Revisiting the online health information reliability debate in the wake of “web 2.0”: an inter-disciplinary literature and website review
Abstract
Purpose The purpose of this inter-disciplinary literature review was to explore renewed concerns about the reliability of online health information in light of the increasing popularity of web applications that enable more end-user-generated content ("web 2.0").Methods The findings are based on a literature and web review. Literature was collected at four different points between October 2006 and October 2008 and included 56 sources from 10 academic disciplines. The web review consisted of following 6 blogs (including both new and archived posts, with comments) and one wiki for a period of 1.5 months and assessing the content for relevancy on six points, totaling 63 sources altogether.Results The reliability issues that are identified with respect to "web 2.0" reiterate more general concerns expressed about the web over the last 15 years. The difference, however, lies in the scope and scale of potential problems. Social scientists have also pointed to new issues that can be especially relevant for use of web 2.0 applications in health care. Specific points of renewed concern include: disclosure of authorship and information quality, anonymity and privacy, and the ability of individuals to apply information to their personal situation. Whether or not end-users understand what social scientists call "negative network externalities" is a new concern. Finally, not all reliability issues are negative-social networking and the shift from text-based information to symbolic information, images or interactive information, are considered to enhance patient education and to provide opportunities to reach diverse groups of patients.Conclusions Interactive and collaborative web applications undeniably offer new opportunities for reaching patients and other health care consumers by facilitating lay information creation, sharing and retrieval. However, researchers must be careful and critical when incorporating applications or practices from other fields in health care. We must not easily dismiss concerns about reliability as outdated. Specific issues related to use of newly popular web applications for health purposes must be addressed. Nonetheless, the articles reviewed here also clearly show that potential problems can be addressed and the positive aspects of the technologies embraced.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Traditional websites can have similar issues, but social media lets anyone download information regardless of user or quality, so it spreads quickly online.
“Similar problems may be encountered with traditional websites, however, social media tools allow people to download information, regardless of who the user and what the quality of the information is, resulting in its rapid dissemination online.22”
From Social media and Internet usage of orthopaedic surgeons (2017) · cites this paper as [22]
Cites
4 What Is Web 2.0? Design Patterns and Business Models for the Next Generation of Software
O’Reilly, T. (2012) · New York University Press eBooks · doi:10.18574/nyu/9780814764077.003.0008 · Cited by 5,623 · see citing works
Blogs, Wikipedia, Second Life, and beyond: from production to produsage
(2009) · Choice Reviews Online · doi:10.5860/choice.46-2978 · Cited by 2,063 · see citing works
What is Web 2.0? Ideas, technologies and implications for education
Anderson, P. F. (2007) · Cited by 1,182 · see citing works
Boulos, M. N. K., Maramba, I. D. C., & Wheeler, S. (2006) · BMC Medical Education · doi:10.1186/1472-6920-6-41 · Cited by 1,154 · see citing works
Medicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness
Eysenbach, G. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1030 · Cited by 1,143 · see citing works
Digital Media, Youth, and Credibility
Metzger, M. J., & Flanagin, A. J. (2007) · Cited by 1,036 · see citing works
Nardi, B. A., Schiano, D. J., Gumbrecht, M., & Swartz, L. (2004) · Communications of the ACM · doi:10.1145/1035134.1035163 · Cited by 968 · see citing works
Bridging the gap: a genre analysis of Weblogs
Herring, S. C., Scheidt, L. A., Bonus, S., & Wright, E. (2004) · Hawaii International Conference on System Sciences (HICSS) · doi:10.1109/hicss.2004.1265271 · Cited by 901 · see citing works
Boulos, M. N. K., & Wheeler, S. (2007) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2007.00701.x · Cited by 894 · see citing works
The Cult of the Amateur: How Today's Internet Is Killing Our Culture
Keen, A. (2007) · Cited by 668 · see citing works
Proceedings of 48th Hawaii International Conference on System Sciences (HICSS)
Pöyry, E., Parvinen, P. M. T., & McFarland, R. (2015) · Cited by 643 · see citing works
Key differences between Web 1.0 and Web 2.0
Cormode, G., & Krishnamurthy, B. (2008) · First Monday · doi:10.5210/fm.v13i6.2125 · Cited by 640 · see citing works
Impicciatore, P., Pandolfini, C., Casella, N., & Bonati, M. R. (1997) · BMJ · doi:10.1136/bmj.314.7098.1875 · Cited by 622 · see citing works
Herring, S. C., Scheidt, L. A., Wright, E., & Bonus, S. (2005) · Information Technology and People · doi:10.1108/09593840510601513 · Cited by 592 · see citing works
Frost, J. H., & Massagli, M. P. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1053 · Cited by 533 · see citing works
Infodemiology: the epidemiology of (mis)information
Eysenbach, G. (2002) · The American Journal of Medicine · doi:10.1016/s0002-9343(02)01473-0 · Cited by 527 · see citing works
Blogging as social activity, or, would you let 900 million people read your diary?
