Cited by 238Autism Spectrum Disorder ResearchFamily and Disability Support ResearchDown syndrome and intellectual disability research

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A systematic review of quality of life of adults on the autism spectrum

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Ayres, Michael, Parr, Jeremy R, Rodgers, Jacqui, Mason, David, Avery, Leah, Flynn, Darren·2018·Autism

DOI 10.1177/1362361317714988

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Abstract

Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual’s quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder–specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.

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Authors: Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D.
Affiliations: Newcastle University (GB)
Corresponding author: Parr, Jeremy R
ORCID: Ayres, Michael
Parr, Jeremy R
Rodgers, Jacqui
Mason, David
Avery, Leah
Flynn, Darren
Venue: Autism
Publisher: SAGE Publications
Published: 2017-08-12
Volume: 22
Issue: 7
Pages: 774-783
ISSN: 1362-3613 (ISSN-L)
1461-7005
DOI: 10.1177/1362361317714988
OpenAlex: W2743496150
Cited by: 230
References: 31
Citations by year: 2026: 33 · 2025: 36 · 2024: 40 · 2023: 30 · 2022: 30 · 2021: 28 · 2020: 16 · 2019: 12 · 2018: 4 · 2017: 1
FWCI: 1.01
Type: journal article
Language: en
Open access: green
research.tees.ac.uk
Licence: cc-by-nc-nd
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Autism (publishedVersion)
PubMed (publishedVersion)
Northumbria Research Link (Northumbria University) (acceptedVersion)
Teesside University Research Portal (Teesside University) (submittedVersion, cc-by-nc-nd)
Newcastle University ePrints (Newcastle Univesity)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
Keywords: autism spectrum disorder, quality of life, autistic adults, quality of life assessment, quality of life assessment tools, comorbidities
MeSH terms: Autism Spectrum Disorder, Adult, Humans, Quality of Life

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A systematic review of quality of life of adults on the autism spectrum

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