Trans data epistemologies: Transgender ways of knowing with data
Open accessAbstract
Amidst proliferating threats to trans rights, transgender activists are using data and data activism to advocate for and to protect trans communities. This transgender-led study asks “How do trans activists use data in their activism?” We interviewed 16 activists engaged in trans community care: from community healthcare to media production to policy making, our participants are making and using data about trans people to serve and support trans communities. Our findings reveal that participants use tactical approaches to data and data science that were consistent with existing data activist literature and contemporary approaches to data refusal. However, what emerged were more than sets of tactics — our participants described ways of knowing with and about data that are grounded in their experiences of (racialized, disabled, aging, queer) transness. Taken together, we consider these ways of knowing to be a trans data epistemology . Drawing on literature from trans theory, data activism, critical data studies, philosophy, and critical social theory we offer a narrative of trans people as creators of knowledge, data-based and otherwise, undergirded by four pillars of a trans data epistemology: categories are provisional and productive, data can be a tool of community care, community well-being is more important than “accurate” data, and data makes us visible to institutions.
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Cites
Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective
Haraway, D. (1988) · Feminist Studies · doi:10.2307/3178066 · Cited by 18,364 · see citing works
D'Ignazio, C., & Klein, L. F. (2020) · doi:10.7551/mitpress/11805.001.0001 · Cited by 1,738 · see citing works
Evil Deceivers and Make-Believers: On Transphobic Violence and the Politics of Illusion
Bettcher, T. M. (2007) · Hypatia · doi:10.1111/j.1527-2001.2007.tb01090.x · Cited by 646 · see citing works
The Alternative Epistemologies of Data Activism
Milan, S., & van der Velden, L. (2016) · Digital Culture & Society · doi:10.14361/dcs-2016-0205 · Cited by 294 · see citing works
Haimson, O. L., Delmonaco, D., Nie, P., & Wegner, A. (2021) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3479610 · Cited by 293 · see citing works
Brilliant Imperfection: Grappling with Cure
Clare, E. (2017) · doi:10.1215/9780822373520 · Cited by 284 · see citing works
Beauchamp, T. (2019) · Duke University Press eBooks · doi:10.2307/j.ctv11cw8g8 · Cited by 269 · see citing works
Scheuerman, M. K., Paul, J. M., & Brubaker, J. R. (2019) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3359246 · Cited by 252 · see citing works
Civic hacking as data activism and advocacy: A history from publicity to open government data
Schrock, A. R. (2016) · New Media & Society · doi:10.1177/1461444816629469 · Cited by 175 · see citing works
Mapping Indigenous Depth of Place
Pearce, M. W., & Louis, R. (2008) · American Indian Culture and Research Journal · doi:10.17953/aicr.32.3.n7g22w816486567j · Cited by 172 · see citing works
Guyan, K. (2022) · Bloomsbury Academic eBooks · doi:10.5040/9781350230767 · Cited by 164 · see citing works
Mills, C. W. (1988) · Social Theory and Practice · doi:10.5840/soctheorpract198814316 · Cited by 156 · see citing works
Design Justice, A.I., and Escape from the Matrix of Domination
Costanza‐Chock, S. (2018) · Journal of design and science · doi:10.21428/96c8d426 · Cited by 140 · see citing works
The Remarkable Rise of Transgender Rights
Taylor, J. K., Haider‐Markel, D. P., & Lewis, D. C. (2018) · University of Michigan Press eBooks · doi:10.3998/mpub.9448956 · Cited by 125 · see citing works
Imagining a Trans* Epistemology: What Liberation Thinks Like in Postsecondary Education
Nicolazzo, Z. (2017) · Urban Education · doi:10.1177/0042085917697203 · Cited by 93 · see citing works
Glick, J. L., Lopez, A., Pollock, M., & Theall, K. P. (2019) · Journal of Urban Health · doi:10.1007/s11524-019-00384-y · Cited by 73 · see citing works
D’Ignazio, C. (2024) · The MIT Press eBooks · doi:10.7551/mitpress/14671.001.0001 · Cited by 72 · see citing works
Shuster, S. M. (2021) · New York University Press eBooks · doi:10.18574/nyu/9781479836291.001.0001 · Cited by 70 · see citing works
David, E. (2017) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-3711517 · Cited by 67 · see citing works
Bettcher, T. M. (2010) · Hypatia · doi:10.1111/hypa.12492 · Cited by 67 · see citing works
Citizens’ media meets big data: the emergence of data activism
Milan, S., & Gutiérrez, M. (2015) · MEDIACIONES · doi:10.26620/uniminuto.mediaciones.11.14.2015.120-133 · Cited by 66 · see citing works
#NiUnaMenos: Data Activism From the Global South
Chenou, J.-M., & Cepeda-Másmela, C. (2019) · Television & New Media · doi:10.1177/1527476419828995 · Cited by 65 · see citing works
