Defining the core components of Family Navigation for autism spectrum disorder
Open accessAbstract
This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
The qualitative content analysis process
Elo, S., & Kyngäs, H. (2008) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2007.04569.x · Cited by 22,617 · see citing works
Hoffmann, T. C., Glasziou, P. P., Boutron, I., Milne, R., Perera, R., Moher, D., Altman, D. G., Barbour, V., Macdonald, H., Johnston, M., et al. (2014) · BMJ · doi:10.1136/bmj.g1687 · Cited by 10,548 · see citing works
Curran, G. M., Bauer, M., Mittman, B., Pyne, J. M., & Stetler, C. (2012) · Medical Care · doi:10.1097/mlr.0b013e3182408812 · Cited by 4,058 · see citing works
Systematic review of the Exploration, Preparation, Implementation, Sustainment (EPIS) framework
Moullin, J. C., Dickson, K. S., Stadnick, N. A., Rabin, B., & Aarons, G. A. (2019) · Implementation Science · doi:10.1186/s13012-018-0842-6 · Cited by 1,223 · see citing works
Self-citationNew Evidence Regarding Racial And Ethnic Disparities In Mental Health: Policy Implications
McGuire, T. G., & Miranda, J. (2008) · Health Affairs · doi:10.1377/hlthaff.27.2.393 · Cited by 734 · see citing works
Stirman, S. W., Miller, C. J., Toder, K., & Calloway, A. (2013) · Implementation Science · doi:10.1186/1748-5908-8-65 · Cited by 691 · see citing works
Race differences in the age at diagnosis among medicaid-eligible children with autism
MANDELL, D. S., LISTERUD, J., LEVY, S. E., & PINTO-MARTIN, J. A. (2002) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/00004583-200212000-00016 · Cited by 684 · see citing works
Durkin, M. S., Maenner, M. J., Baio, J., Christensen, D., Daniels, J., Fitzgerald, R., Imm, P., Lee, L.-C., Schieve, L. A., Van Naarden Braun, K., et al. (2017) · American Journal of Public Health · doi:10.2105/ajph.2017.304032 · Cited by 347 · see citing works
CONSORT 2010 statement: extension checklist for reporting within person randomised trials
Pandis, N., Chung, B. T., Scherer, R. W., Elbourne, D. R., & Altman, D. G. (2017) · BMJ · doi:10.1136/bmj.j2835 · Cited by 262 · see citing works
A new era for intervention development studies
Hoddinott, P. (2015) · Pilot and Feasibility Studies · doi:10.1186/s40814-015-0032-0 · Cited by 190 · see citing works
Sutcliffe, K., Thomas, J., Stokes, G., Hinds, K., & Bangpan, M. (2015) · Systematic Reviews · doi:10.1186/s13643-015-0126-z · Cited by 133 · see citing works
Feinberg, E., Marcela Abufhele, M., Eilenberg, J. S., Augustyn, M. C., Cabral, H., Chen, N., Díaz‐Linhart, Y., Levesque, Z., Aebi, M., & Silverstein, M. (2016) · Psychiatric Services · doi:10.1176/appi.ps.201500162 · Cited by 76 · see citing works
Self-citationLu, W. (2017) · Journal of Health Care for the Poor and Underserved · doi:10.1353/hpu.2017.0092 · Cited by 61 · see citing works
A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder
Broder‐Fingert, S., Qin, S., Goupil, J., Rosenberg, J., Augustyn, M. C., Blum, N., Bennett, A. E., Weitzman, C. C., Guevara, J. P., Fenick, A. M., et al. (2018) · Autism · doi:10.1177/1362361318808460 · Cited by 45 · see citing works
Self-citationStadnick, N. A., Chlebowski, C., Baker-Ericzén, M. J., Dyson, M. W., Garland, A. F., & Brookman-Frazee, L. I. (2016) · Autism · doi:10.1177/1362361316654083 · Cited by 40 · see citing works
Self-citationPatient Navigation for Mothers with Depression who Have Children in Head Start: A Pilot Study
Díaz‐Linhart, Y., Silverstein, M., Grote, N. K., Cadena, L., Feinberg, E., Ruth, B. J., & Cabral, H. (2016) · Social Work in Public Health · doi:10.1080/19371918.2016.1160341 · Cited by 38 · see citing works
Self-citation
Flagged first, then by citations
Cited by
Sorted by citations
Future Directions in Lay Health Worker Involvement in Children’s Mental Health Services in the U.S.
