The DOI matches its Crossref record; 31 of the 31 references it cites were found in a registry or an index.
A systematic review of quality of life of adults on the autism spectrum
Open accessAbstract
Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual’s quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder–specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“Note, however, that to date there is no comprehensive ASD-specific quality of life assessment tool validated and consequently, the tools used in the general population (i.e., WHO-QOL) might not be the most adequate to assess quality of life in ASD (and thus changes in quality of life after intervention) [42].”
From Behavioral effects of multiple-dose oxytocin treatment in autism: a randomized, placebo-controlled trial with long-term follow-up (2020) · cites this paper as [42]
In the citing paper
“Importantly, recent reviews stated that most individuals with ASD have poor quality of life (note that most studies included children with ASD) [41] or lower quality of life than typically developing adults [42].”
From Behavioral effects of multiple-dose oxytocin treatment in autism: a randomized, placebo-controlled trial with long-term follow-up (2020) · cites this paper as [42]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & the PRISMA Group* (2009) · Annals of Internal Medicine · doi:10.7326/0003-4819-151-4-200908180-00135 · Cited by 37,554
Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment
THE WHOQOL GROUP (1998) · Psychological Medicine · doi:10.1017/s0033291798006667 · Cited by 7,933
Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/chi.0b013e318179964f · Cited by 3,399
Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, D., & Charman, T. (2006) · The Lancet · doi:10.1016/s0140-6736(06)69041-7 · Cited by 2,104
Epidemiology of Autism Spectrum Disorders in Adults in the Community in England
Brugha, T. S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011) · Archives of General Psychiatry · doi:10.1001/archgenpsychiatry.2011.38 · Cited by 903
Ottawa Hospital Research Institute
Bouhassira, E. E. (2015) · Sage eBooks · doi:10.4135/9781483347660.n335 · Cited by 851
Reviewing studies with diverse designs: the development and evaluation of a new tool
Sirriyeh, R., Lawton, R., Gardner, P., & Armitage, G. (2012) · Journal of Evaluation in Clinical Practice · doi:10.1111/j.1365-2753.2011.01662.x · Cited by 715
Quality of life in autism across the lifespan: A meta-analysis
van Heijst, B. F., & Geurts, H. M. (2015) · Autism · doi:10.1177/1362361313517053 · Cited by 460
Daniels, A. M., Rosenberg, R. E., Anderson, C. M., Law, J. K., Marvin, A. R., & Law, P. A. (2011) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-011-1236-7 · Cited by 288
Stahlberg, O., Soderstrom, H., Rastam, M., & Gillberg, C. (2004) · Journal of Neural Transmission · doi:10.1007/s00702-004-0115-1 · Cited by 273
Research works printed but not linked: 1
- Kamp-Becker I, 2010, Psycho-Social Medicine, 7
Cited by
Sorted by citations
The Lancet Commission on the future of care and clinical research in autism
Lord, C., Charman, T., Havdahl, A., Carbone, P., Anagnostou, E., Boyd, B., Carr, T., de Vries, P. J., Dissanayake, C., Divan, G., et al. (2022) · The Lancet · doi:10.1016/s0140-6736(21)01541-5 · Cited by 924
Predictors of quality of life for autistic adults
Mason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018) · Autism Research · doi:10.1002/aur.1965 · Cited by 327
Self-citationEnhancing the Validity of a Quality of Life Measure for Autistic People
McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3402-z · Cited by 245
Self-citationAdams, D., & Young, K. (2021) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-020-00226-7 · Cited by 179
Lord, C., McCauley, J. B., Pepa, L., Huerta, M., & Pickles, A. R. (2020) · Autism · doi:10.1177/1362361320919246 · Cited by 147
Metadata
- Authors
- Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D.
- Affiliations
- Newcastle University (GB)
- Corresponding author
- Parr, Jeremy R
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2017-08-12
- Volume
- 22
- Issue
- 7
- Pages
- 774-783
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2743496150
- Cited by
- 230
- References
- 31
- Citations by year
- 2026: 33 · 2025: 36 · 2024: 40 · 2023: 30 · 2022: 30 · 2021: 28 · 2020: 16 · 2019: 12 · 2018: 4 · 2017: 1
- FWCI
- 1.01
- Type
- journal article
- Language
- en
- Open access
- green
- research.tees.ac.uk
- Licence
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Northumbria Research Link (Northumbria University) (acceptedVersion)
- Teesside University Research Portal (Teesside University) (submittedVersion, cc-by-nc-nd)
- Newcastle University ePrints (Newcastle Univesity)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- autism spectrum disorder, quality of life, autistic adults, quality of life assessment, quality of life assessment tools, comorbidities
- MeSH terms
- Autism Spectrum Disorder, Adult, Humans, Quality of Life
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