Nardi, B. A., Schiano, D. J., & Gumbrecht, M. (2004) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/1031607.1031643 · Cited by 514 · see citing works
Henwood, F., Wyatt, S., Hart, A., & Smith, J. M. (2003) · Sociology of Health & Illness · doi:10.1111/1467-9566.00360 · Cited by 469 · see citing works
Online social networking as participatory surveillance
Albrechtslund, A. (1969) · First Monday · doi:10.5210/fm.v13i3.2142 · Cited by 466 · see citing works
Eysenbach, G., Gray, J. A. M., Bonati, M., Arunachalam, S., Diepgen, T. L., Impicciatore, P., & Pandolfini, C. (1998) · BMJ · doi:10.1136/bmj.317.7171.1496 · Cited by 461 · see citing works
Meric, F. (2002) · BMJ · doi:10.1136/bmj.324.7337.577 · Cited by 320 · see citing works
How Web 2.0 is changing medicine
Giustini, D. (2006) · BMJ · doi:10.1136/bmj.39062.555405.80 · Cited by 315 · see citing works
On the "localness" of user-generated content
Hecht, B. J., & Gergle, D. (2010) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/1718918.1718962 · Cited by 311 · see citing works
Bernstam, E. V., Shelton, D. M., Walji, M. F., & Meric‐Bernstam, F. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2004.10.001 · Cited by 261 · see citing works
Nettleton, S., Burrows, R., & O'Malley, L. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00466.x · Cited by 259 · see citing works
How blogging software reshapes the online community
Blood, R. (2004) · Communications of the ACM · doi:10.1145/1035134.1035165 · Cited by 246 · see citing works
Health 2.0 and Medicine 2.0: Tensions and Controversies in the Field
Hughes, B., Joshi, I., & Wareham, J. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1056 · Cited by 221 · see citing works
Peterson, G., Aslani, P., & Williams, K. A. (2003) · Journal of Medical Internet Research · doi:10.2196/jmir.5.4.e33 · Cited by 218 · see citing works
The Wisdom of Patients: Health Care Meets Online Social Media
Sarasohn-Kahn, J. (2008) · Issue Lab (Candid) · Cited by 213 · see citing works
Promoting partnerships: challenges for the internet age
Jadad, A. (1999) · BMJ · doi:10.1136/bmj.319.7212.761 · Cited by 189 · see citing works
McLean, R., Richards, B. H., & Wardman, J. I. (2007) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2007.tb01180.x · Cited by 179 · see citing works
Credibility of Health Information and Digital Media: New Perspectives and Implications for Youth
Eysenbach, G. (2007) · TSpace (University of Toronto) · Cited by 178 · see citing works
Market Ideology and the Myths of Web 2.0
Scholz, T. R. (1969) · First Monday · doi:10.5210/fm.v13i3.2138 · Cited by 160 · see citing works
Loser Generated Content: From Participation to Exploitation
Petersen, S. M. (1969) · First Monday · doi:10.5210/fm.v13i3.2141 · Cited by 152 · see citing works
Interactivity is Evil! A critical investigation of Web 2.0
Jarrett, K. (1969) · First Monday · doi:10.5210/fm.v13i3.2140 · Cited by 122 · see citing works
Zimmer, M. T. (2008) · First Monday · doi:10.5210/fm.v13i3.2136 · Cited by 118 · see citing works
Proceedings of the 2004 ACM conference on Computer supported cooperative work
Herbsleb, J., & Olson, G. M. (2004) · doi:10.1145/1031607 · Cited by 117 · see citing works
Six degrees of reputation: The use and abuse of online review and recommendation systems
David, S., & Pinch, T. (2006) · First Monday · doi:10.5210/fm.v11i3.1315 · Cited by 106 · see citing works
Verifying quality and safety in health informatics services
Rigby, M., Forsström, J., Roberts, R., & Wyatt, J. C. (2001) · BMJ · doi:10.1136/bmj.323.7312.552 · Cited by 100 · see citing works
Adams, S. A. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2008.06.009 · Cited by 97 · see citing works
Self-citationDoes the internet harm health?
Kiley, R. (2002) · BMJ · doi:10.1136/bmj.324.7331.238a · Cited by 81 · see citing works
Web 2.0: Could it help move the health system into the 21st century?
Deshpande, A., & Jadad, A. R. (2006) · The Journal of Men s Health and Gender · doi:10.1016/j.jmhg.2006.09.004 · Cited by 74 · see citing works
Automatic detecting indicators for quality of health information on the Web
Wang, Y., & Liu, Z. (2006) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2006.04.001 · Cited by 70 · see citing works
Community Practice in the Network Society
(2004) · Routledge eBooks · doi:10.4324/9780203643730 · Cited by 62 · see citing works
Web 2.0: An argument against convergence
Allen, M. (1969) · First Monday · doi:10.5210/fm.v13i3.2139 · Cited by 61 · see citing works
Trying to Measure the Quality of Health Information on the Internet: Is It Time to Move On?
