Digital Storytelling as a Patient Engagement and Research Approach With First Nations Women: How the Medicine Wheel Guided Our Debwewin Journey
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When research is conducted from a Western paradigm alone, the findings and resultant policies often ignore Indigenous peoples’ health practices and fail to align with their health care priorities. There is a need for decolonized approaches within qualitative health research to collaboratively identify intersecting reasons behind troubling health inequities and to integrate Indigenous knowledge into current health care services. We engaged with First Nations women to explore to what extent digital storytelling could be a feasible, acceptable, and meaningful research method to inform culturally safe health care services. This novel approach created a culturally safe and ethical space for authentic patient engagement. Our conversations were profound and provided deep insights into First Nations women’s experiences with breast cancer and guidance for our future qualitative study. We found that the digital storytelling workshop facilitated a Debwewin journey, which is an ancient Anishinabe way of knowing that connects one’s heart knowledge and mind knowledge.
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Storytelling when grounded in Indigenous epistemologies can foster culturally respectful and responsive research and help move forward from injustices of the past.
“We set out on this journey because when storytelling is grounded in Indigenous epistemologies it can foster culturally respectful and responsive research and help us move forward from the injustices of the past (Rieger, Bennett, et al., 2021; Smith, 2012).”
From What we learned from the Nokomisag/Grandmothers: Adapting the 4 Rs for storytelling in Indigenous health research (2025) · cites this paper as Rieger, Bennett, et al., 2021
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Sydora, B. C., Listener, L., Kung, J. Y., Ross, S., & Voyageur, C. (2023) · International Journal of Circumpolar Health · doi:10.1080/22423982.2023.2175763 · Cited by 17 · see citing works
Rieger, K., Horton, M., Cook, L., Copenace, S., Bennett, M., Phillips-Beck, W., Buss, M., Chudyk, A., Hornan, B., Horrill, T., et al. (2025) · The International Indigenous Policy Journal · doi:10.18584/iipj.2025.16.2.18451 · Cited by 3 · see citing works
Self-citation
- Authors
- Rieger, K. L., Bennett, M., Martin, D., Hack, T. F., Cook, L., & Hornan, B.
- Affiliations
- Trinity Western University (CA)
- University of Manitoba (CA)
- Sagkeeng First Nation, Manitoba, Canada
- Pimicikamāk Nīhithawī First Nation, Manitoba, Canada
- Corresponding author
- Rieger, Kendra L.
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2021-07-08
- Volume
- 31
- Issue
- 12
- Pages
- 2163-2175
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- PMC
- PMC8564217
- OpenAlex
- W3177558567
- Cited by
- 29
- References
- 2
- Citations by year
- 2026: 7 · 2024: 4 · 2023: 10 · 2022: 7 · 2021: 1
- FWCI
- 3.04
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Qualitative Health Research (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- george gund foundation (George and Fay Yee Centre for Healthcare Innovatio)
- Topics
- Social Sciences › Health › Indigenous Health, Education, and Rights
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Health Sciences › Health Professions › Speech and Hearing › Digital Storytelling and Education
- Keywords
- digital storytelling, First Nations women, patient engagement, indigenous knowledge, breast cancer, Medicine Wheel, Anishinabe, health disparities, research ethics
- MeSH terms
- Communication, Female, Health Services, Humans, Patient Participation, Qualitative Research, Population Groups
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