Barnett, M. L., Sanchez, B. E. L., Rosas, Y. G., & Broder‐Fingert, S. (2021) · Journal of Clinical Child & Adolescent Psychology · doi:10.1080/15374416.2021.1969655 · Cited by 70 · see citing works
Self-citationFeinberg, E., Augustyn, M., Broder-Fingert, S., Bennett, A., Weitzman, C., Kuhn, J., Hickey, E., Chu, A., Levinson, J., Sandler Eilenberg, J., et al. (2021) · JAMA Pediatrics · doi:10.1001/jamapediatrics.2020.5218 · Cited by 66 · see citing works
Self-citationMaddox, B. B., Dickson, K. S., Stadnick, N. A., Mandell, D. S., & Brookman-Frazee, L. I. (2021) · Current Psychiatry Reports · doi:10.1007/s11920-021-01278-0 · Cited by 57 · see citing works
Self-citationHealth Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement
Weitzman, C. C., Nadler, C. B., Blum, N. J., Augustyn, M. C., & Panel, S. A. F. E. C. (2024) · PEDIATRICS · doi:10.1542/peds.2023-063809 · Cited by 38 · see citing works
Broder‐Fingert, S., Kuhn, J., Sheldrick, R. C., Chu, A., Fortuna, L. R., Jordan, M., Rubin, D., & Feinberg, E. (2019) · Trials · doi:10.1186/s13063-019-3853-y · Cited by 35 · see citing works
Self-citationBarnett, M. L., Kia‐Keating, M., Ruth, A. B., & Garcia, M. G. (2020) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000320 · Cited by 33 · see citing works
Feinberg, E., Kuhn, J., Eilenberg, J. S., Levinson, J., Patts, G. J., Cabral, H., & Broder‐Fingert, S. (2020) · Academic Pediatrics · doi:10.1016/j.acap.2020.04.007 · Cited by 31 · see citing works
Self-citationHickey, E. J., Stransky, M., Kuhn, J., Rosenberg, J. E., Cabral, H. J., Weitzman, C., Broder-Fingert, S., & Feinberg, E. (2021) · Autism · doi:10.1177/13623613211001611 · Cited by 22 · see citing works
Self-citationCoffield, C. N., Spitalnik, D. M., Harris, J. F., & Jimenez, M. E. (2021) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000965 · Cited by 22 · see citing works
Effect of Family Navigation on Participation in Part C Early Intervention
Feinberg, E., Stransky, M. L., Augustyn, M. C., Broder‐Fingert, S., Bennett, A. E., Weitzman, C. C., Kuhn, J., Chu, A., Cabral, H., Fenick, A. M., et al. (2023) · Academic Pediatrics · doi:10.1016/j.acap.2023.03.013 · Cited by 19 · see citing works
Self-citationRoseen, E. J., Natrakul, A., Kim, B., & Broder‐Fingert, S. (2024) · Implementation Science Communications · doi:10.1186/s43058-024-00642-4 · Cited by 20 · see citing works
Self-citationKuhn, J., Levinson, J., Udhnani, M. D., Wallis, K. E., Hickey, E., Bennett, A. E., Fenick, A. M., Feinberg, E., & Broder‐Fingert, S. (2021) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000928 · Cited by 17 · see citing works
Self-citationYaseen, W., Steckle, V., Sgro, M. D., Barozzino, T., & Suleman, S. (2021) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000924 · Cited by 16 · see citing works
Burke, M. M., Cheung, W. C., & Kim, J. (2023) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-61.5.426 · Cited by 16 · see citing works
A Pilot Study of a Co-parenting Intervention for Parents of Children with Autism Spectrum Disorder
Hock, R., Rovane, A. K., Feinberg, M. E., Jones, D. E., & Holbert, A. A. (2022) · Journal of Child and Family Studies · doi:10.1007/s10826-022-02278-1 · Cited by 15 · see citing works
Burke, M. M., Johnston, A. N., Cheung, W. C., Li, C., Monárrez, E., & Aleman‐Tovar, J. (2023) · Journal of Developmental and Physical Disabilities · doi:10.1007/s10882-023-09906-8 · Cited by 14 · see citing works
Levinson, J., Hickey, E., Fuchu, P., Chu, A., Barnett, M. L., Stadnick, N. A., Feinberg, E., & Broder‐Fingert, S. (2023) · BMC Family Practice · doi:10.1186/s12875-023-02072-y · Cited by 13 · see citing works
Self-citationLi, C., Cheung, W. C., Burke, M. M., Taylor, J. L., & DaWalt, L. S. (2024) · Autism · doi:10.1177/13623613231221126 · Cited by 12 · see citing works
The influence of loss to follow‐up in autism screening research: Taking stock and moving forward