Deshpande, A., & Jadad, A. R. (2009) · The Journal of Rheumatology · doi:10.3899/jrheum.081101 · Cited by 60 · see citing works
Identity, Electronic Ethos, and Blogs
MacDougall, R. (2005) · American Behavioral Scientist · doi:10.1177/0002764205280922 · Cited by 59 · see citing works
Preface: Critical Perspectives on Web 2.0
Zimmer, M. T. (1969) · First Monday · doi:10.5210/fm.v13i3.2137 · Cited by 52 · see citing works
Adams, S., de Bont, A., & Berg, M. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.07.036 · Cited by 48 · see citing works
Self-citationFuture directions for depicting credibility in health care web sites
O'Grady, L. A. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.07.035 · Cited by 48 · see citing works
Health information on internet is often unreliable
Gottlieb, S. L. (2000) · BMJ · doi:10.1136/bmj.321.7254.136/b · Cited by 41 · see citing works
Journalistic objectivity redefined? Wikinews and the neutral point of view
Thorsen, E. (2008) · New Media & Society · doi:10.1177/1461444808096252 · Cited by 39 · see citing works
Collaborative reference work in the blogosphere
Pomerantz, J., & Stutzman, F. (2006) · Reference Services Review · doi:10.1108/00907320610669443 · Cited by 34 · see citing works
Eysenbach, G. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.4.e34 · Cited by 34 · see citing works
Letting the grass grow: grassroots information on blogs and wikis
Ramos, M. Á. M., & Piper, P. (2006) · Reference Services Review · doi:10.1108/00907320610716459 · Cited by 31 · see citing works
Hargittai, E. (2004) · Routledge eBooks · doi:10.4324/9780203643730-12 · Cited by 22 · see citing works
Adams, S., & Bont, A. A. D. (2006) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2006.05.024 · Cited by 19 · see citing works
Self-citationBlogging as a Tool: Innovative Approaches to Information Access
Bhatt, J. J. (2005) · Library Hi Tech News · doi:10.1108/07419050510640512 · Cited by 18 · see citing works
Tsai, C. C., Tsai, S. H., Zeng‐Treitler, Q., & Liang, B. A. (2007) · PubMed · Cited by 16 · see citing works
Web Review: Blogs: has their time finally come — or gone?
McIntosh, S. (2005) · Global Media and Communication · doi:10.1177/1742766505058137 · Cited by 16 · see citing works
Finding your way through blogspace: Using semantics for cross-domain blog analysis
Berendt, B., & Navigli, R. (2006) · Cited by 16 · see citing works
Wichowski, A. (2009) · First Monday · doi:10.5210/fm.v14i5.2447 · Cited by 15 · see citing works
Adams, S. (2007) · PubMed · Cited by 14 · see citing works
Self-citationHistory, Hype, and Hope: An Afterward
Silver, D. (1969) · First Monday · doi:10.5210/fm.v13i3.2143 · Cited by 13 · see citing works
Hsu, W., & Bath, P. A. (2008) · PubMed · Cited by 11 · see citing works
Chesanow, N. (2004) · PubMed · Cited by 9 · see citing works
Oransky, I. (2005) · The Lancet Oncology · doi:10.1016/s1470-2045(05)70419-8 · Cited by 9 · see citing works
Differences between Blogs and Web Diaries
Fujiki, T., Nanno, T., & Okumura, M. (2005) · Cited by 4 · see citing works
Charlotte's Web: Why and How to Create Personal Web Sites and Blogs
Goldman, K. D., & Schmalz, K. J. (2007) · Health Promotion Practice · doi:10.1177/1524839906296150 · Cited by 3 · see citing works
Quality of healthcare websites: A comparison of a general-purpose vs. domain-specific search engine.
Abraham, J., & Reddy, M. C. (2007) · PubMed · Cited by 2 · see citing works
Flagged first, then by citations
13 of the 83 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.1933 · Cited by 2,517 · see citing works
Trust and Credibility in Web-Based Health Information: A Review and Agenda for Future Research
Sbaffi, L., & Rowley, J. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7579 · Cited by 537 · see citing works
Health Literacy and Use and Trust in Health Information.
