Assessing the benefits of participatory research: a rationale for a realist review
Open accessAbstract
Participatory research (PR) experts believe that increased community and stakeholder participation in research augments program pertinence, quality, outcome, sustainability, uptake, and transferability. There is, however, a dearth of assessments and measurement tools to demonstrate the contribution of participation in health research and interventions. One systematic review of PR, conducted for the Agency for Health Research and Quality (AHRQ), provided no conclusive evidence concerning the benefits of community participation to enhance research and health outcomes. To overcome methodological gaps and barriers of the AHRQ review, we propose to conduct a systematic realist review, which can be understood as a theory-driven qualitative review capable of capturing the often complex, diffuse and obtuse evidence concerning participation. Reviewing how PR mechanisms and contextual factors mediate and moderate outcomes, the review will generate and test hypotheses (middle-range theories) conceptualizing the benefits of participation and will portray the manner and circumstances in which participation influences outcomes.
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Previous evaluations have failed to use methodologies that take into account PPI's complexity, arising from PPI being an interconnected, multifaceted social process, making it difficult to pinpoint specific impacts and contributions.
“First, previous evaluations have failed to use methodologies that take into account its complexity, 100 arising from PPI being an interconnected, multifaceted social process, making it difficult to pinpoint specific impacts and contributions.19”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [100]
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- Authors
- Macaulay, A. C., Jagosh, J., Seller, R., Henderson, J., Cargo, M., Greenhalgh, T., Wong, G., Salsberg, J., Green, L. W., Herbert, C. P., & Pluye, P.
- Affiliations
- McGill University (CA)
- University of South Australia (AU)
- Queen Mary University of London (GB)
- University of California, San Francisco (US)
- Western University (CA)
- Corresponding author
- Macaulay, Ann C.
- ORCID
- Venue
- Global Health Promotion
- Publisher
- SAGE Publications
- Published
- 2011-05-19
- Volume
- 18
- Issue
- 2
- Pages
- 45-48
- ISSN
- 1757-9759 (ISSN-L)
- 1757-9767
- OpenAlex
- W2044082814
- Semantic Scholar
- 58dded89040c7e1d5989f0605ce8ba5acc63b754
- Cited by
- 79
- References
- 12
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 2 · 2023: 1 · 2022: 6 · 2021: 6 · 2020: 7 · 2019: 6 · 2018: 6 · 2017: 7 · 2016: 3 · 2015: 6 · 2014: 8 · 2013: 4 · 2012: 4
- FWCI
- 11.28
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Locations
- Global Health Promotion (publishedVersion)
- PubMed (publishedVersion)
- eScholarship@McGill (McGill) (submittedVersion)
- NORA - Norwegian Open Research Archives (submittedVersion, other-oa)
- Funders
- McGill University
- Canadian Institutes of Health Research
- Topics
- Health Sciences › Health Professions › General Health Professions › Community Health and Development
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Social Sciences › Decision Sciences › Management Science and Operations Research › Evaluation and Performance Assessment
- Keywords
- participatory research, community participation, stakeholder engagement, health research, research outcomes, program relevance, sustainability, transferability, realist review, middle-range theory, mediating and moderating effects, health interventions
- MeSH terms
- Health Promotion, United States, Program Evaluation, United States Agency for Healthcare Research and Quality, Community-Based Participatory Research
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