Sheldrick, R. C., Hooker, J. L., Carter, A. S., Feinberg, E., Croen, L., Kuhn, J., Slate, E. H., & Wetherby, A. M. (2023) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13867 · Cited by 12 · see citing works
Self-citationEarly Childhood Care Coordination Through 211: A Randomized Clinical Trial
Nelson, B. B., Dudovitz, R. N., Thompson, L. R., Vangala, S., Zevallos-Roberts, E., Gulsrud, A., Porras-Javier, L., Romley, J. A., Herrera, P., Aceves, I., et al. (2024) · Pediatrics · doi:10.1542/peds.2023-065232 · Cited by 9 · see citing works
Adapting Community Health Worker Care Models to Advance Mental Health Services Among LGBTQ Youth
Barnett, M. L., Salem, H., Rosas, Y. G., Feinberg, E., Nunez-Pepen, R., Chu, A., Belmont-Ryu, H., Matsuno, E. G., & Broder‐Fingert, S. (2023) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-023-01268-9 · Cited by 12 · see citing works
Self-citationMental Health Care Needs and Access to Care for Adults With Intellectual Disabilities
Frazier, J. A., Hanratty, L. A., & Weinstock, A. K. (2024) · Medical Care · doi:10.1097/mlr.0000000000002089 · Cited by 8 · see citing works
Keehn, R. M., Enneking, B. A., Ramaker, M., Goings, M. J., Yang, Z., Carroll, A. E., & Ciccarelli, M. R. (2020) · Frontiers in Pediatrics · doi:10.3389/fped.2020.538633 · Cited by 8 · see citing works
Mazurek, M. O., Nevill, R. E. A., Orlando, K. G., Page, K. D., Howard, M., & Davis, B. E. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06445-9 · Cited by 8 · see citing works
Kuhn, J., Sheldrick, R. C., Broder‐Fingert, S., Chu, A., Fortuna, L. R., Jordan, M., Rubin, D., & Feinberg, E. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0883-9 · Cited by 7 · see citing works
Self-citationDir, A. L., Pederson, C. A., Khazvand, S., Schwartz, K., Wiehe, S. E., & Aalsma, M. C. (2023) · Health & Justice · doi:10.1186/s40352-023-00231-y · Cited by 7 · see citing works
Family Navigation Programs for Children With Autism Spectrum Disorder: A Scoping Review
Li, F. R., Li, Q., Shen, Q., Zhang, X., Leng, H., Liu, Y., & Zheng, X. (2025) · PEDIATRICS · doi:10.1542/peds.2024-067947 · Cited by 6 · see citing works
Li, C., Burke, M. M., Taylor, J. L., DaWalt, L. S., & Rossetti, Z. (2024) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-62.6.486 · Cited by 6 · see citing works
Development and utility of the Family-Centered Autism Navigation interview
Pizur‐Barnekow, K., Lang, A. C., & Barger, B. D. (2020) · Autism · doi:10.1177/1362361320972890 · Cited by 5 · see citing works
Godoy, L., Williams, R., Druskin, L. R., Fleece, H. M., Bergen, S., Avent, G., Robb, A. S., Biel, M. G., Wissow, L. S., BEERS, L. S., et al. (2024) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-023-09987-9 · Cited by 5 · see citing works
Price, M. A., Barnett, M. L., Cerezo, A., Broder‐Fingert, S., & Matsuno, E. G. (2023) · Children and Youth Services Review · doi:10.1016/j.childyouth.2023.107356 · Cited by 5 · see citing works
Self-citationChristianson‐Barker, J., Lomness, A., Youssef, N., Yaghi, D., Ng, F., Hockman, L., Mills, R., & Hole, R. (2025) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.70101 · Cited by 3 · see citing works
Family Impact During the Time Between Autism Screening and Definitive Diagnosis
Hickey, E., Feinberg, E., Kuhn, J., Cabral, H., & Broder‐Fingert, S. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05354-5 · Cited by 4 · see citing works
Self-citationAttar, S. M., Benavidez, H. R., Gicheru, C., Alabi, C., Sapano, R., & Stone, W. L. (2025) · Autism · doi:10.1177/13623613251335702 · Cited by 14 · see citing works
Sutcliffe, K., & Kneale, D. (2025) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2025.105144 · Cited by 3 · see citing works
Xu, Y., Xiao, Z., & Vanegas, S. B. (2024) · Journal of Developmental and Physical Disabilities · doi:10.1007/s10882-024-09948-6 · Cited by 4 · see citing works
Challenging Case: Family Navigation for Autism Spectrum Disorder