Chen, X., Hay, J. L., Waters, E. A., Kiviniemi, M. T., Biddle, C., Schofield, E., Li, Y., Kaphingst, K., & Orom, H. (2018) · Journal of Health Communication · doi:10.1080/10810730.2018.1511658 · Cited by 548 · see citing works
Reviewing social media use by clinicians: Table 1
von Muhlen, M., & Ohno-Machado, L. (2012) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2012-000990 · Cited by 319 · see citing works
Social media and health care, part I: literature review of social media use by health care providers
Farsi, D. (2021) · Journal of Medical Internet Research · doi:10.2196/23205 · Cited by 299 · see citing works
Social Media and HIV: A Systematic Review of Uses of Social Media in HIV Communication
Taggart, T., Grewe, M. E., Conserve, D. F., Gliwa, C., & Isler, M. R. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4387 · Cited by 224 · see citing works
Credibility in social media: opinions, news, and health information—a survey
Viviani, M., & Pasi, G. (2017) · WIREs Data Mining and Knowledge Discovery · doi:10.1002/widm.1209 · Cited by 221 · see citing works
Social media in health communication: A literature review of information quality
Afful-Dadzie, E., Afful‐Dadzie, A., & Egala, S. B. (2021) · Health Information Management Journal · doi:10.1177/1833358321992683 · Cited by 195 · see citing works
Cloaked Facebook pages: Exploring fake Islamist propaganda in social media
Farkas, J., Schou, J., & Neumayer, C. (2017) · New Media & Society · doi:10.1177/1461444817707759 · Cited by 171 · see citing works
Witteman, H. O., & Zikmund‐Fisher, B. J. (2011) · Vaccine · doi:10.1016/j.vaccine.2011.12.039 · Cited by 158 · see citing works
How users adopt healthcare information: An empirical study of an online Q&A community
Jin, J., Yan, X., Li, Y., & Li, Y. (2015) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2015.11.002 · Cited by 131 · see citing works
Choudrie, J., Banerjee, S., Kotecha, K. V., Walambe, R. A., Karende, H., & Ameta, J. (2021) · Computers in Human Behavior · doi:10.1016/j.chb.2021.106716 · Cited by 136 · see citing works
Social Media and Rating Sites as Tools to Understanding Quality of Care: A Scoping Review
Verhoef, L. M., Van de Belt, T. H., Engelen, L. J., Schoonhoven, L., & Kool, R. B. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3024 · Cited by 130 · see citing works
Stadtler, M., Scharrer, L., Brummernhenrich, B., & Bromme, R. (2013) · Cognition and Instruction · doi:10.1080/07370008.2013.769996 · Cited by 126 · see citing works
Ma, T. (., & Atkin, D. J. (2016) · Telematics and Informatics · doi:10.1016/j.tele.2016.09.009 · Cited by 117 · see citing works
Dahl, A. J., Milne, G. R., & Peltier, J. W. (2019) · Journal of Business Research · doi:10.1016/j.jbusres.2019.02.025 · Cited by 110 · see citing works
Credibility of information in online communities
Hajli, M. N., Sims, J., Featherman, M., & Love, P. E. D. (2015) · Journal of Strategic Marketing · doi:10.1080/0965254x.2014.920904 · Cited by 109 · see citing works
Patient Continued Use of Online Health Care Communities: Web Mining of Patient-Doctor Communication
Wu, B. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.9127 · Cited by 109 · see citing works
Gender as an influencer of online health information‐seeking and evaluation behavior
Rowley, J., Johnson, F., & Sbaffi, L. (2015) · Journal of the Association for Information Science and Technology · doi:10.1002/asi.23597 · Cited by 106 · see citing works
What young people want from health-related online resources: a focus group study
Fergie, G., Hunt, K., & Hilton, S. (2012) · Journal of Youth Studies · doi:10.1080/13676261.2012.744811 · Cited by 104 · see citing works
Toma, T., Athanasiou, T., Harling, L., Darzi, A., & Ashrafian, H. (2014) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2014.06.008 · Cited by 85 · see citing works
Boon‐itt, S. (2019) · Journal of Innovation and Entrepreneurship · doi:10.1186/s13731-018-0100-9 · Cited by 89 · see citing works
A macro model of online information quality perceptions: A review and synthesis of the literature
Ghasemaghaei, M., & Hassanein, K. (2015) · Computers in Human Behavior · doi:10.1016/j.chb.2015.09.027 · Cited by 84 · see citing works
To share or not to share: The role of epistemic belief in online health rumors
Chua, A. Y. K., & Banerjee, S. (2017) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2017.08.010 · Cited by 80 · see citing works
Song, S., Zhang, Y., & Yu, B. (2020) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2020.104321 · Cited by 81 · see citing works
Pharmacy 2.0: a scoping review of social media use in pharmacy.
