Why people living with and beyond cancer use the Internet
Open accessAbstract
People living with and beyond cancer suffer with a wide range of physical and psychological symptoms. To manage the challenges associated with cancer, patients use a variety of self-management resources, including the Internet. People living with and beyond cancer use the Internet to make decisions regarding their self-care, through information provision, online communities, and support groups. Using the Internet may empower patients, enabling them to feel they have the required knowledge to discuss complementary and alternative treatment options with their health care team. Patients use the Internet because of its practicality; however, there are also several barriers affecting patients with cancer using the Internet, such as lack of information technology skills, lack of computer access, and concerns over the quality of information. Health care professionals need to be aware that the information available on the Internet plays a factor in the decision-making processes regarding using complementary and alternative medicine for self-management. With the use of the Internet as a tool for self-management continuing to grow, it is recommended that more emphasis is placed on health care professionals discussing the role the Internet plays in the decision-making process, to further support their patients regarding self-management for living with and beyond cancer.
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A German survey analysing the internet literacy of patients with cancer determined that while no significant differences regarding gender or age were seen, most of the patients with cancer were younger than 70 years old.
“We defined age of more than 65 years as an exclusion criterion because a German survey analysing the internet literacy of patients with cancer determined that while no significant differences regarding gender or age were seen, most of the patients with cancer were younger than 70 years old.”
From Web-based mindfulness and skills-based distress reduction for patients with cancer: study protocol of the multicentre, randomised, controlled confirmatory intervention trial Reduct (2022) · cites this paper as [33]
The review’s study table (section labeled Abstract; page unavailable) identifies a German questionnaire survey of 255 cancer patients and reports a mean age of 63.5 years. It does not report that most participants were younger than 70 or that there were no significant differences by gender or age; a mean below 70 does not establish the claimed majority. (LLM, conf=0.84)
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Khan, Z. M., Ahmed, R., & Sen, D. (2021) · IGI Global eBooks · doi:10.4018/978-1-7998-8954-0.ch094
How Do Mobile Applications for Cancer Communicate About Their Privacy Practices?
Khan, Z. M., Ahmed, R., & Sen, D. (2021) · IGI Global eBooks · doi:10.4018/978-1-7998-8545-0.ch037
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Digital Information Needs of Older Adult Cancer Survivors (Preprint)Preprint
Newton, L. J., Monkman, H., & Fullerton, C. (2024) · doi:10.2196/preprints.59391
Melanoma Survivor Narratives: Stories that Matter
Suganthan, P., & Banerjee, S. C. (2024) · doi:10.22186/jyi.27.7.1.1
“Cancer patients may use the Internet for information about their diagnosis, advice or insight from others’ experiences, and support or social interaction (Holmes, 2019).”
BackgroundEvaluation of e-health literacy and cancer needs in oncology patients
Güven, B. N., & Başak, S. (2025) · Journal of Medicine and Palliative Care · doi:10.47582/jompac.1787427
Bringing lung cancer above ground through storytelling: Creating a lung cancer advocacy network
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“In turn, these networks address cancer stigma by promoting awareness and engagement [8,17], and can improve medical and psychosocial outcomes for those with cancer [17-19].”
Quansah, A. G., & Wu, Q. (2026) · Patient Education and Counseling · doi:10.1016/j.pec.2026.109753
Anand, R., Semple, C. J., Strutt, L., Paul, S., & Hanna, J. R. (2026) · PLOS Digital Health · doi:10.1371/journal.pdig.0001493
Nurturing connections: Patient insights on online resources for cancer information and support
Knoppers, T., Bouhouita-Guermech, S., Bonilha, A. E., Voutsinas, A., Cosquer, M., & Zawati, M. H. (2026) · Digital Health · doi:10.1177/20552076261475254
Odumegwu, J. N., Peprah, E. K., Barth, J., Goodman, M. S., & Kaphingst, K. A. (2026) · Healthcare · doi:10.3390/healthcare14203437
“Many patients and caregivers search online for cancer-related guidance, from symptoms and treatment to survivorship and support [13–15].”
- Authors
- Holmes, M. M.
- Affiliations
- University of Southampton (GB)
- Corresponding author
- Holmes, Michelle Marie
- Venue
- Integrative Cancer Therapies
- Publisher
- SAGE Publications
- Published
- 2019-01
- Volume
- 18
- Pages
- 1534735419829830-1534735419829830
- ISSN
- 1534-7354 (ISSN-L)
- 1552-695X
- PMC
- PMC6432669
- OpenAlex
- W2912967740
- Cited by
- 52
- References
- 43
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 13 · 2023: 6 · 2022: 3 · 2021: 7 · 2020: 7 · 2019: 2
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Integrative Cancer Therapies (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- ePrints Soton (University of Southampton) (acceptedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Complementary and alternative medicine › Complementary and Alternative Medicine Studies
- Keywords
- cancer survivors, internet use, self-management, online health information, online communities, support groups, complementary and alternative medicine, patient empowerment, barriers to internet use, decision-making
- MeSH terms
- Decision Making, Health Personnel, Humans, Neoplasms, Self Care, Stress, Psychological, Internet
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