The Relationship Between “What We Believe” and “How We Care” Among Daughters Caring for a Parent With Dementia
Open accessAbstract
This study attempted to better understand factors associated with relationship conflict between daughters and their parents with dementia. We examined data from 77 daughters self-identified as primary caregivers of a parent with dementia to test the hypothesis that daughters' belief that a parent with dementia can control their symptoms is associated with more conflict, defined as high expressed emotion (EE). Participants completed self-report questionnaires assessing beliefs about parents' ability to control symptoms, stress, relationship conflict, parent agitation, and cognitive status. Results indicated that greater intensity of daughters' belief that their parent can control dementia-related symptoms was associated with more relationship conflict or "high EE" (β = 0.57, P < .001). Daughters' beliefs about parental behavior may contribute to caregiver stress and exacerbate negative behaviors exhibited by individuals with dementia. Educating caregivers about parental behaviors and examining factors underlying caregiver interpretations of these behaviors hold promise for reducing caregiver stress.
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Dysfunctional interpretations of dementia symptoms may negatively influence caregiver-care recipient interaction and caregiver mental health.
“Dysfunctional interpretations of dementia symptoms may negatively influence the interaction between caregiver and care recipient, as well as caregiver mental health (Chen et al., Citation2017; Paton et al., Citation2004).”
From How do care-related beliefs contribute to depression and anxiety in family caregivers of people with dementia? Testing a cognitive vulnerability-stress model. (2025) · cites this paper as Chen et al., 2017
Cites
A new scale of social desirability independent of psychopathology.
Crowne, D. P., & Marlowe, D. (1960) · Journal of Consulting Psychology · doi:10.1037/h0047358 · Cited by 8,686 · see citing works
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810 · see citing works
Expressed Emotion and Psychiatric Relapse: A Meta-analysis
Butzlaff, R. L., & Hooley, J. M. (1998) · Archives of General Psychiatry · doi:10.1001/archpsyc.55.6.547 · Cited by 1,310 · cited 2× · see citing works
“Furthermore, high EE is a robust predictor of relapse and escalating symptomatology in a variety of disorders.(6) For caregivers of individuals with dementia, high EE has been related to greater caregiver distress and greater care recipient aggression, anger, and tendency to wander.”
BackgroundCaregiver burden among dementia patient caregivers: A review of the literature
Etters, L., Goodall, D., & Harrison, B. E. (2008) · Journal of the American Academy of Nurse Practitioners · doi:10.1111/j.1745-7599.2008.00342.x · Cited by 1,112 · see citing works
Agitated Behaviors in the Elderly: II. Preliminary Results in the Cognitively Deteriorated
Cohen‐Mansfield, J. (1986) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1986.tb04303.x · Cited by 649 · see citing works
Influence of Family Life on the Course of Schizophrenic Illness
Brown, G. W., Monck, E., CARSTAIRS, G. M., & Wing, J. K. (1962) · Journal of Epidemiology & Community Health · doi:10.1136/jech.16.2.55 · Cited by 578 · see citing works
Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004) · American Journal of Psychiatry · doi:10.1176/appi.ajp.161.5.850 · Cited by 385 · see citing works
Attributions and expressed emotion: A review
Barrowclough, C., & Hooley, J. M. (2003) · Clinical Psychology Review · doi:10.1016/s0272-7358(03)00075-8 · Cited by 341 · see citing works
Attitudes, Stress, and Satisfaction of Staff Who Care for Residents With Dementia
Zimmerman, S. I., Williams, C. S., Reed, P. S., Boustani, M. A., Preisser, J. S., Heck, E., & Sloane, P. D. (2005) · The Gerontologist · doi:10.1093/geront/45.suppl_1.96 · Cited by 286 · see citing works
Hartmaier, S. L., Sloane, P. D., Guess, H. A., & Koch, G. G. (1994) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1994.tb06984.x · Cited by 276 · see citing works
Mittelman, M. S., Roth, D. L., Haley, W. E., & Zarit, S. H. (2004) · The Journals of Gerontology Series B · doi:10.1093/geronb/59.1.p27 · Cited by 248 · see citing works
Response Bias in Surveys of Mental Health: An Empirical Investigation