Grindrod, K., Forgione, A., Tsuyuki, R., Gavura, S., & Giustini, D. (2014) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2013.05.004 · Cited by 77 · see citing works
Wikis and Collaborative Writing Applications in Health Care: A Scoping Review
Archambault, P. M., van de Belt, T. H., Grajales, F. J., III, Faber, M. J., Kuziemsky, C. E., Gagnon, S., Bilodeau, A., Rioux, S., Nelen, W. L. D. M., Gagnon, M., et al. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.2787 · Cited by 72 · see citing works
Kelley, M. S., Su, D., & Britigan, D. H. (2015) · Health Communication · doi:10.1080/10410236.2014.979976 · Cited by 70 · see citing works
Data Analysis and Data Mining: Current Issues in Biomedical Informatics
Diomidous, M., Sarkar, I. N., Takabayashi, K., Ziegler, A., McCray, A. T., & Bellazzi, R. (2011) · Methods of Information in Medicine · doi:10.3414/me11-06-0002 · Cited by 69 · see citing works
Martin-Hammond, A., Vemireddy, S., & Rao, K. (2019) · JMIR Aging · doi:10.2196/15381 · Cited by 63 · see citing works
Premature menopause: a comprehensive understanding of psychosocial aspects
Deeks, A. A., Gibson‐Helm, M. E., Teede, H. J., & Vincent, A. J. (2011) · Climacteric · doi:10.3109/13697137.2011.566390 · Cited by 68 · see citing works
Facing the times: A young onset dementia support group: FacebookTM style
Craig, D. P., & Strivens, E. (2016) · Australian Journal on Ageing · doi:10.1111/ajag.12264 · Cited by 65 · see citing works
Social media and flu: Media Twitter accounts as agenda setters
Yun, G. W., Morin, D. T., Park, S., Joa, C. Y., Labbe, B. R., Lim, J.-S., Lee, S. Y., & Hyun, D.-W. (2016) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2016.04.009 · Cited by 64 · see citing works
Questioning reliability assessments of health information on social media
Dalmer, N. K. (2017) · Journal of the Medical Library Association JMLA · doi:10.5195/jmla.2017.108 · Cited by 64 · see citing works
Determinants of the Perceived Credibility of Rebuttals Concerning Health Misinformation
Sui, Y., & Zhang, B. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18031345 · Cited by 64 · see citing works
Adamski, M. M., Truby, H., Klassen, K., Cowan, S., & Gibson, S. (2020) · Nutrients · doi:10.3390/nu12030750 · Cited by 63 · see citing works
Internet and social media usage of orthopaedic patients: A questionnaire-based survey
Duymuş, T. M., Karadeniz, H., Çaçan, M. A., Kömür, B., Demirtaş, A., Zehir, S., & Azboy, İ. (2017) · World Journal of Orthopedics · doi:10.5312/wjo.v8.i2.178 · Cited by 59 · see citing works
Andrade, E. L., Evans, W. D., Barrett, N. D., Edberg, M. C., & Cleary, S. D. (2018) · JMIR Public Health and Surveillance · doi:10.2196/publichealth.9332 · Cited by 59 · see citing works
Social Media Utilization in the Cochlear Implant Community
Saxena, R. C., Lehmann, A. E., Hight, A. E., Darrow, K. N., Remenschneider, A. K., Kozin, E. D., & Lee, D. J. (2015) · Journal of the American Academy of Audiology · doi:10.3766/jaaa.26.2.8 · Cited by 57 · see citing works
Doub, A. E., Small, M. L., & Birch, L. L. (2016) · Appetite · doi:10.1016/j.appet.2016.01.003 · Cited by 52 · see citing works
Engagement in Healthcare Systems: Adopting Digital Tools for a Sustainable Approach
Presti, L. L., Testa, M., Marino, V., & Singer, P. (2019) · Sustainability · doi:10.3390/su11010220 · Cited by 56 · see citing works
When Health Information Meets Social Media: Exploring Virality on Sina Weibo
Liu, X., Lu, J., & Wang, H. (2016) · Health Communication · doi:10.1080/10410236.2016.1217454 · Cited by 51 · see citing works
Why people living with and beyond cancer use the Internet
Holmes, M. M. (2019) · Integrative Cancer Therapies · doi:10.1177/1534735419829830 · Cited by 52 · see citing works
Zaidan, A. A., Zaidan, B. B., Kadhem, Z., Larbani, M., Lakulu, M., & Hashim, M. S. (2015) · Journal of Medical Systems · doi:10.1007/s10916-015-0201-y · Cited by 51 · see citing works
