The Need for Stability in Paid Dementia Care: Family Caregiver Perspectives
Open accessAbstract
Paid caregivers (e.g., home health aides, home care workers) provide essential care to people with dementia living at home; this study explored family caregiver perspectives on the role and impact of paid caregivers in home-based dementia care. We conducted semi-structured interviews with family caregivers ( n = 15) of people with advanced dementia who received long-term paid care at home in New York between October 2020 and December 2020. We found that given the vulnerability resulting from advanced dementia, family caregivers prioritized finding the “right” paid caregivers and valued continuity in the individual providing care. The stable paid care that resulted improved outcomes for both the person with advanced dementia (e.g., eating better) and their family (e.g., ability to work). Those advocating for high quality, person-centered dementia care should partner with policymakers and home care agencies to promote the stability of well-matched paid caregivers for people with advanced dementia living at home.
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Instability in the workforce and understaffing across care settings can lead to stress, injury and burnout among direct care workers, thereby further contributing to turnover while also compromising care access and quality.
“In turn, instability in the workforce and understaffing across care settings can lead to stress, injury and burnout among direct care workers, thereby further contributing to turnover while also compromising care access and quality.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [784]
The Background links low wages to turnover and workforce instability, while the Discussion says turnover may make it harder for families to find and retain a suitable paid caregiver. Neither section says understaffing causes stress, injury, or burnout among workers, or establishes that chain of effects across care settings. Page numbers were not available in our copy. (LLM, conf=0.84)
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Self-citation
- Authors
- Reckrey, J. M., Perez, S., Watman, D., Ornstein, K. A., Russell, D., & Franzosa, E.
- Affiliations
- Icahn School of Medicine at Mount Sinai (US)
- Appalachian State University (US)
- James J. Peters VA Medical Center (US)
- Corresponding author
- Reckrey, Jennifer M.
- Venue
- Journal of Applied Gerontology
- Publisher
- SAGE Publications
- Published
- 2022-05-05
- Volume
- 42
- Issue
- 4
- Pages
- 607-616
- ISSN
- 0733-4648 (ISSN-L)
- 1552-4523
- PMC
- PMC9636070
- OpenAlex
- W4228997495
- Cited by
- 16
- References
- 39
- Citations by year
- 2026: 1 · 2025: 5 · 2024: 5 · 2023: 3 · 2022: 2
- FWCI
- 2.44
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Applied Gerontology (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (K23AG066930)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- professional caregivers, home health aides, home care, dementia care, family caregivers, continuity of care, advanced dementia, person-centred care, long-term care at home, caregiver well-being
- MeSH terms
- Dementia, Home Care Services, Humans, Caregivers, Home Health Aides
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