Gove, W. R., & Geerken, M. R. (1977) · American Journal of Sociology · doi:10.1086/226466 · Cited by 235 · see citing works
Expressed emotion: A review of the critical literature
Hooley, J. M. (1985) · Clinical Psychology Review · doi:10.1016/0272-7358(85)90018-2 · Cited by 229 · see citing works
US Prevalence And Predictors Of Informal Caregiving For Dementia
Friedman, E. M., Shih, R. A., Langa, K. M., & Hurd, M. D. (2015) · Health Affairs · doi:10.1377/hlthaff.2015.0510 · Cited by 227 · see citing works
Understanding Major Mental Disorder: The Contribution of Family Interaction Research
Borduin, C. M., & Blaske, D. M. (1988) · American Journal of Psychotherapy · doi:10.1176/appi.psychotherapy.1988.42.3.493 · Cited by 223 · see citing works
Determinants of Expressed Emotion in Families of Disturbed and Normal Children
Hibbs, E. D., Hamburger, S. D., Lenane, M., Rapoport, J. L., Kruesi, M. J. P., Keysor, C. S., & Goldstein, M. J. (1991) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.1991.tb01900.x · Cited by 212 · see citing works
Spruytte, N., Audenhove, C. V., Lammertyn, F., & Storms, G. (2002) · Psychology and Psychotherapy Theory Research and Practice · doi:10.1348/147608302320365208 · Cited by 171 · see citing works
Is Expressed Emotion an Index of a Transactional Process? I. Parents' Affective Style
Miklowitz, D. J., Goldstein, M. J., Doane, J. A., Nuechterlein, K. H., STRACHAN, A. M., Snyder, K. S., & Magana-Amato, A. (1989) · Family Process · doi:10.1111/j.1545-5300.1989.00153.x · Cited by 103 · see citing works
Tarrier, N., Barrowclough, C., Ward, J., Donaldson, C., Burns, A. S., & Gregg, L. (2002) · Journal of Abnormal Psychology · doi:10.1037/0021-843x.111.2.340 · Cited by 100 · see citing works
Daughters of People with Dementia Expressed Emotion, Strain and Coping
Bledin, K., MacCarthy, B., Kuipers, L., & Woods, B. T. (1990) · The British Journal of Psychiatry · doi:10.1192/bjp.157.2.221 · Cited by 94 · see citing works
Proctor, R., Martin, C., & Hewison, J. (2002) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.762 · Cited by 71 · see citing works
Comparisons of two expressed emotion scales with the Camberwell family interview
Kazarian, S. S., MALLA, A. K., Baker, B., & Cole, J. D. (1990) · Journal of Clinical Psychology · doi:10.1002/1097-4679(199005)46:3 · Cited by 68 · see citing works
Living with dementia: Community care of the elderly mentally infirm
Vince, M. J. (1985) · International Journal of Nursing Studies · doi:10.1016/0020-7489(85)90013-6 · Cited by 59 · see citing works
Chambless, D., Bryan, A. D., Aiken, L. S., Steketee, G. S., & Hooley, J. M. (2001) · Journal of Family Psychology · doi:10.1037//0893-3200.15.2.225 · Cited by 58 · see citing works
Kuipers, L., Sturgeon, D., Berkowitz, R., & Leff, J. (1983) · British Journal of Clinical Psychology · doi:10.1111/j.2044-8260.1983.tb00612.x · Cited by 48 · see citing works
Screening for postpartum depression: A methodological note
Whiffen, V. E. (1988) · Journal of Clinical Psychology · doi:10.1002/1097-4679(198805)44:3 · Cited by 47 · see citing works
Dementia behavioural and psychiatric symptoms: effect on caregiver's sleep
Simpson, C., & Carter, P. A. (2013) · Journal of Clinical Nursing · doi:10.1111/jocn.12127 · Cited by 44 · see citing works
Expressed Emotion in relatives of persons with dementia: a systematic review and meta-analysis
Safavi, R., Berry, K., & Wearden, A. J. (2015) · Aging & Mental Health · doi:10.1080/13607863.2015.1111863 · Cited by 42 · see citing works
Auclair, U., Epstein, C., & Mittelman, M. S. (2009) · Clinical Gerontologist · doi:10.1080/07317110802676809 · Cited by 39 · see citing works
Karanci, A. N., & İnandılar, H. (2002) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s127-002-8219-1 · Cited by 33 · see citing works
Wasserman, S., de Mamani, A. W., & Suro, G. (2012) · Psychiatry Research · doi:10.1016/j.psychres.2011.08.009 · Cited by 32 · see citing works
Parent Coping Styles and Schizophrenic Patient Behavior as Predictors of Expressed Emotion*
Hall, M. J., & Docherty, N. M. (2000) · Family Process · doi:10.1111/j.1545-5300.2000.39404.x · Cited by 28 · see citing works
Couples Counseling in Alzheimer's Disease
Epstein, C., Auclair, U., & Mittelman, M. S. (2007) · Clinical Gerontologist · doi:10.1300/j018v30n02_03 · Cited by 27 · see citing works
Chen, C. K., Waters, H. S., Hartman, M., Zimmerman, S. I., Miklowitz, D. J., & Waters, E. (2013) · Attachment & Human Development · doi:10.1080/14616734.2013.782658 · Cited by 24 · see citing works