Lay summaries of open access journal articles: engaging with the general public on medical research
Nunn, E. B., & Pinfield, S. (2014) · Learned Publishing · doi:10.1087/20140303 · Cited by 50 · see citing works
Alonzo, D. M., & Popescu, M. L. (2021) · Journal of Education and Health Promotion · doi:10.4103/jehp.jehp_21_21 · Cited by 48 · see citing works
Who's talking about breast cancer? Analysis of daily breast cancer posts on the internet
Quinn, E. M., Corrigan, M. A., McHugh, S. M., Murphy, D., O’Mullane, J., Hill, A. D. K., & Redmond, H. P. (2012) · The Breast · doi:10.1016/j.breast.2012.05.001 · Cited by 46 · see citing works
Lavorgna, L., Russo, A., Stefano, M. D., Lanzillo, R., Esposito, S., Fatemeh, M., Rullani, F., Piscopo, K., Buonanno, D., Morra, V. B., et al. (2017) · Interactive Journal of Medical Research · doi:10.2196/ijmr.7402 · Cited by 46 · see citing works
Meinert, J., & Krämer, N. C. (2022) · PLoS ONE · doi:10.1371/journal.pone.0264428 · Cited by 46 · see citing works
“Everything is plentiful-except attention” attention data of scientific journals on social web tools
Kortelainen, T., & Katvala, M. (2012) · Journal of Informetrics · doi:10.1016/j.joi.2012.06.004 · Cited by 42 · see citing works
Adams, D. Z., Gruss, R. J., & Abrahams, A. S. (2017) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2017.01.005 · Cited by 41 · see citing works
Dahl, A. J., Peltier, J. W., & Milne, G. R. (2018) · Journal of Consumer Affairs · doi:10.1111/joca.12176 · Cited by 41 · see citing works
Social media and Internet usage of orthopaedic surgeons
Duymuş, T. M., Karadeniz, H., Şükür, E., Atiç, R., Zehir, S., & Azboy, İ. (2017) · Journal of Clinical Orthopaedics and Trauma · doi:10.1016/j.jcot.2016.10.007 · Cited by 40 · see citing works
MIRASS: Medical Informatics Research Activity Support System Using Information Mashup Network
Kiah, M. L. M., Zaidan, B. B., Zaidan, A. A., Nabi, M. S., & Ibraheem, R. (2014) · Journal of Medical Systems · doi:10.1007/s10916-014-0037-x · Cited by 40 · see citing works
Framework for efficient utilisation of social media in Pakistan's healthcare sector
Nisar, S., & Shafiq, M. (2018) · Technology in Society · doi:10.1016/j.techsoc.2018.09.003 · Cited by 43 · see citing works
Patient Perspective on Use of an Interactive Website for Sleep Apnea
Stepnowsky, C. J., Edwards, C. C., Zamora, T., Barker, R., & Agha, Z. (2013) · International Journal of Telemedicine and Applications · doi:10.1155/2013/239382 · Cited by 40 · see citing works
Liu, H., Zhang, Y., Li, Y., & Albright, K. (2023) · Information Processing & Management · doi:10.1016/j.ipm.2023.103413 · Cited by 38 · see citing works
Survey of quality, readability, and social reach of websites on osteosarcoma in adolescents
Lam, C. G., ROTER, D. L., & Cohen, K. J. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.08.006 · Cited by 38 · see citing works
How do users adopt health information from social media? The narrative paradigm perspective
Li, J., Tang, J., Liu, X., & Ma, L. (2018) · Health Information Management Journal · doi:10.1177/1833358318798742 · Cited by 39 · see citing works
Drenkard, C., Fuentes-Silva, Y., Seguro, L. P. C., dos Reis-Neto, E. T., Ibañez, S., Elera-Fitzcarrald, C., Reategui-Sokolova, C., Linhares, F. A., Bermúdez, W., Ferreyra-Garrot, L., et al. (2021) · JCR Journal of Clinical Rheumatology · doi:10.1097/rhu.0000000000001728 · Cited by 38 · see citing works
Guidry, J. P. D., Jin, Y., Haddad, L. G., Zhang, Y., & Smith, J. R. (2015) · Health Communication · doi:10.1080/10410236.2014.987468 · Cited by 37 · see citing works
Wittenberg-Lyles, E. M., Oliver, D. P., Demiris, G., Swarz, J., & Rendo, M. J. (2014) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2014.02.015 · Cited by 36 · see citing works
Dobbins, M., Watson, S., Read, K., Graham, K., Nooraie, R. Y., & Levinson, A. J. (2018) · JMIR Aging · doi:10.2196/aging.9216 · Cited by 36 · see citing works