Lin, I. Y., Stahmer, A. C., Feinberg, E., Feldman, H. M., Deras, M. J., & Augustyn, M. C. (2024) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000001322 · Cited by 3 · see citing works
Self-citationPrimary Care Pediatricians’ Referral Decisions for Autism in Early Childhood: A Systematic Review
Attar, S. M., Scott, S., Chiu, M., Broder‐Fingert, S., & Stone, W. L. (2026) · PEDIATRICS · doi:10.1542/peds.2024-069168 · Cited by 3 · see citing works
Self-citationNavigating Adult Disability Services by Latino Families of Youth with Autism
Espinosa, G. H., Burke, M. M., & Hodapp, R. M. (2025) · Journal of Developmental and Physical Disabilities · doi:10.1007/s10882-025-10019-7 · Cited by 2 · see citing works
Stadnick, N. A., Martinez, K., Navarro, F. J. C., Gomez-Patino, P., Holmquist, K. J., Negriff, S. L., Roesch, S. C., Bouchard, I., Walpole, S., Espinosa, R., et al. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06851-7 · Cited by 1 · see citing works
Self-citationPreliminary Efficacy of Telehealth Family Navigation for Early Autism Services Access
Zuckerman, K. E., Reinitz, M. O., Solgi, M., Feryn, A. B., Tae, M., Cavanaugh, P., Raja-Vora, J., & Fombonne, E. J. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-07189-w · Cited by 1 · see citing works
Yu, X., Honey, A., & Barton, R. (2026) · Disability and Rehabilitation · doi:10.1080/09638288.2026.2616390 · Cited by 1 · see citing works
Lin, I. Y., Morgan, A. C., Stave, C. D., Feldman, H. M., & Huffman, L. C. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06798-9 · Cited by 1 · see citing works
Bouchard, I., Martinez, K., Gomez-Patino, P., Navarro, F. J. C., Brookman-Frazee, L. I., Holmquist, K. J., Negriff, S. L., Barnett, M. L., Broder‐Fingert, S., & Stadnick, N. A. (2025) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-025-01452-z · Cited by 1 · see citing works
Self-citationMezher, K. R., Shahidullah, J. D., & McClain, M. B. (2020) · Springer eBooks · doi:10.1007/978-3-030-46295-6_27
Use of English exercices for advanced learners
García, M. L. C., & Pérez-Paredes, P. (2001) · Dialnet (Universidad de la Rioja)
Attar, S. M., Benavidez, H. R., Gicheru, C., Alabi, C., Sapano, R., & Stone, W. L. (2026) · Autism · doi:10.1177/13623613261469915
Burke, M. M., Joshi, B., Smith, B. C., Goldman, S. E., & Gesel, S. A. (2026) · International review of research in developmental disabilities · doi:10.1016/bs.irrdd.2026.07.002
Kollia, B., Fantaoutsaki, E. A., Moraiti, P., Tzormabatzaki, E., Nanousi, V., & Georgopoulos, V. C. (2026) · Psychiatry International · doi:10.3390/psychiatryint7050197
Muathen, S. H. (2026) · Child and Adolescent Social Work Journal · doi:10.1007/s10560-026-01193-4
- Authors
- Broder-Fingert, S., Stadnick, N. A., Hickey, E., Goupil, J., Diaz Lindhart, Y., & Feinberg, E.
- Affiliations
- Division of General Pediatrics, Department of Pediatrics, Boston Medical Center, Boston University School of Medicine, Boston, MA, USA
- University of California San Diego (US)
- Boston University (US)
- The Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2019-07-16
- Volume
- 24
- Issue
- 2
- Pages
- 526-530
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- PMC
- PMC6962571
- OpenAlex
- W2958222600
- Cited by
- 50
- References
- 16
- Citations by year
- 2026: 6 · 2025: 9 · 2024: 10 · 2023: 8 · 2022: 1 · 2021: 8 · 2020: 5 · 2019: 2
- FWCI
- 2.33
- Type
- journal article
- Language
- en
- Open access
- green
- europepmc.org
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- National Institute of Mental Health (K23 MH109673, R01MH104355)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Keywords
- family navigation, autism spectrum disorder, health care disparities, intervention fidelity
- MeSH terms
- Autism Spectrum Disorder, Case Managers, Communication, Communication Barriers, Family, Humans, Social Support, Case Management, Healthcare Disparities, Patient Navigation, Culturally Competent Care
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review