Transforming Citizenships: Transgender Articulations of the Law
West, I. (2013) · doi:10.18574/nyu/9781479832149.001.0001 · Cited by 51
Utilization and Costs of Gender-Affirming Care in a Commercially Insured Transgender Population
Baker, K., & Restar, A. (2022) · The Journal of Law Medicine & Ethics · doi:10.1017/jme.2022.87 · Cited by 44 · see citing works
Wilcox, L., Shelby, R., Veeraraghavan, R., Haimson, O. L., Erickson, G. C., Turken, M., & Gulotta, R. (2023) · Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3544548.3581040 · Cited by 34 · see citing works
How Transgender People and Communities Were Involved in Trans Technology Design Processes
Haimson, O. L., Nham, K., Thach, H., & DeGuia, A. (2023) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3544548.3580972 · Cited by 34 · see citing works
Deutsch, M. B., Keatley, J. G., Sevelius, J. M., & Shade, S. B. (2014) · Journal of the Association of Nurses in AIDS Care · doi:10.1016/j.jana.2014.04.001 · Cited by 30 · see citing works
Mackenzie, L. (2017) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-3711529 · Cited by 30 · see citing works
Harrison-Quintana, J., Grant, J. M., & Rivera, I. G. (2015) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-2848949 · Cited by 28 · see citing works
Transphobia, encoded: an examination of trans-specific terminology in SNOMED CT and ICD-10-CM
Ram, A., Kronk, C. A., Eleazer, J. R., Goulet, J. L., Brandt, C., & Wang, K. (2021) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocab200 · Cited by 23 · see citing works
Billard, T. J. (2020) · The International Journal of Press/Politics · doi:10.1177/1940161220968525 · Cited by 22 · see citing works
Mayworm, S., Albert, K., & Haimson, O. L. (2024) · ACM Conference on Fairness, Accountability, and Transparency (FAccT) · doi:10.1145/3630106.3658907 · Cited by 19 · see citing works
Back-ups for the future: archival practices for data activism
Currie, M. E., & Paris, B. S. (2018) · Archives and Manuscripts · doi:10.1080/01576895.2018.1468273 · Cited by 17 · see citing works
Seeking Liberation: Surveillance, Datafication, and Race
Crooks, R. N. (2022) · Surveillance & Society · doi:10.24908/ss.v20i4.15983 · Cited by 17 · see citing works
Walters, M. A. (2024) · Journal of Law and Society · doi:10.1111/jols.12491 · Cited by 16 · see citing works
Queer epistemology: activism, ‘outing’, and the politics of sexual identities
Watney, S. (1994) · Critical Quarterly · doi:10.1111/j.1467-8705.1994.tb01006.x · Cited by 15 · see citing works
Liboiron, M. (2015) · Routledge eBooks · doi:10.4324/9781315756486-7 · Cited by 14 · see citing works
“I Sexually Identify as an Attack Helicopter”
Shalloe, H. (2019) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-7771824 · Cited by 14 · see citing works
Sharpe, A. (2017) · The Journal of Criminal Law · doi:10.1177/0022018317728828 · Cited by 13 · see citing works
Ahmed, A. A., Kim, L., & Hoffmann, A. L. (2022) · Convergence The International Journal of Research into New Media Technologies · doi:10.1177/13548565221079459 · Cited by 12 · see citing works
Sharrow, E. A. (2023) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-10440748 · Cited by 10 · see citing works
Salamon, G. (2014) · The Undecidable Unconscious A Journal of Deconstruction and Psychoanalysis · doi:10.1353/ujd.2014.0000 · Cited by 9 · see citing works
Trans men’s stealth aesthetics: navigating penile prosthetics and ‘gender fraud’
Straayer, C. (2020) · Journal of Visual Culture · doi:10.1177/1470412920946827 · Cited by 9 · see citing works
Attard-Frost, B. (2025) · First Monday · doi:10.5210/fm.v30i4.14121 · Cited by 9 · see citing works
Using Archives to Identify the Trans* Women of Casa Susanna
Davis, B. (2015) · TSQ Transgender Studies Quarterly · doi:10.1215/23289252-3151547 · Cited by 8 · see citing works
Westbrook, L. (2020) · University of California Press eBooks · doi:10.2307/j.ctv17hm9zb · Cited by 8 · see citing works
Experiencing “epistemic injustice” within transgender healthcare
Bullock, C. G. (2023) · Sexuality Gender & Policy · doi:10.1002/sgp2.12059 · Cited by 8 · see citing works
Trans Epistemology and Methodological Radicalism: Un Œuf, But Enough
Cull, M. J. (2024) · Hypatia · doi:10.1017/hyp.2023.102 · Cited by 8 · see citing works
“Neither of the Boxes”: Accounting for Non-Binary Gender Identities
Savoia, E. (2000) · doi:10.15760/etd.5900 · Cited by 2 · see citing works
Malatino, H. (2020) · Forerunners · doi:10.5749/9781452965574 · Cited by 2
Hartsock, N. C. M. (2020) · Feminist Theory Reader · doi:10.4324/9781003001201-33
Kertzer, D. I., & Arel, D. (2001) · Census and Identity · doi:10.1017/cbo9780511606045.001
Flagged first, then by citations
Research works printed but not linked: 15
- Benjamin R (2019) Race After Technology: Abolitionist Tools for the New Jim Code, 1st ed. Medford, MA: Polity.
