporn, N. J., Gagne, J. J., Kouri, E. M., & Keating, N. L. (2017) · BioResearch open access · doi:10.1089/biores.2017.0028 · Cited by 16
A survey of breast cancer physicians regarding patient involvement in breast cancer treatment decisions
Hillyer, G., Hershman, D., Kushi, L., Lamerato, L., Ambrosone, C., Bovbjerg, D., Mandelblatt, J., Rana, S., & Neugut, A. (2012) · Breast · doi:10.1016/j.breast.2012.10.001 · Cited by 15
Breast Reconstruction and Psychosocial Adjustment: What Have We Learned and Where Do We Go from Here?
Parker, P. A. (2004) · Seminars in Plastic Surgery · doi:10.1055/s-2004-829047 · Cited by 13
“Various empirical studies in cancer and other chronic illnesses confirm that patients who have higher perceptions of self-efficacy and competence are more likely to succeed in self-care activities and report better health outcomes.(48,49) Patients who are active in managing their health and illness are also active in…”
Background
Culture and Oncology
Moore, R. J., & Butow, P. (2004) · Kluwer Academic Publishers eBooks · doi:10.1007/0-306-48007-7_2 · Cited by 15
Helping patients make choices about breast reconstruction: A decision analysis approach
Sun, C. S., Cantor, S., Reece, G., Fingeret, M., Crosby, M., & Markey, M. (2014) · Plastic and Reconstructive Surgery · doi:10.1097/prs.0000000000000514 · Cited by 14
Communicating the External Beam Radiation Experience (CEBRE): Perceived Benefits of a Graphic Narrative Patient Education Tool
Arya, R., Ichikawa, T., Callender, B. C., Schultz, O. A., DePablo, M., Novak, K., Li, S., Shenoy, A., Everman, A., Braunstein, S., et al. (2019) · Practical Radiation Oncology · doi:10.1016/j.prro.2019.09.001 · Cited by 17
“A graphic narrative panel is included for each of the following steps in the radiation therapy treatment process: (1) consult, (2) simulation, (3) planning, (4) treatment, and (5) follow-up.”
Method
Patient engagement: qualitative narratives illustrate patient engagement behaviors
Sloan, A., & Knowles, A. (2017) · Journal of Communications In Healthcare · doi:10.1080/17538068.2017.1340541 · Cited by 13
Active patient decision making regarding nerve sparing during radical prostatectomy: a novel approach.
Lavery, H., Prall, D. N., & Abaza, R. (2011) · Journal of Urology · doi:10.1016/j.juro.2011.03.136 · Cited by 13
Patients' Perceptions of Physician-Patient Discussions and Adverse Events with Cancer Therapy
Hershman, D., Calhoun, E., Zapert, K., Wade, S., Malin, J., & Barron, R. (2008) · Archives of Drug Information · doi:10.1111/j.1753-5174.2008.00011.x · Cited by 13
Cancer Diagnosis Disclosure in a Northern Italian Hospital Report on 312 Consecutive Cancer Patients
Cavanna, L., Anselmi, E., Lazzaro, A., Seghini, P., di Nunzio, C., Dallanegra, L., & Monfredo, M. (2007) · Tumori · doi:10.1177/030089160709300311 · Cited by 13
Surgeon Perspectives on Surgical Options for Early-Stage Breast Cancer
Thompson, T. A., Pusic, A., Kerrigan, C., Sargeant, R., Slezak, S. S., Chang, B., Helzlsouer, K., & Manson, P. (2000) · Plastic and Reconstructive Surgery · doi:10.1097/00006534-200003000-00013 · Cited by 13
Less reduction of psychosocial problems among adolescents with unmet communication needs
Jager, M., Reijneveld, S., Almansa, J., Metselaar, J., Knorth, E., & de Winter, A. D. (2016) · European Child and Adolescent Psychiatry · doi:10.1007/s00787-016-0901-y · Cited by 12
“Patient-centered communication has been shown to be associated with improvements in adherence, satisfaction, and health outcomes in various types of health care such as general practice, oncology and diabetes care [10–15].”
Background
The Patient Experience With Shared Decision Making: A Qualitative Descriptive Study
Truglio‐Londrigan, M. (2015) · Journal of Infusion Nursing · doi:10.1097/nan.0000000000000136 · Cited by 12
Psychosocial Determinants and Outcomes of Chemotherapy in Older Women with Breast Cancer: What Do We Know? What Do We Need to Know?
