A qualitative study of adolescent and young adult cancer survivors’ perceptions of family and peer support
Open accessAbstract
This qualitative study examined adolescent and young adult survivors’ perceptions of support from family and peers. A total of 26 survivors, aged 16–24 years, who had been diagnosed with cancer between the ages of 14 and 18, participated in semi-structured interviews. Three themes emerged for support: practical support, emotional support, and new sense of closeness. For lack of support, two themes emerged: absence during treatment and lack of understanding about appearance changes. These findings emphasize the perceived importance of family and peer support throughout adolescent and young adults’ cancer trajectories and indicate a need for interventions to help adolescent and young adult develop and maintain support networks throughout treatment and survivorship.
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YA have limited opportunities to connect with other YA with cancer following diagnosis and often feel as though their peers, family, and members of their community do not understand what it is like to be a young person who has had cancer.
“Our work [33] and the work of others [53, 54, 85] suggest that YA have limited opportunities to connect with other YA with cancer following diagnosis and often feel as though their peers, family, and members of their community do not understand what it is like to be a young person who has had cancer.”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [54]
The Results (Lack of Support; page not provided) report that some survivors felt unsupported when friends were absent during treatment, and a small number described peers or family not understanding changes in their appearance. The paper does not establish that young adults had limited opportunities to connect with other young adults with cancer, or that peers, family, and community members generally did not understand their experience of cancer. (LLM, conf=0.84)
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“Our work [33] and the work of others [53, 54, 85] suggest that YA have limited opportunities to connect with other YA with cancer fol - lowing diagnosis and often feel as though their peers, family, and members of their community do not understand what it is like to be a young person who has had…”
Background
- Authors
- McDonnell, G. A., Shuk, E., & Ford, J. S.
- Affiliations
- Memorial Sloan Kettering Cancer Center (US)
- Corresponding author
- McDonnell, Glynnis A
- Venue
- Journal of Health Psychology
- Publisher
- SAGE Publications
- Published
- 2018-04-24
- Volume
- 25
- Issue
- 5
- Pages
- 713-726
- ISSN
- 1359-1053 (ISSN-L)
- 1461-7277
- PMC
- PMC6167207
- OpenAlex
- W2800592756
- Cited by
- 45
- References
- 26
- Citations by year
- 2026: 6 · 2025: 10 · 2024: 7 · 2023: 3 · 2022: 7 · 2021: 6 · 2020: 4 · 2019: 1
- FWCI
- 3.03
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- American Cancer Society (MRSG-07-165-01-CPPB)
- National Cancer Institute (P30 CA008748, T32CA00946)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- adolescent cancer survivors, young adult cancer survivors, family support, peer support, social support, emotional support, practical support, appearance changes, social support networks, survivorship, cancer therapy
- MeSH terms
- Cancer Survivors, Adolescent, Adult, Family, Female, Humans, Male, Peer Group, Social Perception, Social Support, Qualitative Research, Young Adult
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