Self-citationWasserman, S., Weisman, A., & Suro, G. (2013) · Mental Health, Religion & Culture · doi:10.1080/13674676.2011.642347 · Cited by 18 · see citing works
Chan, B. (2010) · Social Work in Mental Health · doi:10.1080/15332980903539971 · Cited by 13 · see citing works
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Cited by
Sorted by citations
Teichmann, B., Γκιόκα, Μ., Kruse, A., & Tsolaki, M. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-215731 · Cited by 41 · see citing works
Polenick, C. A., Struble, L. M., Stanislawski, B., Turnwald, M., Broderick, B. M., Gitlin, L. N., & Kales, H. C. (2017) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2017.12.004 · Cited by 29 · see citing works
The dyadic relationship of family carers and people living with dementia – an umbrella review
Hochgraeber, I., Köhler, K., Stocker, H. R., & Holle, B. (2023) · Aging & Mental Health · doi:10.1080/13607863.2023.2215191 · Cited by 15 · see citing works
Tan, E. Y. L., de Vugt, M. E., Deckers, K., Schols, J. M. G. A., & Verhey, F. R. J. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-046869 · Cited by 10 · see citing works
Relationship continuity and person-centred care in how spouses make sense of challenging care needs
Riley, G. A., Achiampong, J., Hillberg, T., & Oyebode, J. R. (2018) · Aging & Mental Health · doi:10.1080/13607863.2018.1531380 · Cited by 8 · see citing works
Research on caregiver stress: time for integration and application
Podgorski, C. A. (2018) · International Psychogeriatrics · doi:10.1017/s1041610218001035 · Cited by 8 · see citing works
Wrede, N., Töpfer, N. F., Risch, A. K., & Wilz, G. (2025) · Aging & Mental Health · doi:10.1080/13607863.2024.2386079 · Cited by 6 · see citing works
“Dysfunctional interpretations of dementia symptoms may negatively influence the interaction between caregiver and care recipient, as well as caregiver mental health (Chen et al., 2017; Paton et al., 2004).”
Fleisher, J. E., Akram, F., Lee, J., Klostermann, E. C., Hess, S., Myrick, E., Levin, M. E., Ouyang, B., Wilkinson, J. R., Hall, D. A., et al. (2022) · JMIR Research Protocols · doi:10.2196/34750 · Cited by 6 · see citing works
Self-citationBushell, D., Jones, C., & Moro, C. (2023) · Frontiers in Dementia · doi:10.3389/frdem.2023.1156863 · Cited by 2 · see citing works
Impacto do Transtorno Neurocognitivo na Família
da Silva, M. S. G. O., de Sá, L. O., & Marques, G. F. D. S. (2019) · Revista Paulista de Enfermagem · doi:10.33159/25959484.repen.2019v30a4 · Cited by 2 · see citing works
Expressed Emotion in Families of People With Dementia: A Review of Scale-Based Measures
Liu, X., Mo, W., Takiue, K., Kanaya, R., Takeya, Y., Koujiya, E., & Yamakawa, M. (2024) · Journal of Gerontological Nursing · doi:10.3928/00989134-20240110-03 · Cited by 1 · see citing works
A hozzátartozó nehézségei a demenciával élő rokon ápolása során
Kerek, S. Ö., & Staller, J. (2022) · Nővér · doi:10.55608/nover.35.0015 · Cited by 1 · see citing works
Neuropsychiatric symptoms in dementia
Tan, E. Y. L. (2022) · doi:10.26481/dis.20221104et · Cited by 1 · see citing works
- Authors
- Chen, C. K., Clayton, K., & Chodosh, J.
- Affiliations
- VA NY Harbor Healthcare System (US)
- Corresponding author
- Chen, Cory K.
- Venue
- American Journal of Alzheimer's Disease & Other Dementias®
- Publisher
- SAGE Publications
- Published
- 2017-01-24
- Volume
- 32
- Issue
- 2
- Pages
- 90-95
- ISSN
- 0888-4897 (ISSN-L)
- 1533-3175
- 1938-2731
- PMC
- PMC10852901
- OpenAlex
- W2580190171
- Cited by
- 13
- References
- 36
- Citations by year
- 2024: 2 · 2023: 2 · 2022: 4 · 2021: 1 · 2019: 1 · 2018: 2 · 2017: 1
- FWCI
- 0.90
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- American Journal of Alzheimer s Disease & Other Dementias® (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Health Services Research and Development (CDA-2-10-023)
- National Institutes of Health
- National Institute on Aging (T32AG000272)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia caregiving, relationship conflict, expressed emotion, caregiver beliefs, caregiver stress, intergenerational caregiving, caregiver education
- MeSH terms
- Adult, Aged, Aged, 80 and over, Dementia, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Nuclear Family, Parent-Child Relations, Caregivers, Expressed Emotion, Adult Children
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