Tallarico, M., Figueiredo, M. I., Goodman, M., Kreling, B., & Mandelblatt, J. (2005) · Cancer Journal · doi:10.1097/00130404-200511000-00011 · Cited by 12
Randomized evaluation of decision support interventions for atrial fibrillation: Rationale and design of the RED-AF study
Jones, A. E., McCarty, M. M., Brito, J. P., Noseworthy, P., Cavanaugh, K., Cameron, K. A., Barnes, G., Steinberg, B., Witt, D., Crossley, G., et al. (2022) · American Heart Journal · doi:10.1016/j.ahj.2022.02.010 · Cited by 11
“18–20 The latest American Heart Association/American College of Cardiology/Heart Rhythm Society (AHA/ACC/HRS) and European Society of Cardiology (ESC) guidelines for management of patients with AF recommend SDM for decisions surrounding anticoagulant use.”
Background
Physicians' views on the influence of patient participation on treatment decisions - an explorative study
Jaakkola, E. (2007) · Health Services Management Research · doi:10.1258/095148407781395937 · Cited by 11
Preferences for involvement in medical decision making: Comparing British and German views
Rüdell, K., Myers, L. B., & Newman, S. (2006) · Psychology, Health & Medicine · doi:10.1080/13548500500357026 · Cited by 11
“Patient involvement in medical decision making (MDM) is gaining more importance in medical practice as evidence shows that patients who actively participate in decisions about their medical care have more beneficial outcomes than patients who have no involvement (Brody, Miller, Lerman, Smith, & Caputo, 1989 ; Fallowfi…”
Background
Patient preferences in treatment options of ulcerative colitis: a discrete choice experiment
Straatmijer, T., Marle, M. E. V. D. A., Ponsioen, C. Y., van der Horst, D., Scherpenzeel, M., Duijvestein, M., & Jong, A. E. V. D. M. (2023) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2023.2286191 · Cited by 11
“Also, studies suggest that patients who participate more actively in their care are more satisfied with medical services provided and may have better health outcomes [7, 8].”
Background
Communicating the Information Needed for Treatment Decision Making Among Patients With Pancreatic Cancer Receiving Preoperative Therapy
Lee, H. J., Qian, C., Landay, S. L., O'Callaghan, D., Kaslow-Zieve, E., Azoba, C. C., Fuh, C.-X., Temel, B., Ufere, N., Petrillo, L., et al. (2021) · JCO Oncology Practice · doi:10.1200/op.21.00388 · Cited by 10
The Evolution of Biologics Administration From Intravenous to Subcutaneous: Treatments for Inflammatory Bowel Disease Go Home
Solitano, V., Vuitton, L., Peyrin‐Biroulet, L., & Danese, S. (2021) · Gastroenterology · doi:10.1053/j.gastro.2021.03.038 · Cited by 11
Delivering Bad News in Amyotrophic Lateral Sclerosis
Edwards, W. F., Malik, S., Peters, J., Chippendale, I., & Ravits, J. (2020) · Neurology Clinical Practice · doi:10.1212/cpj.0000000000000957 · Cited by 16
The Patient-Pathologist Consultation Program: A Mixed-Methods Study of Interest and Motivations in Cancer Patients.
Lapedis, C. J., Horowitz, J., Brown, L., Tolle, B. E., Smith, L. B., & Owens, S. (2020) · Archives of Pathology & Laboratory Medicine · doi:10.5858/arpa.2019-0105-oa · Cited by 10
Attitudes of Persons With Physical Disabilities Toward Physician-Assisted Death
Hwang, K. (2005) · Journal of Disability Policy Studies · doi:10.1177/10442073050160010301 · Cited by 10
High levels of socioeconomic deprivation do not inhibit patients’ communication of concerns in head and neck cancer review clinics
Allen, S., Harris, R., Brown, S. L., Humphris, G., Zhou, Y., & Rogers, S. N. (2018) · British Journal of Oral and Maxillofacial Surgery · doi:10.1016/j.bjoms.2018.05.015 · Cited by 9
Physician–patient shared decision making, patient satisfaction, and adoption of new health technology in China
Wei, Y., Ming, J., Shi, L., Ke, X., Sun, H., & Chen, Y. (2020) · International Journal of Technology Assessment in Health Care · doi:10.1017/s0266462320000719 · Cited by 12
“Many healthcare providers, patients, ethicists, medical educators, and researchers have advocated the importance of SDM, which may positively impact patients in a number of ways; such as increased patient satisfaction (14–16), better adherence to treatments (15, 17) better control of diseases, better quality of life (…”
Background
Exceptional patients and communication in cancer care—are we missing another survival factor?