Koteyko, N., Hunt, D. S., & Gunter, B. (2015) · Sociology of Health & Illness · doi:10.1111/1467-9566.12203 · Cited by 35 · see citing works
Daniel, F. E., Jabak, S. J., Sasso, R., Chamoun, Y., & Tamim, H. (2018) · JMIR Medical Informatics · doi:10.2196/medinform.8895 · Cited by 35 · see citing works
Ahmed, M., Guadie, H. A., Ngusie, H. S., Teferi, G. H., Gullslett, M., Hailegebreal, S., Hunde, M. K., Donacho, D. O., Tilahun, B., Siraj, S. S., et al. (2022) · JMIR Nursing · doi:10.2196/39866 · Cited by 37 · see citing works
Fueling Hope: Stem Cells in Social Media
Robillard, J. M., Cabral, E., Hennessey, C. A., Kwon, B. K., & Illes, J. (2015) · Stem Cell Reviews and Reports · doi:10.1007/s12015-015-9591-y · Cited by 33 · see citing works
Information Quality in Healthcare
Cabitza, F., & Batini, C. (2016) · Data-centric systems and applications · doi:10.1007/978-3-319-24106-7_13 · Cited by 32 · see citing works
Li, X., Min, H., Wu, Y., Zhang, J., Ning, Y., Long, L., Jia, K., Jing, W., & Sun, X. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1160629 · Cited by 37 · see citing works
Quality of online health information about oral contraceptives from Hebrew-language websites
Neumark, Y. D., Flum, L., Lopez‐Quintero, C., & Shtarkshall, R. A. (2012) · Israel Journal of Health Policy Research · doi:10.1186/2045-4015-1-38 · Cited by 32 · see citing works
The role of cognitive complexity and risk aversion in online herd behavior
Rejikumar, G., Ajitha, A. A., Dinesh, S., & Jose, A. (2021) · Electronic Commerce Research · doi:10.1007/s10660-020-09451-y · Cited by 30 · see citing works
A picture tells a thousand words: A content analysis of concussion-related images online
Ahmed, O. H., Lee, H., & Struik, L. L. (2016) · Physical Therapy in Sport · doi:10.1016/j.ptsp.2016.03.001 · Cited by 29 · see citing works
Quality and clarity of health information on Q&A sites
Chu, S. K. W., Huang, H., Wong, W. N. M., van Ginneken, W. F., Wu, K. M., & Hung, M. Y. (2018) · Library & Information Science Research · doi:10.1016/j.lisr.2018.09.005 · Cited by 29 · see citing works
Social Media Usage for Patients and Healthcare Consumers: A Literature Review
Cordoș, A., Bolboaca, S. D., & Drugan, C. (2017) · Publications · doi:10.3390/publications5020009 · Cited by 29 · see citing works
Toward a typology of health 2.0 collaboration platforms and websites
Kordzadeh, N., & Warren, J. (2013) · Health and Technology · doi:10.1007/s12553-013-0043-x · Cited by 28 · see citing works
Amann, J., Zanini, C., & Rubinelli, S. (2016) · PLoS ONE · doi:10.1371/journal.pone.0156175 · Cited by 28 · see citing works
Thai, C. L., Gaysynsky, A., Falisi, A. L., Chou, W. S., Blake, K. D., & Hesse, B. W. (2018) · Emerald Group Publishing Limited eBooks · doi:10.1108/s2050-206020180000015002 · Cited by 27 · see citing works
Williams, S. L., Ames, K., & Lawson, C. (2019) · Journal of Communications In Healthcare · doi:10.1080/17538068.2019.1642050 · Cited by 29 · see citing works
The Internet, Social Media, and Health Decision-Making
Graham, A. L., Cobb, C. O., & Cobb, N. K. (2016) · Springer eBooks · doi:10.1007/978-1-4939-3486-7_24 · Cited by 28 · see citing works
The use of tags and tag clouds to discern credible content in online health message forums
O'Grady, L. A., Wathen, C. N., Charnaw-Burger, J., Betel, L., Shachak, A., Luke, R., Hockema, S. A., & Jadad, A. R. (2011) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2011.10.001 · Cited by 26 · see citing works
Detecting fake news for the new coronavirus by reasoning on the Covid-19 ontologyPreprint
Groza, A. P. (2020) · arXiv (Cornell University) · doi:10.48550/arxiv.2004.12330 · Cited by 26 · see citing works
Gamble, J., Traynor, R. L., Gruzd, A. A., Mai, P., Dormuth, C. R., & SKETRIS, I. S. (2018) · Pharmacoepidemiology and Drug Safety · doi:10.1002/pds.4401 · Cited by 25 · see citing works
Reliability, Readability and Quality of Online Information about Femoracetabular Impingement.