- Charmaz K (2014) Constructing Grounded Theory. 2nd edn. London, CA: Sage Publications Ltd.
- Enke F (2012) Transfeminist Perspectives in and Beyond Transgender and Gender Studies. Philadelphia: Temple University Press.
- Fricker M (2009) Epistemic Injustice: Power and the Ethics of Knowing. 1st ed. Oxford: Oxford University Press.
- Gilmore RW, Bhandar B, Toscano A (2022) Abolition Geography: Essays Towards Liberation. New York, NY: Verso Books.
- Haarman S (2021) The data should not speak for itself: Epistemic injustice and data as rhetoric. Philosophical Studies in Education 52: 26–36.
- Harding S (1992) “Rethinking standpoint epistemology: What is “strong objectivity?”. The Centennial Review 36(3): 437–470.
- Knutson D, Koch JM, Arthur T, et al. (2016) “Trans broken arm”: Health care stories from transgender people in rural areas. Journal of Research on Women and Gender 7: 30–46.
- Langlois G (2015) Data activism. In: Compromised Data: From Social Media to Big Data. London: Bloomsbury Publishing, 202–225.
- Namaste V (2000) Invisible Lives: The Erasure of Transsexual and Transgendered People. Chicago, IL: University of Chicago Press.
- Prosser J (1998) Second Skins. New York, NY: Columbia University Press.
- Snorton CR, Jin H, Aren A, et al (2013) Trans necropolitics. In: Stryker S and Whittle S (eds) The Transgender Studies Reader. 1st ed. New York: Imprint Routledge, 305–316 (first published 2006).
- Stevens N (2022) Modeling Power: Data Models and the Production of Social Inequality. PhD thesis United States – Arizona: Arizona State University.
- Tamura-Ho A (2022) Medicine, memoir, and metafiction: Speculative realities in contemporary transgender knowledge production. Intersect: The Stanford Journal of Science, Technology, and Society 15(3): 1–19. https://ojs.stanford.edu/ojs/index.php/intersect/article/view/2233.
- Van Streefkerk M (2022) House of Constance will provide housing and services for queer and Trans BIPOC. South Seattle Emerald September. https://southseattleemerald.com/2022/09/30/house-of-constance-will-provide-housing-and-services-for-queer-and-trans-bipoc/.
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- Authors
- Stevens, N., & Doğan, A. L.
- Affiliations
- University of Washington (US)
- Venue
- Big Data & Society
- Publisher
- SAGE Publications
- Published
- 2025-10-27
- Volume
- 12
- Issue
- 4
- ISSN
- 2053-9517 (ISSN-L)
- OpenAlex
- W4415591402
- Cited by
- 4
- References
- 53
- Citations by year
- 2026: 4
- FWCI
- 4.18
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Big Data & Society (publishedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- National Science Foundation Graduate Research Fellowship Program (DGE-2140004)
- Directorate for Computer and Information Science and Engineering (2213826)
- Topics
- Social Sciences › Safety Research › Ethics and Social Impacts of AI
- Social Sciences › Psychology › Social Psychology › LGBTQ Health, Identity, and Policy
- Social Sciences › Sociology and Political Science › Feminist Epistemology and Gender Studies
- Keywords
- trans activism, data activism, trans theory, data categories, community well-being, trans visibility, transgender rights, critical data studies
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