Frenkel, M., Engebretson, J., Gross, S., Peterson, N. E., Giveon, A. P., Sapire, K., & Hermoni, D. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3255-6 · Cited by 9
Understanding quality of life for children after liver transplantation: A work in progress
Ng, V., & Otley, A. (2008) · Liver transplantation · doi:10.1002/lt.21430 · Cited by 9
“Assessment of HRQOL permits us to hear the voice and perspective of the patient, which can predict, often better than physiologic measures, future health status, mortality, and resource utilization.(20,21) Given the varying perceptions and expectations between individuals, two people with the same health status may ha…”
Background
Die Bedeutung von Information f�r Krebspatienten und Erfahrungen aus der Arbeit des Krebsinformationsdienstes in Heidelberg
Gaisser, A., & Stamatiadis-Smidt, H. (2004) · Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz · doi:10.1007/s00103-004-0913-5 · Cited by 11
Knowledge model reuse: therapy decision through specialisation of a generic decision model
Manjarrés, Á., Pickin, S., & Mira, J. (2002) · Expert systems with applications · doi:10.1016/s0957-4174(02)00031-3 · Cited by 9
Evaluating the relationship between patient activation and health-related quality of life (HRQOL) in patients with pancreatic cancer (PwPC)
Vohra, Y., Brown, C. M., Moczygemba, L. R., & Wilfong, L. S. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-023-07632-7 · Cited by 10
“1 3 patients at lower activation levels were poor managers of their health and experienced poor HRQOL [18, 21, 31].”
Background
Patient-centered Involvement in Decision-Making
Perkins, H. S., Freed, A. A., Cortez, J., & Hazuda, H. (2019) · Medical Care · doi:10.1097/mlr.0000000000001132 · Cited by 8
Experiencing cancer treatment decision-making in managed care.
Wenzel, J., & Shaha, M. (2008) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2008.04720.x · Cited by 8
Health-related quality of life in liver transplant recipients
Bucuvalas, J., & Alonso, E. (2005) · doi:10.1097/01.mot.0000163043.71825.cf · Cited by 8
Patient Participation and Decision Control
de Haes, H. D., & Molenaar, S. (1997) · Medical decision making · doi:10.1177/0272989x9701700314 · Cited by 8

Authors: Street, R. L., & Voigt, B.
Affiliations: Texas A&M University (US)
ORCID: Street, Richard L.
Venue: Medical Decision Making
Publisher: SAGE Publications
Published: 1997-07
Volume: 17
Issue: 3
Pages: 298-306
ISSN: 0272-989X (ISSN-L)
1552-681X
DOI: 10.1177/0272989x9701700306
OpenAlex: W1986448046
Cited by: 258
References: 0
Citations by year: 2026: 4 · 2025: 3 · 2024: 2 · 2023: 8 · 2022: 7 · 2021: 7 · 2020: 7 · 2019: 5 · 2018: 9 · 2017: 9 · 2016: 12 · 2015: 15 · 2014: 7 · 2013: 12 · 2012: 10
FWCI: 16.98
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Medical Decision Making (publishedVersion)
PubMed (publishedVersion)
RePEc: Research Papers in Economics (submittedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Women's cancer prevention and management
Keywords: patient participation, shared decision-making, breast cancer, early breast cancer, health-related quality of life, breast-conserving therapy, mastectomy, physician-patient consultation, treatment selection
MeSH terms: Adult, Aged, Aged, 80 and over, Breast Neoplasms, Decision Support Techniques, Female, Follow-Up Studies, Humans, Internal-External Control, Middle Aged, Patient Care Team, Patient Participation, Quality of Life, Mastectomy, Segmental, Treatment Outcome, Patient Satisfaction

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Patient Participation in Deciding Breast Cancer Treatment and Subsequent Quality of Life

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