Cited by 34LGBTQ Health, Identity, and PolicyInnovative Human-Technology InteractionMobile Health and mHealth Applications

Infrastructuring Care: How Trans and Non-Binary People Meet Health and Well-Being Needs through Technology

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Wilcox, Lauren, Shelby, Renee, Veeraraghavan, Rajesh, Haimson, Oliver L., Erickson, Gabriela Cruz, Turken, Michael, Gulotta, Rebecca·2023·Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

Abstract

We present a cross-cultural diary study with 64 transgender (trans) and non-binary adults in Mexico, the U.S., and India, to understand experiences keeping track of and managing aspects of personal health and well-being. Based on a reflexive thematic analysis of diary data, we highlight sociotechnical interactions that shape how trans and non-binary people track and manage aspects of their health and well-being. Specifically, we surface the ways in which trans and non-binary people infrastructure forms of care, by assembling together elements of informal social ecologies, formalized knowledge sources, and self-reflective media. We examine the forms of precarity that interact with care infrastructure and shape management of health and well-being, including management of gender identity transitions. We discuss the ways in which our findings extend knowledge at the intersection of technology and marginalized health needs, and conclude by arguing for the importance of a research agenda to move toward TGNB-inclusive design.

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  • Acts of infrastructural disruption leverage the political visibility created through breakdown to reconfigure power relations, contest hegemonic definitions of access, and reconfigure the conditions under which participation, care, and re-imaginations are made possible.

    “They leverage the political visibility created through breakdown [55] to reconfigure power relations, contest hegemonic definitions of access, and reconfigure the conditions under which participation, care, and re-imaginations are made possible [62].”

    From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [62]

    Split into 2 atoms — 0 confirmed, 2 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.

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  • In Wilcox et al.'s work on trans wellness and care, community-driven infrastructures sometimes supplant institutional systems altogether, minimizing reliance on hostile institutions.

    “In Wilcox et al.’s [62] work on trans wellness and care, community-driven infrastructures sometimes supplant institutional systems altogether, minimizing reliance on hostile institutions.”

    From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [62]

    Section 7.3 says trans and non-binary people sometimes obtain care outside formal settings because of systemic exclusion, and that their care work supplants systemic abandonment. But it does not say community infrastructures supplant institutional systems altogether. Section 5.3 also describes participants using technology to find and access competent healthcare, rather than eliminating reliance on institutions. (LLM, conf=0.88)

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  • Recent HCI works on community-built infrastructures study the disruptions and the responses of marginalized communities but do not focus on mobilization and collaborative practices that serve as resistance within institutional contexts.

    “While recent HCI works on community-built infrastructures study the disruptions and the responses of marginalized communities [49, 52, 62], they do not focus on mobilization and collaborative practices that serve as resistance within institutional contexts.”
  • Access labour can be reframed as collective community infrastructuring by (in)formal care infrastructure; a relational and sustained practice rather than an individualized responsibility.

    “First, we enrich understandings of access labour by reframing it as collective community infrastructuring [49, 62] by (in)formal care infrastructure; a relational and sustained practice rather than an individualized responsibility.”
  • Prior work has examined routine infrastructuring primarily within dispersed or loosely institutionalized networks.

    “Prior work [49, 52, 62] has examined routine infrastructuring primarily within dispersed or loosely institutionalized networks.”

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Cited by

Sorted by citations

Authors
Wilcox, L., Shelby, R., Veeraraghavan, R., Haimson, O. L., Erickson, G. C., Turken, M., & Gulotta, R.
Affiliations
  • Google (United States) (US)
  • Georgetown University (US)
  • University of Michigan (US)
Venue
Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
Publisher
ACM
Published
2023-04-19
Pages
1-17
OpenAlex
W4366547784
Cited by
34
References
6
Citations by year
2026: 9 · 2025: 14 · 2024: 9 · 2023: 2
FWCI
17.01
Type
conference paper
Language
en
Open access
Locations
CHI Conference on Human Factors in Computing Systems (publishedVersion, cc-by)
Topics
  • Social Sciences › Psychology › Social Psychology › LGBTQ Health, Identity, and Policy
  • Physical Sciences › Computer Science › Human-Computer Interaction › Innovative Human-Technology Interaction
  • Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
Keywords
transgender people, non-binary people, health monitoring, well-being, care infrastructure, socio-technical interactions, precarity, cross-cultural comparison

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