How and Why do Parents Choose Early Intensive Behavioral Intervention for their Young Child with Autism?
Open accessAbstract
Although the evidence of effectiveness of Early Intensive Behavioral Intervention (EIBI) for children with autism is growing, very little is known about the process parents go through in deciding to implement such a program. We interviewed 30 mothers whose children had been on an EIBI program to investigate more systematically how and why they chose EIBI. Typically mothers were informed about EIBI through other parents, books and the internet. Their expectations of treatment outcomes ranged from their child being cured of autism to no clear expectations. Some families had access to funding through their local educational department, some had to fund part or the whole program themselves, whereas some received funding after a dispute with their educational department.
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Families face considerable difficulty simply learning about, advocating for, and selecting among available supports.
“Families face considerable difficulty simply learning about, advocating for, and selecting among available supports (Brewer, 2018; Tzanakaki et al., 2012)”
From Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework (2022) · cites this paper as Tzanakaki et al., 2012
Cites
Virués-Ortega, J. (2010) · Clinical Psychology Review · doi:10.1016/j.cpr.2010.01.008 · Cited by 615 · see citing works
Remington, B., Hastings, R. P., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., Alsford, P., Lemaic, M., & Ward, N. (2007) · American Journal on Mental Retardation · doi:10.1352/0895-8017(2007)112[418:eibiof]2.0.co;2 · Cited by 402 · see citing works
Self-citationHastings, R. P., & Johnson, E. (2001) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1010799320795 · Cited by 356 · see citing works
Self-citationParents’ experiences of home-based applied behavior analysis programs for young children with autism
Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0597-z · Cited by 165 · see citing works
Effectiveness of Intensive Behavioral Intervention in a large, community-based program
Perry, A., Cummings, A., Dunn Geier, J., Freeman, N. L., Hughes, S., LaRose, L., Managhan, T., Reitzel, J.-A., & Williams, J. (2008) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2008.01.002 · Cited by 142 · see citing works
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Schuck, R. K., Tagavi, D. M., Baiden, K. M. P., Dwyer, P., Williams, Z. J., Osuna, A., Ferguson, E. F., Jimenez Muñoz, M., Poyser, S. K., Johnson, J. F., et al. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05316-x · Cited by 208 · see citing works
“Families face considerable difficulty simply learning about, advocating for, and selecting among available supports (Brewer, 2018; Tzanakaki et al., 2012), and when providers fail to provide families with the information they need to make informed choices, this task naturally becomes even more challenging.”
Background
- Authors
- Tzanakaki, P., Grindle, C., Hastings, R. P., Hughes, J. C., Kovshoff, H., & Remington, B.
- Affiliations
- Bangor University (GB)
- University of Southampton (GB)
- Corresponding author
- Tzanakaki, Pagona
- Venue
- Education and Training in Autism and Developmental Disabilities
- Publisher
- SAGE Publications
- Published
- 2012-03
- Volume
- 47
- Issue
- 1
- Pages
- 58-71
- ISSN
- 2154-1647 (ISSN-L)
- 3068-1391
- OpenAlex
- W1818527585
- Cited by
- 24
- References
- 5
- Citations by year
- 2026: 1 · 2025: 1 · 2021: 2 · 2020: 3 · 2019: 3 · 2018: 1 · 2017: 3 · 2016: 3 · 2014: 2 · 2013: 4 · 2012: 1
- FWCI
- 1.14
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Locations
- Education and Training in Autism and Developmental Disabilities (publishedVersion)
- University of Birmingham Research Portal (University of Birmingham) (publishedVersion)
- University of Warwick (cc-by)
- Education and Training in Autism and Developmental Disabilities
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
- Keywords
- early intensive behavioral intervention, autism spectrum disorder, parental decision-making, treatment selection, mothers, treatment expectations, treatment funding, young children
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