Küçükdurmaz, F., Gómez, M. M., Secrist, E. S., & Parvizi, J. (2015) · Europe PMC (PubMed Central) · Cited by 25 · see citing works
Wikis and Collaborative Writing Applications in Health Care: A Scoping Review Protocol
Archambault, P. M., van de Belt, T. H., Grajales, F. J., III, Eysenbach, G., Aubin, K., Gold, I., Gagnon, M., Kuziemsky, C. E., Turgeon, A. F., Poitras, J., et al. (2012) · JMIR Research Protocols · doi:10.2196/resprot.1993 · Cited by 25 · see citing works
Quality and Misinformation About Health Conditions in Online Peer Support Groups: Scoping Review
Treadgold, B. M., Coulson, N., Campbell, J., Lambert, J. D., & Pitchforth, E. (2025) · Journal of Medical Internet Research · doi:10.2196/71140 · Cited by 33 · see citing works
Social Media for Public Health: An Exploratory Policy Analysis
Fast, I., Sørensen, K., Brand, H., & Suggs, L. S. (2014) · European Journal of Public Health · doi:10.1093/eurpub/cku080 · Cited by 24 · see citing works
Lin, T., Hwang, L., & Lai, Y. (2017) · Health Information & Libraries Journal · doi:10.1111/hir.12181 · Cited by 23 · see citing works
Over-the-Counter Drugs and Complementary Medications Use among Children in Southern Italy
Pileggi, C., Mascaro, V., Bianco, A., & Pavía, M. (2015) · BioMed Research International · doi:10.1155/2015/413912 · Cited by 23 · see citing works
Seekers and avoiders: Using health information orientation to explore audience segmentation
Strekalova, Y. A. (2014) · Journal of Communications In Healthcare · doi:10.1179/1753807614y.0000000058 · Cited by 23 · see citing works
Adebimpe, W. O., Adeyemi, D. H., Faremi, A. O., Ojo, J. O., & Efuntoye, A. E. (2015) · Europe PMC (PubMed Central) · doi:10.11694/pamj.supp.2015.22.1.6165 · Cited by 23 · see citing works
Corter, A. L., Speller, B., Sequeira, S., Campbell, C., Facey, M. E., & Baxter, N. N. (2019) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2018.0125 · Cited by 23 · see citing works
UK policy on social networking sites and online health: From informed patient to informed consumer?
Hunt, D. S., Koteyko, N., & Gunter, B. (2015) · Digital Health · doi:10.1177/2055207615592513 · Cited by 22 · see citing works
Behavior change communication using social media: A review
Adewuyi, E. O., & Adefemi, K. (2016) · Australasian Journal of Paramedicine · Cited by 22 · see citing works
Adebimpe, W. O., Adeyemi, D. H., Faremi, A. O., Ojo, J. O., & Efuntoye, A. E. (2015) · Pan African Medical Journal · doi:10.11604/pamj.supp.2015.22.1.6165 · Cited by 22 · see citing works
Archambault, P. M., van de Belt, T. H., Kuziemsky, C., Plaisance, A., Dupuis, A., McGinn, C. A., Francois, R., Gagnon, M., Turgeon, A. F., Horsley, T., et al. (2017) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd011388.pub2 · Cited by 20 · see citing works
Stephen, K., & Cumming, G. (2012) · Menopause international · doi:10.1258/mi.2012.012007 · Cited by 21 · see citing works
Supporting consumers' informed food choices: Sources, channels, and use of information
Meijer, G. W., Grunert, K. G., & Lähteenmäki, L. (2022) · Advances in food and nutrition research · doi:10.1016/bs.afnr.2022.10.005 · Cited by 20 · see citing works
Patterns of knowledge sharing in an online affinity space for diabetes
Sharma, P. R., & Land, S. M. (2018) · Educational Technology Research and Development · doi:10.1007/s11423-018-9609-7 · Cited by 20 · see citing works
Older Patients' Perspectives of Online Health Approaches in Chronic Obstructive Pulmonary Disease
Disler, R. T., Inglis, S. C., Newton, P. J., Currow, D. C., Macdonald, P. S., Glanville, A. R., Donesky, D., Carrieri‐Kohlman, V., & Davidson, P. M. (2018) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2018.0098 · Cited by 20 · see citing works
Ullmann, T., Liddo, A. D., & Bachler, M. (2019) · RIED Revista Iberoamericana de Educación a Distancia · doi:10.5944/ried.22.1.22294 · Cited by 20 · see citing works
- Authors
- Adams, S. A.
- Affiliations
- Erasmus University Rotterdam (NL)
- Corresponding author
- Adams, Samantha A.
- ORCID
- Adams, Samantha A.
- Venue
- International Journal of Medical Informatics
- Publisher
- Elsevier BV
- Published
- 2010-06
- Volume
- 79
- Issue
- 6
- Pages
- 391-400
- ISSN
- 1386-5056 (ISSN-L)
- OpenAlex
- W2051889487
- Cited by
- 244
- References
- 83
- Citations by year
- 2026: 1 · 2025: 7 · 2024: 5 · 2023: 13 · 2022: 12 · 2021: 22 · 2020: 10 · 2019: 19 · 2018: 23 · 2017: 24 · 2016: 24 · 2015: 24 · 2014: 19 · 2013: 14 · 2012: 12
- FWCI
- 2.48
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Medical Informatics (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Funders
- Erasmus Universiteit Rotterdam
- Erasmus+
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Health › Social Media in Health Education
- Physical Sciences › Computer Science › Information Systems › Web and Library Services
- Keywords
- online health information, information reliability, Web 2.0, blogs, wikis, authorship disclosure, information quality, patient education, lay health information
- MeSH terms
- Humans, Medical Informatics, Medical Records Systems, Computerized, Internet, Consumer Health Information
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review