Parents’ experiences of home-based applied behavior analysis programs for young children with autism
Abstract
Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.
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Raising a child with autism involves chronic challenges consistently associated with high levels of psychological distress.
“It has been widely demonstrated that raising a child with autism involves chronic challenges consistently associated with high levels of psychological distress [3,4,5,6].”
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- Authors
- Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B.
- Affiliations
- Bangor University (GB)
- University of Southampton (GB)
- Corresponding author
- Grindle, Corinna F.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2008-06-06
- Volume
- 39
- Issue
- 1
- Pages
- 42-56
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2034027822
- Cited by
- 165
- References
- 37
- Citations by year
- 2026: 6 · 2025: 9 · 2024: 3 · 2023: 14 · 2022: 11 · 2021: 14 · 2020: 9 · 2019: 11 · 2018: 12 · 2017: 13 · 2016: 7 · 2015: 11 · 2014: 8 · 2013: 9 · 2012: 9
- FWCI
- 3.10
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- University of Birmingham Research Portal (University of Birmingham) (publishedVersion)
- ePrints Soton (University of Southampton) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
- Keywords
- autism spectrum disorder, early intensive behavioral intervention, applied behavior analysis, home-based intervention, parental experiences, family impact, family support networks, young children, parental attitudes
- MeSH terms
- Ambulatory Care, Autistic Disorder, Behavior Therapy, Child, Child, Preschool, Consumer Behavior, Education, Family Relations, Female, Follow-Up Studies, Humans, Language Development Disorders, Male, Socialization, Parenting, Cost of Illness, Early Intervention, Educational
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